Child Study Center Grand Rounds 03.23.2021
June 08, 2021The potential of using Machine Learning to collect and use Social Determinants of Health Information to Improve Health Equity
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- 00:00Today, let me tell you what we
- 00:03have in store for next week.
- 00:05Another one that I'm very excited about.
- 00:08Next week we're going to have our
- 00:12next compassionate care routes.
- 00:14And we're going to be talking about.
- 00:16I don't have the title in front of me,
- 00:19just coined it, but I think it
- 00:22goes something along the lines of.
- 00:25Actually, do you have that
- 00:27the title on hand row?
- 00:32While Roe looks for the title,
- 00:33I can tell you that it's going to
- 00:35be about the work that we're doing.
- 00:37On eating disorders up on the on the
- 00:39pediatric floors where we have been
- 00:42absolutely overwhelmed by the number
- 00:43of such presentations we usually have,
- 00:46you know one or two every so often.
- 00:49But as you will hear,
- 00:51we've been literally flooded and overwhelmed,
- 00:53and we're trying to make sense
- 00:55of what that is,
- 00:57and so we're going to have a
- 00:59compassionate care rounds with
- 01:01the clinicians from all stripes
- 01:02of clinicians who have worked,
- 01:04we're going to talk about a specific case.
- 01:07But more broadly about what this means,
- 01:10so it's going
- 01:11to be very special,
- 01:13and the title is too little.
- 01:15Eating too many cases,
- 01:16microdroplets of trust
- 01:17toward national rehabilitate
- 01:18nutritional rehabilitation.
- 01:20Yeah, can you say it one
- 01:23more time slowly?
- 01:25I'm Mr too little.
- 01:27Eating too many cases.
- 01:29Microdroplets of trust?
- 01:30Tord nutritional rehabilitation.
- 01:33And there you have it,
- 01:35and we're going to thank you, Rob.
- 01:37And we're going to have a real,
- 01:39wonderful multidisciplinary cast for that.
- 01:41So, so that's next week.
- 01:43But this week, you know I wanted
- 01:45to introduce our wonderful speaker,
- 01:47but Rob Liberal, just like ARM,
- 01:49wrestled me, tackled me in fact,
- 01:51and he said, no, you're not doing it.
- 01:54I'm doing it.
- 01:55So I said, OK Liberal,
- 01:56if that's how you wanna do it.
- 01:59But you know, kidding aside,
- 02:00I am so grateful to Rob.
- 02:03Who who really has just like I was
- 02:05telling that Carol has been our paragon
- 02:08of timeliness and and always being there,
- 02:11I would say that Rob has been our
- 02:14paragon of identifying important topics.
- 02:17Wonderful speakers today is
- 02:18the second of three wonderful
- 02:21speakers the the first one that we
- 02:23had with Reverend Amanda right.
- 02:25I'm still seeing it in my in my mind's eye.
- 02:29It was an incredible talk
- 02:31and today by Charles he.
- 02:33Permitted me to call him Charles, not doctor.
- 02:36Centeio will not be an exception.
- 02:38We're in for a real treat and I
- 02:41will let my good friend rob the
- 02:43master of making this connection.
- 02:45Tell us about Doctor sent a place.
- 02:48Rob
- 02:48thank you. Doctor Martin.
- 02:50The Yale Child Study Center is a very
- 02:53special place I know this because
- 02:55last week Doctor Martin and Doctor
- 02:58Fernandez helped us bear witness to
- 03:01that rich and fruitful tradition of
- 03:03making the world a better place.
- 03:05By honoring the legacy of our
- 03:08dear and beloved Doctor Cohen.
- 03:11Who through a series of lectures honored him.
- 03:14And today it is my privilege to
- 03:17introduce a very special person in
- 03:21this very special virtual place who
- 03:24has 1 foot in academia and the other
- 03:28foot on the ground in the community,
- 03:31making the world a better place.
- 03:34And his name is the doctor Charles Centrio.
- 03:38Today, Doctor Santio was shared with us a
- 03:42lecture entitled understanding and reducing.
- 03:45Racial inequality for COVID-19 vaccination.
- 03:48Doctor Sentio is an assistant
- 03:50professor at the Rutgers School of
- 03:53Communication and Information in
- 03:56the Department of Library Science.
- 03:59He is also currently the Martin Luther King.
- 04:04Visiting professor and scholar at
- 04:07Massachusetts Institute of Technology.
- 04:09His research focuses on improving chronic
- 04:13disease outcomes for underserved populations.
- 04:16He is particularly interested in
- 04:19using both existing technology
- 04:22such as smartphones and tablets,
- 04:25and emerging technologies such as machine
- 04:28learning to improve health outcomes.
- 04:31He earned his PhD.
- 04:33In health informatics from the University of
- 04:37Michigan and while in pursuit of that degree,
- 04:40he also earned a master's degree
- 04:43in social work from University of.
- 04:46Michigan and later acquired a
- 04:48clinical license and social work.
- 04:52He also received an MBA from U of M Ann.
- 04:56Prior to that,
- 04:57a BA in mathematics and computer science
- 05:00at Central Connecticut State University.
- 05:03Clearly Doctor Santio is a
- 05:05musical intellectual.
- 05:06He has an incredible gift to be
- 05:09able to synthesize and assimilate
- 05:11diverse bodies of knowledge in novel,
- 05:14tangible and meaningful ways.
- 05:16He is the author of numerous articles
- 05:19and currently has a book chapter.
- 05:22Under review in their Rutlidge Handbook
- 05:24of Health Communication on the topic of
- 05:27community based health interventions.
- 05:29Will you please help me?
- 05:32Welcome Doctor Charlson TL to
- 05:34the Yale Child Study Center.
- 05:39Thank you, thank you so much,
- 05:41I appreciate it.
- 05:42Thanks for the warm introduction.
- 05:43Both Rosemary and Razan Rob,
- 05:45I certainly appreciate it.
- 05:46Thank you also for the an opportunity,
- 05:49at least virtually any way to return
- 05:51home to Connecticut where I grew up,
- 05:53I was born in Hartford and I
- 05:55grew up in Manchester before
- 05:57venturing off to two other places.
- 05:59So thank you again.
- 06:00I'd like to start the talk by just
- 06:03grounding our understanding or
- 06:04developing a common understanding,
- 06:06as I like to say for what health informatics.
- 06:09Is there are various definitions out there?
- 06:12This is 1 by Chuck Friedman
- 06:14who's a professor that I had
- 06:17at Michigan very commonly used.
- 06:19So basically,
- 06:20by definition it's important to
- 06:21understand that health informatics
- 06:23is definitionally interdisciplinary,
- 06:25and what it really involves are
- 06:27science domains or traditionally
- 06:29kind of science domains as well as
- 06:32application domains coming together
- 06:33to support scientific inquiry and
- 06:36problem solving, and that is about it.
- 06:39So science domains include
- 06:40information science where I come from.
- 06:43In terms of my doctoral training,
- 06:46computer science,
- 06:46where my undergraduate training was
- 06:49in along with various other sciences,
- 06:52cognitive science, communication,
- 06:53science, organizational science,
- 06:54decision sciences,
- 06:55and then application domains health.
- 06:57Obviously for this population
- 06:59includes community health,
- 07:01Health Communication, health,
- 07:02behavior, clinical care delivery,
- 07:04bio medical informatics or bio medical study,
- 07:07as well as social work and public health.
- 07:11And I picked these domains because my works.
- 07:15Tends to touch each of these areas,
- 07:17so combining the application domain
- 07:19and the science you get domain
- 07:21informatics so health informatics,
- 07:23biomedical informatics.
- 07:24So that's just a way for you to
- 07:27sort of decyfer when you hear
- 07:29health informatics and that term,
- 07:31this is the generally accepted definition,
- 07:34but the bottom line is that people
- 07:36are the users of health information,
- 07:39so health informatics,
- 07:40no matter where you are in terms
- 07:43of the type of work that you do.
- 07:46Ultimately points to that people, humans.
- 07:48We interact with information and
- 07:51that information can exert influence
- 07:53on us as well as we exert influence
- 07:56on it as we produce it OK.
- 07:58Now,
- 07:58common understanding what's HealthEquity.
- 08:00I'll go this one through this one
- 08:02a little bit quicker.
- 08:04I'm I'm assuming that we probably
- 08:06have more of a baseline understanding,
- 08:09but basically it's about assessing
- 08:11the differences in health status
- 08:13between groups of people and those
- 08:15groups can be defined by race or ethnicity.
- 08:18That's a common sort of grouping,
- 08:20and the grouping that I probably deal
- 08:23with the most, but also importantly,
- 08:25immigration status, disability,
- 08:27gender, sexual orientation, geography.
- 08:28And assets and I used the term Alice
- 08:31now which stands for asset limited
- 08:33income constrained an employed
- 08:35SES is a common sort of bucket
- 08:37for that or similar bucket,
- 08:39but Alice is a term that I see used more
- 08:42and more in the term I use now differences.
- 08:45What does that mean?
- 08:47Well,
- 08:47differences include the extent.
- 08:50Of a disease.
- 08:51As well as impact,
- 08:53so I don't want to take
- 08:56us through FB 101 here,
- 08:58but basically the prevalence
- 09:00is the proportion of cases in a
- 09:03population at a time, so incidences,
- 09:06incidents conveys information about
- 09:08the risk of contracting a disease,
- 09:10whereas prevalence indicates
- 09:12how widespread it is.
- 09:14And in the context of COVID,
- 09:16that's extremely relevant.
- 09:17I think we've all heard some of these
- 09:20terms released concepts as we've looked
- 09:22at the Daily News on COVID updates.
- 09:25Now just a little bit about equity,
- 09:27I could cite many different examples
- 09:29and I'll cite some later on.
- 09:31But for those of us who work in equity,
- 09:34and I've been working in
- 09:36equity for about 15 years now,
- 09:38Milwaukee is a city that's often used in
- 09:40illustrating HealthEquity or health inequity.
- 09:42It's a fairly segregated city
- 09:44with a large black population,
- 09:4540% in the city,
- 09:47and then 17% in Metro Milwaukee.
- 09:49And we don't quite understand why there
- 09:51are some various theories out there,
- 09:54but the point is that when you see
- 09:56HealthEquity numbers illustrative
- 09:58of a larger larger phenomenon,
- 10:00you see Milwaukee quoted quite a bit so.
- 10:04Infant mortality across the United States
- 10:06for blacks is more than twice that of whites.
- 10:09That's been the case for over a decade now.
- 10:13And in Milwaukee,
- 10:14as I've mentioned,
- 10:14low SES households are three
- 10:16and a half times more likely to
- 10:18die in the first year of life.
- 10:20So these sort of dramatic indicators,
- 10:22again persistent.
- 10:23This is before COVID became
- 10:25part of our binocular.
- 10:27These are persistent inequities,
- 10:29and Milwaukee is a good place to
- 10:32sort of illustrate these this data.
- 10:34These facts and this.
- 10:36These have been the case.
- 10:38As I mentioned for over a decade now.
- 10:43OK,
- 10:43I want to also emphasize that HealthEquity
- 10:46is a persistent human rights issue.
- 10:50I need to assert that because there's
- 10:53not universal agreement on this.
- 10:55I read a few years ago when I was delving
- 10:58more into policy that we fund our priorities.
- 11:02I'll say that again,
- 11:03we fund our priorities and HealthEquity
- 11:06is not necessarily something that
- 11:08has been funded.
- 11:09I'm going to put a quote up here and if
- 11:13we were in the room I'd ask for hands,
- 11:15but I want to read this to you.
- 11:18We are concerned about the constant
- 11:20use of federal funds to support
- 11:21this most notorious expression of
- 11:23segregation of all forms of inequality.
- 11:25Injustice in health is the most
- 11:27shocking and the most inhuman because
- 11:29it often results in physical death.
- 11:31The quote more of the quote I see
- 11:33no alternative to direct action and
- 11:35creative nonviolence to create awareness,
- 11:37to create, to create,
- 11:38not creative nonviolence to raise
- 11:40the conscious of the nation.
- 11:41Sorry bout that.
- 11:42I stepped over the last part.
- 11:44Does anyone know who famously
- 11:47said that in a speech?
- 11:49I'm gonna move on here.
- 11:51That's Doctor Martin Luther King Junior 1965.
- 11:54Annual meeting of Medical
- 11:56Committee for Human Rights.
- 11:57So this notion of HealthEquity that
- 11:59it exists going to get more to that
- 12:02later and that it's important,
- 12:04has been around.
- 12:05This is not a new thing and
- 12:07I want to make sure that we understand that.
- 12:11So when I say persistent inequity,
- 12:13I'm not talking about COVID.
- 12:14I'm certainly not even talking
- 12:16about the last decade or two
- 12:18when this work has proliferated.
- 12:19We've known about these
- 12:21inequities for quite some time.
- 12:23Now let's jump into the causes.
- 12:25As you might imagine, summer unclear.
- 12:27This is an interesting question.
- 12:29What causes health inequities?
- 12:31It seems may seem innocuous.
- 12:33But part of what makes it complex is
- 12:35that it brings together many academic
- 12:37disciplines and many different theories,
- 12:40many different approaches.
- 12:41During my PhD study in Information Science,
- 12:44I was exposed as you might imagine,
- 12:46to several different academic
- 12:48disciplines that are new to me.
- 12:50As Rob mentioned, I was a mathematics
- 12:53and computer science undergrad,
- 12:54so my pathway to social
- 12:56science was was long and Anan.
- 12:59Winding.
- 12:59However,
- 12:59given my description of health informatics,
- 13:02that's probably to be expected in
- 13:04terms of the interdisciplinarity.
- 13:06Of it,
- 13:06so my interest in HealthEquity
- 13:08was enhanced by my exposure to
- 13:10developmental psychology literature.
- 13:12This is literature that I'm sure
- 13:14many in the crowd are familiar with,
- 13:16specifically through one of my professors,
- 13:19Daniel Keating, who I mentioned by name here.
- 13:22One because he does wonderful work and two,
- 13:25he's just an excellent professor in person.
- 13:27I'm using his work here to explain
- 13:29or try to answer the question
- 13:32about what causes inequity.
- 13:33Again, persistent inequity.
- 13:35As I continue to to identify the root causes,
- 13:39I find myself even reading more
- 13:42literature and sociology, psychology,
- 13:44even history to understand context.
- 13:46So it's important if we're
- 13:48going to ask this question,
- 13:50we have to embrace different disciplines,
- 13:53different people, different literature.
- 13:54That's important now, the answers.
- 13:57What are they?
- 13:59They lie in two camps, essentially,
- 14:02historically and contemporarily,
- 14:04nature versus nurture.
- 14:05We're probably very familiar
- 14:07with the concepts.
- 14:09Are certain groups biologically
- 14:11or genetically predisposed to
- 14:13the risk of certain conditions?
- 14:16And their progression?
- 14:17Or do social factors play
- 14:19more of a role nurture?
- 14:22For the Pearly early part,
- 14:23I told you,
- 14:24I've been reading a lot of history,
- 14:25so for the early part of
- 14:27our country's history,
- 14:27nature was the prevailing belief.
- 14:30The science was influenced by
- 14:32the sentiments of the scientists.
- 14:34This is still the case.
- 14:36The psychologist Charles Thomas
- 14:38in 1985 published a paper in part
- 14:41that said quote science is a human
- 14:44activity which is hardly neutral.
- 14:46Objective or impartial?
- 14:48So it's important that when
- 14:49we talk about the science,
- 14:51some of us imply the purity of it.
- 14:54It's important for us to understand
- 14:56that there are human beings behind
- 14:59the collection of that data.
- 15:01The analysis of that data,
- 15:02the interpretation of that analysis,
- 15:04and the dissemination of it.
- 15:06After all, as an example,
- 15:08using enslaved Africans as free
- 15:10labor was in large part fueled by
- 15:12the notion that certain groups were
- 15:15genetically and biologically inferior.
- 15:17I'll expound upon Dubois his work
- 15:19in this area in a couple of slides,
- 15:22but back to Keaton cheating.
- 15:24He found he and others find
- 15:26that nature and nurture
- 15:28both play a role in outcomes,
- 15:30so individual differences.
- 15:31Cognitive, behavioral,
- 15:33physical and mental health are patterned
- 15:36by socioeconomic circumstances.
- 15:38And that health outcomes are influenced
- 15:40by many inter related factors.
- 15:42So things like poor health status,
- 15:44disease risk, risk factors and
- 15:47limited access to health care.
- 15:50Social determinants of health.
- 15:51Stoc. Hi, I'm going to talk
- 15:53about those quite a bit.
- 15:55Those are primarily the drivers.
- 15:58Now let's talk a bit about this.
- 16:02Here how do we get from social?
- 16:05Factors.
- 16:06To outcomes, again,
- 16:07an innocuous question on the surface,
- 16:10but there's a lot going on underneath here.
- 16:13OK. This arrow from social
- 16:20circumstances to outcomes.
- 16:23Is about predicting outcomes based on
- 16:25social economic status or Sep sometimes
- 16:28called social economic position.
- 16:32So let me go and review this circle a bit.
- 16:35I'm going to spend just a slide on
- 16:37this circle, 'cause it's it really
- 16:39gets at the heart of the answer to the
- 16:41question about what causes inequity,
- 16:43the interplay of nature and
- 16:45nurture both of them play a role.
- 16:47But the key questions again are what what
- 16:50social predictors matter more than others?
- 16:52And how do these predictors interact?
- 16:56Do they relate to different outcomes
- 16:58and what developed mechanisms
- 16:59might explain this arrow?
- 17:01Those of us who work with pathways clinical
- 17:03pathways were really concerned with this.
- 17:05How do we tie factors to two outcomes?
- 17:08What's the pathway?
- 17:11The short answer is we don't know really.
- 17:14They're hard to separate.
- 17:15You can imagine that it's really hard
- 17:17to isolate someone's socioeconomic
- 17:19position from where they live.
- 17:21These social determinants are interplayed.
- 17:23They're almost hopelessly connected,
- 17:25and I don't mean hopeless as there's
- 17:27no hope to do something about it.
- 17:30I mean,
- 17:30hopeless in terms of trying to segment them.
- 17:33Segment them are very difficult.
- 17:35However,
- 17:36what we do know what has been demonstrated
- 17:39is that as a whole social circumstances.
- 17:42Have a gradient.
- 17:44Here this is represented by
- 17:47the arrow to outcomes.
- 17:49Lower levels of socioeconomic
- 17:51status and social economic position
- 17:54uniformly are associated with lower
- 17:56levels of virtually any measured
- 17:59developmental health outcome,
- 18:01and its most frequently
- 18:04a linear relationship.
- 18:06So these factors, demographics,
- 18:09socioeconomic, residential.
- 18:12Actually can predict.
- 18:14Physical, mental, cognitive,
- 18:16and social competence is.
- 18:19So the answer is nature and nurture,
- 18:22but more specifically social factors,
- 18:25social determinants of health actually
- 18:27show linear relationships to outcomes.
- 18:32Now let's go to COVID for a minute.
- 18:36What's causing the COVID
- 18:39inequities that we see well?
- 18:42For people like me who have been
- 18:44working in HealthEquity for over a
- 18:46decade and there have been people who
- 18:48have been doing this a lot longer than
- 18:50I have before I learned how to spell
- 18:52PhD point to these social factors.
- 18:55So wouldn't it follow that social factors
- 18:59are also exerting influence on COVID,
- 19:03specifically risk of infection?
- 19:05Risk of hospitalization and mortality risk.
- 19:08Those are the three kind of markers
- 19:11that have been used since the
- 19:13beginning of the pandemic in terms
- 19:15of the work that I've looked at.
- 19:18Again, social factors for over
- 19:20100 years social factors,
- 19:21not genetic factors as was first
- 19:24speculated have been described as primary
- 19:26causal factors of health disparities,
- 19:28and we also find them in COVID.
- 19:31Risk of COVID infection,
- 19:34hospitalization and death.
- 19:35Just some more in terms of HealthEquity data.
- 19:41African American and Native American
- 19:43individuals have shorter life
- 19:45spans and more illness than whites.
- 19:48Hispanic immigrants initially tend
- 19:50to have relatively healthy profiles,
- 19:52but with increasing lengths of
- 19:55stay in the United States,
- 19:57their health tends to decline.
- 19:59That's also true of immigrants
- 20:02from African and Caribbean nations.
- 20:06Now, in terms of COVID.
- 20:09And think COVID social factors COVID
- 20:11social factors by the end of the talk,
- 20:13I hope that we're making that association.
- 20:16Let's look at the Bronx, New York City.
- 20:18Rob knows about the Bronx, don't you rob?
- 20:21Familiar, the Bronx had the has the lowest
- 20:23levels of income and education and highest
- 20:26proportion of black and Hispanic persons
- 20:28of any of the boroughs of New York.
- 20:30It also had the highest rate of
- 20:32COVID hospitalizations and deaths.
- 20:35This is data as of September.
- 20:38In contrast, Manhattan primarily
- 20:40predominantly white most affluent
- 20:41borough of New York City by far,
- 20:44had the lowest rates of hospitalizations
- 20:46and deaths related to COVID-19.
- 20:49Although it had the highest population
- 20:51density of any New York City borough.
- 20:55Again, this is data as of September.
- 20:58New York City reflects other
- 21:00major US centers. For example.
- 21:03Disproportionate death rates of black
- 21:05persons in Chicago are concentrated in four
- 21:08majority black neighborhoods, so we see.
- 21:11Almost as data was being collected
- 21:14around COVID racial disparities.
- 21:18So let's go back a bit.
- 21:19I told you I've been reading
- 21:21a little bit about history.
- 21:22I'm going to take you through
- 21:24a little bit of this.
- 21:25It's important to understand that
- 21:27racial health inequity did not start.
- 21:28Unfortunately,
- 21:29nowhere that end with COVID.
- 21:31But when did racial inequity emerging health?
- 21:33Well, the answer is pretty clear.
- 21:36Racial differences in health are
- 21:38present at the very inception of health
- 21:40records being kept in the United States.
- 21:43Up until an through the Civil War in 1861,
- 21:47physicians debated.
- 21:48Physicians these are trained individuals.
- 21:51Whether the already well known racial
- 21:54disparities were due to biology.
- 21:56Because blacks were inferior or
- 21:58social factors because many blacks
- 22:00were enslaved and lived in society.
- 22:02Steeped in white supremacy,
- 22:04steeped in white supremacy.
- 22:05At the time,
- 22:06the debate was rooted in politics
- 22:08as anti slavery physicians,
- 22:10which included the first generation
- 22:12of black doctors,
- 22:13argued that social factors were the drivers.
- 22:16These factors at the time defined
- 22:18the need for cheap labor and those
- 22:21conditions were what determined
- 22:22both the progression of disease.
- 22:25And health status of enslaved blacks
- 22:26in the South and impoverished blacks
- 22:28in the north. This work was captured.
- 22:31This biological versus social
- 22:33debate was captured by Dubois and
- 22:37his Seminole work the Philadelphia.
- 22:39Now Dubois was a trained sociologist.
- 22:42I think of him as the first
- 22:46HealthEquity scholar in our country.
- 22:49And he's also deeply,
- 22:50deeply into epidemiology.
- 22:51If I could talk to him,
- 22:53I'd love to talk to him about his epic work.
- 22:56'cause that's really what this is about as a.
- 22:59I read this book before I learned how to
- 23:02spell PhD and then I reread it after.
- 23:05And it's a book about epidemiology.
- 23:07Essentially.
- 23:07Now why am I bringing it up here?
- 23:10He can't rasted the biological point
- 23:12of view and his observation that.
- 23:15Uh, that social factors?
- 23:17Were in the vastly different conditions
- 23:21were at play, and I'm putting up.
- 23:24US knows that this is the
- 23:26I submit that Dubois is
- 23:29important to public health.
- 23:31United States ice snow is to to
- 23:34public health around the world.
- 23:36This is the famous water spicket
- 23:39that London physicians know.
- 23:40I identified was the cause of cholera.
- 23:43This kind of launched modern epidemiology.
- 23:47And I think that this work the
- 23:49Philadelphia is approach is as
- 23:51important in terms of racial equity,
- 23:53both in the United States and beyond.
- 23:58So Dubois argued that social
- 24:01advancements and vastly different
- 24:03living conditions were the causes
- 24:06of the known 1899 known racial
- 24:09differences in health outcomes.
- 24:11Now one more on Dubois.
- 24:13Before I leave what he pointed out,
- 24:15I pulled this quote from the Philadelphia
- 24:17and I think it's really important.
- 24:20I alluded to this earlier when I talked
- 24:22about we fund our priorities again,
- 24:24we fund our priorities.
- 24:26The most difficult social problem
- 24:28in the matter of health is the
- 24:30peculiar attitude of the nation
- 24:32towards the well being of the race.
- 24:35There have been few other cases in
- 24:36the history of civilized peoples
- 24:38where human suffering has been viewed
- 24:40with such peculiar indifference.
- 24:441899 Let's go back to social determinants.
- 24:49I want to ground us in a common
- 24:51understanding as I did for health
- 24:52informatics and for HealthEquity.
- 24:56And we see here what Dubois observed.
- 25:00Social advancement vastly
- 25:02different living conditions.
- 25:04Stop one moment Sir.
- 25:06OK, there are five central
- 25:09social determinants of health.
- 25:11Economic stability, education,
- 25:13social and community context,
- 25:15health and health care,
- 25:17neighborhood and built environment.
- 25:19And this. Diagram.
- 25:22From the Institute of Medicine.
- 25:24Helps articulate.
- 25:27Illustrate their interplay there all.
- 25:31They all can play a role.
- 25:33And some can play the role
- 25:35of role more than others for
- 25:37group for certain groups.
- 25:38But the point is in trying
- 25:40to isolate causal factors.
- 25:41This is perhaps what makes pathways
- 25:44so difficult to definitively describe
- 25:46is that they are all at play and
- 25:48they can be a play at different
- 25:50times for different individuals.
- 25:52So these are social determinants.
- 25:57And these determinants have been
- 25:59articulated for various groups.
- 26:01I've mentioned black.
- 26:03I've mentioned Latin ex but also Haitian.
- 26:07Afro Cuban Trinidad Ian
- 26:09Appalachian Poor Asian Americans,
- 26:11older adults, immigrants,
- 26:12individuals with disabilities,
- 26:14Native Americans.
- 26:15It goes on prisoners as well.
- 26:20Social determinants of health
- 26:22of health are not like gravity.
- 26:25They're not some natural law
- 26:27that just sort of happens.
- 26:29They are the drivers and the result of
- 26:32institutions that create and sustain them.
- 26:34They are populated these institutions
- 26:37by individuals who either actively make
- 26:39decisions to maintain an equity or perhaps.
- 26:42More commonly, they passively
- 26:44maintain an equity by simply looking
- 26:46the other way by not caring quite
- 26:48enough for the least of these.
- 26:49Back to Dubois is quote.
- 26:52When I first started started
- 26:54studying health inequity,
- 26:55I thought the healthcare system was broken.
- 26:58Maybe not.
- 26:59Perhaps like the criminal justice system,
- 27:02it's working as intended.
- 27:03Deanna Hoskins has seen the senior policy
- 27:06advisor for the Department of Justice,
- 27:08Bureau of Justice Assistance is noted.
- 27:12The criminal justice system is not broken.
- 27:14It is operating just as
- 27:16it's designed to operate.
- 27:18The cost,
- 27:18perhaps some of you are familiar
- 27:20with some of this data.
- 27:21The cost of imprisonment in jail in
- 27:23the past 20 years has grown as a faster
- 27:26rate than any other state budget item.
- 27:28It costs about $80.00 a
- 27:30day to house an inmate.
- 27:31And the United States spends in excess of
- 27:33$68 billion a year on corrections federal,
- 27:36state and local.
- 27:36I point this out because we should never
- 27:39assume that we're all united in our
- 27:41desire to eliminate racial inequity.
- 27:43I never assumed that.
- 27:46This is uphill. It's a noble fight.
- 27:48But there's a slope.
- 27:52To that line?
- 27:54OK, social determinants of
- 27:55health impact everyone,
- 27:56but not everyone equally important
- 27:58point here. It can impact all groups.
- 28:02But children in particular
- 28:04are especially vulnerable.
- 28:06Why well?
- 28:09Askeaton, another seven have taught
- 28:11me in terms of developmental.
- 28:13Children are especially vulnerable
- 28:14because the physical,
- 28:15social and emotional capabilities
- 28:17that develop early in life,
- 28:18which many of you are well steep,
- 28:21provide a foundation for life,
- 28:22course health and well being.
- 28:26As I mentioned,
- 28:27developmental scientists have settled
- 28:28on the nature versus nurture debate,
- 28:31both in concert matter.
- 28:32But how they interact with the course
- 28:35of development is still being described.
- 28:37What we do know,
- 28:39as I mentioned with Keating's work.
- 28:41But important nature,
- 28:43nurture interactions occur during
- 28:44early childhood development that set
- 28:47a course throughout someone's life.
- 28:52I'd like to also point out that
- 28:55systematic racism and colorism colorism
- 28:57prejudice or discrimination against
- 28:59individuals with dark skin tone.
- 29:02Among people of the same ethnic group.
- 29:05Are types of determinants which
- 29:06do not impact groups equally.
- 29:08So while social determinants impact all
- 29:10of us, they don't impact us all equally.
- 29:12Much like Kovit,
- 29:13I remember early in the pandemic
- 29:15where COVID is affecting us all.
- 29:17We're all being affected by kovid.
- 29:19That's largely true,
- 29:20but it's not affecting us all equally,
- 29:22and that was brought home to me
- 29:24more than at any other time.
- 29:26When I was freaked out like the rest of
- 29:29us have even walking out the door and
- 29:32going to the grocery store was an adventure.
- 29:36And anxiety.
- 29:38Yet when I talk on the phone with one
- 29:40of a friend I've had since 7th grade.
- 29:42Ann, I said you're out,
- 29:43what are you doing out? And it hit me.
- 29:46He's a mailman. He delivers the mail.
- 29:50He didn't have a choice.
- 29:52He was essential. And the people
- 29:55that we walked by in grocery stores,
- 29:57stocking shelves, essential workers.
- 29:58So we have to keep in mind that
- 30:01this pandemic and these determinants
- 30:03don't affect us all equal.
- 30:04And that's important for us
- 30:06to keep in mind me include.
- 30:07OK, structural inequities.
- 30:09I've mentioned that what are they?
- 30:12Well, they're important 'cause
- 30:15they undergird these drivers.
- 30:17They are the personal interpersonal
- 30:20institution and systematic drivers excuse me,
- 30:23such as racism, sexism,
- 30:25classism, ableism, xenophobia,
- 30:26homophobia,
- 30:27that make those identities salient
- 30:29to the fair distribution of
- 30:32health opportunities and outcomes.
- 30:36I want to point out here that there's a
- 30:40distinction in the American narrative.
- 30:42As you might imagine in the
- 30:45summer after Memorial Day.
- 30:47I was asked to talk to different groups
- 30:50in ways that I hadn't before about
- 30:53racial justice, and I'm not a race
- 30:56researcher by training or by identity.
- 30:58However, I do research and equity.
- 31:01I'm a person of color,
- 31:03therefore I bring myself to my work.
- 31:06So. What I so I did some homework
- 31:09so more reading of history,
- 31:11which has been extremely illuminated,
- 31:13instructed from.
- 31:15And I uncovered that there was a
- 31:17prevailing and Eric American narrative
- 31:19that draws a sharp line between
- 31:21the United States past and present.
- 31:25So within 60s and 70s marking a crucial
- 31:28before and after moment in that narrative,
- 31:32the narrative is search asserts
- 31:34that until the 1950s, U.S.
- 31:36history was shaped by the
- 31:38impacts of past slavery.
- 31:40American Indian removal,
- 31:41lack of rights for women,
- 31:43Jim Crow segregation periods of
- 31:46nativists restrictions on immigration,
- 31:47and waves of mass deportation of
- 31:50Hispanic immigrants, eugenics,
- 31:51the internment of Japanese Americans,
- 31:54Chinese exclusion policies.
- 31:56The criminalization of homosexual acts
- 31:59and more so think 50s pre 50s this past.
- 32:03And then after the 1950s.
- 32:06We had this rush to the present
- 32:09civil rights women's liberation,
- 32:11gay rights, disability rights movements,
- 32:13and their aftermaths.
- 32:14May have contributed or be contributing
- 32:17to this narrative that social,
- 32:20political, and cultural institutions
- 32:21have made progress towards equity,
- 32:23diversity and inclusion.
- 32:25DI it's a thing.
- 32:28Highlights include the Civil Rights
- 32:30Act of 64 Voting Rights Act of 65,
- 32:32Fair Housing Act.
- 32:34Title 9 American with Disabilities Act.
- 32:38Even the Affordable Care Act.
- 32:41And most recently, the Supreme Court
- 32:43case that legalized marriage equality.
- 32:46United States.
- 32:47Yes, that was progress.
- 32:49That is progress.
- 32:50However,
- 32:51when we look at remaining persistent
- 32:54structural inequity.
- 32:55I'd like us to reconsider
- 32:58that before after narrative,
- 33:00even after what I call this past summer
- 33:03of radical racial reconciliation.
- 33:06How much of that energy will be
- 33:08sustained and how will we know
- 33:10what indicators might we use
- 33:12'cause from a health standpoint,
- 33:14I'm still looking for evidence of that.
- 33:17Sharp distinction.
- 33:24Persistent racial inequity suggests
- 33:25that the distinction is not so good.
- 33:30OK, causes of racial inequity.
- 33:32I alluded to this a little earlier.
- 33:34For kovit or similar to the
- 33:37causes of persistent inequity
- 33:38for common chronic conditions.
- 33:40So I cited some data earlier
- 33:43about racial inequity,
- 33:44and we see that the structural social
- 33:47factors exert have exerted are
- 33:49exerting their influence on COVID-19.
- 33:51Again, risk of infection
- 33:53hospitalization and death,
- 33:54and that shouldn't shock us right?
- 33:57Wouldn't it wouldn't be surprising if we
- 34:00found that somehow these structural factors,
- 34:03which are by definition structural.
- 34:05Wouldn't be exerting an influence
- 34:07on covert outcomes for me early
- 34:09in the pandemic and I'll talk a
- 34:11little bit more about where my work
- 34:13is today and where it's headed.
- 34:15I saw a crisis room. Because these
- 34:20structural factors are structural.
- 34:22So what we found in some early data.
- 34:24This is a Banga is a wonderful
- 34:27mentor of mine.
- 34:28He's at the university.
- 34:30He's at NYU.
- 34:31School of Medicine does some
- 34:33wonderful work in population health.
- 34:34Published in JAMA in September.
- 34:37Addressing some of it questions
- 34:39about genetic predisposition
- 34:40predisposition to COVID infection,
- 34:42they ask that was out there
- 34:44reasonable questions to ask.
- 34:46But are people of color
- 34:48genetically predisposed?
- 34:49The questions were asked and answered
- 34:51by Gbenga and others that yes,
- 34:54social factors like greater proportion
- 34:56of essential jobs like my friend,
- 34:58my lifelong friend who delivers the mail
- 35:01continues to deliver the mail everyday.
- 35:04Never missed a day of work.
- 35:07Number of people in the household.
- 35:09Multi generations in the household,
- 35:11the things that we know
- 35:13predispose you to COVID risk.
- 35:15Also exert their influence
- 35:17disproportionately on people of color.
- 35:24So just as medical care alone.
- 35:27Has not rat eradicated
- 35:29racial inequities in health?
- 35:31Medical care alone will not
- 35:34result in racial, ethnic,
- 35:36ethnic inequities for COVID inequity.
- 35:40So I, as I've been reading about vaccine
- 35:42rollouts and I'll talk a little bit
- 35:44about some of that data in a moment.
- 35:47It occurred to me early
- 35:48on that this is great.
- 35:49Our bench scientists are going to work.
- 35:52And God level yes, we need that.
- 35:54Should create a vaccine.
- 35:57And they get. However.
- 36:01We also need the social scientists
- 36:03to bring that.
- 36:05Bench science genius to real.
- 36:10OK, it's important to understand.
- 36:11I'd like to discuss some
- 36:13work that I'm I'm into now.
- 36:15So early in the pandemic I
- 36:17speculated that social determinants,
- 36:18which I have been reading about
- 36:21studying and writing about for
- 36:22several years at that point.
- 36:24Combined. With people of color
- 36:27having high medical mistrust.
- 36:30Which was an area that I hadn't
- 36:32done much work in specifically.
- 36:34Also, the proliferation of
- 36:37misinformation and disinformation.
- 36:40But it was vital to understand perceptions.
- 36:43Particularly a future vaccine.
- 36:45This is back in the fall or actually this
- 36:48summer was going to affect behavior because.
- 36:50Part of what I'm really interested in
- 36:53is how do perceptions impact behavior?
- 36:57To what degree do they?
- 36:59Because they do.
- 37:01So.
- 37:03Given this high level of mistrust,
- 37:06given all, by the way,
- 37:08is an information scientist,
- 37:09I must point out that misinformation
- 37:12and disinformation or not the same.
- 37:14They aren't synonyms, misinformation,
- 37:15wrong disinformation,
- 37:16deliberately wrong.
- 37:17That's the new monik.
- 37:18Just information deliberate.
- 37:20They are not the same.
- 37:22Some people just don't know or some sources
- 37:24are not sure where as dis information is
- 37:27a deliberate attempt to decieve DDD got it,
- 37:29got the new mnemonic.
- 37:30That's the one I use.
- 37:32Use whatever one you wish.
- 37:34So in the early summer.
- 37:36Largely due to the perceptions
- 37:38and beliefs I was hearing upon
- 37:41my network of people of color.
- 37:44About where this came from.
- 37:46Who was responsible?
- 37:47What's going to happen when a
- 37:50treatment or a vaccine comes?
- 37:52Exacerbated by miss and disinformation.
- 37:54Remember back to the glorious
- 37:56time last summer and last fall
- 37:58and we were hearing all kinds of
- 38:01things about all kinds of topics.
- 38:03Some did some misinformation.
- 38:05I thought that we might have
- 38:09a crisis looming because.
- 38:11Vaccines don't make us safe, vaccinations do.
- 38:15So we need the bench scientists.
- 38:18To help us.
- 38:20Do their work to develop the vaccines,
- 38:23but that's part of the journey.
- 38:26What we're seeing now?
- 38:28Are where social determinants may
- 38:31exert their influence on vaccination.
- 38:34Because vaccines don't make
- 38:35us safe vaccinations.
- 38:38So a key tenant that I wanted to.
- 38:42Incorporate into this work which turned
- 38:44into the COVID and race project.
- 38:46The sites up is that intragroup
- 38:47differences were important to investigate.
- 38:49Largely in I mentioned earlier,
- 38:51bring myself to my work.
- 38:53I was when I, when I was trained,
- 38:55I was trying to mix methods.
- 38:57I do mixed methods work,
- 38:59but in my qualitative training I
- 39:01remember a particular lesson where it
- 39:03says the qualitative researcher goes
- 39:05in with an empty mind and an open mind,
- 39:08but not an empty head.
- 39:10An open mind, but not an empty head,
- 39:12and that resonated with me 'cause
- 39:14I bring myself to my work.
- 39:15How can you not?
- 39:16As a social worker,
- 39:17I know that you bring yourself to your work.
- 39:20You don't leave your experiences at the door.
- 39:23Or before you get into your analysis
- 39:25or before you start writing,
- 39:26it comes with you.
- 39:28Embrace it so I knew that black
- 39:30people of color were different.
- 39:33Rob and I may be people of color,
- 39:35but that might be we have similarities,
- 39:38but we also have distinctions
- 39:39and differences.
- 39:40So intergroup relations were
- 39:42important for me to understand.
- 39:44And there are.
- 39:45Validated acculturation skills that
- 39:47have been around for a couple of decades
- 39:50to measure intergroup difference.
- 39:52Because if we're going to create
- 39:54an intervention,
- 39:55or if we're going to target
- 39:57a group that's at risk,
- 39:59how do we possibly do that with just
- 40:02having all the Asian Americans in one
- 40:05group Latin X in another group, and?
- 40:09Blacks in another.
- 40:11So here's an opportunity to apply
- 40:14acculturation scales for me in my work.
- 40:17Anyway,
- 40:17to to test the hypothesis that
- 40:19intergroup differences would
- 40:20help target health information
- 40:22interventions and address potential
- 40:24racial inequities in vaccination.
- 40:25Again, at the time this was last May,
- 40:29I was interested in a future vaccine.
- 40:34Using mistrust and perceptions,
- 40:35we could measure that that's what we do.
- 40:37We ask questions and we try to measure
- 40:40and that's what we do in research.
- 40:42So what I did. Right in July, August,
- 40:47when I started at MIT, I connected with
- 40:51a behavioral economist at MIT, Dave ran.
- 40:55Added some of his expertise given
- 40:57he does online surveys all the
- 41:00time that measure perceptions.
- 41:03Again, this notion of interdisciplinary enter
- 41:06discipline work is extremely important if
- 41:09for in most cases I think I've heard of 1,
- 41:13there's no traditional academic
- 41:15Center for HealthEquity.
- 41:17HealthEquity, just like the virus doesn't
- 41:20care about your political leanings.
- 41:22Equity work doesn't care about
- 41:24what your doctorate isn't.
- 41:26Or where your academic home is.
- 41:29It's definitionally multidisciplinar,
- 41:31so we combine and we have
- 41:34run various experiments on.
- 41:36We've established it, yes intragroup.
- 41:40Racial perceptions do affect
- 41:41COVID perceptions.
- 41:42There's a strong.
- 41:43This is preview now where where our
- 41:46work hasn't been published yet.
- 41:48We're submitting a research brief end
- 41:50of this week early next that shows
- 41:53that there's a strong correlation
- 41:55where less acculturated participants
- 41:57have more negative vaccine attitudes.
- 42:00And this relationship is fully mediated
- 42:01by suspicion in the health care system,
- 42:03and that's something that all
- 42:05of us should care about.
- 42:06Those of us that touch patients
- 42:08or do work that eventually does.
- 42:11On the flip side,
- 42:13less acculturated participants are more
- 42:15likely also to have had themselves
- 42:18family or friends hospitalised due to Kovit.
- 42:21So it reveals differential exposure.
- 42:24To harm from cobett
- 42:33OK, so moving forward we are going to
- 42:37run more experiments to try to refine and
- 42:42finetune where perceptions connect to.
- 42:46Behavior, intended behavior and outcomes,
- 42:48and this is work that holds potential.
- 42:52I hope long after COVID.
- 42:56Or long after COVID is contained,
- 42:57let me say that.
- 42:59Because I think that there's quite an
- 43:01opportunity for us to get a little
- 43:03bit more refined and understanding
- 43:05where perceptions influence
- 43:07behavior which influence outcomes.
- 43:09So what we're doing now,
- 43:11we've applied for some funding
- 43:13internally at MIT.
- 43:14We've structured a project that
- 43:16has two central objectives first.
- 43:19We want to with a larger population measure,
- 43:22hasn't vaccine hesitancy and its
- 43:24underlying perceptions and beliefs in
- 43:26order to develop messaging approaches to
- 43:28help address the causes of his hesitancy,
- 43:31it's no longer sufficient to just
- 43:33say that people of color have
- 43:36higher mistrust therefore.
- 43:38I think that can be used as an excuse.
- 43:42To shut down the efforts.
- 43:44To reach people and meet them where
- 43:46they are and also understand the
- 43:48influence of structural factors like
- 43:50social determinants which may be
- 43:52presenting barriers to FactSet vaccination.
- 43:54This is important because
- 43:56there's emerging research.
- 43:57That suggests.
- 43:59That intention to receive a COVID
- 44:02vaccine may be actually higher among
- 44:04black Americans and other racial groups,
- 44:07specifically white men.
- 44:09May perhaps some of you have
- 44:11seen some of this data.
- 44:12This is a publish or it there was
- 44:15a poll that NPR help sponsor about
- 44:17a week and a half ago that found
- 44:20that 73% of adult black Americans
- 44:22intended to get the vaccine when
- 44:24it became available again when
- 44:26it became available to them.
- 44:28Higher than white men who leaned
- 44:32conservative or a Republican.
- 44:35So it's important to understand these
- 44:36inequities and that would be an equity
- 44:38and equity that we would want to address,
- 44:39or at least some of us would want to address.
- 44:43So preliminary data suggests that.
- 44:47Social determinants,
- 44:48not just medical mistrust.
- 44:51May explain racial disparities
- 44:53in vaccination rates,
- 44:55so we will solicit feedback on efforts
- 44:57made to get insight or to get to get
- 45:01vaccination to get further insights.
- 45:04So we're hopeful that these insights will
- 45:07will will help us address vaccination
- 45:09disparities and just real quickly
- 45:12here vaccination disparities by race
- 45:14are or reported all over the country.
- 45:17LA had a particularly interesting and
- 45:20comprehensive view where, as of February.
- 45:2214th you see the dramatic differences
- 45:25in race according to vaccination.
- 45:28Actual vaccination.
- 45:31Somewhat ironically, people of color
- 45:32are vaccinated at lower rates.
- 45:33They are at highest risk.
- 45:36OK, so in summary,
- 45:38what I would like to do is posit that
- 45:42provider credibility may have a link to.
- 45:46Outcomes of behavior and outcomes.
- 45:48I'm interested instead of or in addition to,
- 45:52measuring medical mistrust.
- 45:53I'd like to also measure
- 45:55credibility of provider,
- 45:56team health care system
- 45:58to help define a pathway,
- 46:00perhaps more definitively,
- 46:02from credibility to health
- 46:03behavior to outcomes,
- 46:05and that could provide us with a
- 46:08unique novel opportunity to address
- 46:10racial equity and cost of care.
- 46:12I add cost of care here because
- 46:15depending on the audience.
- 46:18As I alluded to earlier,
- 46:20addressing racial inequity.
- 46:21Does not necessarily hold
- 46:23the day when the argument,
- 46:25but when you combine the
- 46:28human side of inequity,
- 46:29reducing unnecessary suffering,
- 46:31and the financial side,
- 46:33reducing things like avoidable
- 46:35hospital utilization through Ed
- 46:37visits an unplanned admissions
- 46:39that tends to capture most of
- 46:41the audiences that I talked to,
- 46:43either wonderful.
- 46:44So collecting data among vulnerable
- 46:47communities understand credibility to
- 46:49measure its effect on behavior and outcomes.
- 46:51We can then assign a credibility
- 46:54index to healthcare institutions and
- 46:56provider teams and start to really
- 46:58test or continue to test how the
- 47:01patient provider relationship may
- 47:03influence health behaviors and outcomes.
- 47:05We could start with vaccination,
- 47:07but we could translate this to far
- 47:11beyond other health behaviors.
- 47:13So medical mistrust I would
- 47:16posit is important,
- 47:17but pathways are difficult to define.
- 47:21And it actually points the finger outwards
- 47:23towards individuals and communities,
- 47:25suggesting that something
- 47:26needs to be done to fix them.
- 47:28We need to create an invention
- 47:30to get their medical mistrust to
- 47:32reduce their medical mistrust.
- 47:34So they'll follow behaviors as recommended.
- 47:36I submit that a credibility is more
- 47:38of a inward look at the self to
- 47:41try to figure out what we can do
- 47:43to be more kredible clinicians in
- 47:45terms of their touching patients
- 47:47as well as health researchers
- 47:49like myself to actually.
- 47:51Understand what that what
- 47:53behavior that might influence like
- 47:55participation in health research.
- 47:59OK, as I conclude here.
- 48:02There are paths.
- 48:04There are not pathways specific pathways
- 48:07from perceptions like medical mistrust,
- 48:10discrimination, everyday racism,
- 48:12perceived racism in healthcare.
- 48:14Yes, there's a validated.
- 48:17Measure for perceived
- 48:19racism in healthcare PRM.
- 48:21That always strikes me as
- 48:22we have a measure for that.
- 48:24Which suggests that it might be a thing,
- 48:27so we see that perceptions as
- 48:30perceptions get more negative.
- 48:32Health behavior like seeking care,
- 48:34testing and screening.
- 48:35I check hemoglobin, A1C,
- 48:36check a cholesterol screens
- 48:38go down and then outcomes,
- 48:40like patients that go down.
- 48:42And as and also behavior like drug use,
- 48:46misuse, cigarette smoking,
- 48:47HIV risk behavior goes up,
- 48:49as does blood pressure,
- 48:50risk inflammation, risk,
- 48:52alcohol dependence.
- 48:52So we see that there are some
- 48:55associations if not pathways.
- 48:57So credibility.
- 48:58I would surmise is a novel way,
- 49:00a valuable way to assess the
- 49:03patient provider relationship.
- 49:04Because it focuses on the source
- 49:07of the mistrust.
- 49:08Us and it provides insight to
- 49:10refining some of these elusive
- 49:12pathways and insights on how
- 49:15perceptions influence behavior.
- 49:17With that, I'll pause.
- 49:18I'm going to keep this up that adipic,
- 49:21the integration of these
- 49:23various structural issues,
- 49:24and I welcome your questions,
- 49:26comments and rebuttals.
- 49:29The only rebuttal that I have
- 49:31for you Doctor Centeio is that
- 49:33we want you again and again,
- 49:35and again, and again and again.
- 49:38This has been so extraordinary, and I
- 49:40know there's going to be many questions.
- 49:42I saw things popping up in the in the chat,
- 49:45but I am so grateful and you
- 49:47have touch on so many things.
- 49:49I have questions but I I'll keep them.
- 49:52Let's start with Belinda,
- 49:53who had a couple of really hard
- 49:55hitting wonderful questions.
- 49:56Belinda
- 49:56go for it. Yes, this was wonderful
- 49:58and I'm sorry it wasn't my camera.
- 50:00My grandchildren are here this week. But we'd
- 50:04like to see him.
- 50:07There's a play. But I have a question
- 50:11about so as you were talking, Anne Anne.
- 50:13I've been doing some research
- 50:15and so forth for me.
- 50:17I believe gentrification is a new form
- 50:19of redlining, if that makes sense.
- 50:21Because once a community is cleaned out,
- 50:24you can't afford to go back into.
- 50:26For example, is my sons God brother bought.
- 50:29You know you St area in the
- 50:3160s and DC it got burned down.
- 50:34And so David bought a brownstone for
- 50:37say 250 for DC goes for $2,000,000
- 50:39or right about now is the tax rate.
- 50:42So there's no way so the community
- 50:45has totally changed and the other
- 50:47part of that when we talk about the
- 50:49social factors are they also still?
- 50:52Attached to racism.
- 50:53No, because it's a social construct
- 50:55that where we struggle struggle with
- 50:56some things for people of color.
- 51:00Certainly yes, perceptions are
- 51:02part of of social determinants and
- 51:04perceptions do influence behavior.
- 51:05Perceptions of maltreatment of discrimination
- 51:07that I'm not being treated equally,
- 51:10which is a foundational sentiment.
- 51:11So that's one thing you don't have to wait.
- 51:15You know this more than I do.
- 51:17I actually was reading about
- 51:19babies and water babies know.
- 51:21And what do we have to teach them?
- 51:24And there's an innate sense of
- 51:26justice that were born with,
- 51:28so I think that.
- 51:29Even if you don't know all about
- 51:31Tuskegee or you don't know all about
- 51:34Doctor Marion Sims and what he did
- 51:37with Anna Kahran other slave girls,
- 51:39you have a sense for any quality
- 51:41and part of why those kinds of
- 51:44historical anecdotes are still
- 51:45present is because the bias and
- 51:47injustice is still present.
- 51:52I'm trying to keep my answers short here.
- 51:55You are doing great.
- 51:57We really I I could listen to you
- 51:59for hours and I know that there's
- 52:01other people who have questions so.
- 52:04Walter, I saw you active on the chat.
- 52:07Amanda Detmer, Jose Pious,
- 52:09Lilia Benoit, in no particular order.
- 52:11But let's go for it.
- 52:18OK, well they're being shy
- 52:19while they're being shy.
- 52:21I have a couple of questions.
- 52:23First of all, I loved, loved,
- 52:24loved your shout out to qualitative
- 52:26methods and to the importance of people,
- 52:29and I think that you said something you said
- 52:32a couple I took a lot of notes by the way,
- 52:35but you said this is a bumper sticker.
- 52:38Vaccines don't make us safe.
- 52:40Vaccinations do and that we have,
- 52:42you know, warp, speed it ourselves
- 52:44to this blessing of a vaccine.
- 52:46But if we don't get it right through,
- 52:49knowing what hesitation
- 52:50and what people think,
- 52:51and we're going to find out
- 52:53through qualitative methods,
- 52:54so, so thank you for that.
- 52:56And and two,
- 52:57maybe a inner baseball questions,
- 52:58but you mentioned the group based
- 53:00medical mistrust scale in the PRM,
- 53:02the perceived racism and medical care
- 53:04are those actual scales where their
- 53:06concepts because their scales on them.
- 53:08Yeah, they're
- 53:09validated scales. Somehow.
- 53:10I have a collection in my in my notes of
- 53:13these scales that measure perceptions,
- 53:14and these are validated scales much
- 53:16like the acculturation skills.
- 53:18I can email them to you, you wonder.
- 53:22Yeah, and and and when I when I heard the
- 53:24term warpspeed about vaccine development,
- 53:27I thought that's that's great cool
- 53:29warp speed that I thought oh I bet
- 53:31social scientists weren't in the room
- 53:33when you when they met like that
- 53:35might not be good for all folks.
- 53:38The fact that it's rushed right out there.
- 53:41We need social too.
- 53:42Absolutely. And you know we have a a social
- 53:45question from Justin Justin. Go for it.
- 53:49Thank you for that amazing
- 53:50talk you mentioned.
- 53:51Something about immigrants saying that
- 53:53as they stay in America over time,
- 53:55it seems like their health outcomes
- 53:57start to resemble individuals.
- 53:58I've been in America for who look
- 54:01like them for a long period time.
- 54:03Can you speak more on that?
- 54:06Yeah, I can talk about how when
- 54:09Caribbean immigrants specifically,
- 54:10this is when I just have the top of my head.
- 54:14I'm doing some work with the OR
- 54:17proposing to work with the the National
- 54:20Cancer Institute about prostate
- 54:22cancer treatment and you find that.
- 54:24And this is this is found fairly consistency
- 54:27in the literature that the rates of
- 54:30prostate cancer for Caribbean immigrant men.
- 54:331st generation are lower
- 54:36than subsequent generations.
- 54:39So second generation immigrant health
- 54:41status is much worse than first,
- 54:43and it's like the Mexican or the
- 54:45Latin American paradox, right?
- 54:46So you get here and then I'll
- 54:48get to why in a moment.
- 54:50The short answer is we don't really know,
- 54:53but there are a couple of important.
- 54:57Sort of theories or or guesses,
- 54:59let's say so.
- 55:00Part of it is that to get here you
- 55:03have to have a certain health status.
- 55:06So there's this notion that the
- 55:08people that are predisposed to
- 55:10illness never make it to the shores,
- 55:12never make it here,
- 55:14so we're not getting a
- 55:15representative immigrant population.
- 55:17We're getting the people that make it here,
- 55:20and that's not representative,
- 55:21so that's part of an explicit
- 55:23explanatory factor.
- 55:24But what one of my wonderful
- 55:26treasured mentors, James Jackson,
- 55:28who passed recently?
- 55:29When I was talking to him about some
- 55:32of these equity issues and he was
- 55:35finding that when when people got here,
- 55:38their health status actually second
- 55:40generation was was was lesser than what.
- 55:43Why do you?
- 55:44What could that be?
- 55:46We don't know yet,
- 55:47but what he did cause me to
- 55:50think about what we discussed is
- 55:52that the impact of what's called
- 55:55weathering in the literature.
- 55:57The repeated sort of burdens.
- 55:59Trauma overtime actually wears
- 56:01on your your biological systems,
- 56:03your immune system,
- 56:04your ability to sort of deal with
- 56:08the the micro traumas of getting
- 56:10through the day or viewing the OR
- 56:13actually the trial of the officer
- 56:16who kneeled on George Floyd's neck
- 56:18and murdered him like just that.
- 56:21Just think about what I was talking
- 56:24to a colleague last summer who was
- 56:27appropriately aghast at that imagery
- 56:30that was flashed again and again and again.
- 56:33On our screens and and it happened
- 56:35to be a woman,
- 56:36a white woman who told me like
- 56:37that so terrible that's so true.
- 56:39And I said,
- 56:39how do you think it makes me feel as
- 56:41the person who's been in the back of
- 56:43a police car and spent the night in
- 56:45jail because of over aggressive policing?
- 56:47So if you're traumatized or outraged by that,
- 56:50what might that do to people
- 56:52that look like me?
- 56:54Charter home articulation and
- 56:56education and having a license and
- 56:58registration isn't a protective factor.
- 57:00I'm sorry under no no Charles.
- 57:02Let let me
- 57:03let me do this.
- 57:04What we're going to do in in Rosemary.
- 57:08We're gonna keep recording for a little bit.
- 57:11We're going to close now formally
- 57:13after Robla Brill's idea to you.
- 57:15But if you are so kind of
- 57:17Charles to stick around,
- 57:19I know that some of us would
- 57:22love to stay for the after.
- 57:24Party but I wanna I want to
- 57:26be mindful of peoples time.
- 57:28This has been absolutely extraordinary
- 57:30and I want to thank Rob Labrie.