Long-Term Quality of Life after Hematopoietic Cell Transplantation for Sickle Cell Disease: A Preliminary Report from the Sickle Cell Transplant Evaluation of Long Term and Late Effects Registry (STELLAR)
Arnold S, Bakshi N, Chang Z, Ross D, Abraham A, Bhatia M, Guilcher G, Haight A, Hsieh M, Kasow K, Lane P, Meacham L, Olowoselu F, Krishnamurti L. Long-Term Quality of Life after Hematopoietic Cell Transplantation for Sickle Cell Disease: A Preliminary Report from the Sickle Cell Transplant Evaluation of Long Term and Late Effects Registry (STELLAR). Blood 2021, 138: 425. DOI: 10.1182/blood-2021-154280.Peer-Reviewed Original ResearchHematopoietic cell transplantationSickle cell diseaseT-scoreSignificant associationTransplant evaluationED visitsHealthcare utilizationPain interferenceCell transplantationCell diseaseRecipients of HCTHLA-identical family donorIdentical family donorLong-term HRQoLFrequency of painEmergency department visitsLong-term survivorsProgressive organ damageChronic persistent painLength of stayAge 18 yearsSAS version 9.4Significant differencesQuality of lifePaucity of dataA pilot study of the acceptability, feasibility and safety of yoga for chronic pain in sickle cell disease
Bakshi N, Cooley A, Ross D, Hawkins L, Sullivan M, Astles R, Sinha C, Katoch D, Peddineni M, Gee B, Lane P, Krishnamurti L. A pilot study of the acceptability, feasibility and safety of yoga for chronic pain in sickle cell disease. Complementary Therapies In Medicine 2021, 59: 102722. PMID: 33892094, PMCID: PMC8284565, DOI: 10.1016/j.ctim.2021.102722.Peer-Reviewed Original ResearchConceptsProportion of participantsSafety of yogaChronic painSickle cell diseaseYoga sessionsYoga programED visitsMedian ageCell diseasePart ARetention of participantsFeasibility endpointsPain characteristicsPart BPain diaryAdolescent patientsYoga interventionClinical trialsPatient participantsSafety outcomesPainPilot studyMost participantsStudy assessmentYoga