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A Tribute to Dr. Marjorie S. Rosenthal

May 17, 2021
  • 00:02Welcome, I'm Anna reisman.
  • 00:04Thank you for joining us in this
  • 00:06tribute to Doctor Marjorie Rosenthal,
  • 00:07who many of us knew as Margie to
  • 00:10accomplish so much in her 53 years.
  • 00:12The last 18 of or so of which were spent
  • 00:15here in New Haven where Margie was part
  • 00:17of many communities at the medical school.
  • 00:20And of course in New Haven.
  • 00:22Tonight we're going to highlight
  • 00:23some of her work related to two
  • 00:26programs here at the medical school
  • 00:27and in two areas that she really
  • 00:29brought together in beautiful,
  • 00:31meaningful ways.
  • 00:32These programs are the National Clinician
  • 00:34Scholars Program and the Program for
  • 00:36Humanities in Medicine and by extension,
  • 00:38merges creative worker essays.
  • 00:40In her graphic narrative,
  • 00:41we've put together a program that
  • 00:44includes reflections on margins,
  • 00:45work along with readings of essays,
  • 00:47and graphic memoir.
  • 00:48We have closed captioning available
  • 00:50and we welcome you to use the chat.
  • 00:56Hi everyone, I'm Carrie growth.
  • 00:59We first met Margie in Baltimore
  • 01:01in 1998 where Amal Margie's husband
  • 01:03and I were both clinical scholars
  • 01:06and it's been such a joy to know.
  • 01:09Margie as a friend.
  • 01:10As a fellow scholar and then as a
  • 01:13colleague over the next 20 years.
  • 01:16You know people often use the phrase
  • 01:18friend and colleague or friends
  • 01:20and colleagues diamond accounting,
  • 01:22but in this case the.
  • 01:24It's an app to turn of phrase.
  • 01:27Margie was a friend.
  • 01:28First an authentic, engaged,
  • 01:30caring friend and a colleague seconds.
  • 01:33And what a colleague all of us in this
  • 01:36college program have shared the joy.
  • 01:38That is Margie.
  • 01:39Watching her raise for wonderful
  • 01:41girls giving us advice about raising
  • 01:43our kids when we ask for it.
  • 01:45Making fundamental contributions
  • 01:47as a physician and scientist
  • 01:49serving not only as a pillar of
  • 01:52multiple communities but also the
  • 01:54friend and mentor to all of us.
  • 01:56The Clinician Scholars Program is the
  • 01:58training program whose mission spoke
  • 02:00to Margie's core values training
  • 02:02the next generation of leaders in
  • 02:04healthcare who will use research and
  • 02:06advocacy to make a difference to
  • 02:08make a role to better place like Margie did.
  • 02:12But the program is more than that.
  • 02:15It's a family of sorts and we have
  • 02:17Margie to thank for this as one of
  • 02:20Margie's meant he's recently wrote
  • 02:22to me Margie's Open door and Open
  • 02:25Heart made us feel part of something bigger.
  • 02:28Helped us feel like we had a
  • 02:30place that we belong.
  • 02:32She modeled the way of living,
  • 02:34loving and embracing the contradiction,
  • 02:36contradictions,
  • 02:36complexities and heart breaks of
  • 02:38life that I aspire to emulate.
  • 02:40So tonight we'll hear from Margie's.
  • 02:42Work friends, the clinician scholars,
  • 02:44her colleagues in the community,
  • 02:46and a yeah I wanted to thank Margie's family,
  • 02:49several of whom are here.
  • 02:51Tonight.
  • 02:51I wanted to thank her daughters,
  • 02:54Maya and Alina, and Jimmy and Debbie Shea,
  • 02:56and also Brian for sharing Margie with us.
  • 02:59Her clinician scholars,
  • 03:00family.
  • 03:07Hi again, so I'm going to kick
  • 03:10off the reflections and don't
  • 03:12worry this is not just going to be
  • 03:13me and Kerry
  • 03:14going back and
  • 03:15forth. I want to read a statement
  • 03:17a a nominating statement last year
  • 03:18March she was nominated for a
  • 03:20prestigious award and I've received
  • 03:22permission to read aloud some
  • 03:24selections from the nomination.
  • 03:25Although I'm not permitted to
  • 03:26say what it was for,
  • 03:28but I'll just say that to get nominated
  • 03:30for this was quite remarkable.
  • 03:34And so I'm quoting here.
  • 03:36I would like to nominate Marjorie Rosenthal,
  • 03:39associate professor of Pediatrics
  • 03:41at Yale School Medicine.
  • 03:43Doctor Rosenthal is a category
  • 03:45defining physician, writer, artist,
  • 03:47and activist whose works explore topics
  • 03:50including patient safety, gun violence,
  • 03:52vulnerable populations, and equity.
  • 03:54Diagnosed with metastatic colon cancer,
  • 03:56she masterfully documents how she navigates,
  • 03:59confronts health systems by
  • 04:00using multiple forms of media,
  • 04:03including the written essay.
  • 04:04Cartoons and social media.
  • 04:06She is one of the rare physician
  • 04:08writers whose work is inclusive and
  • 04:10instructive for physicians and patients.
  • 04:12When she writes about watching a nurse not
  • 04:15wash their hands properly before procedure
  • 04:17and how she manages that experience,
  • 04:20she not only educates healthcare providers,
  • 04:22but helps other patients understand
  • 04:24how they too can potentially confront
  • 04:26errors they are experiencing.
  • 04:27This is why I believe her work
  • 04:30is so creative and stands out
  • 04:33among other physician scholars.
  • 04:35Doctor Rosenfeld manages to make
  • 04:36her diagnosis and managing all of
  • 04:38the grief and loss and change she
  • 04:40is experienced into something that
  • 04:42is iaccessible for the reader.
  • 04:43I don't think there are many others who do.
  • 04:46It is definitely an elegantly as she does,
  • 04:48so that was the nominating statement.
  • 04:50So maybe you're thinking what a pity
  • 04:52Margie didn't get to know about this.
  • 04:54Well she did.
  • 04:55I shared it with her back in October 1 day
  • 04:58while visiting with her on her front porch.
  • 05:01Margie was so delighted and awestruck an
  • 05:03flattered and giddy with the idea of it.
  • 05:05She couldn't believe it.
  • 05:06And yes, she didn't know what this was and.
  • 05:09Emanation for it was a joyous moment.
  • 05:13And so, in that spirit,
  • 05:14I'm glad to be sharing this story with you,
  • 05:17and to have this opportunity to
  • 05:19share some of Margie's work,
  • 05:21her connections, collaborations,
  • 05:22creations from these different
  • 05:23spheres from her friend.
  • 05:25The category defining physician,
  • 05:26writer, artist, and activist.
  • 05:27I'll just say one other thing briefly,
  • 05:29and then I'll turn over the mic to and green.
  • 05:33So these days, Carrie and I frequently
  • 05:35find ourselves saying,
  • 05:36what would Margie do?
  • 05:37Maybe it's about some piece of writing,
  • 05:40some essay that until last summer,
  • 05:42Margie and I and the rest
  • 05:44of our writing group.
  • 05:45Lisa,
  • 05:45Randy,
  • 05:46and Pauline might be discussing
  • 05:47over coffee at Cedar Hurst.
  • 05:49Maybe it's about the scholars program.
  • 05:51Maybe it's dealing,
  • 05:52maybe it's about dealing with
  • 05:54whatever vicissitudes of life
  • 05:55those of you who knew Margie.
  • 05:57You know I'm talking about.
  • 05:58She took it all in.
  • 06:00She chewed on it.
  • 06:01She proffered pretty much the
  • 06:03wisest take on whatever it was.
  • 06:05And so when I read her writing,
  • 06:07revisit old favourites,
  • 06:08I hear her voice, her brilliant
  • 06:10takes on all sorts of situations.
  • 06:12It was difficult to select
  • 06:14just a few for tonight.
  • 06:16They are also great.
  • 06:18Margie's writing is like a casual,
  • 06:21beautiful, deep meaty,
  • 06:22always memorable conversation
  • 06:24with a good good friend.
  • 06:27Thank you.
  • 06:31Thank you Anna.
  • 06:35My name is Anne Green.
  • 06:37Anne I'm speaking to you tonight in the
  • 06:39vain attempt to describe what it was like
  • 06:42to work with my colleague and friend,
  • 06:45Marjorie Sue Rosenthal.
  • 06:46Occasionally she would remind me
  • 06:49that we met long ago years before I
  • 06:53joined the Scholars program in 2014
  • 06:55and she was right in my neighborhood.
  • 06:58I was an active member of the West
  • 07:01River Neighborhood Services Corp.
  • 07:03The Corporation would often host
  • 07:05outside speakers an invited guests.
  • 07:08One evening, probably in 2009 or 2010,
  • 07:11Margie came with two Robert Wood Johnson
  • 07:14Foundation clinical scholars only.
  • 07:16Blackstock and Jed Barrish,
  • 07:18who is first year scholars,
  • 07:21were looking for community partners
  • 07:23to work on a research project
  • 07:26like any masterful matchmaker.
  • 07:28Margie made the introductions
  • 07:30about her scholars, not herself.
  • 07:33And matchmaker that she was in no time.
  • 07:37Jed onie.
  • 07:37My friends,
  • 07:38Billy Bromage says he spell and I
  • 07:41wound up partnering on a project that
  • 07:44became improving access to healthy
  • 07:46foods in the West River neighborhood.
  • 07:49For that introduction to community
  • 07:52engaged research, I am in Margie's debt.
  • 07:56Fast forward to 2014.
  • 07:58I began my tenure as what is now the
  • 08:03N CSPS Community Research liaison.
  • 08:07At that time, community based,
  • 08:09participatory research or CPR was under
  • 08:13the stewardship of a team of four.
  • 08:16Margie Marcella, Nunez Smith,
  • 08:18Emily Wong and me together.
  • 08:21We crafted curriculum, supported,
  • 08:23and evaluated scholars,
  • 08:25justified budgets, brokered conflict,
  • 08:27liaised with community partners,
  • 08:29old and new.
  • 08:31And most importantly,
  • 08:33vociferously an consistently made the
  • 08:36case for CBP are being rigorous effective
  • 08:40research to three primary audiences.
  • 08:44Curious scholars,
  • 08:45sceptical academic researchers
  • 08:47and potential community partners?
  • 08:50As Co director of NCSP,
  • 08:52much of the day to day work of defining,
  • 08:56defending and demonstrating how to do
  • 08:59community engaged work fell to Margie.
  • 09:02I was often present at those meetings
  • 09:05where she could jolt a skittish
  • 09:07scholar to return and engage with her
  • 09:10or his or her community partner by
  • 09:12sharing her own mistakes and biases.
  • 09:15While doing partnered research.
  • 09:16As many of you can recall,
  • 09:18she'd say, well,
  • 09:19I think you can get three
  • 09:21papers out of that data,
  • 09:23and then before the first
  • 09:25one was out of draft stage,
  • 09:27she proud the scholar about the other two.
  • 09:29And by the way, what about dissemination?
  • 09:32Who are you planning to
  • 09:33share the results with?
  • 09:35Anne,
  • 09:36for every paper presentation partnership,
  • 09:38an epiphany about CB PR.
  • 09:40That happened for scholars
  • 09:42that came under her wing.
  • 09:44They too are in March is debt.
  • 09:49By 2020,
  • 09:50we had spent six years wandering
  • 09:52back and forth between our offices
  • 09:55across the Hall from one another,
  • 09:58reading drafts and carpooling to
  • 10:00get to West Campus for a meeting.
  • 10:03In that time,
  • 10:04we proselytize for our discipline,
  • 10:06encourage ING scholars and fellows to
  • 10:09take the chances that help them reconnect
  • 10:12to whatever it was that brought them into.
  • 10:15Healthcare research,
  • 10:16and Marjorie Sue Rosenthal
  • 10:18lived what she preaches.
  • 10:20She showed up.
  • 10:21She met all kinds of people and she listened.
  • 10:25She advocated for research budgets
  • 10:28that equitably addressed the value
  • 10:31in never tease of our community partners,
  • 10:34whether they were teenagers or elders,
  • 10:37she taught, she nurtured, she created.
  • 10:39She mentored an. She fought,
  • 10:42and I most weekdays had a front row
  • 10:45seat to my magnificent friend and Co.
  • 10:49Conspirator. So many of us here are
  • 10:53the beneficiaries of Margie's gifts.
  • 10:55We're all in her debt. Thank you.
  • 11:07Hi, good evening everybody.
  • 11:10My name is Ben Oldfield.
  • 11:12I'm going to be reading an
  • 11:14essay that Margie wrote in 2015.
  • 11:19The essay is called what might
  • 11:21we accomplished by engaging
  • 11:22in our local communities?
  • 11:26I sit at the edge of a soccer field
  • 11:28on a beautiful New England autumn
  • 11:30afternoon watching my first grader and
  • 11:33her peers run up and down the field.
  • 11:35The clump of children hovering around the
  • 11:37ball reflects the diversity of our community.
  • 11:40They are daughters of firefighters,
  • 11:42taxi drivers, artists,
  • 11:44administrative assistance and physicians.
  • 11:47If skin colors of every shade they speak.
  • 11:49English, Spanish and Arabic at home
  • 11:52they have a body mass index that ranges
  • 11:55from normal to overweight to obese.
  • 11:57When we clinicians spend time in the same
  • 12:00communities where our patients live,
  • 12:02we learn.
  • 12:03We learn about demographics.
  • 12:06We learn about challenges and ask this.
  • 12:08We may spend time on neighborhood
  • 12:11governing boards and local food
  • 12:13co-ops and sustaining local parks.
  • 12:15We may do it to be with young
  • 12:17children or older family members.
  • 12:19We may do it out of a sense
  • 12:22of religious or civic duty,
  • 12:24regardless when we spend time
  • 12:25in our patients communities,
  • 12:27we have the opportunity to
  • 12:28enhance our patients lives in our
  • 12:30teaching and three key waves.
  • 12:32For one, we bring our medical expertise.
  • 12:35When we get involved in our children's
  • 12:38schools and childcare settings and,
  • 12:40for example,
  • 12:40help interpret the science of
  • 12:42nutrition and physical activity,
  • 12:44we can help educators
  • 12:45incorporate obesity prevention.
  • 12:47Perhaps fewer elementary schools would
  • 12:49have reduced physical education and
  • 12:51recess time if there were engaged
  • 12:53physicians on the school board or PTA.
  • 12:56Second,
  • 12:56when we spend time in our community,
  • 12:58we bring our expertise back to our
  • 13:00practice and research inquiries.
  • 13:01When we're recommending diet
  • 13:03and exercise to our patients,
  • 13:04we might do it better if we knew there's
  • 13:06a new opportunity for fresh food.
  • 13:09Because we have joined the recently
  • 13:11formed food Co-op or the YMCA pool
  • 13:14had expanded hours because we
  • 13:15read about it in the local paper.
  • 13:18But we're not just a well informed
  • 13:20person telling our patient
  • 13:21about Community resources.
  • 13:23When were knowledgeable about
  • 13:24the local community,
  • 13:25we combine our clinical expertise,
  • 13:27our research knowledge and community assets,
  • 13:29knowledge into information and
  • 13:31recommendations that our patients can use.
  • 13:34Finally,
  • 13:34we teach trainees who tend to be transient
  • 13:37about community assets and challenges.
  • 13:40We learn more about the importance
  • 13:42of social determinants of health,
  • 13:44describing how poverty,
  • 13:45neighborhood access to food and education
  • 13:48all play important roles in health.
  • 13:51Having an educator who can teach
  • 13:53about the specific local community
  • 13:54assets and influences in health
  • 13:56may be as important as teaching
  • 13:58which antibiotic to use.
  • 14:00In the Fellowship program where
  • 14:01I teach the Robert Wood Johnson
  • 14:03Foundation Clinical Scholars program,
  • 14:05each post Doc goes on walking
  • 14:08tours of underserved neighborhoods
  • 14:09led by neighborhood leaders.
  • 14:11Faculty on the Tour connect the
  • 14:13assets and challenges of the
  • 14:15environment to the literature on
  • 14:16the social determinants of health.
  • 14:18After The Walking tours,
  • 14:20our postdocs report a new understanding
  • 14:22of their patients and have new
  • 14:24ideas for community based,
  • 14:25participatory research inquiries that
  • 14:27can translate into better patient care.
  • 14:30Influencing health related policy
  • 14:31in the community,
  • 14:32enhancing patient counseling
  • 14:34and teaching trainees about
  • 14:35community assets and challenges.
  • 14:37Might academia reward that as much
  • 14:39as the latest cell biology discovery?
  • 14:43And if not, reward at least facilitate the
  • 14:45kind of career that encourages that kind of
  • 14:48knowledge acquisition and dissemination.
  • 14:50While the concept of the
  • 14:52physician advocate is not new,
  • 14:53as we learn more about the value of patient,
  • 14:56centered engagement and
  • 14:57shared decision making,
  • 14:58it may be especially important now to have
  • 15:01mechanisms that facilitate meaningful
  • 15:02engagement in our patients community.
  • 15:04One may, one way maybe to
  • 15:07reconsider academic hierarchies.
  • 15:08For example,
  • 15:09when academic physicians seek to be promoted,
  • 15:11a key criterion at some institutions
  • 15:13is that they are known and respected
  • 15:16nationally to become an associate
  • 15:18professor and internationally
  • 15:20to become a full professor.
  • 15:22What about including being known
  • 15:23and respected in the community
  • 15:25in which they practice?
  • 15:26This could include the two way
  • 15:28St of contributing meaningfully
  • 15:29to the local community,
  • 15:30as well as bringing knowledge of the local
  • 15:33community to the practice and teaching.
  • 15:36What if we rewarded the Preceptor who
  • 15:37says to the resident when we go back
  • 15:39into the room, we should remind Mrs.
  • 15:41Jones that they have bulk food
  • 15:42at the grocery store.
  • 15:43That's a few blocks from her house
  • 15:45and she'll find almonds there.
  • 15:47Additionally,
  • 15:48more funding opportunities could give
  • 15:50greater value and knowledge of 1's community.
  • 15:54Current community oriented funding resources
  • 15:56include the American Academy of Pediatrics,
  • 15:58Cash grants,
  • 15:59and encourage pediatric trainees to
  • 16:01conduct meaningful health related
  • 16:02work and non clinical settings.
  • 16:04The patient centered Outcomes
  • 16:06Research Institute and other
  • 16:08federal and foundation sources.
  • 16:10Finally,
  • 16:10we could consider models that some
  • 16:12cities use to attract city residents
  • 16:14to apply for civil servant jobs.
  • 16:16In some cities,
  • 16:17police officers and firefighters
  • 16:18get paid more if they live
  • 16:20in the city where they work,
  • 16:22and in some cities,
  • 16:23residents taking the civil service
  • 16:25exam are graded on a different curve.
  • 16:28Both of these models recognize that
  • 16:30there is an intrinsic good to the
  • 16:32knowledge and skills that come from
  • 16:34living and working in the same place.
  • 16:36It's the Willie Sutton theory of
  • 16:38learning and teaching about our patients.
  • 16:40We need to be where our patients
  • 16:42are in our professional lives.
  • 16:44We generally interact with patients in
  • 16:4615 minute intervals or more intensely
  • 16:49for short inpatient intervals.
  • 16:50When we're on the same soccer bleachers,
  • 16:53PTA food, Co-op board.
  • 16:54When we're trying to exercise on the same,
  • 16:57only moderately safe sidewalks,
  • 16:59we may be learning at least as
  • 17:01much and probably more about our
  • 17:03patients as we do in the hospital.
  • 17:05Obesity prevention is just one example.
  • 17:08Community knowledge and partnering
  • 17:10skills could enhance patient care
  • 17:12research and teaching about other
  • 17:14challenges facing communities,
  • 17:15including violence, homelessness,
  • 17:17and sub optimal schools.
  • 17:20With 10 minutes to go in the soccer game,
  • 17:22My Daughter scores. It is the wrong goal.
  • 17:25The clumps of girls of both teams go wild.
  • 17:28They do not know who scored and they
  • 17:30do not know it was the wrong bowl.
  • 17:33I watched the coach can volunteer
  • 17:35parents retrieve the ball
  • 17:36and then explain the mistake to the girls.
  • 17:38But their joy is not diminished
  • 17:40with the information.
  • 17:41As we, the grownups on the bleachers,
  • 17:43recognize what has happened on the field,
  • 17:45we share a smile that transcends
  • 17:47all of our differences.
  • 17:48In a few minutes, we will get up,
  • 17:50collect our children, and leave.
  • 17:52But for now, we'll enjoy a few
  • 17:54more minutes of community.
  • 17:56Thank you.
  • 18:03Hi everyone, my name is Jessica Sager,
  • 18:06an I'm really honored to
  • 18:07be here with you tonight.
  • 18:09Thanks so much for inviting me.
  • 18:11I'm here to tell you a story about
  • 18:14Margie that starts nearly 20 years ago.
  • 18:16For those of you who don't know me,
  • 18:19I'm the co-founder with Jana
  • 18:21Wagner of all our Kin, a nonprofit
  • 18:23started here in New Haven in 1999.
  • 18:26We work with family,
  • 18:27child care educators, women,
  • 18:28mostly women who run small child
  • 18:31care programs in their homes.
  • 18:33These educators play a critical
  • 18:34role in the lives of families
  • 18:37caring for infants and toddlers,
  • 18:39meeting the needs of parents,
  • 18:41working nonstandard hours and often
  • 18:43serving the families with the greatest
  • 18:45barriers to accessing care right now
  • 18:48because of COVID-19 family childcare
  • 18:49is getting a lot of attention,
  • 18:52but it didn't used to be this way.
  • 18:55In fact, when we began,
  • 18:57we heard a lot of demeaning,
  • 18:59derogatory stereotypes about family,
  • 19:01childcare educators and what
  • 19:03they were capable of.
  • 19:05So you can imagine my surprise
  • 19:07when one day early on,
  • 19:08a pediatrician named Marjorie Rosenthal
  • 19:10called up and asked to meet with me.
  • 19:13Margie came to our office.
  • 19:15Actually it was just an
  • 19:17apartment in the Farnam courts.
  • 19:18Public housing development.
  • 19:19She perched on our sofa.
  • 19:21This little green donated loveseat and
  • 19:23she told us that she wanted to talk to
  • 19:27some of our family childcare educators.
  • 19:29So this brings me to the first
  • 19:31thing I want to say about Margie
  • 19:34Margie was curious she was a true
  • 19:36scientist who always wanted to learn
  • 19:38more about the world around her.
  • 19:41She wanted to know how family
  • 19:42childcare educators interacted
  • 19:43with parents and children.
  • 19:45She didn't accept the conventional wisdom.
  • 19:47She wanted to find out for herself.
  • 19:50We decided that she would offer a
  • 19:52series of trainings for educators
  • 19:54and get to know them a bit and then
  • 19:57see if they wanted to talk to her.
  • 20:00Well, they did want to talk to her.
  • 20:03No one from the medical establishment
  • 20:06had ever asked to talk to them before
  • 20:09they told Margie their stories and
  • 20:11Margie in her inimitable Margie Way.
  • 20:14Listen,
  • 20:14I remember her bursting into my office
  • 20:17absolutely glowing with excitement,
  • 20:19family, child care educators are amazing.
  • 20:21She said.
  • 20:22I talked to a family childcare
  • 20:25educator who diagnosed a child
  • 20:27with diabetes and another who
  • 20:29diagnosed the child with Kawasaki.
  • 20:32Do you know how rare that is?
  • 20:34These educators are part of the
  • 20:36health care team and we need to
  • 20:39think about them differently.
  • 20:40So that brings me to the second
  • 20:43thing about Margie Margie was a
  • 20:45warrior when she believed the
  • 20:47thing was worth championing.
  • 20:49Nothing would stop her.
  • 20:51She wrote,
  • 20:52articles,
  • 20:52gave poster presentations and even
  • 20:54inspired medical students to write
  • 20:56about the role that family childcare
  • 20:59educators play as health ambassador.
  • 21:01Margie's work was revolutionary.
  • 21:02She saw the value in family
  • 21:05childcare way before others in her
  • 21:07field and we all are Kim's family
  • 21:10childcare educators and staff.
  • 21:12Loved her for that.
  • 21:14If I had all the time
  • 21:16in the world, I tell you lots more
  • 21:19about what Margie did with all Ark
  • 21:22in her work on the board house.
  • 21:24He made sure the children in our early Head
  • 21:27Start program had access to medical care,
  • 21:30but instead I want to talk about the
  • 21:32third thing about Margie Margie was kind.
  • 21:35She was so very kind she would come
  • 21:38to our office usually on her bicycle
  • 21:40and always even when she was ill.
  • 21:43Glowing with enthusiasm.
  • 21:44And with love.
  • 21:46She held my hand more times than
  • 21:48I can count during tough times
  • 21:50at all our kids after she died.
  • 21:53I heard stories from so many staff
  • 21:55members about her acts of kindness.
  • 21:57One person told me how Margie helped find
  • 22:00a doctor for her critically ill father,
  • 22:02how she wrote back in just two hours
  • 22:05with the name another told this story
  • 22:07about her first all our Kim board
  • 22:10meeting how intimidated she felt until
  • 22:12Margie came and sat next to her and
  • 22:15gave her that special Margie smile.
  • 22:18I miss that smile and you probably do too.
  • 22:22It was an honor to know Margie.
  • 22:24It was a joy to be her colleague and her
  • 22:27friend on behalf of everyone at all our kin.
  • 22:30Here's to Margie with gratitude and love.
  • 22:33Thank you.
  • 22:40Hi, my name is John and this
  • 22:44is our friend Christine.
  • 22:46We are faculty at Yale School of Medicine.
  • 22:50I'm I'm a psychologist.
  • 22:51Anne Christine is an
  • 22:53emergency medicine physician.
  • 22:54We met Margie in 2015 when we
  • 22:57took an participated in a year
  • 22:59long workshop called Public Voices
  • 23:01Fellows and where they pair female
  • 23:04academics and other underrepresented
  • 23:06voices with academics and teachers.
  • 23:08How to write op EDS and did
  • 23:11marjis or that year?
  • 23:13We're going to share the
  • 23:15reading of one of her.
  • 23:17Pieces from that year.
  • 23:20Thanks Joan Anne.
  • 23:21Thanks Anna and Kerry.
  • 23:23This piece is titled harming patient
  • 23:26satisfaction in the process of measuring it.
  • 23:29It was from January 11th, 2016.
  • 23:34The first time the social worker
  • 23:35asked if she should check in with me.
  • 23:38Was this past summer during chemo.
  • 23:40We chatted some and after
  • 23:42awhile she got up to leave.
  • 23:45Then she parted the Privacy Curtain,
  • 23:46stepped out, poked her head back in and said,
  • 23:49oh, I forgot to ask,
  • 23:51what are you most afraid of?
  • 23:54Patients are often criticized for
  • 23:56what are called doorhandle comments.
  • 23:57Those comments brought up as the health
  • 24:00care provider is walking out of the room
  • 24:03and already has one hand on the door.
  • 24:05They are often disease.
  • 24:06A patient who has had a very
  • 24:08straightforward appointment might state
  • 24:09that they have been having chest pain
  • 24:12or a myriad of other disclosures that
  • 24:14had they been revealed earlier on,
  • 24:16would have redirected the
  • 24:17appointment very differently.
  • 24:18Health care professionals do it too.
  • 24:21What are you most afraid of
  • 24:23is a huge sleeping question.
  • 24:25It invites all sorts of scary answers,
  • 24:27some of which I gave to the social
  • 24:30worker while she was only half
  • 24:32in my closed curtain space.
  • 24:34I'm most worried about dying, frankly.
  • 24:36And what that would mean for my children?
  • 24:39I felt guilty saying that to the
  • 24:41social worker as she was leaving,
  • 24:43I felt I had burdened her.
  • 24:45I had to remind myself that she had
  • 24:48asked that she was the oncology social
  • 24:50worker and that she probably hopefully
  • 24:52had training and how to respond.
  • 24:55I'm not sure she did.
  • 24:56She walked back into my space,
  • 24:58sat down and stated that these were
  • 25:01normal feelings. I started to cry.
  • 25:04She asked if I was OK.
  • 25:06I said I would be and she left.
  • 25:09A few weeks later,
  • 25:10I received a patient satisfaction
  • 25:12survey in the multiple Choice section,
  • 25:14I reported that everything was
  • 25:16going pretty well at chemo.
  • 25:18In the written comments,
  • 25:20I described the social worker's
  • 25:22surprising last minute question
  • 25:23and her clumsy attempt to excuse
  • 25:25herself as quickly as possible.
  • 25:27Then just this week at Chemo, I run into her.
  • 25:30Which is to say that I almost actually
  • 25:32run into her because I'm having an
  • 25:35ocular migraine and I'm squinting
  • 25:36so as to limit the kaleidoscope
  • 25:39patterns dancing in front of my eyes.
  • 25:41She asks if I have time to talk.
  • 25:44I say yes and go sit down and
  • 25:46snuggle under the pre warmed blanket.
  • 25:49The kaleidoscope patterns are
  • 25:50diminishing and I can almost see again.
  • 25:53The social worker comes over,
  • 25:54close the curtain and sits down.
  • 25:57We talk about my children work and me.
  • 26:02And then she tells me that she
  • 26:04appreciates the constructive criticism I
  • 26:06gave her and my patient satisfaction survey.
  • 26:08What she knows,
  • 26:09what I wrote,
  • 26:10and she's acknowledging that to me.
  • 26:13She tells me that she and her
  • 26:15supervisor worked on her skills
  • 26:16over the past few months and she
  • 26:18feels good about her progress.
  • 26:21Really, because as I sit there
  • 26:23in the chemo pod under a blanket,
  • 26:25Ivy tubes hanging from my chest
  • 26:27and about to get my chemo infusion,
  • 26:30I feel incredibly vulnerable.
  • 26:31I am all but in a bed and we are
  • 26:35in an enclosed space and although I
  • 26:37can hear her words telling me that
  • 26:40she is grateful to have had the
  • 26:42opportunity to work on her skills,
  • 26:44I cannot believe she is saying those words.
  • 26:47It is like the kaleidoscope patterns
  • 26:49I had been seeing.
  • 26:51Earlier they sound like words I know,
  • 26:53but they do not make sense.
  • 26:56I can't believe that in this
  • 26:58space she is telling me about her
  • 27:00vulnerability as a pediatrician
  • 27:02in a hospital based practice.
  • 27:04I know my patients are asked to fill
  • 27:07out patient satisfaction surveys,
  • 27:09yet I have only ever received feedback
  • 27:12in the form of aggregate numbers
  • 27:14describing how our Department is doing.
  • 27:17It turns out that the forms
  • 27:19are not anonymous.
  • 27:21In the hospital where I both
  • 27:23work and get my chemotherapy,
  • 27:25the surveys that are increasingly
  • 27:27federally mandated for every
  • 27:29inpatient and outpatient encounter
  • 27:31have numbers on them that link them
  • 27:34back to the person filling them out.
  • 27:36The comments from the survey,
  • 27:38especially extremely positive
  • 27:39or negative ones,
  • 27:41are transcribed and sent to
  • 27:43the relevant supervisor.
  • 27:44The supervisor can then link the
  • 27:46feedback with actual patients
  • 27:48and actual experiences and share
  • 27:50that information.
  • 27:51With everyone being evaluated.
  • 27:54Given the growing importance of these
  • 27:56surveys in improving health care,
  • 27:58they could and should be a lot
  • 28:02more patient centered.
  • 28:03For one patient should be aware
  • 28:05that the surveys are not anonymous.
  • 28:07Secondly,
  • 28:08patient should be able to opt in or
  • 28:10out of these kinds of discussions.
  • 28:13Patients who opt in could elect
  • 28:15to have those conversations at
  • 28:17their next appointment or at any
  • 28:19other mutually agreed upon time
  • 28:21when they are fully clothed,
  • 28:23sitting upright and understand
  • 28:24the purpose of the encounter.
  • 28:26I am disheartened by this experience
  • 28:28and I need to tell someone about it.
  • 28:31I'm considering bringing it up.
  • 28:33At next week's chemo port and well
  • 28:35before my oncologists has his hand on
  • 28:38the door and is about to walk out.
  • 28:40Or I could wait until I get
  • 28:42the next survey in the Mail.
  • 28:58Good evening, my name is Julia Rosenberg.
  • 29:01I'm a pediatrician and I'm honored to speak
  • 29:04about my experiences as a mentee of Margie.
  • 29:07I humbly recognize that I'm one of
  • 29:10countless training is whose lives have
  • 29:13forever been influenced by Margie's wisdom.
  • 29:15Her insight, her kindness, and her guidance.
  • 29:19One of the first lessons I learned from
  • 29:21Margie was through reading her words.
  • 29:23It was through her writing that she
  • 29:26taught us the value of sharing stories.
  • 29:28So with that, here's my story
  • 29:31with Margie one story of many.
  • 29:34It's no surprise that the first
  • 29:36time I was swept into Marjis orbit,
  • 29:38she was teaching being a pediatrician,
  • 29:40connecting with communities an inspiring
  • 29:42all those around her all in one fell swoop.
  • 29:46Diatric interns about our community
  • 29:48and our neighbors in New Haven.
  • 29:50This is the first time that I learned how it
  • 29:53was possible to be engaged in the community.
  • 29:56Work as a pediatrician.
  • 29:57So I eagerly took merges advice
  • 29:59from that day to listen and to learn
  • 30:01more about our community strengths,
  • 30:03especially in the New Haven
  • 30:05immigrant and refugee community.
  • 30:06Soon after when I was looking to learn how to
  • 30:09improve access to care for this population,
  • 30:12I turned to Margie, who,
  • 30:13unbeknownst to me only a few
  • 30:15days away from a major surgery,
  • 30:17did not hesitate to meet and
  • 30:19to share her insight.
  • 30:21She provided the valuable connections
  • 30:22that set me on a trajectory to
  • 30:25the work that I'm doing today
  • 30:26with her guidance from that day,
  • 30:28I started our first research
  • 30:30project by connecting with a new
  • 30:32mentor whom she suggested.
  • 30:34And soon I was swept into
  • 30:35her orbit once again,
  • 30:37applying to and it's been accepted to
  • 30:39the National Clinician Scholar Program,
  • 30:40which she Co LED.
  • 30:42There with her guidance,
  • 30:44I started working alongside
  • 30:45community partners and I started
  • 30:47working alongside Margie.
  • 30:48Her plantings of influence are ongoing
  • 30:50as I continue the work that we started
  • 30:53together now growing into an ever
  • 30:55evolving garden and a web of connections.
  • 30:59The whirlwind of connections
  • 31:00that Margie generously shared with
  • 31:02trainees didn't stop at pediatrician
  • 31:04community advocates didn't stop
  • 31:06at National clinician Scholar or
  • 31:08a New Haven community member.
  • 31:10She also mentored so many
  • 31:12of us as writers and as storytellers,
  • 31:15and she generously joined as we began
  • 31:18the stories in pediatric grand rounds.
  • 31:21It was Margie who emphasized
  • 31:22early in 2020 that these stories,
  • 31:25grand rounds needed the name
  • 31:27first annual in the title.
  • 31:29And she was right the second year,
  • 31:32that pediatric stories in grand rounds,
  • 31:34now named in her memory, continued.
  • 31:36And many who knew her and who are mentored
  • 31:39by her shared incredible stories that
  • 31:42the community work connections and
  • 31:44making waves and changes to improve
  • 31:46equity and to improve health care for
  • 31:48our community and our like so many
  • 31:51here today we all Miss Margie dearly,
  • 31:54but her legacy,
  • 31:55her heartfelt whirlwind of
  • 31:56kindness for connections.
  • 31:57And of course her flowering stories.
  • 32:00Continue to grow.
  • 32:01Thank you.
  • 32:12Hi everyone. Anne,
  • 32:14my name is Sharon, Asheville.
  • 32:17Johns Anne Anne.
  • 32:19I'm going to be presenting one
  • 32:22of Margie's wonderful graphic
  • 32:24memoir pieces along with Chang Soo.
  • 32:28We worked with Margie on some graphic
  • 32:31memoir workshops for members of
  • 32:34the medical school community and it
  • 32:37was absolutely incredible experience.
  • 32:38I'm a Mets hospitalist and I
  • 32:41first met Margie as a resident
  • 32:45here and I'll let Chang introduce
  • 32:48herself and then we'll read. Hi,
  • 32:51this is Jay.
  • 32:52My medical student 4th year about some
  • 32:55become internal medicine resident here.
  • 32:57You knew him a hospital.
  • 32:59I first met Doctor Rosenthal when
  • 33:01we're putting up exhibition of
  • 33:04the memoir that we're going to
  • 33:06share with you in Cafe Med and
  • 33:08then subsequently on some
  • 33:10graphic memoir workshops,
  • 33:11it was absolutely an honor
  • 33:13and pleasure to be here.
  • 33:23And here is the graphic memoir piece.
  • 33:51I'll child pose and you can find the
  • 33:54full version on the Annals of Internal
  • 33:58Medicine Graphic Medicine website.
  • 34:04Kanisha is the Hindu God
  • 34:05of all living things.
  • 34:07He earned his role by
  • 34:09outsmarting his brother.
  • 34:10When the two of them were challenged
  • 34:12to race around the universe,
  • 34:14Ganisha walked around his parents,
  • 34:16proclaiming that they were his universe.
  • 34:19Ganesha is often depicted in a tree pose,
  • 34:22a yoga pose that I can barely do.
  • 34:28I'm more comfortable in a happy baby pose.
  • 34:31Or a child's pose. But it turns out we
  • 34:34often don't get to choose our poses.
  • 34:41When the genetic counselor told
  • 34:43me I had the breast cancer gene,
  • 34:45my mom and I cried. The counselor
  • 34:48took my mother's hands and said.
  • 34:52I'm sure you gave her some good genes too.
  • 34:56My husband had just died,
  • 34:58leaving me with our two
  • 34:59year old and two month old.
  • 35:01Many days breastfeeding felt like
  • 35:04the only thing I was doing well.
  • 35:07Sad Mama pose.
  • 35:10The Bracco 1 gene.
  • 35:12Everyone has 2 copies of the gene.
  • 35:14The normal gene stops
  • 35:16cancer cells from growing.
  • 35:18People with one mutated gene have less
  • 35:20defense against all kinds of cancer.
  • 35:26It wasn't that surprising
  • 35:27that I had the mutated gene.
  • 35:29But it was sad nonetheless.
  • 35:32Me, not sure I'm ready to be reassured.
  • 35:35Pose my mom feeling guilty and
  • 35:38trying to be reassuring pose.
  • 35:43For the next 10 years I did the best I could.
  • 35:46Raising my daughters happy Mama pose.
  • 35:50And following advice for people
  • 35:52with mutated breckel one.
  • 35:54And every six months I had a mammogram
  • 35:57or breast MRI to look for breast cancer.
  • 36:00Diligent, patient pose.
  • 36:02I had my ovaries removed because Bracco one
  • 36:05put me at high risk for ovarian cancer.
  • 36:10Until my breast MRI showed
  • 36:12an incidental finding,
  • 36:14my breasts or fine I had cancer in my liver.
  • 36:18They had metastasized from my colon.
  • 36:21I've had six years of chemo and a 48
  • 36:23hour surgery to remove parts of my liver,
  • 36:26pancreas, colon, and a ton of lymph nodes.
  • 36:31After surgery, I wasn't allowed
  • 36:32to eat or drink until I started
  • 36:35my 13 year old daughter.
  • 36:36Took that as an invitation to search
  • 36:39her phone out of fart yoga poses.
  • 36:41Most of the yoga poses were too **** **
  • 36:45my belly full of drains and bandages.
  • 36:48Almost two years later,
  • 36:49on vacation to celebrate my
  • 36:51mother's 80th birthday,
  • 36:52we took yoga classes every morning.
  • 36:54I'm not good at all at this at all.
  • 36:58You're not supposed to say that it's a
  • 37:01practice you're assuring daughter pose,
  • 37:03and maybe you were doing it right.
  • 37:07On the last morning of yoga,
  • 37:09at the end of class,
  • 37:11I told everyone that
  • 37:13my mom was
  • 37:14turning 80 years old.
  • 37:15Wow, congratulations.
  • 37:16You look great. You were
  • 37:18amazing in class.
  • 37:19I never would've guessed you're 80.
  • 37:21Yeah maybe 60 tops and then
  • 37:24just as we were leaving,
  • 37:26the best comment was directed at me.
  • 37:28Your mom is great.
  • 37:30She gave you some great jeans.
  • 37:32Lucky you out daughter pose.
  • 37:51Good evening everyone.
  • 37:53My name is Joe Ross.
  • 37:55I'm a general internist at Yale and I
  • 37:58have been working with Margie for many
  • 38:01many years as part of the Scholars program.
  • 38:04I actually wrote down my remarks,
  • 38:06which is not something I generally do
  • 38:08particularly these days, but I'm disciplined.
  • 38:11I wrote down carrying Anatolia.
  • 38:12Write down my remarks, but.
  • 38:15It's just so nice to hear
  • 38:17readings of Margie's writings.
  • 38:19You can literally hear her voice in the air.
  • 38:22It's just I'm just loving this whole
  • 38:25event so far missing large dearly.
  • 38:31You never know when you were
  • 38:32going to meet one of the most
  • 38:34important people in your life.
  • 38:36But when I sat down at the long
  • 38:38table in the Clinical Scholars
  • 38:40Conference room across from Margie.
  • 38:42Her first words should have
  • 38:44woken me to the possibility.
  • 38:46It was July 2004 and around the table
  • 38:48where a group of people I was excited
  • 38:51to me will be at a bit intimidated by.
  • 38:54As we were setting off on the next
  • 38:57chapter of our professional lives
  • 38:59to be clinical scholars together.
  • 39:01Each of us introduced ourselves.
  • 39:04James Leora Marsella, Steve,
  • 39:06Susanna and me. And Margie.
  • 39:10She explained that she was joining
  • 39:12us for this introductory session,
  • 39:14even though she was a second year scholar.
  • 39:16She was a pediatrician.
  • 39:17She transferred from the program in North
  • 39:20Carolina to be closer to her family.
  • 39:22As her parents lived in Stamford and her
  • 39:25seven siblings in and around New York City.
  • 39:28She told us she was the mother
  • 39:29of two young girls, Mayan Alina,
  • 39:31who were about three in one.
  • 39:34And then she told us that
  • 39:35she was a recent widow.
  • 39:36As her husband,
  • 39:37Amal had died in a car accident.
  • 39:41Each of us were shocked and speechless,
  • 39:43never having encountered such
  • 39:45personal tragedy in our lives.
  • 39:48But Margie gracefully moved the
  • 39:51introductions along. And that was Margie.
  • 39:55She set the tone for who we
  • 39:57would be as a cohort together.
  • 39:59Real. Honest. Straight forward.
  • 40:04She brought you to where she was
  • 40:07emotionally and intellectually.
  • 40:09Sometimes abruptly,
  • 40:11but usually gently.
  • 40:14In a highly professional world where
  • 40:15people were ambitious and talked about work,
  • 40:18life balance and keeping all
  • 40:20these worlds separate.
  • 40:22Margie deliberately brought them together.
  • 40:25Her colleagues were colleagues
  • 40:27but also friends and family.
  • 40:29She talked to her neighbors about her
  • 40:31work and she talked to the people she
  • 40:33worked with about her neighborhood.
  • 40:35She was unafraid of letting
  • 40:37people from any part of her life
  • 40:40see how she moved in another.
  • 40:42Is what made her so amazing as a writer,
  • 40:45as a speaker?
  • 40:46And yes, as a graphic novelist.
  • 40:49But it also made her such an
  • 40:51extraordinary teacher and mentor.
  • 40:54Many of you joining this memorial
  • 40:56tonight will have known Margie through
  • 40:58her role in the Scholars program.
  • 41:00In so many ways,
  • 41:01the program we have today
  • 41:03is a reflection of Margie.
  • 41:05She developed and taught the community
  • 41:08based participatory research curriculum
  • 41:10building and strengthening alliances
  • 41:11with the New Haven community.
  • 41:13She launched the Mentorship program,
  • 41:15ensuring that they were both
  • 41:18formal and informal opportunities
  • 41:20for scholars to obtain and to
  • 41:23learn how to provide mentorship.
  • 41:25And she supported countless scholars
  • 41:27in the research in the writing,
  • 41:30and most importantly, in their lives.
  • 41:32Her door was always open.
  • 41:36I learned so much from Margie
  • 41:39she always had the best advice.
  • 41:42I learned how important it is
  • 41:43to take a moment to stop and
  • 41:46ask people how they're doing,
  • 41:48especially if they have young kids.
  • 41:51I learned that a phone call or knock on
  • 41:54the door is always better than an email.
  • 41:56Specially for feedback.
  • 41:58I learned that you never show up
  • 42:01to a Community event without food.
  • 42:03I learned that mentorship doesn't
  • 42:05just mean teaching someone how to
  • 42:08design a study or write a paper.
  • 42:10But instead to answer questions
  • 42:12about what might be mysterious
  • 42:14to someone more junior.
  • 42:16Questions specific to a project,
  • 42:17or questions about how to connect
  • 42:19to a potential collaborator,
  • 42:21or questions about the day-to-day
  • 42:23of your job,
  • 42:24or even questions about your
  • 42:25family and your kids.
  • 42:27Margie knew that being a mentor
  • 42:29means showing others how you make.
  • 42:32Your everything work.
  • 42:34Especially what you value and prioritize.
  • 42:39But what all of us uniquely learned from
  • 42:41Archie was how to act bravely and honestly?
  • 42:44She could have let Amal's
  • 42:46tragic death define her.
  • 42:48But instead she moved to a new
  • 42:50city and created a circle of
  • 42:51community around her and her girls.
  • 42:53Unlike anyone who I have ever met.
  • 42:56Everyone knew Margie and Margie
  • 42:59knew everyone.
  • 43:01When she was diagnosed with cancer,
  • 43:02she could have retreated from her
  • 43:05life at Yale at clinic and at the CSP.
  • 43:08But instead she came to work.
  • 43:10Often,
  • 43:10biking for exercise to see
  • 43:12her patients and pre
  • 43:13set to meet with students and mentees.
  • 43:16And she doubled down on her,
  • 43:18writing her scholarship and her advocacy.
  • 43:21I treasure so many memories of Margie.
  • 43:25Our families together on Holidays, walks
  • 43:27in the Woods sitting on her front porch.
  • 43:31Our kids growing up together.
  • 43:34Sharing meals.
  • 43:35Long weekends at Suzanne's in
  • 43:37Vermont at Leora's in Greenwich.
  • 43:40Our scholar cohort still connected.
  • 43:42Since that conference table,
  • 43:44when she brought us together.
  • 43:47I wish that everyone could share a
  • 43:49friendship with a person like Margie.
  • 43:52Although perhaps the most amazing thing is
  • 43:55that so many other people feel this way
  • 43:58about their friendship with Margie too.
  • 44:01I love you Margie.
  • 44:02They all miss you dearly.
  • 44:16My. I'm Randy Epstein.
  • 44:19I was in a writers group with Anna
  • 44:22and Lisa Sanders and Pauline Chin.
  • 44:24The Margie piece that I'm going to read
  • 44:27started out in the draft that we read.
  • 44:30It started out as a you and second person.
  • 44:33It was always easier for Margie to
  • 44:36write you and for us to edit her
  • 44:39second person because it just put it
  • 44:41out there far away from all of us.
  • 44:44The New York Times editor rightly
  • 44:46so made her switched I.
  • 44:48It was very difficult for Margie.
  • 44:50And it's difficult for me to read tonight.
  • 44:54This was published March 13th,
  • 44:562020 in the New York Times.
  • 45:01I know bad news is coming my way
  • 45:03when my oncologist walks into
  • 45:05the exam room with the nurse.
  • 45:07It doesn't matter that he
  • 45:08introduces her as a new nurse,
  • 45:10getting to know the system.
  • 45:12In my more than six years of seeing my
  • 45:15oncologist for metastatic colon cancer,
  • 45:17he is never coming accompanied.
  • 45:20He wants her in the room to
  • 45:22learn how to give bad news.
  • 45:24After 25 years of the pediatrician,
  • 45:27I know the guidelines find a quiet room,
  • 45:31give the news directly, allow for silences,
  • 45:34offer tissues and glasses of water.
  • 45:38Wait for the families questions and
  • 45:40answer them as fully as possible.
  • 45:43I've had to tell families that
  • 45:45their child has a chronic disease.
  • 45:47Is gravely ill, has died.
  • 45:49Now my oncologist rotates the chair
  • 45:52facing the computer so it faces me.
  • 45:55He sits down, makes eye contact,
  • 45:57glances at the box of tissues by his side.
  • 46:01The nurse stands just beside him,
  • 46:03shifting her weight between her feet.
  • 46:06I sit on the exam table with two of
  • 46:09my friends next to me holding hands.
  • 46:12There are new liver lesions growing.
  • 46:15My oncologist says three years
  • 46:17the lesions were dormant,
  • 46:18encased in calcium,
  • 46:19but the cancer cells and burst
  • 46:22through their calcium borders.
  • 46:23They're not yet wreaking havoc.
  • 46:25My laboratory values and
  • 46:27vital signs are normal,
  • 46:29but the new liver lesions means that
  • 46:32chemotherapy is no longer working.
  • 46:35I step out of my patient rolling
  • 46:37into my doctor role just long enough
  • 46:39to acknowledge that my doctor is
  • 46:41very good at giving bad news.
  • 46:43He is asking what questions I have.
  • 46:46He's allowing for silence.
  • 46:47Tears are falling from my eyes and he is
  • 46:51silently handing me the box of tissues.
  • 46:54The nurse nods her head when
  • 46:55he talks about the next steps.
  • 46:58You'll look into clinical trials
  • 47:00and new medications.
  • 47:01On Monday he will meet with his
  • 47:04colleagues to discuss my case.
  • 47:06They will pull up images of my scans and
  • 47:09discuss radiation surgery, immunotherapy.
  • 47:12Possibilities.
  • 47:13The nurse nods optimistic.
  • 47:17I look at the scans on my
  • 47:19oncologist computer screen.
  • 47:20He rolls the mouse to make
  • 47:21the images bigger than life.
  • 47:23He touches the light Gray ovals
  • 47:25of cancer on the CT scan and
  • 47:27contrast them to the darker Gray
  • 47:29of the rest of the liver.
  • 47:30He points to the bright yellow
  • 47:32sunburst shaped spots of cancer on the
  • 47:34PET scan. They stand out starkly against the
  • 47:37purple Gray color of the rest of the liver.
  • 47:39When I was a medical student,
  • 47:42I thought those images look
  • 47:43like modern art, but not today.
  • 47:45Today I know those Gray ovals and yellow
  • 47:48spots or my growing cancer reacting to
  • 47:51the contrast fluid infused in my body.
  • 47:54My oncologist cancels my chemotherapy
  • 47:56for the day while I wait to
  • 47:59figure out the next steps.
  • 48:00I will be full of uncertainty
  • 48:02and fear of the growing cancer,
  • 48:04but not having chemo means my next
  • 48:06days will not be full of nausea,
  • 48:08diarrhea and exhaustion.
  • 48:09No chemo means I will need
  • 48:10to go home and get under.
  • 48:12I will not need to go home
  • 48:14and get under the covers.
  • 48:16The day opens up loving counselors
  • 48:19taught me about patience and lack
  • 48:21of control and how to spend as much
  • 48:23time as I can with those I love.
  • 48:26I propose a hike with my friends.
  • 48:28They say, of course,
  • 48:29and we drive the 10 minutes
  • 48:31to sleeping Giant State Park.
  • 48:33One friend choose the trail.
  • 48:34I do not know.
  • 48:36She says it will wind along the
  • 48:38River before rising up the Hill.
  • 48:40The trail gives us a good view
  • 48:42of the trees that fell from the
  • 48:44tornado a few years earlier.
  • 48:45Some trees are dead and others
  • 48:48whose intricate root systems
  • 48:49have grown sideways and above the
  • 48:51ground seemed to be re generating.
  • 48:54But do they, the day of the tornado,
  • 48:56is during a non chemo week.
  • 48:58I was driving my older daughter
  • 49:00home through what was in our town.
  • 49:02Just a bad rainstorm. I was not worried.
  • 49:06I had no idea there was a serious
  • 49:09storm brewing nearby.
  • 49:10We rest on a fallen log in a sunny spot.
  • 49:13We talk of our children and
  • 49:16partners in politics and cancer.
  • 49:18After our hike,
  • 49:18we stop at the pharmacy to
  • 49:20pick up passport photos.
  • 49:22Last week before my oncologist walked
  • 49:24into the exam room with the nurse,
  • 49:26my teenage daughters and I had the photos
  • 49:29taken because our passports were expiring.
  • 49:31This week, I wonder if I will
  • 49:33ever leave the country again.
  • 49:35I had hoped to have more adventures.
  • 49:37I'm confident that my daughters just
  • 49:39on the Crest of their adulthood,
  • 49:41will travel widely.
  • 49:43At the cash register are extra
  • 49:45large chocolate bars.
  • 49:46I buy 2.
  • 49:49I center my daughters are curious
  • 49:50about how I had time to make dinner
  • 49:53and why I'm eating dinner with them.
  • 49:55They know my typical chemo day has me
  • 49:57napping all afternoon and into the evening.
  • 50:00Tell my daughters the news.
  • 50:02I tell them I am on a chemo holiday
  • 50:05because there are new cancers.
  • 50:07Cell grows.
  • 50:08There's knew cancerous growing liver lesions.
  • 50:11The biggest collection of cells
  • 50:14is 1.5 centimeters wide.
  • 50:16My daughter spread their thumb and index
  • 50:19finger to estimate how big that is.
  • 50:21It's small,
  • 50:22they say.
  • 50:23We eggplant parmesan and chocolate
  • 50:25in my daughters retreat to their
  • 50:28rooms for homework in Netflix.
  • 50:30I have known for over 6 years
  • 50:32that there would
  • 50:33be lesions that were escape
  • 50:34the clutches of chemotherapy.
  • 50:36I am sad it is now.
  • 50:39They hope for more time,
  • 50:40but there's no denial.
  • 50:42I met the nurse who came into the exam
  • 50:45room to learn how to give bad news.
  • 50:48She, with her freshly pressed
  • 50:49scrubs will be better prepared
  • 50:51to give the bad news next time.
  • 51:08Good evening, I am so
  • 51:09honored to be a part of this.
  • 51:11My name is Natasha Rae Ann.
  • 51:12I am the director of New Haven healthy start.
  • 51:15As you've heard, there are many of us
  • 51:17who have learned so much from Margie.
  • 51:20For me the lessons have always been
  • 51:22professional as well as personal.
  • 51:24I met and began working with Margie in
  • 51:262005 and the Clinical Scholars Program.
  • 51:29My first CBPR project that I was copii.
  • 51:32I learn how to code qualitative studies
  • 51:34from Margie the benefits of infant massage
  • 51:37for the New Haven healthy Start families.
  • 51:39I learned from Margie and circles of
  • 51:42security for our staff that serve these
  • 51:45families all brought to us by Margie.
  • 51:48She had always either encouraged the
  • 51:50tough conversations like race power and
  • 51:52privilege and CPR and or in the world,
  • 51:54or at a drop of a dime ready to have them.
  • 51:58These are just a few of the
  • 52:01many gifts from her.
  • 52:02Our last in person time
  • 52:05together was in June 2019.
  • 52:08We spent the afternoon in a very
  • 52:10small theater on Middletown
  • 52:12Ave that I had no idea existed.
  • 52:14Margie, did an we went to watch Rocket Man.
  • 52:17We discussed the choice of actors,
  • 52:19the storyline,
  • 52:20the things that neither of us knew about,
  • 52:23Sir Elton and we literally sang out loud
  • 52:25of the of the songs along with the movie.
  • 52:28There were only four of us in the
  • 52:31theater so on the way home she asked
  • 52:34me if I watch blackish and I cringed.
  • 52:37I said absolutely not, absolutely not.
  • 52:39As a rule, you know I'm not a judge.
  • 52:41Judge the book by the cover person,
  • 52:43however,
  • 52:44just the name alone suggested to me that
  • 52:45it was just another blaxploitation sitcom,
  • 52:48and I've had more than my fair
  • 52:49share of those not interested.
  • 52:51No way she's like, oh,
  • 52:52it is definitely not that you
  • 52:54would really enjoy it, Natasha.
  • 52:56I'm telling you, you have to watch it.
  • 52:58You have to watch it.
  • 52:59And you know,
  • 53:00shoot me a text when you watch it.
  • 53:02We've got to talk about it.
  • 53:04So on the way home we talked more about
  • 53:07the negative stereotypes of black
  • 53:09families in the media and the impact
  • 53:11of it and how it's perpetuate it.
  • 53:13You know still talking shop during
  • 53:15girls day out and when I drop Margie off
  • 53:17I told her that I would check it out.
  • 53:20It took me about three weeks to finally
  • 53:22watch an episode and of course she was right.
  • 53:24We began texting about certain episodes,
  • 53:26checking into see if one or the
  • 53:28other cop this weeks episode.
  • 53:30It was an awesome thing and I just
  • 53:32think about how lucky I was to have
  • 53:34someone who knew me well enough
  • 53:36and that I trust it to bring me to
  • 53:39the other side about an all black
  • 53:41show with an all black cast.
  • 53:43Margie and Blackish will always go
  • 53:45hand in hand for me and it's very dear to me.
  • 53:48I shared this abbreviated version
  • 53:50in a very very small
  • 53:52group of our colleagues a few months ago,
  • 53:54but up until that point I had
  • 53:56held that memory as a special
  • 53:58thing between margin me.
  • 54:00Tonight I am happy to have
  • 54:03shared this all with you.
  • 54:05I miss her cell. Thank you.
  • 54:14Thank you Natasha.
  • 54:17Certainly empathize with missing
  • 54:18Margie but I have to tell you tonight
  • 54:21have been such a wonderful tribute.
  • 54:24It's really been terrific to hear
  • 54:26from all of the colleagues and
  • 54:29friends of Margie's and kind of
  • 54:32distributed keep going on forever.
  • 54:34Of course we can try one more one
  • 54:37brief stories to share now, but.
  • 54:40To seeing on this list of participants,
  • 54:43all the people across the country
  • 54:45who have logged on tonight to
  • 54:47watch and share with us really is a
  • 54:50wonderful reminder that in a way,
  • 54:52this tribute will continue forever.
  • 54:54Through all them are just all of us.
  • 54:58So this past fall I visited
  • 55:01Margie in the hospital.
  • 55:04She had already been there a few
  • 55:06days and while she was feeling
  • 55:07a little bit better overall,
  • 55:09the hospital never let you sleep.
  • 55:10She was still recovering so she
  • 55:12was still still a bit tired.
  • 55:14But she was also bored and she wanted
  • 55:17the company so generic small talk
  • 55:19ensued until she suddenly remembered
  • 55:21something that she had been wanting
  • 55:23to talk to me about something
  • 55:24that had been driving her crazy.
  • 55:26She sits up suddenly energized,
  • 55:28leaving in towards me.
  • 55:29She had been thinking about our hospitals,
  • 55:32new clinic,
  • 55:32a partnership with community
  • 55:34health centers in the area.
  • 55:36It had been under construction
  • 55:37for the past year.
  • 55:39Margin grew more animated,
  • 55:40thinking aloud about how this new
  • 55:42physical clinic building was an
  • 55:44opportunity to improve engagement
  • 55:46between the hospital and the community,
  • 55:48and she feared that opportunity
  • 55:50might be slipping away.
  • 55:51The location of the clinic was
  • 55:53remote for many of the neighborhoods
  • 55:55that it was supposed to be serving.
  • 55:58Marta was worried about this.
  • 56:01She spoke about how important it was
  • 56:03to get the community input for all
  • 56:05aspects of designing the new clinic building,
  • 56:08including.
  • 56:08The actual design of the exterior
  • 56:11and the inside, among other things.
  • 56:14She had been advocating sometimes
  • 56:16from her hospital bed to ensure
  • 56:19that New Haven based artists.
  • 56:21Work with grace the walls,
  • 56:22because after all,
  • 56:23when people entered this new clinic,
  • 56:25what would they see when they
  • 56:27see a reflection of themselves
  • 56:29of their own communities?
  • 56:30She's been exploring this issue.
  • 56:32They felt as though she been
  • 56:34getting the run run around.
  • 56:36She had called hospital administrators
  • 56:37to ask about who is purchasing the art,
  • 56:40and she was told that they have a
  • 56:43great lineup of standard artists
  • 56:44who are located in California
  • 56:46on the West Coast who were great
  • 56:49at turning out BC beach scenes.
  • 56:51Generic landscapes etc.
  • 56:52But as recently as bad day.
  • 56:54Margie had still been calling
  • 56:56people pleading to the hospital to
  • 56:58turn their purchasing directions
  • 57:00direction back into New Haven.
  • 57:02Six months later after Margie had
  • 57:04died I was sitting there in the
  • 57:07parking lot of the bright and shiny
  • 57:10new clinic building for the first time.
  • 57:13I hadn't thought about that conversation
  • 57:15with Margie for quite awhile.
  • 57:17I felt glum realizing that
  • 57:19this initiative would probably
  • 57:21falling through the cracks.
  • 57:22We're marching,
  • 57:23step back from her work and from her
  • 57:25advocacy I was kind of dreading
  • 57:27entering the clinic building,
  • 57:28knowing that Margie wouldn't be there.
  • 57:30I trudged across the parking lot,
  • 57:32but as I walked through the waiting room,
  • 57:34I did a double take.
  • 57:36That sound can we share?
  • 57:38Turns out I've been wrong about margin,
  • 57:40that being there in the building with us.
  • 57:43The walls were decorated with beautiful
  • 57:45work by New Haven based artists.
  • 57:47And is Margie would say love that.
  • 57:55Thanks so much. Kerry and presenters.
  • 57:57Would you put your video
  • 58:00cameras back on for a moment?
  • 58:03So yeah, thank you.
  • 58:05Everybody who read and
  • 58:07shared wonderful stories.
  • 58:08Remembering Margie and her impact tonight.
  • 58:11Thank you to everybody in the audience who
  • 58:14tuned in to remember and celebrate with us.
  • 58:18This category. Defining physician,
  • 58:20writer, artist and activist.
  • 58:22The impactful, beautiful, work,
  • 58:24friendship and legacy of our beautiful,
  • 58:27beautiful, beloved colleague and friend,
  • 58:29Doctor Marjorie S Rosenthal.
  • 58:32Thanks everybody, goodnight.