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Community in a Time of Crisis Virtual Opening

March 09, 2021
  • 00:03Welcome welcome to our virtual opening
  • 00:06of the Community in time of crisis,
  • 00:10Yale New Haven HIV AIDS from 1981 to 1996.
  • 00:14Thank you all for coming almost 300
  • 00:18people RSVP's to be part of this
  • 00:22celebration and I truly considered
  • 00:24a celebration for those of us who
  • 00:28lived through this time period.
  • 00:31You will get a chance to hear
  • 00:33from some of your colleagues.
  • 00:36You have a slate of speakers
  • 00:38who they will talk from.
  • 00:40Personal experiences will be having the
  • 00:42Dean talk and we will also be showing
  • 00:45you a video of the virtue of virtual
  • 00:48video of the actual exhibit itself.
  • 00:51So again, thank you so much for being here.
  • 00:54I hope you enjoy but also allow
  • 00:57yourself to reflect back during this
  • 00:59time period and allow yourself to feel.
  • 01:02Whatever it is that you choose to feel.
  • 01:05Now I would like to introduce
  • 01:08our Dean Nancy Brown.
  • 01:10She is a Dean of the School of Medicine.
  • 01:14She is a professor in internal medicine.
  • 01:17She graduated from Yale College and
  • 01:20completed medical school at Harvard.
  • 01:22She created her research portfolio
  • 01:25around translational research,
  • 01:26developing new pharmacological strategies
  • 01:28to prevent basket disease in patients
  • 01:31with high blood pressure and diabetes.
  • 01:34Prior to coming to Yale.
  • 01:36She was the chair of the Department
  • 01:39of Internal Medicine at Vanderbilt,
  • 01:41and their physician chief for the
  • 01:45Vanderbilt University Hospital.
  • 01:47The Dean's research has been recognized
  • 01:49by the American Heart Association,
  • 01:52the American Association of Hypertension,
  • 01:54and the American Federation
  • 01:56of Clinical Research.
  • 01:58The Dean is a fellow in the American
  • 02:01Association of Advancement Science,
  • 02:03a member of the American Society
  • 02:06of Clinical Investigation,
  • 02:07the American Association of Physicians,
  • 02:09and the National Academy of Medicine.
  • 02:12Help me welcome, Dean Brown.
  • 02:16Thank
  • 02:16you and thank you all for joining us.
  • 02:19I am so delighted to welcome you to this
  • 02:22virtual opening of an important exhibit.
  • 02:24At the beginning of 2019,
  • 02:26the program for Art in public spaces began
  • 02:29the task of evaluating the artwork in
  • 02:32the School of Medicine's public spaces.
  • 02:35The goal of this program is to ensure
  • 02:37that our artwork reflects the diversity,
  • 02:40history and accomplishments of
  • 02:42the members of our community.
  • 02:44This can be seen in Aperture 2.
  • 02:47The latest in a series of portraits
  • 02:49in the hallway leading to the
  • 02:51Beaumont Room highlighting are women,
  • 02:53faculty and self reflection.
  • 02:55Featuring artwork created by faculty,
  • 02:57students and staff.
  • 02:58Currently on display on the 1st
  • 03:01floor of Sterling Hall of Medicine
  • 03:03outside the Medical Library.
  • 03:05These exhibits have transformed our
  • 03:08hallways with vibrant artwork about or by
  • 03:11individuals who contribute to all that we do.
  • 03:15Portraits of the late Deputy
  • 03:16Dean Carolyn Slaman and renowned
  • 03:18epidemiologist Dorothy horsemen,
  • 03:20the first woman to be a full
  • 03:22professor at Yale School of Medicine.
  • 03:25Augment this work.
  • 03:26Paying tribute to two important
  • 03:28members of our faculty,
  • 03:29but the portraits themselves.
  • 03:32Speak as a style of artwork in an open NIS.
  • 03:37Not seeing another portraits on our hallways.
  • 03:42The opening of community in a time of crisis,
  • 03:45Yale,
  • 03:45New Haven and HIV aids further
  • 03:48transforms a space at the heart
  • 03:50of Sterling Hall of Medicine,
  • 03:52the hallway outside the Deans office.
  • 03:55The program for art in public spaces
  • 03:59thus continues this work in telling
  • 04:02the stories and history of our school.
  • 04:06The exhibit explores a time
  • 04:08not unlike our current time,
  • 04:10in which we find ourselves.
  • 04:12It showcases the journey from the
  • 04:15beginning when the CDC published report
  • 04:18about a puzzling an unnamed illness.
  • 04:21Through the next 15 years,
  • 04:23when many came together at Yale and in
  • 04:26New Haven through research activism.
  • 04:29Inpatient care to battle aids.
  • 04:32This exhibit highlights 2
  • 04:34qualities that enrich our school.
  • 04:39One is the part of citizenship of
  • 04:42our diverse community in our diverse
  • 04:45community in New Haven, in particular,
  • 04:47the other is collaboration among faculty,
  • 04:50students, and Staffs.
  • 04:53In terms of participating in creating
  • 04:56this exhibit and featured in it.
  • 04:58Shortly you will be hearing from
  • 05:01some of the people who were at the
  • 05:04front lines during a challenging time
  • 05:06and his work shaped the progress.
  • 05:09We have made an understanding
  • 05:12and in treating HIV and AIDS.
  • 05:15Before we begin the program,
  • 05:17I would like to extend my thanks
  • 05:19to Deputy Darren Latimore.
  • 05:20I would also like to thank not only the
  • 05:23committee but the graduate students
  • 05:24in the history of science and Medicine
  • 05:26program in the Department of History,
  • 05:28who created this exhibit under the
  • 05:30direction of Professor Naomi Rogers,
  • 05:32the program for Art in public spaces.
  • 05:34Executive Committee,
  • 05:34as I said,
  • 05:35which guided their work and the staff
  • 05:37members of the Office of Communications
  • 05:39who helped to bring it to fruition.
  • 05:42Welcome everybody and enjoy.
  • 05:49Thank you so much.
  • 05:50Dean Brown and Dean Lattimore.
  • 05:53If we can put up that next slide,
  • 05:56I'm Anna Reisman.
  • 05:58I Co direct perhaps the
  • 06:00program from public spaces,
  • 06:02along with Darren Lattimore and.
  • 06:06I just wanted to draw your
  • 06:09attention to this list of.
  • 06:12Of people who were generous
  • 06:14with their time and during the
  • 06:18graduate student teams work,
  • 06:20which I should say.
  • 06:23Took place under unique circumstances.
  • 06:25An really had the team lead
  • 06:27were faced with all kinds of
  • 06:29challenges early in the pandemic,
  • 06:31which is when this began and really
  • 06:33they were unable to do what they
  • 06:35are here in Graduate School to
  • 06:37do and to get into the archives.
  • 06:40So almost every part of the research
  • 06:42that led to this exhibit was done
  • 06:44via zoom via phone interviews via
  • 06:46Internet searching and the slide that
  • 06:48you're looking at now includes many,
  • 06:51many amazing people who the
  • 06:52research team spoke with.
  • 06:54Who were really,
  • 06:55really generous with their time
  • 06:56and and really made the exhibit
  • 06:58what it is and you will hear
  • 07:00from some of them today.
  • 07:02First thing that we're going to do
  • 07:04is show you a short video that is a
  • 07:06walking tour of the physical exhibit,
  • 07:08which is now displayed on the 2nd
  • 07:10floor of Sterling Hall of Medicine,
  • 07:12and it is narrated by Sarah Pickman
  • 07:14who was the leader of the graduate
  • 07:16student team and this runs for
  • 07:18about four and a half minutes.
  • 07:25Welcome to community.
  • 07:27In a time of crisis, Yale,
  • 07:29New Haven and HIV AIDS 1981 to 1996.
  • 07:34This exhibition on display at the Yale
  • 07:36School of Medicine tells the story of how
  • 07:39the AIDS epidemic of the 1980s and early
  • 07:411990s affected the people of New Haven,
  • 07:44CT and how a group of individuals
  • 07:46from Yale University and the
  • 07:48surrounding community came together
  • 07:49to fight this deadly disease.
  • 07:51The exhibition was organized by the School of
  • 07:54Medicine's Program for Art in Public Spaces,
  • 07:56or perhaps a group of faculty,
  • 07:58staff and trainees that works to
  • 08:00ensure that art work in public
  • 08:02areas that the School of Medicine.
  • 08:04Reflects the mission, history,
  • 08:06and diversity of the schools community.
  • 08:08Community in a time of crisis was
  • 08:10curated by 5 doctoral students from
  • 08:12Yale's program in History of Science
  • 08:15and Medicine in collaboration with Paps.
  • 08:17The exhibition draws on materials
  • 08:19from Yale University's archives,
  • 08:21New Haven Newspapers,
  • 08:22Scholarship on the AIDS epidemic,
  • 08:23and conversations with individuals who
  • 08:25are part of this history who generously
  • 08:28gave their time and shared materials
  • 08:31from their personal collections.
  • 08:33The exhibition begins in 1981,
  • 08:35the year that the US Centers for
  • 08:37Disease Control and Prevention.
  • 08:39First noted in an official publication,
  • 08:41what soon came to be known as acquired
  • 08:44immunodeficiency syndrome or AIDS?
  • 08:46Within the year it was clear that
  • 08:48the disease was affecting many
  • 08:50individuals in the New Haven area,
  • 08:52including a disproportionate number of
  • 08:54people of color and intravenous drug users.
  • 08:56Due to a lack of access to healthcare,
  • 08:59poverty and defecto segregation in the city.
  • 09:01However,
  • 09:02as in other places in the United States,
  • 09:04there was no coordinated care response
  • 09:06to AIDS in these early years.
  • 09:09People with AIDS in the early 1980s
  • 09:11faced not only a disease with no cure
  • 09:14and no effective treatment options,
  • 09:16but also discrimination and
  • 09:17institutional indifference.
  • 09:18In these desperate circumstances,
  • 09:19a group of people affiliated with
  • 09:21Yale and neighboring organizations
  • 09:23in New Haven came together.
  • 09:24They came from different backgrounds
  • 09:26and had different sets of expertise,
  • 09:28but they put their skills,
  • 09:30energy and compassion together in
  • 09:31creative ways to fight the ongoing crisis.
  • 09:34This exhibition tells some of these stories.
  • 09:37Community in a time of crisis is
  • 09:39divided into several sections.
  • 09:41In one section,
  • 09:42the exhibition explores the role of
  • 09:44several New Haven based organizations
  • 09:47that provided resources ranging
  • 09:49from counseling to meal delivery.
  • 09:51To those affected by AIDS,
  • 09:53sometimes in collaboration with Yale.
  • 09:56Another section discuss is New Haven's
  • 09:58groundbreaking needle exchange program,
  • 10:00which Again,
  • 10:00in the mid 1980s,
  • 10:02a dedicated coalition of Yale and
  • 10:04New Haven students,
  • 10:05activists and physicians worked
  • 10:07together to distribute clean syringes to
  • 10:09intravenous drug users around New Haven.
  • 10:11Yale researchers found that the
  • 10:13needle exchange program dramatically
  • 10:14cut infection rates in New Haven,
  • 10:16and the program became a model for
  • 10:19similar needle exchanges around the US.
  • 10:23In the early years of the AIDS crisis,
  • 10:26caregiving activism and harm reduction
  • 10:27initiatives were just as powerful in
  • 10:29fighting the disease as clinical treatments.
  • 10:31Another section of this exhibition highlights
  • 10:33Yale student activists who worked to
  • 10:36raise awareness about the disease and
  • 10:37the lack of a coordinated response to it,
  • 10:40sometimes risking arrest.
  • 10:41The exhibition also describes the
  • 10:43dedicated and compassionate actions
  • 10:44of Yale physicians, nurses,
  • 10:46social workers and administrators who
  • 10:48coordinated care for patients with
  • 10:50AIDS in the 1980s and early 1990s,
  • 10:52often working with limited resources
  • 10:54and support,
  • 10:55their work evolved in the mid 1990s
  • 10:57with the introduction of combination
  • 10:59therapies that transformed AIDS
  • 11:01from a fatal illness into a chronic
  • 11:04one that could be managed with
  • 11:06medication and clinical support.
  • 11:09Community in a time of crisis
  • 11:10concludes with a discussion of
  • 11:12the legacies of AIDS treatment,
  • 11:14activism,
  • 11:14research and care at Yale and in New Haven,
  • 11:17as well as with a piece of original
  • 11:19artwork inspired by the AIDS crisis and
  • 11:21a special aids quilt that was created
  • 11:23for the community organization AIDS Project.
  • 11:25New Haven and generously
  • 11:27lent by its caretaker.
  • 11:29Even if you can't visit in person
  • 11:31at the Yale School of Medicine,
  • 11:33we encourage you to explore
  • 11:34the exhibition's website.
  • 11:35We hope you have enjoyed this brief
  • 11:37introduction to the exhibition
  • 11:38community in a time of crisis.
  • 11:48OK so I am so pleased to move us into
  • 11:52the second half of our opening event.
  • 11:55Some of the people who contributed to
  • 11:57this exhibit who played all kinds of
  • 12:00roles in those early days are here today,
  • 12:02and many are tuned in here today and
  • 12:04we are honored that four of them
  • 12:06have agreed to share some brief
  • 12:08reflections about their experiences
  • 12:09with AIDS and HIV and Community at
  • 12:12Yale and in New Haven, then and now.
  • 12:15I invite you to put your questions
  • 12:18in the Q&A at the bottom of the zoom
  • 12:21screen and we should have a little
  • 12:24time at the end to take questions.
  • 12:27I will start by introducing our
  • 12:29first speaker, Edward Kaplan.
  • 12:32Professor Kaplan is the William N Annemarie,
  • 12:35a beach professor of operations research,
  • 12:37public health and engineering at
  • 12:39Yale University School of Management.
  • 12:41His research in HIV prevention in general,
  • 12:44and needle exchange in particular has been
  • 12:47recognized with numerous research prices.
  • 12:49Currently,
  • 12:50he is working on responding to local
  • 12:53coronavirus outbreaks and his advise
  • 12:55the University as a member of yells,
  • 12:57COVID-19 Public Health Committee.
  • 13:02Go ahead at thank
  • 13:04you very much. Anna Ann.
  • 13:05I want to thank the exhibits curators,
  • 13:08Christine, Megan, Sarah,
  • 13:09Maya and Beans for creating this
  • 13:12informative and deeply moving
  • 13:13display and good evening everyone.
  • 13:15It's so great to have you all here.
  • 13:19In nineteen 9029% of the 200,000 US AIDS
  • 13:23cases today were among drug injectors.
  • 13:27But that percentage grew to 47% in
  • 13:30Connecticut and 61% in the New Haven area.
  • 13:34New Haven's signature response
  • 13:36was the needle exchange program,
  • 13:38and the exhibit documents
  • 13:40how this program came about,
  • 13:42how it was delivered,
  • 13:44its scientific evaluation,
  • 13:45and the public health policy consequences.
  • 13:48I urge you to watch the
  • 13:50needle exchange video,
  • 13:52for you will see and hear from
  • 13:54program clients outreach workers,
  • 13:56the AIDS Division director,
  • 13:57New Haven's Police Chief,
  • 13:59and the researchers.
  • 14:00The needle exchange was emblematic of
  • 14:03how people came together to address
  • 14:06the HIV AIDS crisis in New Haven.
  • 14:09When it came to evaluating
  • 14:10the needle exchange,
  • 14:12necessity really was the mother of invention.
  • 14:14Elaine O'Keefe,
  • 14:15New Haven's AIDS Division director,
  • 14:17prohibited conducting HIV
  • 14:18tests on program clients.
  • 14:19You see, there were no real treatments,
  • 14:22no life preserving anti retroviral drugs,
  • 14:24but receiving a positive test would add
  • 14:27that is stigma of injecting drug use.
  • 14:30In short,
  • 14:30if clients were to be tested,
  • 14:33there would have been no clients.
  • 14:35Not being allowed to test people
  • 14:37forced us to think of alternatives.
  • 14:39This led to the design of a system
  • 14:41for tracking and testing needles to
  • 14:43evaluate the program, in essence,
  • 14:45letting the needles do the talking.
  • 14:47Of course I had no idea how
  • 14:50to test needles for HIV.
  • 14:52I ran around Dale,
  • 14:53asking chemists, biologists,
  • 14:54engineers how to test needles.
  • 14:56Eventually former chair of Internal
  • 14:59Medicine Ed Cabman introduced me to
  • 15:02a laboratory wizard named Rob Heimer.
  • 15:04That had a PCR machine and Rob now
  • 15:07Professor Hymer figured out how
  • 15:09to use it to detect HIV proviral
  • 15:12DNA in used needles.
  • 15:13This was one of your first
  • 15:15applications of PCR.
  • 15:16Everyone knows where PCR is today.
  • 15:19Thanks to covid testing or black thereof.
  • 15:22But our use of PCR in the early
  • 15:241990s was sometimes characterized
  • 15:26as politically correct research.
  • 15:28Rob talks about his work in
  • 15:30the video exhibit,
  • 15:31which you can see a photo of the
  • 15:34doctoral student and now Professor
  • 15:36Kaveh Kushner at work in the lab,
  • 15:39along with technician Beanie Jariwala.
  • 15:42Fast forward for a moment,
  • 15:44almost exactly one year ago.
  • 15:46Given the lack of coronavirus testing,
  • 15:48Soto Mayor Albert Cohen,
  • 15:49I wondered whether some form of
  • 15:51environmental monitoring might
  • 15:53help track community outbreaks.
  • 15:55Again,
  • 15:55a search to find the right
  • 15:57person who knew how to do this.
  • 15:59We quickly learned quickly learned
  • 16:01that all roads lead to Jordan Pet.
  • 16:03She and environmental engineering
  • 16:05in less than two weeks,
  • 16:06Jordan had students collecting
  • 16:08sludge samples that,
  • 16:08in time,
  • 16:09revealed the speed and force of
  • 16:11that first covid wave viral RNA
  • 16:13and sewage sludge is now being
  • 16:15tracked at 6 wastewater treatment
  • 16:17plants across the state and seeing
  • 16:19this collaboration take shape
  • 16:20for me was deja vu
  • 16:22all over again.
  • 16:24Back to the 1980s and 90s,
  • 16:26there was a remarkable and formative
  • 16:28experience as a young junior professor
  • 16:31and yells management school.
  • 16:33My hero was Alvin Novick,
  • 16:35a biology professor,
  • 16:36chair of the New Haven Mayor's
  • 16:39Task Force on AIDS and a World War
  • 16:42Two prisoner of War Camp survivor.
  • 16:45As inscribed on his memorial
  • 16:46bench and at Griffin Park.
  • 16:48Also shown in the exhibit,
  • 16:50Al was ahead of his time.
  • 16:52My go to seminar was yaks,
  • 16:55the Yale aids Colloquium series.
  • 16:57You can see a flyer announcing AXA
  • 16:59needs in a conic section of the display.
  • 17:03Many of the interlocutors
  • 17:05and others present tonight.
  • 17:07Will regular attendees of the IAC seminars.
  • 17:10One last thought.
  • 17:11During the years covered by this exhibit.
  • 17:15There was a spirit of cooperation
  • 17:17among affected communities.
  • 17:18On the one hand, and yells clinicians,
  • 17:20medical and social science researchers
  • 17:22working on HIV aids on the other.
  • 17:25We had a shared purpose and
  • 17:27we were on the same team.
  • 17:30Thank you.
  • 17:35Thank you so much, Chad.
  • 17:39Really appreciate those remarks.
  • 17:40Next up will be Leetha Filderman,
  • 17:43who currently serves as the
  • 17:45president of the Poptech Institute,
  • 17:47where she overseas a portfolio
  • 17:48focused on global health,
  • 17:50environment, social justice,
  • 17:51peace and security.
  • 17:52Her approach to cross sector solution
  • 17:55development is profoundly influenced
  • 17:57by her work on the front lines of the
  • 17:59AIDS epidemic over nearly two decades,
  • 18:02she developed a number of programs
  • 18:04that opened access to state of the art
  • 18:08care for persons living with HIV AIDS.
  • 18:10In service to the Yale New Haven
  • 18:13Hospital aids care program as well as
  • 18:16similar programs in Boston and Chicago.
  • 18:18I'll turn it over to you, Lisa.
  • 18:22Well, thank you Anna.
  • 18:23It's an absolute honor to join
  • 18:25all of you today for the opening
  • 18:27of Community in a time of crisis.
  • 18:29I wish we were able to be together to
  • 18:32experience this amazing exhibit first hand.
  • 18:34I was intrigued when I got a note from
  • 18:37Sarah Pittman last summer about the
  • 18:40curation of an exhibit capturing the early
  • 18:43days of the HIV epidemic in New Haven.
  • 18:46This exhibit is historically significant.
  • 18:47It serves to remind us of the
  • 18:50sociopolitical challenges that run tandem
  • 18:52take global health crises like covid,
  • 18:54these events uncover long-term in equities,
  • 18:57fuel discrimination,
  • 18:57set the stage for stigma and lay bare,
  • 19:00lay bare the enormous human suffering and
  • 19:03premature loss of life that they cause.
  • 19:06AIDS, perhaps more than any other modern era.
  • 19:10Global health crisis,
  • 19:11including Kovid,
  • 19:12had the astonishing ability to
  • 19:15make the invisible visible.
  • 19:17While my first encounters with
  • 19:19and as an AIDS care provider,
  • 19:21go back to my time at La County
  • 19:24USC Medical Center in Los Angeles.
  • 19:26It was in the summer of 1985 at the
  • 19:29suggestion of my beloved mentor whose
  • 19:31bed mentioned Alvin Novick that I applied
  • 19:34for the AIDS coordinator position at Yale,
  • 19:36New Haven Hospital.
  • 19:37In September of 1985,
  • 19:39I became the third person to hold
  • 19:41that role in the span of just a
  • 19:44few years prior to coming to Yale,
  • 19:47I helped establish.
  • 19:48The first comprehensive home care
  • 19:50program in Connecticut for people
  • 19:52with AIDS under the auspices
  • 19:54of the Viennet of New Haven.
  • 19:56I did not step into the program
  • 19:58that you see portrayed here today.
  • 20:00Nor did I alone create the atmosphere
  • 20:03that led to the eventual establishment
  • 20:05of the AIDS Care program at Yale.
  • 20:08I was simply a catalyst or a sum
  • 20:10that found my suggestions for a
  • 20:13chronic improvement challenging.
  • 20:15I suppose I was considered a quote
  • 20:18unquote handful to put it politely.
  • 20:20Many remarkable individuals and
  • 20:23organizations collaborated to create
  • 20:25an ecosystem that eventually ensured
  • 20:27access to state of the art care,
  • 20:29including experimental drugs
  • 20:31in other types of treatments,
  • 20:33access to school for children with HIV,
  • 20:36AIDS, needle exchange programs,
  • 20:38secure housing in a multitude of
  • 20:40community based services that provided care,
  • 20:43benefits, support,
  • 20:44and education.
  • 20:45I would be remiss not to share the
  • 20:48stage with side-by-side colleagues
  • 20:50within and outside of Yale.
  • 20:53They were my support system,
  • 20:54my expertise pool,
  • 20:55and my inspiration to fight the
  • 20:57fight when it seemed insurmountable.
  • 21:00There are two people I owe a
  • 21:02tremendous debt of gratitude to
  • 21:04Warren and men who came to me in
  • 21:07early 1986 to ask if he could spend
  • 21:10his sabbatical year learning about
  • 21:12AIDS and experience that undoubtedly
  • 21:14changed his life as well as mine.
  • 21:16And when that set the stage for what
  • 21:19would become the AIDS care program,
  • 21:21Warren,
  • 21:21of course is well known for his
  • 21:24skills as a clinician in a researcher.
  • 21:26But it really is his commitment to
  • 21:29children with HIV aids in their family
  • 21:32that sets him apart as a true humanitarian.
  • 21:35The second person I would like to
  • 21:37acknowledge is Avis Bers who served as
  • 21:40the administrative assistant for the
  • 21:42AIDS care program in its earliest years.
  • 21:45She said an example of professionalism,
  • 21:47kindness, and optimism that guided
  • 21:49every single member of our staff.
  • 21:52She truly was a rock of Gibraltar.
  • 21:54Our little staff was stellar.
  • 21:56Warren Avis.
  • 21:57Joyce Simpson June Homes Bill Sibella.
  • 22:00Joan Alfieri an later Rick Altys
  • 22:02in Helena Brett Smith too.
  • 22:04It was my honor to serve in
  • 22:07the foxhole with that posse.
  • 22:09Many clinicians donated their
  • 22:10time in the AIDS clinic,
  • 22:12helping me avoid practicing
  • 22:14medicine without a license,
  • 22:15which was eyes truly a risk.
  • 22:18In the days when our our clinic
  • 22:20was very thinly staffed,
  • 22:22there were people like end Williams,
  • 22:25John Rankin, Vinny Quagliarella,
  • 22:26Low, David Podell, Frank Villa.
  • 22:28John Boos Lloyd Friedman Phil asking
  • 22:31ace Phil Dickey David August,
  • 22:33Stephen Stein and the person who would
  • 22:35later become my life long partner in crime.
  • 22:39My husband, Andy Filderman Ann.
  • 22:40Yes,
  • 22:41there were a number of yentas for that one,
  • 22:44including a patient in common than a few
  • 22:47of the colleagues I have mentioned before.
  • 22:50Then there was Bob Levine,
  • 22:52Angela Holder and Nancy Angoff who
  • 22:54provided so much support to the
  • 22:57AIDS program staff as treatment
  • 22:59options became more accessible.
  • 23:00We gotta.
  • 23:01We got really good at treating
  • 23:03the medical problems,
  • 23:05but there were not easy remedies
  • 23:07for the multitude of ethical
  • 23:08dilemmas and challenges that we were
  • 23:11confronted with on a daily basis.
  • 23:13End of life conversations duty
  • 23:15to warn duty to do no harm.
  • 23:17The balance of truthfulness and hope.
  • 23:19These issues kept me awake at night
  • 23:22and I am always grateful to Bob,
  • 23:24Angela and Nancy for providing us
  • 23:27with an ethical framework that made
  • 23:29navigating the current so much easier.
  • 23:32There is little chance the AIDS
  • 23:34program would have evolved to its
  • 23:36status as a stand alone program
  • 23:38if it were not for the enduring
  • 23:40support of people like John Finn,
  • 23:42Ed, Cadman, Dean Rosenberg,
  • 23:43Ed Rawlings,
  • 23:44and the trustees at Yale New Haven Hospital.
  • 23:47I I don't think we would have succeeded
  • 23:50in creating a multidisciplinary program
  • 23:51without the expertise beyond Yale's Walls,
  • 23:54AIDS project.
  • 23:55New Haven taught me how to be an
  • 23:57advocate and has provided endless
  • 23:59support in the form of direct services
  • 24:01to people with AIDS and Community education.
  • 24:04Ever since,
  • 24:05Harlon Dalton and his colleagues
  • 24:07at the Yellow Law School took on a
  • 24:10variety of legal issues on behalf of
  • 24:12people with AIDS in the New Haven community.
  • 24:15In the state of Connecticut.
  • 24:18And our colleagues at the methadone
  • 24:20maintenance clinic taught us a thing
  • 24:22or two about empathy and respect.
  • 24:24This list could certainly go
  • 24:25on for a long time.
  • 24:27Of course,
  • 24:27my greatest appreciation goes to
  • 24:29our patients and their families.
  • 24:31They were truly endless fonts
  • 24:33of wisdom and our best teachers.
  • 24:36It does serve rare day even now that
  • 24:38I don't reflect on our conversations.
  • 24:41The dignity they exhibited when
  • 24:43they were there were setbacks,
  • 24:45and the moments of humor we shared.
  • 24:56Warren and I often refer to the early days.
  • 25:01As a good or battle date.
  • 25:04It's really, excuse me.
  • 25:06It really is a perfect way to sum
  • 25:09up those cumulative experiences
  • 25:11those years at Yale remain the
  • 25:14proudest of Mycareer an I'm forever
  • 25:16grateful to my colleagues and
  • 25:18mentors for their generosity,
  • 25:20their senses of humor in their
  • 25:22consummate commitment to humanity,
  • 25:23our shared experiences truly
  • 25:25did make a difference,
  • 25:26and they shape my life in many ways.
  • 25:29Many thanks to the Yale Medical
  • 25:31School program for art in public
  • 25:33spaces for their commitment to
  • 25:35memorial memorializing our work.
  • 25:37Thank you so much.
  • 25:43Thank you so much, Lisa Felderman,
  • 25:45that was beautifully put
  • 25:46with good old bad old days.
  • 25:51Sorry after phrase.
  • 25:52OK so I am now happy to introduce
  • 25:56Doctor Gerald Friedland.
  • 25:59Professor Emeritus of medicine,
  • 26:00Epidemiology and public health.
  • 26:02He has been directly involved in
  • 26:05clinical care and research for people
  • 26:07living with HIV and AIDS since 1981.
  • 26:10He helped develop and lead one of the
  • 26:13first programs in the US with a focus
  • 26:16on marginalized and stigmatized men,
  • 26:17women and children living with an at
  • 26:20risk for HIV and AIDS 10 years later,
  • 26:23in 1991, he came to yell to develop and
  • 26:25direct a similar and expanded Yale,
  • 26:28a program which is now a comprehensive,
  • 26:30compassionate and greatly admired
  • 26:32program in New Haven at Yale and Yale,
  • 26:34New Haven Hospital and beyond.
  • 26:36For people living with an at
  • 26:38risk for HIV and AIDS.
  • 26:44Sorry. OK. Thank you for inviting me,
  • 26:49Anna. Thank you for the introduction
  • 26:51and thank you for bringing some
  • 26:53of our colleagues together for
  • 26:55this wonderful, wonderful event.
  • 26:57Honey, let me see. Not seeing my text.
  • 27:10Home. Sorry.
  • 27:25OK. So as you heard, I arrived at
  • 27:30Yale in 1991 after a tense spending.
  • 27:33The first 10 years with the
  • 27:36HIV epidemic in the Bronx.
  • 27:38New York and at a time when New Haven
  • 27:41was among the 12 cities in the US in
  • 27:44which AIDS had become the leading cause
  • 27:46of death in young men and young women.
  • 27:50Ages 25 to 44. In Yale,
  • 27:54New Haven Hospital on a given day,
  • 27:57there were 50 people hospitalized
  • 28:00almost randomly throughout the
  • 28:02hospital and most was soon to die.
  • 28:04Nathan Smith Clinic already underway in
  • 28:07its early stages was severely underfunded
  • 28:09for the required needs of the New Haven.
  • 28:13Despite the wonderful people working there,
  • 28:15including Lisa and Warren, Andaman.
  • 28:19Had you heard?
  • 28:20Although the patients and
  • 28:21populations in New Haven were and
  • 28:23remain diverse in risk and race,
  • 28:25the M at the epidemic was being driven
  • 28:28by injection drug use among young
  • 28:30people with color not unlike the Bronx
  • 28:32in New York where I previously worked.
  • 28:35And I think one can contemplate
  • 28:38that pandemics,
  • 28:39both HIV AIDS and now covid share many feet.
  • 28:43Features. Among them is the initial denial.
  • 28:47Followed by despair and initial
  • 28:50and terrible leadership.
  • 28:52As we've experienced with
  • 28:54both of these epidemics.
  • 28:56They uncover all the flaws in
  • 28:59healthcare system and indeed society.
  • 29:01In both diseases have shed glaring
  • 29:04light on longstanding and continuing
  • 29:07poverty inequity racism with resultant
  • 29:11disproportionate devastating
  • 29:13consequences for individual communities.
  • 29:16Building on the extending and
  • 29:18pioneering HIV AIDS work illustrated
  • 29:21in this beautiful exhibit and
  • 29:23described so beautifully by Ed Kaplan
  • 29:25and Letha and needing to confront
  • 29:27the challenges of the stigmatized,
  • 29:30cruel and then almost invariably fatal
  • 29:32disease in New Haven and beyond,
  • 29:35we were able to obtain new resource
  • 29:37is from the hospital from the
  • 29:40medical school from the state,
  • 29:42from the federal government
  • 29:44and from foundations,
  • 29:45and recruited a wonderful and broad
  • 29:48array of additional colleagues doctors.
  • 29:50Nurses, social workers,
  • 29:51other health care workers,
  • 29:53scientists and many others.
  • 29:56How did we?
  • 29:57How did we overcome the challenges
  • 30:00that we face?
  • 30:02But I think it was said in this work.
  • 30:04I think I'm most important.
  • 30:06Teachers have been the patients themselves
  • 30:08listening to the patients and their needs.
  • 30:11And trying to meet them and learning
  • 30:14and understanding the nature of the HIV
  • 30:17virus and AIDS and their lethal tricks.
  • 30:20And to do this,
  • 30:21I have a sort of list of sees
  • 30:25as I'll go through,
  • 30:27and some of them mentioned.
  • 30:29The first is compassion,
  • 30:31but that's not enough competence is needed.
  • 30:34Comprehensiveness and continuity.
  • 30:37Also needed and so important among all of
  • 30:39these and already mentioned it is colleagues.
  • 30:42It's impossible to do this work alone.
  • 30:45What sustains us in doing our
  • 30:47work is doing it together.
  • 30:50Often the presence of college
  • 30:52is always listed as the first
  • 30:54reason for working in Hades.
  • 30:56Among those who do it,
  • 30:58creating new knowledge.
  • 31:00Both of these diseases,
  • 31:01diseases, HIV AIDS,
  • 31:03and COVID are new diseases in human history.
  • 31:06They share similarities,
  • 31:08but they are unique.
  • 31:10The importance of finding out of learning,
  • 31:14creating new knowledge about HIV
  • 31:17and AIDS is paramount in addressing
  • 31:20it and looking to their hand.
  • 31:24And then the last thing I'd say and
  • 31:26was sort of mentioned his courage and
  • 31:29resilience and humanity and wisdom.
  • 31:31For providers and also patients.
  • 31:35I remember learning this when
  • 31:37one of my patients said to me.
  • 31:40You know, Doc doctor,
  • 31:42you know that aids aids.
  • 31:44It's like life only faster.
  • 31:48And another transporting the patient
  • 31:50from the Nathan Smith Clinic to the
  • 31:54emergency Department in a wheelchair.
  • 31:56Breathing frequent breathing rapidly
  • 31:58properly with Pneumocystis Carinae pneumonia.
  • 32:01When we passed the food trucks he
  • 32:05held his hand up it said stop.
  • 32:09In turn to myself,
  • 32:10another college and said hey Doc can
  • 32:13I buy you lunch so our patients will
  • 32:16wise they had humanity and they had a
  • 32:19sense of humor and we cherish them.
  • 32:23To accomplish the seas over
  • 32:25the past three decades,
  • 32:27the AIDS program components
  • 32:28were expanded and brought it.
  • 32:30Now led by data spilling away that
  • 32:33include the Atkins Donaldson HIV AIDS,
  • 32:36inpatient service,
  • 32:37markedly improving.
  • 32:39And shortening hospitalization.
  • 32:41I'm in Hanst and also a site for
  • 32:44training of new doctors who will be the
  • 32:46next generation of AIDS doctors and
  • 32:49enhanced resource than comprehensive
  • 32:51Nathan Smith Clinic now led by Lindy.
  • 32:54About Linda Barrick Cotton Wynette
  • 32:57Stewart with close to 1000 patients.
  • 32:59HIV positive care on site,
  • 33:02substance use and mental health services.
  • 33:05HCV treatment.
  • 33:07Collaboration with other services,
  • 33:09including the pediatric
  • 33:11AIDS program and many,
  • 33:13many other components of HI in aid
  • 33:16of AIDS care and necessary and
  • 33:19insert it into the clinic as a one
  • 33:23Stop Community Clinic site so we
  • 33:26try to pack the clinic with as many
  • 33:30services as when necessary rather
  • 33:33than have patients get lossed trying
  • 33:35to explore the sometimes unfathomable.
  • 33:39Characters and entrances and exits at Yale.
  • 33:43Added to that was the needle exchange
  • 33:46program, directed by Rick Altise,
  • 33:48an ongoing patient,
  • 33:49and population partnerships with
  • 33:51multiple community programs such
  • 33:53as AIDS Project in Hammond.
  • 33:55In a large and varied portfolio of research,
  • 33:59including NIH and Industry Pro funded
  • 34:02programs, cutting edge clinical trials,
  • 34:05only therapies and prevention
  • 34:07strategies led by meiko Zalan,
  • 34:09Ounianga Bogu,
  • 34:10and in total more than 100 clinical trials,
  • 34:14many tailored to the needs of people
  • 34:17who inject drugs.
  • 34:19And of course, new cutting edge therapies
  • 34:22were founded were started or completed.
  • 34:26I'm here at Yale.
  • 34:27This experience and expertise have
  • 34:30now been refocused successfully on
  • 34:33Sarah's Covert 2 vaccine trials.
  • 34:36With all of this in place,
  • 34:38we've seen and participated in
  • 34:40the miraculous conversion of Hi
  • 34:42Apas into a chronic disease still
  • 34:45challenging in so many ways,
  • 34:47but enabling a young man or woman
  • 34:49with HIV infection with proper
  • 34:51treatment and care to achieve a
  • 34:54normal or near normal life expectancy.
  • 34:57As an aging senior citizen.
  • 35:00Who would have thought that was
  • 35:02possible when we first started stigma,
  • 35:05though,
  • 35:06is still present but partially
  • 35:08mitigated by scientific studies
  • 35:10that we participated in about
  • 35:13transpress transmission risk and non
  • 35:15risk and also advances in treatment.
  • 35:18I like to say but need to
  • 35:20be careful and apolitical.
  • 35:22I believe that treatment can Trump stigma.
  • 35:26And a final legacy is to note that
  • 35:29the full force of the of the HIV
  • 35:32epidemic has moved overseas, although.
  • 35:35Terrable damage has been done here in
  • 35:39New Haven and in the United States.
  • 35:42It continues the reach of the program.
  • 35:45AIDS program has been extended to
  • 35:48global settings with Seminole work
  • 35:50in advocating and introducing anti
  • 35:52retroviral therapy made by Sheila
  • 35:54Shenoy and Rick LTS based Appan.
  • 35:57I should say the strategies initially
  • 35:59learned and employed in New Haven
  • 36:02in the early days earlier pandemic.
  • 36:04Thank you.
  • 36:09Thank you so much Jerry.
  • 36:13Our last speaker is Chris Cole.
  • 36:18Christopher call it's been executive
  • 36:20Director of AIDS Project, New Haven,
  • 36:22or a PNH known as a place to
  • 36:25nourish your health for 13 years.
  • 36:28He's been a community Advisory Board
  • 36:30and Executive committee member of
  • 36:32Center for Interdisciplinary Research
  • 36:33on AIDS at Yale for over a decade.
  • 36:36Mr Cole is Co chair of the Ryan White,
  • 36:39New Haven, Fairfield County
  • 36:41Planning Council and the New
  • 36:42Haven Regional care continuum.
  • 36:47Yeah, good afternoon.
  • 36:48Thanks for inviting me to participate.
  • 36:50I'm so grateful for all the brave,
  • 36:52compassionate and loving people who
  • 36:54came together to respond to HIV and
  • 36:56AIDS over the decades and those who
  • 36:58founded AIDS Project New Haven in 1980.
  • 37:00Three were the oldest AIDS service
  • 37:02organization in the state of Connecticut.
  • 37:05We've come a long,
  • 37:06long way from the days when our
  • 37:08organization AIDS Interfaith and
  • 37:10Hispanos Unidos were founded.
  • 37:12Today, AP Nature is the only organization
  • 37:15still open and serving the community.
  • 37:17We're still serving the most marginalized,
  • 37:20stigmatized and overlooked within
  • 37:22our community.
  • 37:23Our Caring Cuisine program is
  • 37:24still feeding those who cannot
  • 37:26prepare meals for themselves.
  • 37:28Both individuals with HIV and
  • 37:30living with other chronic illnesses.
  • 37:33We continue to distribute condoms throughout
  • 37:35the city and participate in advocacy,
  • 37:37and we continue to offer counseling.
  • 37:39We continue to help folks overcome
  • 37:41the multiple barriers they face
  • 37:43in taking care of themselves
  • 37:45and manage their HIV disease.
  • 37:47What a fantastic and important exhibit.
  • 37:49So many of our younger staff have
  • 37:51no idea of this history and it's
  • 37:53such important information to know
  • 37:55so that we can understand and learn
  • 37:57from the past to address the present.
  • 38:01The work of a PNH would not be possible
  • 38:03without the collaboration we have with Yale,
  • 38:06the medical clinics,
  • 38:07the El AIDS program Sera the Center for
  • 38:09Interdisciplinary Research on AIDS at Yale,
  • 38:11the Community health care van,
  • 38:13they yell Child study Center,
  • 38:14and so many others.
  • 38:16What I'm most proud of is the community,
  • 38:19another C for you.
  • 38:21Doctor friedland.
  • 38:22In the list of your sees,
  • 38:25AP&H began as a community response
  • 38:27and remains rooted in community.
  • 38:29We work as a community of organizations,
  • 38:32clinics and advocates to make the
  • 38:34greatest impact and support those living
  • 38:37with HIV and anyone who faces stigma
  • 38:39in receiving culturally competent care.
  • 38:42I came to New Haven in 2008,
  • 38:44well after the 15 years
  • 38:46covered in this exhibit.
  • 38:47There are many others who have
  • 38:49led and served at a pH before me.
  • 38:52All humble servants who made
  • 38:54significant contributions to
  • 38:55caring for those living with HIV.
  • 38:57I'm grateful to Co.
  • 38:58Campbell for her contributions to this
  • 39:01exhibit and for representing AP&H so well,
  • 39:03especially the days before I was there.
  • 39:06I can tell you, though,
  • 39:08that while we have come a long
  • 39:11way and things have changed,
  • 39:13HIV continues to be an ongoing
  • 39:15public health concern and stigma,
  • 39:17racism,
  • 39:18homophobia and transphobia continue to be a
  • 39:21public health crisis intertwined with HIV.
  • 39:24I want to tell you a little story
  • 39:26and I'm going to share my screen,
  • 39:27so give me one second to pull it up.
  • 39:31This is our building at 1302 Chapel St.
  • 39:34On my second day on the job at its project,
  • 39:37New Haven,
  • 39:37the New Haven Register came to
  • 39:39do a little story on the new
  • 39:41executive director and they wanted
  • 39:43to take my picture and I said,
  • 39:44let's go out on the front porch and
  • 39:47take the picture and I was asked by.
  • 39:49I can't see my screen. Want some?
  • 39:54Can another see my screen?
  • 39:57No, OK, no we're not seeing that.
  • 40:00There you go. OK, thank you, I'm so sorry.
  • 40:05And while I was out on the front porch with
  • 40:08a with a camera from the New Haven register.
  • 40:11Someone from the staff came out
  • 40:13and said you can't take your
  • 40:14picture on the front porch.
  • 40:16People will know that were AIDS
  • 40:18project New Haven and I thought people
  • 40:20don't know or AIDS project New Haven.
  • 40:22And I was told that you know if folks
  • 40:25saw people walking into our building
  • 40:27and knew that it was AIDS project,
  • 40:29New Haven that they would be judged
  • 40:31and an they wouldn't come and
  • 40:33get their care any longer.
  • 40:37As you can see in this
  • 40:39photo on a nice winter day,
  • 40:41we have our name and a sign on the
  • 40:43building now and I'm proud of that.
  • 40:45I think that it's our job to
  • 40:47overcome stigma and as an
  • 40:49institution we began to do that.
  • 40:51In 2018, we changed our name and
  • 40:53updated our logo and mission to
  • 40:55expand our services to anyone facing
  • 40:57stigma and challenges and receiving
  • 40:59culturally competent care firmly rooted
  • 41:01in our beginning and looking forward
  • 41:03to utilizing our core competencies
  • 41:05to reach a broader community.
  • 41:09In 2019, the latest compiled public
  • 41:12health data available for the State of
  • 41:15Connecticut says that there are 10,705
  • 41:18people living in with HIV in Connecticut.
  • 41:21And 222 new cases of HIV in 2019 alone.
  • 41:2628% diagnosed with aids within
  • 41:28one year of HIV diagnosis,
  • 41:30so these are folks who have waited
  • 41:34quite awhile to test positive
  • 41:36for HIV and get into care.
  • 41:393322 people are living with diagnosed
  • 41:42HIV infection in New Haven in 2019 and
  • 41:46there's an estimated 378 living in New
  • 41:49Haven who don't know their HIV status.
  • 41:53Of those diagnosed in with HIV in 2000,
  • 41:57nineteen 76% are male, 24% female.
  • 42:00The more important numbers are 60% are black,
  • 42:0420% are Latin X and 12% are white.
  • 42:0856% our MSM or men who have sex with men.
  • 42:1516% heterosexual,
  • 42:168% presumed hedera sexual and only 4%.
  • 42:21Are people who inject drugs.
  • 42:22This is a big change from the early
  • 42:25days of HIV and AIDS in New Haven.
  • 42:2840% of the total R 20 are between the ages
  • 42:32of 20 to 29 and 78% of men who have sex
  • 42:36with men are between the ages of 20 and 29.
  • 42:39Young black and Latin X gay men
  • 42:42and transgender individuals are
  • 42:43disproportionately impacted by
  • 42:45HIV and account for the majority
  • 42:47of new infections in New Haven,
  • 42:49CT.
  • 42:49Today,
  • 42:50a friend of mine once said HIV
  • 42:52and AIDS has always been about
  • 42:55judgment and racism and homophobia
  • 42:57more than it's been about a virus.
  • 43:00In coordination with the Ryan White Part,
  • 43:03A office for the New Haven,
  • 43:05Fairfield counties,
  • 43:06we have conducted a series of
  • 43:08conversations with groups at AP&H.
  • 43:13This is a storyboard illustrating
  • 43:15a conversation held in January
  • 43:17with our empowerment participants,
  • 43:19young gay men, some living with HIV
  • 43:22and some not living in New Haven.
  • 43:25You can clearly see that homophobia,
  • 43:28stigma, transphobia and racism continue
  • 43:30to be barriers to prevent HIV to health,
  • 43:34Wellness, and self esteem of young gay men.
  • 43:44There we go, this next storyboard.
  • 43:48It's from a conversation in January with
  • 43:51our transgender support group again
  • 43:54clearly showing HIV stigma transphobia.
  • 43:57And judgment are significant issues.
  • 43:59We need to stop labeling.
  • 44:02We need to see real images of
  • 44:05transgender folks in mainstream
  • 44:06media and non stereotype roles.
  • 44:09We need to talk to folks who,
  • 44:11as as they are who they are,
  • 44:14and stop perpetuating shame.
  • 44:17And this final storyboard is from
  • 44:20our chapter Change Workgroup Group
  • 44:22of Young Black and Latin X-Men who
  • 44:25have come together to assist us in
  • 44:28increasing Prep Pro pre exposure,
  • 44:30prophylaxis uptake among their peers.
  • 44:32And it shows that addressing disparities
  • 44:34and intersectionality with raisan clefts,
  • 44:37class movements, ending stigma,
  • 44:38sex, positive iti,
  • 44:40social networks and media can
  • 44:42increase prevention efforts and help
  • 44:44us in ending new HIV infections.
  • 44:50While our crisis is different today,
  • 44:52until our society begins to treat
  • 44:54people as people eliminate racism,
  • 44:56transphobia, and homophobia,
  • 44:57we continue to have a community in crisis.
  • 45:01All like we did in the early
  • 45:03days of the AIDS epidemic.
  • 45:05All of us at Apna HC,
  • 45:07it is our responsibility
  • 45:09is to educate ourselves,
  • 45:10understand our past and make healthcare,
  • 45:12housing, education, technology and
  • 45:13opportunity equally accessible to all.
  • 45:15It is then that we will be able to
  • 45:18end HIV that we will be able to
  • 45:21end COVID-19 and that we will be
  • 45:23able to end so many of the other
  • 45:26ills that our society faces today.
  • 45:28All of us at AP&H are humbled and
  • 45:31honored to stand on the shoulders and
  • 45:33carry on the work begun by these Giants,
  • 45:36and so many others who have provided long
  • 45:39and loving care to so many in our community.
  • 45:46Thank you so much Chris.
  • 45:49So glad that you brought this storyboards.
  • 45:50This really added.
  • 45:53A lot to your remarks.
  • 45:55Thank you so much so we do have
  • 45:57some time for questions and
  • 46:00really so much gratitude towards
  • 46:02the four of you for sharing.
  • 46:04So much of your experiences and
  • 46:07challenges from those early days,
  • 46:09and one of the questions that's come in.
  • 46:12Actually, it's related to challenges,
  • 46:14and the attendee asks what was the
  • 46:17hardest challenge that you faced as
  • 46:20you confronted HIV and AIDS at Yale
  • 46:23in New Haven back in those early days.
  • 46:30I can take a stab at this.
  • 46:31This is Ed Kaplan.
  • 46:33So as I said, I arrived at Yale in 1987,
  • 46:36so I I was a young guy then
  • 46:39I actually had her.
  • 46:41Now I have hearing aids,
  • 46:43so it's not the same thing.
  • 46:46And while there were some
  • 46:48off the cuff remarks,
  • 46:49some some of the company marks in
  • 46:51the extent that what are you doing
  • 46:54working on this problem for drug injectors,
  • 46:56when you should be using your
  • 46:58math for other problems?
  • 46:59Here you're throwing your career away.
  • 47:01That was really the minority
  • 47:03I found my Yale colleagues to
  • 47:04be tremendously supportive,
  • 47:06but I and I think others,
  • 47:08at least on the research side
  • 47:10of the needle exchange,
  • 47:11were not prepared for was some of the
  • 47:14politics and the attention that we would get.
  • 47:16Not so much at the local level,
  • 47:19we expected that we we were well prepared,
  • 47:21but at the national level
  • 47:23we were taking it back.
  • 47:25For example,
  • 47:25when the initial results were released.
  • 47:27Some of you may remember Congressman
  • 47:29Charles Rangel from Harlem.
  • 47:31He was the chair of the House
  • 47:33Select Committee on Narcotics,
  • 47:34and he requisitioned the
  • 47:36General Accounting Office.
  • 47:37The Geo now is the General
  • 47:39Accountability Office.
  • 47:39Basically to come up and investigate us.
  • 47:41He did not believe.
  • 47:43Or maybe he did not want to
  • 47:45believe that there could be a
  • 47:47program doing good that involved.
  • 47:49Making it possible for drug injectors
  • 47:51to continue injecting drugs,
  • 47:53but in a safer way so that you
  • 47:56could attack the twin problems of
  • 47:58injection drug use on one hand.
  • 48:01But HIV transmission in particular
  • 48:03on the other.
  • 48:05And so there were people from
  • 48:06the jail who came up.
  • 48:08And here I am,
  • 48:09standing at a blackboard and literally
  • 48:10was like doing my orals all over again.
  • 48:12Where did this number come from?
  • 48:14Where did this?
  • 48:15You know?
  • 48:15Why do you believe this?
  • 48:16Why do you believe that?
  • 48:18When in the end,
  • 48:20of course it worked out for
  • 48:23the better because.
  • 48:25Diego actually said that we had
  • 48:27lowballed things they thought the
  • 48:29program is more effective than we
  • 48:30had given it credit for because we
  • 48:33didn't pay appropriate attention to
  • 48:35how much of an effect the people
  • 48:37getting into drug treatment him.
  • 48:39That was one instance,
  • 48:40and there were others the
  • 48:42the director of the Office of
  • 48:44National Drug Control Policy,
  • 48:45Bob Martinez,
  • 48:46put an article out there was in
  • 48:48newspapers all around the country,
  • 48:50basically castigating us for this program.
  • 48:52You know, this is a band aid.
  • 48:55We're squandering away.
  • 48:56The gains we've made in the hard
  • 48:58earned war on Drugs quote unquote.
  • 49:00On the other hand,
  • 49:02there there were also moments of victory.
  • 49:04If you want to think of it like that.
  • 49:08Probably my favorite was when
  • 49:10committee from the National Academies,
  • 49:11chaired by an eminent statistician
  • 49:13with the name Lincoln.
  • 49:15Moses basically wrote a report that was
  • 49:17largely approving of what we had done,
  • 49:20an I,
  • 49:20I guess,
  • 49:21I felt that if someone named
  • 49:23Lincoln, Moses was going to say this was OK.
  • 49:27Didn't really go too far wrong.
  • 49:33Thanks, Ed, anybody else want it?
  • 49:36Comment on that question about.
  • 49:39The most difficult challenges.
  • 49:40At Yale and New Haven,
  • 49:42those in those early days.
  • 49:51I think for me.
  • 49:54First of all, I confirm all the
  • 49:56wonderful things that have been
  • 49:57that we've done in New Haven.
  • 49:59But given the fact that it.
  • 50:0010 years into the epidemic
  • 50:03and there was an behave and
  • 50:05was so brutalized by HIV aids,
  • 50:08I was disappointed that the medical
  • 50:11school and the hospital would not
  • 50:14more generous in resources. And.
  • 50:18I thought that there would be more
  • 50:20and had to set out to actually
  • 50:22find sources and fight for them.
  • 50:24So we did that successfully and
  • 50:27convince people that this was.
  • 50:30Had to be done.
  • 50:31But I think it must have been very
  • 50:33hard for Lisa and Ed and others
  • 50:36to be in an environment in which
  • 50:39although they were wonderful
  • 50:41colleagues working together,
  • 50:42the mainstream was still not
  • 50:44comfortable with HIV aids.
  • 50:59Well, Jerry, I would certainly
  • 51:02concur with you there and I think
  • 51:06as I politely alluded in my talk.
  • 51:09There were significant challenges
  • 51:10that that were all around us and
  • 51:13they they weren't just within the
  • 51:15medical school in the hospital.
  • 51:17They were with the local newspaper that
  • 51:20kind of badgered us on a regular basis
  • 51:23for names of patients and what have you.
  • 51:25There were all kinds of problems with
  • 51:28state legislature people, so it was.
  • 51:30It was a list,
  • 51:32but I think we just said we have to put
  • 51:35our heads down and make the best of
  • 51:38what we have and keep trying to get more and.
  • 51:42You know, every day you got
  • 51:44rooted in in feeling negative,
  • 51:46you lost ground on other areas.
  • 51:48So I think we learned how to
  • 51:51be a a positive crew together.
  • 51:55Well, I think the issue of
  • 51:57colleagues is so important.
  • 51:58I think a lot of us said
  • 52:00that and that's sustaining,
  • 52:02and it's true with Covid also.
  • 52:04We just have to have people to work
  • 52:07with who are supportive and is that
  • 52:09a lot of love among people who do HIV
  • 52:12work because they see themselves.
  • 52:16People.
  • 52:20I have a question. If I may.
  • 52:25So one of the sections of the exhibit is
  • 52:28entitled Legacy and one of the images
  • 52:30that's included is the Community health
  • 52:33care van that remains in the service
  • 52:35of Community all these years later,
  • 52:37an I was just curious about what
  • 52:40each of you thinks about that term,
  • 52:42the visual legacy.
  • 52:43What is the visual legacy?
  • 52:45Aside from the van up of the early
  • 52:48days of HIV and AIDS in New Haven,
  • 52:51and it yell that we should be capturing.
  • 52:54In this exhibit, what other images do you
  • 52:57kind of carry with you that have lasted from?
  • 53:01But the 1980s until now,
  • 53:02what still resonates?
  • 53:03What could we put up?
  • 53:05What could we add to our
  • 53:06exhibit to capture that legacy?
  • 53:11Well, I don't speak what I would like to do,
  • 53:15but won't is to include the
  • 53:17faces of some of our patients.
  • 53:20Because in my mind and in my thoughts,
  • 53:23I think of so many of them still.
  • 53:27Wonderful as I tried to portray.
  • 53:33Ordinary people who had were who
  • 53:35were really extraordinary in
  • 53:36terms of courage and resilience,
  • 53:38and learn so much from them.
  • 53:41And there's so much a part of it.
  • 53:44And because of stigma and privacy.
  • 53:48We we don't do that,
  • 53:49so that would make a tremendous contribution.
  • 53:52I think if we were able to do that,
  • 53:55we really should be hearing the
  • 53:57voices of people living with HIV.
  • 54:03Yeah, and I I would agree with Jerry
  • 54:06when you ask me what's my visual
  • 54:09image that comes to me it it generally
  • 54:13revolves around the people we care
  • 54:15for and yet we can't show those
  • 54:18photos or or portray them visually.
  • 54:21But I think you could do a very
  • 54:23interesting audio collection where
  • 54:25where you capture comments from people.
  • 54:28And I think that would bring
  • 54:31so much of this to life.
  • 54:33I mean, we become translators.
  • 54:36Um for them, and that's that's well meaning,
  • 54:39but it's not always accurate.
  • 54:43And it tends to be sanitized messaging,
  • 54:45so I I think if there was an
  • 54:47ability to expand the exhibit some,
  • 54:49I might try to to capture some audio files.
  • 54:53And I think it would be useful,
  • 54:56and it might be people might be willing
  • 54:59long-term survivors who've successfully
  • 55:01lived with AIDS for long periods
  • 55:03of time might be willing actually
  • 55:06to participate in that way and tell
  • 55:08their stories, and that would be.
  • 55:11I mean, that would be very,
  • 55:13I think, both courageous.
  • 55:15But also, I think.
  • 55:20Well, it will help people
  • 55:21understand what it has been like.
  • 55:27Thank you, I love that idea.
  • 55:29And just to say the the
  • 55:31online portion of the exhibit.
  • 55:32By all means, we're going to
  • 55:34continue to expand upon that
  • 55:36because it's it's online.
  • 55:37It's ritual, so we have endless space.
  • 55:40So we very well may look into doing that.
  • 55:43So thank you for that.
  • 55:54I have another I don't
  • 55:55want to be the only one.
  • 56:02That comes to mind.
  • 56:05So we as you know, have had a program
  • 56:09in the prisons in Connecticut,
  • 56:11but 10% of the HIV population
  • 56:13is incarcerated on free day.
  • 56:16For reasons that you might expect
  • 56:18that people might be incarcerated for,
  • 56:20but also because of racial
  • 56:22issues and poverty.
  • 56:26And I had the opportunity to visit
  • 56:28a program that we had in Niantic,
  • 56:31which is where the single
  • 56:33women's prison is in Connecticut.
  • 56:36And prisons are very eerie places
  • 56:38and you go through signing your
  • 56:41name with with invisible ink
  • 56:43and multiple layers of doors and
  • 56:46gates and all and you drive to new
  • 56:48Niantic through this very pristine,
  • 56:50beautiful New England town.
  • 56:52And it really is and you come to the
  • 56:56prison and you go inside and all
  • 56:59of the women are black and Brown.
  • 57:05It's very vivid, really.
  • 57:10What can I say picture?
  • 57:13Have hidden picture.
  • 57:14Of the consequences of
  • 57:16the HIV epidemic in women.
  • 57:26Thank you.
  • 57:40Darren, do you wanna close us out?
  • 57:43I think we've reached the end of the hour.
  • 57:45I know there are a few more questions
  • 57:48that haven't been answered and I strongly
  • 57:50encourage you to email us and we will
  • 57:52share those with our speakers and and we
  • 57:55appreciate your comments and questions
  • 57:56and feedback as we move forward.
  • 58:00So again, I want to thank
  • 58:02everyone for joining us.
  • 58:04Our speakers do an extraordinary
  • 58:06job of reminding me of the courage,
  • 58:09the advocacy and the hope they got
  • 58:12many of us through this time period.
  • 58:15I hope once we all can actually
  • 58:18be in person that you'll come and
  • 58:21see the exhibit in person I'm.
  • 58:24I think being able to touch and feel has
  • 58:27value within itself until that time occurs.
  • 58:31Please go on the online website
  • 58:33because you can see the exhibit.
  • 58:36You can zoom in, zoom out and have
  • 58:39the experience at your own rate.
  • 58:42Again, thank you, thank you,
  • 58:44thank you for being here speakers.
  • 58:46Thank you so much for bringing
  • 58:49our stories to life and I love the
  • 58:52statement of learning from the past
  • 58:54to help influence what we do today.
  • 58:57And I think that.
  • 58:59If the program on art in public spaces,
  • 59:03if that's one of our values,
  • 59:05one of our goals is to really
  • 59:08use the walls of young School
  • 59:10of Medicine as an opportunity,
  • 59:12not just to showcase,
  • 59:14but actually to teach and for people
  • 59:17to learn and to create conversation.
  • 59:19And I think this was an excellent
  • 59:22example of that happening in real time.
  • 59:25Again,
  • 59:26thank you and have a wonderful evening.