Child Study Center Grand Rounds 04.19.2022
May 18, 2022Let's talk about sex, Doc: Video-based examples of sexual health conversations to help CAPs help kids
Information
- ID
- 7855
- To Cite
- DCA Citation Guide
Transcript
- 00:19To talk about.
- 00:23We will.
- 00:35I love you.
- 00:38Pretty much.
- 00:41Thank you we finally.
- 00:51We literally wouldn't.
- 00:54Well, I think it's too late.
- 01:30OK.
- 01:32Good afternoon and Kyle.
- 01:34Can I ask you one more favor?
- 01:36Could we put Lindas first? Slide on.
- 01:41Thank you. I don't know if
- 01:44people know who Kyle is,
- 01:46but Kyle is the most important person
- 01:49in grand rounds and I want you to
- 01:51appreciate and hug him and love him.
- 01:56And for those of you who didn't know,
- 01:57let me embarrass him in public.
- 01:59He is a Superman suit,
- 02:01not Superman, Star Wars, konwiser,
- 02:04reenactor, all sorts of things.
- 02:07So if you want to know,
- 02:08maybe we'll have him give Brian runs
- 02:10one of these days because he knows,
- 02:12like we tell psychiatrists and
- 02:13psychologists and mental health,
- 02:15he knows that play is a tool of healing.
- 02:18Whatever you need to heal play,
- 02:20he's a good player.
- 02:21OK, someone else who plays
- 02:23really well is today's speaker,
- 02:25and I'm just so delighted before that.
- 02:28Next week, Nathan Fox,
- 02:30am I remembering, right?
- 02:31I'm sorry, yes.
- 02:33So next week,
- 02:34just a heads up is going to be the first
- 02:37of the two parts series this year of
- 02:40the Viola Bernard Lecture which Tara
- 02:42Davila and others are putting together.
- 02:45But I'm really grateful to Tara for finding.
- 02:48Carolyn Roberts,
- 02:50Roberton Roberts,
- 02:52who will be our speaker for
- 02:54both parts and Doctor Roberts.
- 02:56I hope it's Robertson.
- 02:58Robertson,
- 02:58apologies if I bungled that she is a
- 03:02professor here at Yale and if I recall,
- 03:06Department of African American
- 03:07Studies her work is going to be very,
- 03:10very relevant to all the many efforts
- 03:13and initiatives about diversity,
- 03:15equity and inclusion.
- 03:16I'm really excited about it and.
- 03:19Again, it's going to be a two part series,
- 03:20so stay tuned for that and
- 03:22how it's going to be divided.
- 03:24Today I have the great
- 03:26pleasure of introducing my dear
- 03:28friend and recent graduates.
- 03:30Maybe maybe three years ago
- 03:32you graduated 2 years ago.
- 03:34Very recent graduate Linda Drozdowicz.
- 03:37I have had the the joy and
- 03:38the pleasure of knowing.
- 03:39Knowing Linda,
- 03:40I think since her first year in
- 03:42medical school or second year when
- 03:44she was at the Mayo Clinic and Linda
- 03:47was part of the Klingenstein Third
- 03:49Generation Foundation network which
- 03:51we started here in Yale in 2000.
- 03:54Two on network named after
- 03:56the late Donald Cohen.
- 03:58Our former former former director.
- 04:00If I get that right and he passed
- 04:02in 2001 and by 2002 the network
- 04:05was funded by the claimants teen
- 04:07Third Generation Foundation,
- 04:09they were so pleased with what we did
- 04:11here at Yale that the next year or
- 04:13two they funded the current 13 programs,
- 04:16the Mayo Clinic being one of them.
- 04:18So anyway,
- 04:18Linda was there one of her many talents
- 04:21making my point that plays a tool of healing.
- 04:24Is that she was and known as a ukulele girl.
- 04:28Right,
- 04:28and I didn't say girl,
- 04:30that's how she was known in her pre MD days.
- 04:33Not not ukulele miss but ukulele
- 04:35girl because what she did is that
- 04:37she would plant herself at one of
- 04:40the main fires or entries of this
- 04:42magnificent Mayo Clinic playing the ukulele.
- 04:46Welcoming people into the Mayo Clinic
- 04:49and in some of the pediatric units.
- 04:52And that's just amazing.
- 04:53That's, you know, the power of play.
- 04:56She played for our kids and
- 04:57winning one when she was here.
- 04:59And I see Sarah Kowalski when
- 05:02one of our nurses
- 05:04are associated. Yeah, patient,
- 05:06the manager which is like I
- 05:08never get their wording right,
- 05:10but our nursing Director Co.
- 05:13Director and she is smiling because she
- 05:15remembers as we all remember fondly.
- 05:17That reminds me of my Angelou,
- 05:20who we all know said you'll forget
- 05:22everything you are taught, but you will
- 05:25never forget how you're made to feel.
- 05:27So I'm sure that those kids have forgotten
- 05:30everything about what we taught them about.
- 05:32You know everything, but I'm sure
- 05:34they haven't forgotten your ukulele.
- 05:36Now, Linda has another great
- 05:41superpower that I discovered.
- 05:43Just by coincidence,
- 05:45one day I was telling confessing to Linda.
- 05:47I said, Linda, I'm I'm such a prude.
- 05:50That I don't know how to say
- 05:52body parts without blushing,
- 05:53and I'm an MD who has been
- 05:55practiced for 20 years.
- 05:56I have no I, I just get like really anxious.
- 05:59And you know, I say well euphemism,
- 06:02euphemism.
- 06:02And she starts naming 1 by 1 all
- 06:05the body parts in great detail.
- 06:08And I'm like damn how did you do that?
- 06:11And I saw that it was not just her
- 06:14natural ease which you will learn
- 06:16about in the second in a millisecond.
- 06:19But it was her intentionality.
- 06:21About this.
- 06:21Linda is,
- 06:22I think,
- 06:22one of one or two or three Charles
- 06:26psychiatrists in the country who also has.
- 06:29Training and sexual health.
- 06:30She will tell us exactly the
- 06:32name of her degree,
- 06:33but she pursued this and she knows
- 06:35a lot about this and she's going
- 06:37to be talking about many things,
- 06:39including a paper that I'll have her
- 06:42talk about but with great pride.
- 06:44Dorothy Stubby and I can tell you
- 06:46that the paper she's going to talk
- 06:48about with just published last
- 06:50year won the award from Adword,
- 06:52which is the Association of Directors
- 06:55of Residency Training in Psychiatry.
- 06:57She won the award for the best.
- 06:59Paper published by a trainee that year
- 07:02and we're incredibly proud of that.
- 07:04And I'm just so delighted to
- 07:06have played well with others,
- 07:07including Linda.
- 07:08So Linda Drozdowicz coming up.
- 07:16Something really quick. Sorry about this.
- 07:23Please hold for technical difficulties
- 07:25all right, thank you for having me.
- 07:27Andres has adjusted the screen so
- 07:29that I can be seen on the screen
- 07:31because I'm vertically challenged.
- 07:33Thank you for coming to this talk
- 07:34and this is a talk about sex,
- 07:36which is a topic that we don't talk about
- 07:38too openly or too often in child psychiatry.
- 07:40I think not as often as
- 07:42we should as you'll see,
- 07:43so the title is video based.
- 07:44Examples of sexual health
- 07:46conversations to help child,
- 07:47adolescent psychiatrists and practitioners
- 07:49in general help kids and synchronize.
- 07:52Multi site video conferencing
- 07:53works and there's a little I don't
- 07:55know what that thing is called.
- 07:56The circle, the timing,
- 07:58your QR code which will give you
- 08:00access to the paper that was written
- 08:02about this project as well to the
- 08:04full sexual health didactic and
- 08:05I'll show this again at the end so
- 08:07don't worry if you don't get it now.
- 08:09So my goal is today are for you to
- 08:11learn the importance of discussing
- 08:12sexual development and sexual health
- 08:14in neurotypical and neurodiverse
- 08:16kids and their families.
- 08:17To see examples of videos used
- 08:19for teaching these skills and to
- 08:20learn the utility of synchronized.
- 08:22Multi site video conferencing for
- 08:24teaching niche content to a lot of people.
- 08:27So you might be thinking this
- 08:29seems like a really niche topic,
- 08:31or for those who know me, why Linda why, so?
- 08:33I would argue that this is not a niche
- 08:36topic at all, and I'll tell you why.
- 08:39As Andre saluted to when I was in residency
- 08:41at Mount Sinai Hospital in the city,
- 08:43I had the pleasure of actually
- 08:46going downtown to NYU to do the
- 08:48training program and human sexuality,
- 08:50which is a sex therapy training program.
- 08:53When I mentioned this to my mother,
- 08:54she said you did,
- 08:55what, and but.
- 08:56What is sex therapy?
- 08:58So sex therapy is where you help individuals
- 09:01and couples with any sexual difficulties.
- 09:03It is traditionally a
- 09:05purely behavioral therapy,
- 09:07but those of us who have ever done
- 09:08psychotherapy with anyone knows
- 09:10that relationships are everything.
- 09:11So usually you're covering both
- 09:12to help people feel better as
- 09:14individuals and as couples.
- 09:15So I had that background before
- 09:17I came to child psychiatry,
- 09:20but again, you know,
- 09:20what about when I got to child fellowship?
- 09:23Well, in month one I was on Winchester
- 09:25one or inpatient unit and we admitted.
- 09:28A 13 year old boy with autism,
- 09:30mild intellectual disability and I think
- 09:32he was admitted for aggression or some,
- 09:34you know,
- 09:35common reason that kids are admitted.
- 09:36And as an aside,
- 09:38his mother came in beside herself
- 09:40and told us that she had caught
- 09:42him ************ while looking at
- 09:43his sister and she was convinced
- 09:45that he was a sexual deviant.
- 09:46That he was disgusting.
- 09:47She was really really really disturbed
- 09:49by this and it felt wrong to me.
- 09:51I knew that there was something not
- 09:53sitting right but I didn't really
- 09:54know how to counsel her and it
- 09:56turned out she had not
- 09:57talked to him about puberty.
- 09:59About sexual development.
- 10:00About ************.
- 10:01But again I really didn't know
- 10:03what to tell her and that's what
- 10:05really prompted this project.
- 10:07So I got in touch with Andres
- 10:09and I got in touch with one of
- 10:11the sex therapists and NYU doctor
- 10:13Elizabeth Horden and together
- 10:14we we created this project.
- 10:16So you need to be able to talk
- 10:18to kids and their families
- 10:19about the birds and the bees.
- 10:20That's where we have this.
- 10:21This lovely picture and sexual
- 10:23health and mental health are
- 10:24actually bidirectionally influential.
- 10:26So if you're having sexual dysfunction,
- 10:28you're two to three times more likely
- 10:30to develop major depressive disorder.
- 10:32And if you've got depression,
- 10:34you're much more likely to
- 10:35experience sexual dysfunction,
- 10:36so this is directly relevant to the
- 10:38population that we treat medical.
- 10:40Sexual health education is also
- 10:42imperative because if providers
- 10:43are not bringing up the subject,
- 10:45if we're placing the burden on patients.
- 10:47For their parents to bring it up,
- 10:48we're contributing to stigma
- 10:49and when we're making it sort of
- 10:51the the elephant in the room,
- 10:52we don't go there unless you
- 10:53are bold enough to bring it up.
- 10:55We need to bring it up so that that's
- 10:57another reason this is so important.
- 10:58And finally,
- 10:59sexual health education is often
- 11:01not as openly available to
- 11:03neurodiverse kids and adults,
- 11:05but there's a tendency to infantilize people
- 11:07with any level of perceived disability,
- 11:09and these kids have just as
- 11:10much of an interest in you know,
- 11:12sex, partnership, romance,
- 11:14whatever it is,
- 11:15and so we need to make the information.
- 11:18Equally available to them in whatever modes
- 11:20of information transmission are going to be.
- 11:23You know,
- 11:24most identical.
- 11:25And this is not as niche as you think it is.
- 11:29So just in the last couple of
- 11:31years on Netflix there have been
- 11:32two shows about autism and sex.
- 11:34One is called a typical that's
- 11:36a scripted show.
- 11:37It's wonderful and one is
- 11:38called love on the spectrum,
- 11:39which is a reality TV show about
- 11:41people on the spectrum dating and
- 11:42I'm going to show a very brief clip
- 11:44from a typical you should watch it
- 11:46if you haven't. How is your
- 11:49session with your therapist today?
- 11:50She thinks that I should put.
- 11:52And find someone to have sex with.
- 11:55She didn't say the sex part. I added that.
- 11:59I'm a weirdo. That's what everyone
- 12:01says sometimes I don't know what
- 12:03people mean when they say things Sam.
- 12:05People on the spectrum date, you know, girls
- 12:07don't really notice me at all.
- 12:08And I'm not great at picking
- 12:09up signals. She's
- 12:10smiling right at you.
- 12:12You need to turn that
- 12:13down like 70%. Casey, all
- 12:18right. So wonderful show
- 12:19if you haven't seen it,
- 12:20check it out, but that's atypical.
- 12:22So this is actually in the media.
- 12:23People are talking about
- 12:25neurodiverse kids and sexuality.
- 12:28OK, So what did we do with this
- 12:30project myself and Doctor Gordon
- 12:31created a didactic on sexual
- 12:33health issues relevant to child
- 12:35and adolescent psychiatrists.
- 12:37This included discussing sexual
- 12:38health and development in
- 12:40neurotypical and neurodiverse kids.
- 12:42This included what to do when
- 12:43the psychiatrist is the problem,
- 12:45AKA sexual side effects of medications.
- 12:49And special considerations
- 12:50for kids on the spectrum.
- 12:52We got together with Andres,
- 12:55who's the director of the Center
- 12:57for simulated participants,
- 12:58which used to be called the
- 13:00standardized patients here at Yale,
- 13:01where he is professional actors
- 13:02who can act out these scenarios to
- 13:04help teach trainees what to do.
- 13:06And so we wrote scripts for them,
- 13:08recorded videos of ourselves as experts,
- 13:10talking with the simulated participants,
- 13:12and then created these videos.
- 13:15Our plan was to present this to,
- 13:17you know,
- 13:1812 John Adolescent Psychiatry fellows
- 13:20here at Yale and then COVID hit
- 13:22and our plan went up in flames so
- 13:24we had to pivot and this was back
- 13:27before Zoom was familiar to all of
- 13:29us and thanks mostly to Andres.
- 13:31We set up the synchronized video
- 13:33conferencing to 16 child and
- 13:35adolescent psychiatry programs
- 13:37across the country with 125 trainees,
- 13:39so this was kind of a silver lining
- 13:42of COVID where our audience actually blew up.
- 13:44In a good way when our plans blew
- 13:47up in a bad way.
- 13:48But I want to again give a special
- 13:50thanks to Doctor Martin and to Doctor Gordon.
- 13:52OK,
- 13:53so why you standardized patients?
- 13:55Because showing people is better
- 13:57than telling them when it comes to
- 14:00learning and I hope you're going
- 14:01to understand that today when
- 14:03you see these videos.
- 14:04All right,
- 14:05this is a picture that brings
- 14:07up all sorts of feelings.
- 14:08This is when we're filming our videos,
- 14:11and this was probably about a
- 14:13week before everything shut down,
- 14:15which was the last time we were
- 14:17in person together before COVID
- 14:18so little did we know that this
- 14:20would be the end,
- 14:20but we luckily did our recording
- 14:23before everything got rough.
- 14:26OK,
- 14:26so when I ask you to think about talking
- 14:29to parents and kids about sexuality,
- 14:32including kids on the spectrum,
- 14:34how does that make you feel?
- 14:37Right,
- 14:37we asked this to participants in the project.
- 14:39The people participating in the
- 14:40detected and they had some thoughts.
- 14:43OK, so the biggest word, awkward, right,
- 14:46awkward, uncomfortable, difficult,
- 14:47but also words like necessary.
- 14:49Important safety, privacy right?
- 14:51So this was recognized as an important topic,
- 14:54but one that kind of tends to
- 14:56give people the the shakes.
- 14:57And you know what's the the cure for fear,
- 15:00knowledge, right knowledge and practice.
- 15:02So we delivered the didactic.
- 15:06All right,
- 15:07So what content did we specifically cover?
- 15:10Basic sexual health and development
- 15:12in childhood talking about sexual
- 15:14development and younger kids with autism.
- 15:16Normal sexual development in
- 15:19adolescence and ***********.
- 15:21Management of medication induced
- 15:23sexual dysfunction and then special
- 15:25considerations and adolescents
- 15:26with autism and sexuality.
- 15:30So I just want to show this.
- 15:31You don't need to read all the words,
- 15:32but I want to show you that children
- 15:35are sexual fetuses are sexual.
- 15:37It is actually not uncommon for
- 15:39ultrasonographers to have to
- 15:40quickly move the wand when they're
- 15:42doing a scan during pregnancy.
- 15:43And the little girl or the
- 15:45little boys touching themselves
- 15:46fetuses self stimulate baby self,
- 15:48stimulate young children self stimulate.
- 15:50It feels good.
- 15:51Whether you want to call it
- 15:52overtly sexual versus for comfort.
- 15:54You know kids are in touch
- 15:56with their sexual parts.
- 15:57So in children under four it
- 15:59is normal to touch themselves.
- 16:00The public or in private.
- 16:01They have no idea,
- 16:02and they don't really care.
- 16:04They're interested in private parts.
- 16:05They might be interested in women's breasts.
- 16:07They might want to be naked,
- 16:08talk about bodily functions,
- 16:10peeing and pooping, and this and that.
- 16:13So I don't know if it's happened to you,
- 16:14but it's certainly happened to me
- 16:16that parents come in concerned about
- 16:17these sorts of behaviors and wondering
- 16:19if there's something wrong with their child.
- 16:20No,
- 16:21there's usually nothing wrong with the child.
- 16:24In four to six year olds,
- 16:26things develop a little bit.
- 16:27They might actually start to masturbate,
- 16:29so purposefully touching
- 16:30themselves for pleasure.
- 16:31Parents blush at this.
- 16:32There's often a lot of kind of shaming,
- 16:34automatic reactions.
- 16:35You know that.
- 16:36Don't do that over here.
- 16:37Don't ever do that.
- 16:38They might talk about private parts
- 16:40using naughty words without even
- 16:41really knowing what they're saying,
- 16:43but they picked up that it's naughty.
- 16:45And then you know,
- 16:46games like playing Doctor.
- 16:47I'll show you mine if you show me yours.
- 16:49These are, you know,
- 16:50normal aspects in four to six year olds
- 16:52with their sexual behavioral development.
- 16:55Then in school aged children,
- 16:56you know they typically do masturbate,
- 16:58usually in private.
- 16:59If they're not doing it in private,
- 17:00that is a time for,
- 17:01you know, redirection.
- 17:02You know kind of gentle but firm redirection.
- 17:05They'll play more sexually
- 17:06oriented games like Truth or Dare,
- 17:08so a little bit different
- 17:10than playing Doctor.
- 17:11They're going to view and listen
- 17:12to sexual content in the media.
- 17:13It's everywhere.
- 17:14It's completely unavoidable.
- 17:15And typically in this same range.
- 17:17Actually,
- 17:17at some point they'll be exposed to
- 17:18**** which makes everybody nervous.
- 17:20But I'm going to tell you and show you
- 17:22why it doesn't have to make you as nervous,
- 17:23because, again,
- 17:24knowledge is power.
- 17:25And at this age they want more privacy
- 17:27and they become more reluctant about
- 17:29talking about these issues with their
- 17:30parents and adults in their lives.
- 17:32And they begin to become actually
- 17:33sexually attractive to peers.
- 17:34So they're leaving latency.
- 17:37All right, so let me show you.
- 17:51This is going to be slow.
- 17:53Give me a second. I can
- 17:54feel Andre's blood pressure rising.
- 17:58Hi Stephanie, it's so good to see you.
- 18:00I still hang out in the waiting room.
- 18:04I'm just getting so big.
- 18:06How are you doing?
- 18:07Oh, we're great, we're great.
- 18:09You know things are finally, stabling out.
- 18:11I am a little concerned
- 18:12about having the talk soon.
- 18:14You know she'll be hitting
- 18:16puberty in a few years and
- 18:18she might have questions and.
- 18:19I'm maybe not, you know,
- 18:22maybe it's too early to talk about this.
- 18:24No, actually, it's never too early.
- 18:26She's 8, almost nine and puberty isn't
- 18:28far off and research really supports
- 18:30that talking to children sooner
- 18:32rather than later and starting age
- 18:34appropriate sex Ed can support healthy
- 18:36sexual development later in life so
- 18:38that they relate to their sexuality
- 18:40in a happy and healthy manner. And
- 18:42I think having a talk would be very helpful.
- 18:44OK, why is it coming up now?
- 18:46So Hannah came home from school
- 18:49the other day and she said that.
- 18:50Someone was talking about
- 18:52screwing and she asked
- 18:53me what it meant.
- 18:54I didn't know what to say,
- 18:56so I told her it was a bad word
- 18:59and not to say it again. But
- 19:01at that moment I kind of thought I
- 19:03should have said something about sex,
- 19:05but I didn't know what to say.
- 19:08So that's really normal.
- 19:09At this age they start expressing
- 19:11curiosity and ideally what you want
- 19:13to do is talk to her about it in an
- 19:16open way and be nonjudgmental so
- 19:18that she doesn't feel ashamed or
- 19:20embarrassed because the most important
- 19:22component at this point is making sure
- 19:24the door is open so she continues
- 19:26to talk to you as she develops.
- 19:27So I'm happy to go over some information
- 19:29with you about how she can develop sexually.
- 19:31Would that be helpful?
- 19:32What have you talked to her about so far?
- 19:35Well, actually I haven't shared much, I mean.
- 19:37She knows that she has private parts like
- 19:40a vagina. She knows that she's not to
- 19:43share those parts with anyone she knows.
- 19:46The boys and girls have different
- 19:48private parts and she knows that
- 19:50babies come from Mommy's bellies
- 19:52and since she was adopted,
- 19:53she knows that belly wasn't mine.
- 19:55And other than that I mean.
- 19:58I think that's about it. Actually,
- 20:00that's great. You've provided her
- 20:02with some good basic information.
- 20:05You know my parents never really talked to
- 20:08me about this stuff and she's just so young
- 20:12but. You know now that I think
- 20:14about it, she used to touch
- 20:16herself when she was much younger
- 20:18and we told her that that wasn't
- 20:20nice and that she should stop it.
- 20:23Now I'm thinking that that was
- 20:24probably the wrong thing to do.
- 20:26I mean, was I wrong
- 20:27with that? No, that's not wrong.
- 20:29It sounds as if you did set some very
- 20:31appropriate boundaries about what is
- 20:33public behavior versus private behavior,
- 20:35but I might recommend a timing adjustment to
- 20:38the approach overall so equally important
- 20:40to telling them what they can't do.
- 20:42Telling kids what they can't do
- 20:44is telling them what they can
- 20:45do and where they can do it.
- 20:47You want to try to create a positive
- 20:49approach from our perspective
- 20:50from a health perspective,
- 20:52************ is a normal and healthy part.
- 20:54Of development and it starts very early.
- 20:56Infants and kids masturbate and
- 20:58they do it because it's soothing
- 20:59and because it's pleasurable.
- 21:01They don't relate to it as a sexual
- 21:04activity the way that adults do,
- 21:06but a lot of adults have these concerns,
- 21:07so we can talk about how you and her
- 21:10father could talk to her and support
- 21:12her in her healthy sexual development.
- 21:14Because with your support,
- 21:15you could really ensure that
- 21:17she relates to her sexuality in
- 21:19a way that's healthy overall,
- 21:20and you know she's developing now and
- 21:22you want to help her through this.
- 21:25From the issue with ************ too,
- 21:27and I know it's really hard
- 21:28to think about right now,
- 21:29but her eventual future sex life.
- 21:31Ohh my gosh. Yeah I think more
- 21:34information would be helpful, great.
- 21:38OK.
- 21:43All right? So. The next topic
- 21:46we went over was discussing
- 21:48sexual development in kids with
- 21:49autism and the main takeaways.
- 21:51And I'm doing a very
- 21:53abridged version of the talk.
- 21:54So like I said, the full didactic
- 21:56is available through those codes,
- 21:57but kids with autism may require some extra
- 22:00specifics and sexual health education,
- 22:02so there's a lot of sex education that
- 22:05occurs socially in groups of kids.
- 22:06They pick things up from each other.
- 22:08What is OK? What is not OK and kids
- 22:10with autism may miss those cues,
- 22:12so you may have to be a little bit more
- 22:14or a lot more concrete in terms of.
- 22:15Explaining what is public,
- 22:17what is private, what can you say or do?
- 22:19To whom, with whom,
- 22:21when there are already great resources
- 22:23geared towards this population,
- 22:25so this is not a time to reinvent the wheel.
- 22:27And I'm going to show you some of these
- 22:30resources. All right, another video.
- 22:34Or we just.
- 22:40Well, that's
- 22:45really helpful.
- 22:48But I worry about Hannah because she's
- 22:51not like normal kids. You know, she can
- 22:53be quite persistent and repetitive.
- 22:55For example, we were at the mall
- 22:57the other day getting back to
- 22:59school clothes and she kept yelling.
- 23:01Screw Wayne, screw Wayne. Screw Wayne.
- 23:05And I mean everyone stared at us.
- 23:08Oh, that sounds like it was pretty difficult.
- 23:10What did that bring up for you?
- 23:12You know what?
- 23:13Never? I think about it. I'm just
- 23:14thinking she might be a bit too much.
- 23:16You know, one of those women.
- 23:19It's quite difficult with her autism.
- 23:23I just. I just really didn't think that she
- 23:25would be that interested in sex. You know?
- 23:28Well, it's a really challenging topic.
- 23:31Most people are not taught
- 23:33how to talk about sexuality,
- 23:34so we can go over some information and try
- 23:37to practice to make it easier to begin with.
- 23:40Can you tell me how you might expect Hannah
- 23:43to develop into sexuality and adulthood?
- 23:46You know, I really never
- 23:48gave it much thought. I just.
- 23:50I just kind of thought she
- 23:52would wait until marriage.
- 23:53I mean, that's what my parents told me.
- 23:55I mean, I mean, that's not what I did,
- 23:57but I just thought.
- 24:00We kind of work through it as
- 24:02she got older and definitely.
- 24:05Much older than I did because.
- 24:08I mean. Cheers, autism.
- 24:11And I just didn't think that
- 24:12she would be interested
- 24:14in any type of sexual encounters.
- 24:16I mean, you have to connect with someone
- 24:19to want to have sex with them, right?
- 24:21Well yes, but no, no no.
- 24:24This is really not an uncommon
- 24:26approach to sexuality.
- 24:27Teaching sexuality to children and
- 24:29most kids manage to figure it out.
- 24:32They piece it together from the media,
- 24:34their friends from the Internet,
- 24:35where if we're being honest,
- 24:37**** is pretty widely available.
- 24:39But where did you really learn
- 24:41your information? I guess
- 24:42it was my friends and you
- 24:44know I have an older sister.
- 24:46Well, that's pretty common.
- 24:47That's exactly where most people
- 24:49learn it. They're friends.
- 24:50So what did you learn from that?
- 24:54I guess I learned that if I liked a
- 24:57boy and I wanted him to go out with me,
- 24:59I would talk to him or flirt with him and.
- 25:03You know, maybe he would
- 25:05become my boyfriend and.
- 25:07That I shouldn't go all the way
- 25:09because I didn't want a baby and.
- 25:10Come to think of it, I never
- 25:13understood how the two were connected.
- 25:15OK, so The thing is though,
- 25:17that even the parts that you did understand,
- 25:19like flirting, involves some
- 25:21understanding of the social cues
- 25:23and the nuances and that can be more
- 25:26difficult for neurotypical children,
- 25:27particularly some of those with autism.
- 25:30So since Hannah has some difficulty
- 25:33with those nuances and those cues a
- 25:35more active and direct approach from
- 25:37you and her father could help support
- 25:40the healthy sexual development.
- 25:42The other component is unfortunately,
- 25:44the reality is the neuroatypical population
- 25:47is more vulnerable to exploitation or abuse.
- 25:50So if you and her father really
- 25:52tackle this directly,
- 25:53you could help protect her against
- 25:56that unfortunate consequence.
- 25:57So that makes sense.
- 25:58OK, so the most important place to start
- 26:00is to try to understand where Hannah's at.
- 26:03What does she think the word
- 26:06screwing actually means?
- 26:07From there you can see what she
- 26:09understands about puberty about sexuality.
- 26:11OK, so? Why don't we try it?
- 26:13We could role play,
- 26:14why don't you be Hannah?
- 26:15OK, OK, so Hannah,
- 26:17I want to talk to you about puberty.
- 26:19Do you know what that is?
- 26:22When I get my *****
- 26:23well, ***** are a part of it.
- 26:25Puberty is when the body changes
- 26:26from a kid to adult and it
- 26:28happens over a number of years.
- 26:30There are a lot of changes,
- 26:31some of it is that you get some hair and
- 26:33some places that you haven't had hair before.
- 26:35You grow a lot taller and there are changes
- 26:37to some other parts that are inside of you.
- 26:39Do you know what parts I'm talking about?
- 26:41Do you mean my vagina? Yeah well, yes.
- 26:44The vagina that's part of your
- 26:46private parts or genitals.
- 26:48But that's inside.
- 26:49There's an outside called
- 26:51the ***** and the *****.
- 26:52Is connected by the vagina to the uterus,
- 26:55which is where babies grow
- 26:57in an adult so Steph.
- 26:58This is the kind of information
- 27:01that we recommend including and
- 27:03in about this detail at this age.
- 27:05Do you think that you'd be comfortable
- 27:07talking to Hannah about this?
- 27:08I can also provide a lot of resources.
- 27:12But I would like those resources OK.
- 27:14Anyway, this is nearly this is not
- 27:18nearly close to what my friends from
- 27:20our support group have to deal with.
- 27:22The ones with teenage boys.
- 27:24They say that there's
- 27:25literally semen everywhere. Oh,
- 27:27that's kind of a common problem.
- 27:29A lot of parents have this issue and you
- 27:33know I would like you to let them know
- 27:34they could talk to somebody like me.
- 27:36And there are a lot of really
- 27:37great resources online.
- 27:37I'm also happy to share with you,
- 27:39but mainly the idea is to talk openly.
- 27:41And very concretely,
- 27:43about how to handle ************.
- 27:44You want to tell the kids where they
- 27:46can masturbate and where they can.
- 27:47And as I said, be concrete.
- 27:50For example,
- 27:50if you just tell a child they
- 27:52should masturbate in the bathroom,
- 27:54that doesn't necessarily say you
- 27:55don't masturbate in the school or
- 27:57the mall bathroom and you want
- 27:59to use very accurate terminology
- 28:00and provide the child with words
- 28:02so that they can communicate.
- 28:03And this is definitely important
- 28:05for girls too.
- 28:06But with boys there's another
- 28:08issue with the mechanics.
- 28:09Where should they ejaculate?
- 28:11How do they? Clean up.
- 28:12And while this might seem like
- 28:15an uncomfortable topic.
- 28:16As I said,
- 28:17there are a lot of resources we
- 28:18can help guide you through it,
- 28:20and it's a really important topic
- 28:21to tackle to make sure that the
- 28:24children are happy and are safe.
- 28:25Sounds good, great.
- 28:29So these are conversations that come up.
- 28:34All right, So what are some of the resources?
- 28:37These are two nice books that
- 28:38you can recommend to families
- 28:40of kids on the spectrum.
- 28:41The growing up book for boys
- 28:43and what's happening to Ellie.
- 28:44These are gendered books,
- 28:45so they may not be a good fit for everybody,
- 28:47but it's you know it's a starting point and
- 28:50they can tackle most things in puberty.
- 28:52Menstrual hygiene,
- 28:53************ for both sides.
- 28:55And you know they're
- 28:57they're helpful resources.
- 28:58This is an example of teaching
- 29:00materials that can be helpful for
- 29:01kids you know on the spectrum.
- 29:03Is with intellectual disability or
- 29:05other developmental differences.
- 29:06You know something that seems simple,
- 29:08like how to use a menstrual
- 29:09pad might not be that simple.
- 29:11And in teaching it you might
- 29:12think you can quickly show it,
- 29:13but there are visual guides that
- 29:14exist that you can actually
- 29:15give the kid a print out.
- 29:17Let them try,
- 29:17walk them through it and they can
- 29:19have a reminder of how to do these
- 29:20really important things that feel
- 29:22embarrassing to talk about and to ask
- 29:23about after the fact.
- 29:26The Vanderbilt Kennedy Center
- 29:28has a lot of great materials.
- 29:30This is one example.
- 29:31The healthy bodies toolkit.
- 29:32Again, these are gendered but healthy
- 29:34bodies for boys and for girls.
- 29:36Again, going through puberty,
- 29:38hygiene growing up with a lot of good,
- 29:42you know, images, social stories,
- 29:43etcetera in there that parents can use,
- 29:45and they can print them
- 29:46for free off the Internet.
- 29:47They're available in multiple languages.
- 29:51All right and then most of us who
- 29:52work with kids on the spectrum
- 29:54have heard of social stories.
- 29:55Social stories are a good way to teach,
- 29:57you know, social skills and ways of relating.
- 30:00So there are social stories about public
- 30:02and private behaviors and this is critical.
- 30:05How are kids going to get in trouble when
- 30:06they do a private thing in public right?
- 30:08And so this is an example of one for boys
- 30:10about ************ or touching their
- 30:12genitals about where you can do it,
- 30:13when to do it,
- 30:15what to do afterwards etcetera.
- 30:17So again, these resources already exist
- 30:19and I'm not big into fear mongering.
- 30:21But fear is part of this and kids on
- 30:23the spectrum are at higher risk of being
- 30:26registered as sex offenders because of
- 30:28a misunderstandings of public versus
- 30:31private misunderstandings about boundaries.
- 30:32So the sexual health information
- 30:34is is really critical.
- 30:35It's not all about safety,
- 30:37they deserve pleasure and to
- 30:39actually have fun, love lives.
- 30:40But safety is part of this right and
- 30:43more so than a neurotypical kids.
- 30:45So again, talk about it.
- 30:46Talk about it. Talk about it.
- 30:48We talked about normal sexual
- 30:51development and adolescence and
- 30:53*********** so adolescent sexual health
- 30:55education is preventive medicine.
- 30:57High quality sex education is associated
- 30:59with lower rates of pregnancy and STI,
- 31:02lower risk taking behavior.
- 31:03It increases the use of protection and
- 31:05increases sexual pleasure which no
- 31:07one wants to hear about in teenagers.
- 31:09But that is another good thing that
- 31:10comes out of it. So this is important.
- 31:14This is what we all want to do right always,
- 31:16especially when **** comes up.
- 31:17Don't don't even get into *********** right?
- 31:19Don't be an ostrich.
- 31:20Don't put your head in the sand there.
- 31:22There's resources for helping.
- 31:25OK. And this is a fun one,
- 31:27and this was with a simulated
- 31:29participant who was was he the first
- 31:31underage actor in in the center?
- 31:34So so Andres got all sorts of rules
- 31:37adjusted for Connor, who's who's
- 31:39excellent and who's now in acting school.
- 31:42Let's see here. Guide for parents.
- 31:45OK, here we go. Good to see you Bobby.
- 31:47How's the anxiety?
- 31:51Doing ohh I'm I mean I've I've been OK,
- 31:54he's been doing OK but but
- 31:56I've got a concern, sure.
- 31:58I found him looking at **** online.
- 32:01And I looked at the history on
- 32:03the computer and you know a lot
- 32:05of a lot of **** sites came up.
- 32:08I mean, I get it in 16 years
- 32:10old and wants to see this stuff.
- 32:12But I mean there were a lot of
- 32:14sites and and so I'm just not
- 32:17sure if that behavior is is normal
- 32:20and and well how I should react.
- 32:23Come on, Dad,
- 32:24it's OK. I know this can
- 32:26be an embarrassing subject,
- 32:27but poor news is actually
- 32:28incredibly common in teenagers.
- 32:30Studies actually show that in the US.
- 32:32The first viewing of **** is
- 32:34as young as eight years old. On
- 32:35that 18 boys. That is young, yeah,
- 32:38and if you think about it,
- 32:41it can sound scary,
- 32:41but you used to have to go to
- 32:43the store to get a magazine.
- 32:44And these days, as you know,
- 32:45kids have access to the Internet
- 32:46so they can see these things.
- 32:48Younger and younger.
- 32:49It doesn't have to be scary
- 32:50and it actually like to share
- 32:51some information with you guys.
- 32:52If that's OK with you,
- 32:53is that right, Bobby?
- 32:57Yeah, I'd like to like to hear about.
- 32:58I mean, I just I.
- 33:00Because I never really thought that
- 33:02about Bobby being that age now,
- 33:04and I certainly didn't realize that you know,
- 33:07all the boys were looking at **** online.
- 33:09I mean, when I was that age we just had
- 33:13my father's Playboys dad come on, it's
- 33:16it's OK. Poor news is
- 33:18actually incredibly common.
- 33:19Many, many people use it,
- 33:20and there's nothing inherently bad about it.
- 33:23I want to talk to you about something
- 33:25called **** literacy, which basically
- 33:26means what to know and think about.
- 33:28If you're going to use it the same way,
- 33:31you wouldn't learn how to drive from
- 33:32playing Grand Theft Auto, right?
- 33:34It's completely made up.
- 33:35**** is the same way,
- 33:36and so it's important to remember
- 33:37that **** is not the same as real
- 33:40relationships or sexual encounters.
- 33:41Plenty of professionals who work
- 33:43with people with sexual issues
- 33:44agree that **** can be a very
- 33:46healthy part of a normal sex life.
- 33:47The issue comes up if there's a
- 33:49blurring of that boundary and you
- 33:50start to expect real relationships and
- 33:52real sexual encounters to look like
- 33:54****. Yeah, I guess that makes sense and
- 33:58I know it's hard to talk about this stuff.
- 34:00We don't have to belabor the point,
- 34:02but I can give you guys some materials
- 34:04and resources that you can look at
- 34:05on your own to help educate you.
- 34:07Yeah, I'd like to see that.
- 34:09Of course, I have to tell my wife I
- 34:11am reading it, that's just gross. It's
- 34:14OK if you don't have any other
- 34:16questions for now. Why don't Bobby
- 34:17and I do our usual check in?
- 34:23OK, all right. So oh The thing is
- 34:28what corn is like Grand Theft Auto.
- 34:30So in these videos we tried to give
- 34:32people good take away lines right?
- 34:34You're not going to remember every
- 34:35single thing said in the teaching
- 34:36videos but **** is like Grand Theft
- 34:38Auto **** literacy prevents kids
- 34:40from crashing in real Life OK?
- 34:42Let me see here.
- 34:44Yeah, so one example of an
- 34:46excellent resource is amaze.org.
- 34:48You can send teenagers there.
- 34:49You can send families there
- 34:50you can see all use the mouse.
- 34:52You know one of the first videos
- 34:53here is **** is not sex Ed.
- 34:56So again, adults tend to have the
- 34:58automatic reaction not wanting to talk
- 35:00about it where we're not going there,
- 35:02but **** is everywhere.
- 35:03So so you might as well.
- 35:04Do you know, harm reduction?
- 35:06Not that **** is inherently harmful,
- 35:07but it can be harmful if kids
- 35:08don't know what they're looking
- 35:10at and how to contextualize it.
- 35:11Similar to to movies.
- 35:12R rated movie.
- 35:13You might be able to prepare your
- 35:14kid as long as you discuss first that
- 35:16we don't shoot people in real life,
- 35:17right?
- 35:18So point is the same way and amazed.org
- 35:21has resources on all sorts of things
- 35:23relevant to adolescent sexual development,
- 35:24including **** use.
- 35:27OK,
- 35:27So what about when your psychiatrist
- 35:29is the problem?
- 35:30So medication induced sexual side effects.
- 35:37OK.
- 35:50Difficult to talk about. That's right,
- 35:53Bobby's having a moment. Oh
- 35:55come on, this is going to be
- 35:56our our technical difficulty.
- 35:57It was working before.
- 36:03Fundrise forgive me, I hate
- 36:06talking about that stuff.
- 36:06Within there he and my mom were
- 36:08so worried that I watched ****.
- 36:10Well it didn't even work.
- 36:12I can't finish.
- 36:15Sorry I. I didn't mean to
- 36:17talk about that stuff.
- 36:18Bobby, it's good that you brought it up.
- 36:20Your sexual health is just as important
- 36:22as the rest of your health and it actually
- 36:24connects to the rest of your health.
- 36:26I'm wondering what you mean by you can't
- 36:28finish when we talk about sexual function.
- 36:31It can be helpful to think of
- 36:33it in sort of three categories.
- 36:34The first category is sort
- 36:36of like the electrical.
- 36:38Can you still get aroused when
- 36:39you look at these images?
- 36:40Like do you feel desire like you always have?
- 36:42Yeah, OK, all right. So that's intact.
- 36:45The next category is the mechanical.
- 36:47Are you able to get the.
- 36:48Even sort of erection that
- 36:49you've always gotten.
- 36:52And then the last category is the hydraulics,
- 36:55and there's a lot of different words
- 36:57you can use. But can you finish?
- 36:58Can you come?
- 36:59Can you ejaculate and achieve orgasm?
- 37:02I think it's mechanics and hydraulics.
- 37:06Takes a very long time for me
- 37:08to finish, and sometimes I can
- 37:09at all. Even with **** it's frustrating. Was
- 37:13it always this way or is it different
- 37:15since you started your antidepressant?
- 37:19Now that you mentioned it,
- 37:20it did change early this year.
- 37:22I used to finish very quickly
- 37:24when I did that, but now it takes
- 37:29forever and I'm just frustrated.
- 37:31But it's not like I'll even
- 37:33get a girlfriend or anything.
- 37:35I mean, regardless,
- 37:36this isn't unusual and it's
- 37:37good that you brought it up.
- 37:39The medication you're taking can
- 37:41actually impact sexual function
- 37:42by making it harder to orgasm.
- 37:44And if it's bugging you,
- 37:45there's things we can do to address it.
- 37:47Yeah, actually I am kind of worried
- 37:50for if I do get a girlfriend,
- 37:53so I've totally avoided Molly's
- 37:55texts because. Aye, I thought
- 37:58I was crazy.
- 37:59You're not crazy. Thank you. OK.
- 38:07All right, So what do you do if our
- 38:10medications are causing a problem? The
- 38:12first thing you want to do that a lot
- 38:14of us don't do is track the symptoms.
- 38:16So my favorite skill is the CSF Q, the
- 38:19changes in sexual functioning questionnaire.
- 38:21It goes in terrible detail into
- 38:24every single aspect of sexuality
- 38:25and you can track it over time.
- 38:28It's very helpful for seeing small
- 38:30changes for the better or for the worse.
- 38:32And what do you do with the medication?
- 38:34So sometimes people don't want
- 38:36to change the Med at all.
- 38:38I've run into that more times than
- 38:40I would expect to, or someone says,
- 38:41well, you know.
- 38:42Recipro has changed my life and if
- 38:44the trade off is that I have no sex
- 38:46drive I don't care so I've had that
- 38:48conversation a lot of times but I
- 38:50always recommend making an adjustment
- 38:51since if your sex life is suffering,
- 38:53that's a pretty big quality of life impact.
- 38:56So adjustments you can make are making
- 38:58a decrease in the dose of medication.
- 39:00Go to the next lowest dose,
- 39:01see if the person still gets
- 39:03a therapeutic effect,
- 39:03but there might be less of a
- 39:05sexual side effect.
- 39:06You can switch if it's an SSRI,
- 39:08you can switch to a different SSRI,
- 39:09and sometimes that resolves the problem.
- 39:12I've had that.
- 39:13Happen,
- 39:13you can either add or switch to Wellbutrin,
- 39:16which tends to counteract SSRI
- 39:18induced sexual dysfunction.
- 39:20A lot of times people don't want
- 39:21to be on more than one medicine
- 39:22at the time at a time,
- 39:23but you can offer it and do a
- 39:25switch if it's more of a depression
- 39:27than an anxiety issue.
- 39:28You can augment with buspar and I
- 39:30always like to make a shout out.
- 39:35One second. If you can give women Viagra,
- 39:39you can give men Viagra.
- 39:40You can also give women Viagra.
- 39:42So there's a small but existent literature
- 39:44on using Viagra in women for SSRI induced
- 39:47sexual dysfunction and it can work.
- 39:49I have successfully used it with two of my.
- 39:53Early 20s patients who had
- 39:55sexual dysfunction from an SSRI.
- 39:57The dose is 50 milligrams.
- 39:58For those who have never prescribed
- 39:59it because I had to look into this,
- 40:00there are almost no contraindications
- 40:03which surprised me.
- 40:04But I guess half the country takes it.
- 40:05There's almost no contraindications and
- 40:07you can prescribe it, and it can work.
- 40:09And what I told girls or women
- 40:11rather is that women have just
- 40:13as much erectile tissue as men,
- 40:15but most of ours is internal,
- 40:16so erectile dysfunction is
- 40:18always used to talk about men.
- 40:21But in fetuses, it's the same.
- 40:22Kind of.
- 40:23Apparatus that turns into you know vagina,
- 40:26******** ***** versus penis.
- 40:28We have internal erectile tissue
- 40:29and we get erectile dysfunction
- 40:31and so taking a medication that
- 40:33increases blood flow can help.
- 40:35It's not as much of a switch As for
- 40:37men right men can be on or off but for
- 40:39women it really can actually do the trick.
- 40:41So I want to you know put that out there.
- 40:43You psychiatrist can prescribe
- 40:44Viagra or ask the PCP to do it if
- 40:48you're not comfortable to help with
- 40:50SSRI induced sexual dysfunction.
- 40:52We also talked about adolescents and
- 40:54sexuality in kids and teens with autism,
- 40:57so again,
- 40:57the sexual health needs of kids on
- 40:59the spectrum should not be discounted.
- 41:01OK,
- 41:02they have the same needs as everyone else.
- 41:03You may need to have an expanded focus
- 41:06on the social ropes of you know,
- 41:08romance, dating, sex, etcetera.
- 41:12You know,
- 41:12an example might be that if you have
- 41:14a son who wants to ask a girl or a
- 41:16boy out and you can tell them you
- 41:18know you may ask the kid out once.
- 41:20If they say they're busy or they
- 41:22say no on another day,
- 41:23you may ask them out one more time
- 41:25and if they say they're busy again,
- 41:27you may not ask them out again.
- 41:28So kind of really going through
- 41:30step-by-step what that would look like.
- 41:32These are really nuanced conversations
- 41:34and it it may not go well.
- 41:36And you also want to do again.
- 41:37I don't like doing the the fear
- 41:39mongering but more education around
- 41:40safety because kids on the spectrum
- 41:42and kids with differences in general
- 41:43are at higher risk of being victimized,
- 41:45coerced.
- 41:45So you want to talk to them in
- 41:48great detail about how there are
- 41:49never secrets from parents.
- 41:51And you know, even if it feels embarrassing,
- 41:53you know to talk to a trusted
- 41:55adult if anything is going on.
- 41:58You also want to make
- 41:59sure to cover sexual orientation
- 42:00and gender variance because the
- 42:02rates of non heterosexuality and of
- 42:04gender variance in the neurodiverse.
- 42:06Population are higher than in
- 42:07the neurotypical population,
- 42:08so it's even more relevant to
- 42:11this group of kids. All right,
- 42:12let's look at one final video.
- 42:26Having sex and.
- 42:29One second OK, give it a second.
- 42:34It has to brace itself for
- 42:36this conversation. Oh no.
- 42:44I I could not wait for this appointment.
- 42:47I know it's been a while, but.
- 42:48I wanted to get in here to
- 42:50see you to tell you that
- 42:53Hanna's having sex and she's only 16.
- 42:56OK, well, we can definitely talk about this,
- 42:59so tell me what's going on.
- 43:01We had your sex Ed talk and we
- 43:03went over all the recommendations
- 43:05and we thought that she would.
- 43:08Wait till marriage or wait till even
- 43:09later we thought that she understood
- 43:11everything we talked about. But
- 43:13obviously she didn't because
- 43:15now she's having sex and.
- 43:17I'm just at a loss. I don't.
- 43:19I don't know what to do.
- 43:20You sound really upset so tell
- 43:23me what happened if you would.
- 43:26Well, she met this boy through
- 43:27her dungeons and Dragons.
- 43:28Meet up now we were excited
- 43:31that she had some normal
- 43:33friends to hang out with and.
- 43:36They started
- 43:37talking and they're obsessed with the
- 43:39game, so that's all they talked
- 43:40about. We never thought in
- 43:42a million years that sex would
- 43:43be a part of this equation
- 43:45and. Now she's having sex.
- 43:49We were happy that she had
- 43:51a neurotypical friend,
- 43:52but not if this is the cause.
- 43:54Look, are you concerned that she's
- 43:56being pushed to do something
- 43:58that she doesn't want to do?
- 44:00No, no, I mean she acts like she's
- 44:03really proud that she has a boyfriend.
- 44:06OK? I mean we were having brunch
- 44:08with friends and she went on and
- 44:10on about having a boyfriend
- 44:12and what she's doing with him?
- 44:13Well what was going on
- 44:15that she brought this up?
- 44:16Absolutely nothing, we just asked.
- 44:18Hey, how's your weekend
- 44:20dungeons and Dragons going?
- 44:22And then she went on and on about
- 44:25having this boyfriend and what
- 44:26they're doing with each other.
- 44:27I mean we were floored.
- 44:29It sounds like it was a
- 44:30lot to have sprung on you,
- 44:31especially with your friends there.
- 44:33Oh
- 44:33my goodness, a lot is an understatement.
- 44:36You know, it sounds like you
- 44:38were understandably upset but
- 44:40like to throw in that from a
- 44:41health professional standpoint,
- 44:43there's at least a couple
- 44:44positives in there, one at least.
- 44:46East Hawking to you and Pew.
- 44:48It sounds like it was consensual,
- 44:50which we always worry about.
- 44:51And with an age appropriate partner,
- 44:53and she's having some pleasure.
- 44:54But but I totally understand that
- 44:57your point is broader than that,
- 44:58and that you're really worried that
- 45:00she's not sticking with your family
- 45:01values so we can talk about this,
- 45:03and I can help you find some ways
- 45:05to address your concerns with her.
- 45:07You know, I get
- 45:08that she's talking to us, and you know,
- 45:10I get that no one's ****** her.
- 45:12She's not being raped,
- 45:13and she may even enjoy it, but
- 45:15she's just too young to have sex.
- 45:17Well, as her parents you definitely
- 45:19have the right to explain that to
- 45:21her and the right to provide some
- 45:23rules and some boundaries that might
- 45:25help decrease her opportunity to
- 45:27engage in sexual behaviors such as
- 45:29an open door policy in the home.
- 45:31But really importantly is talking
- 45:33to her and explaining it to her and
- 45:36doing it in a very concrete way.
- 45:38The way that you addressed sexuality
- 45:40and puberty, because again using that
- 45:43concrete mechanism can help when she
- 45:45doesn't understand some of these nuances.
- 45:47But also, you know it's really
- 45:49important to have the conversation
- 45:50more than once to keep having the
- 45:53conversation along the way so that
- 45:55she can incorporate this information
- 45:57and really use it to help inform
- 45:59some of her own value system as she
- 46:01grows and becomes more of an adult
- 46:04as she goes through adolescence and
- 46:06creates her own value system as
- 46:08adolescence ultimately need to do.
- 46:10That makes sense, yeah,
- 46:12this also brings up though.
- 46:13The knee to remind Hannah of the
- 46:16difference between public information.
- 46:17And private information doing so
- 46:20can help avoid things like this
- 46:23embarrassment that you felt,
- 46:24but it also very importantly can
- 46:26help keep her safe.
- 46:28Yeah, I definitely want don't want
- 46:30anything like this to happen again,
- 46:32and I don't want her to feel
- 46:34ostracized or even worse because of
- 46:36it. Yeah, and The thing is though,
- 46:39that as much as you talk to her
- 46:41even while you're reinforcing the
- 46:43family values and wanting her to wait
- 46:45and helping support that behavior,
- 46:48it's still going to be very important
- 46:50to continue to talk to Hannah
- 46:52about healthy sexual development,
- 46:54because ultimately,
- 46:54if she is going to have sex again soon, or.
- 46:58Hopefully wait as you would like her to do.
- 47:02She will have hopefully a healthy sex
- 47:04life and you can help determine that that
- 47:07will be a happy and healthy sex life.
- 47:10Of like well,
- 47:12you know you mentioned you went over
- 47:13the resources on puberty and sexuality
- 47:15with her and would help to do so again.
- 47:18Is there anything else I should be adding?
- 47:20Absolutely I really recommend
- 47:22that with Hannah.
- 47:23You cover some of the social topics
- 47:25such as dating and rejection and the
- 47:27rituals around social interaction
- 47:28with him and with having some of the
- 47:31trouble picking up on the nuances
- 47:33it can be really helpful to support
- 47:35her in this so you know when you
- 47:38help then she could have potential
- 47:40to navigate those waters.
- 47:42You also want to make sure that
- 47:43you're covering the positives for
- 47:45right to pleasure and her right
- 47:46to feel cherished and an intimate
- 47:48relationship as well as some of the
- 47:50negatives you want to make sure
- 47:52she understands what consent is,
- 47:53what it looks like to be a victim,
- 47:55and where she could go,
- 47:56or whom she could talk to if
- 47:58she feels unsafe.
- 47:59And then as well,
- 48:00you want to talk to her
- 48:01about safer sex measures.
- 48:03This is what we call measures such as
- 48:06contraceptive and barrier methods,
- 48:08because no sex is absolutely safe.
- 48:10But with these safer X measures,
- 48:12she could reduce her risk for
- 48:14unwanted pregnancy and for
- 48:16sexually transmitted infections.
- 48:18So these are the topics that we
- 48:19suggest that you touch base on and I'm
- 48:21happy to go over it with you and to
- 48:23provide you with a bunch of resources.
- 48:25I'd love the resources.
- 48:27This is so
- 48:27much information it's
- 48:28making my head spin well,
- 48:30it can definitely feel
- 48:31like a challenging topic and a
- 48:33lot of parents feel this way,
- 48:35but potentially a helpful reframe
- 48:36is that this when you break it
- 48:38down is no more difficult than
- 48:40all of the other really difficult.
- 48:42Topics that you're already handling
- 48:44really successfully with Hannah.
- 48:46OK, well thank
- 48:47you of course.
- 48:52OK. So one resource that I
- 48:56want you to know about aside
- 48:58from these videos that we made is a
- 49:01resource called sex Ed for self advocates
- 49:03by an autism organization online.
- 49:06They have videos on everything
- 49:09relevant to dating, intimacy,
- 49:11etcetera made by people on the
- 49:13spectrum for people on the spectrum.
- 49:15It's wonderful and I want
- 49:16to leave time for questions,
- 49:17so I'm not going to show one of those videos,
- 49:19but sex Ed for self advocates is the name,
- 49:22and that's for older adolescents and
- 49:23their parents to take a look at.
- 49:25And they have wonderful videos.
- 49:26So with this product product project,
- 49:30we created a paper.
- 49:32We did a study and we found that two weeks
- 49:35after the session in the 125 learners,
- 49:38there were statistically significant
- 49:39improvements in skills and knowledge
- 49:41as well as positive attitudes
- 49:43towards talking to kids and families
- 49:45about sex and sexual health.
- 49:47We also found that using the multi
- 49:49site synchronous videos for teaching
- 49:51increased knowledge across programs and
- 49:53across providers and also increased.
- 49:55Equity,
- 49:55it's it's not fair or not right that
- 49:57if there's a couple of experts in one
- 49:59spot that you know 10 providers know
- 50:01something that the rest don't know,
- 50:03so doing these sort of synchronous
- 50:05video conferencing events can be a
- 50:07good way to disseminate the more niche
- 50:09areas of knowledge to a lot of people.
- 50:13Again, don't reinvent the wheel.
- 50:14There's lots of resources for these topics,
- 50:16so don't be scared.
- 50:17You can look them up.
- 50:18You can ask me this didactic is available,
- 50:20including all the resources in it.
- 50:22It's available publicly.
- 50:24And you can use it and thank you.
- 50:26This is my family,
- 50:28my husband,
- 50:28my son,
- 50:29my daughter and thanks to Andres and
- 50:30Dorothy and Elizabeth Jordan thanks.
- 50:40No sex was involved in the
- 50:41making of those children.
- 50:45Thank you.
- 50:47Thank you Linda questions please and Kyle,
- 50:51would you mind just changing
- 50:52the view so that we can see?
- 50:55Yes, I see Doctor Cardones hand raised
- 50:57there. So Doctor Cardone go ahead.
- 51:01Sure, are there opportunities for your
- 51:04participants to have booster sessions
- 51:06so that they can keep learning?
- 51:08I I did a qualitative study on when he won,
- 51:11introducing CBT to all our glorious
- 51:14staff and I learned quickly that one
- 51:17time is not enough in terms of didactic,
- 51:19particularly in sensitive new
- 51:21areas of learning.
- 51:22And so I'm wondering if if you have
- 51:24thought about the one year booster
- 51:26session or write to me Doctor
- 51:27Drozdowicz about your dilemma,
- 51:29because I think adult learners
- 51:30need that opportunity.
- 51:32For continuous reflection on new content.
- 51:36Absolutely. And can I answer into this thing?
- 51:39OK, all right? I have not thought
- 51:41about that until right now,
- 51:43so I think that's a good idea.
- 51:44And people can certainly contact me,
- 51:46but I think the idea of a
- 51:47booster session is good,
- 51:48or maybe even sending out the videos again at
- 51:51certain intervals as a reminder to refresh.
- 51:53But yeah, it is specialized material,
- 51:55so that's that's a good thought,
- 51:56and we shouldn't.
- 51:57We should think of it.
- 51:59Next question
- 52:01question again comes from Sarah Kowalski,
- 52:03who is her wonderful nurse and when he won.
- 52:06Hi Doctor Dee, thanks for being here.
- 52:10Would love to bring this to our staff.
- 52:12I'm sure Carol can shake
- 52:13her head too. This would
- 52:14be a great little
- 52:17session for our staff to see
- 52:18you and here we often do get
- 52:21children on the unit that we hear,
- 52:23you know have come in with acting out
- 52:26sexually and there's kind of that
- 52:28like let's put them in a single room.
- 52:30Let's put them at a single
- 52:31table and they can't.
- 52:32So this would be a really great session
- 52:34for us to have to just feel more
- 52:37normal about understanding children.
- 52:39My question.
- 52:40Now it is for women when you
- 52:43prescribed Viagra to women
- 52:45is it covered by insurance?
- 52:47So great question.
- 52:48I didn't hear that it wasn't and for
- 52:50any medication if there's an issue
- 52:52with coverage, I always recommend
- 52:54referring people to Good RX,
- 52:56which which often you can buy things
- 52:58without insurance over the counter
- 52:59somewhere with a coupon for almost no money.
- 53:02So I didn't hear of any issues
- 53:03with the coverage and if there was
- 53:05an issue I might call the company
- 53:07and show them that paper and say.
- 53:09This is needed, you know.
- 53:13Well, someone in addition to your mom
- 53:15who's very proud of you and I know
- 53:16your mom and I know she's very proud
- 53:18of you even though she has Linda.
- 53:20What are you thinking about today?
- 53:22Is your training director Dorothy.
- 53:26So I. I think of myself as you're sort
- 53:31of other mom and you make us all proud,
- 53:36but this is really a terrific project.
- 53:39I'm so glad you did it and I
- 53:41am now starting to think of
- 53:44next. What next? Because
- 53:48I think as we said, seeing it once,
- 53:51you actually have to practice and
- 53:55like any exposure therapy.
- 53:57So this has been just.
- 54:01Absolutely terrific. And I
- 54:03think I look forward to all
- 54:04of us being able to, you know,
- 54:07talk more openly about this issue.
- 54:09One question I have talking about kids,
- 54:14sexuality, religion, any of those things
- 54:18have gotten to be sort of political.
- 54:21How do you have thoughts about how to
- 54:24sort of navigate some of those issues?
- 54:28Because we were doctors,
- 54:29we want to make sure that you know
- 54:32we're giving information, but.
- 54:35It's gotten really
- 54:37sort of difficult at this point.
- 54:38Do you have thoughts about that?
- 54:40I do, it's gotten difficult.
- 54:43You know, I always recommend addressing
- 54:45these issues in the same way that
- 54:47we do other sensitive topics,
- 54:49which is especially the younger the child
- 54:51is in front of the parent to the parent.
- 54:54So instead of turning to
- 54:55Johnny or Susie and saying,
- 54:56you know how's your sex life going,
- 54:58you can turn to the parent and say, you know,
- 55:00we always talk about puberty at this age,
- 55:02and the things that are coming up,
- 55:03are you aware of?
- 55:04Two sources let me tell you so.
- 55:06If the parent says you know
- 55:07we don't talk about that.
- 55:08Whatever you can say, well, you know we
- 55:10can talk about the health parts of it.
- 55:11How about that?
- 55:12You know I'm not promoting dating?
- 55:14If that's not, you know,
- 55:15something that you're OK with,
- 55:16but we should still talk about the
- 55:18physical changes and how to you know,
- 55:20respond to other people and safety.
- 55:21And, you know,
- 55:22usually most parents are trying
- 55:24to care about their kids.
- 55:26And if you can kind of appeal to them,
- 55:27even from a safety perspective,
- 55:29to say we have to talk about this.
- 55:30I think **** is the most universal
- 55:33like head exploder for parents.
- 55:34No matter how progressive,
- 55:35no one wants to talk about **** but every
- 55:37kid almost has seen it by the time it took.
- 55:40And so I say like you,
- 55:42I know,
- 55:42I know, I know.
- 55:43But the same way that we talk about
- 55:45drinking and drugs and everything
- 55:46else we need to talk about this,
- 55:48because throwing your head in the
- 55:49sand is not going to help and it
- 55:51would be a shame if **** was your
- 55:53child sex education and that that is,
- 55:55I think,
- 55:55a nice tactic with parents to say
- 55:57that's what's going to happen
- 55:59if we don't talk about this.
- 56:01But you have to navigate.
- 56:02And if they say no then you can
- 56:03back away slowly, you know.
- 56:04You can only
- 56:05do what you can do
- 56:06that that's wonderful. Thank you.
- 56:07The next question comes from France and
- 56:09Brazil, where I hear there is no sex.
- 56:14Thank you, Andres.
- 56:16I so you mentioned that you
- 56:18have a several documents and and
- 56:20video together on our website.
- 56:21So I wonder would it be possible?
- 56:24Have you thought about like having a
- 56:27this kind of website accessible on
- 56:28the kind of high level platform where
- 56:31pediatricians can access it primary
- 56:33care providers? Because I feel that
- 56:35there are a lot of different content
- 56:37different videos like autism for.
- 56:42Sexual health in general,
- 56:43but there is nothing
- 56:45together where where a nurse could
- 56:47log on and and look what what what
- 56:50you wants to to see you know,
- 56:52right? That's a good idea.
- 56:54I feel like this.
- 56:55They probably are a little bit hard to find.
- 56:57It almost makes me think of access mental
- 56:58health as potentially a good starting point.
- 57:00I don't know if they have resources,
- 57:02but I think that's a great idea to more
- 57:04widely disseminate this sort of info,
- 57:06and I would love if there were repositories
- 57:08for teaching videos like this.
- 57:09Just in general that medical school,
- 57:11school, medical schools,
- 57:13medical schools and residencies,
- 57:15and other training programs I know
- 57:18could easily access to teach, right?
- 57:20Because not everybody has a bunch of people
- 57:22you know who can talk on these topics.
- 57:24And it's no.
- 57:25It's not good to reinvent the wheel,
- 57:26because it probably won't be as good
- 57:27as as something thoughtfully done.
- 57:29So I would love if there was a
- 57:31better you know hub for these
- 57:32sorts of specialized materials.
- 57:35I see Adam and Bridget and Rob
- 57:38Lebrillo and I wasn't sure if
- 57:40Adam raising his bottle was.
- 57:42I want to speak or Bridget or Rob,
- 57:44but is that a yes Adam or Rob?
- 57:48Any questions from there.
- 57:51This is when we engage our zoom
- 57:53friends hello zoom friends
- 57:54rob Librillo go ahead. Sure
- 57:57Linda. Thank you for this
- 57:58awesome presentation. Always
- 58:00good to see you doctor
- 58:02should be raised an interesting
- 58:03question about sexuality and
- 58:04then also religion being tough topics.
- 58:07How do you deal with
- 58:08them when they merge together when like?
- 58:12A parents belief system is really
- 58:16opposed to even ***********.
- 58:20And they and they and pushing
- 58:21that on to the kid.
- 58:24So again, I just tackle it
- 58:25from a safety perspective,
- 58:27the same way you know I'm not
- 58:29pushing weed on your kid by talking
- 58:31to them about weed and safety and
- 58:33talking to them about alcohol.
- 58:34I say it's the same thing I try to
- 58:36advise the parents that you know.
- 58:37I also don't want their child to
- 58:39look at *********** if that's
- 58:41not in their belief system,
- 58:42but there's a high likelihood that they
- 58:44will be exposed to it at some point.
- 58:46I won't say no.
- 58:47Your kids going to look,
- 58:47but they're horrible friends.
- 58:49They're indecent friends are going to
- 58:50show it to them, and you know, it's that.
- 58:53It's important to know.
- 58:54And that even if you think
- 58:56something is for adults,
- 58:57we still teach children about you.
- 58:59Know allowances and budgets and money,
- 59:03even though they don't run their own
- 59:04money until they're over 18, right?
- 59:06But you can prepare children to be
- 59:08ready for adult behaviors early on,
- 59:10so that it's not a surprise.
- 59:11And when the time comes they
- 59:13are ready and not afraid.
- 59:14And in sex therapy,
- 59:15one of the most common situations
- 59:17we see is people raised in very,
- 59:18very religious households where
- 59:20sex was demonized and then they
- 59:21get married and all of a sudden
- 59:23they're supposed to have lots
- 59:24and lots of sex and procreate.
- 59:25And they can't do it,
- 59:27and so it is better to get the conversations
- 59:29going and have it be less pressurized.
- 59:32But again,
- 59:32in the end it's the parents choice.
- 59:34It's their child.
- 59:34You don't want to,
- 59:35you know,
- 59:36make a a divide there so we feel
- 59:38it out as we do with everything
- 59:40in psychiatry and try to
- 59:41maintain the relationship above
- 59:43all else and then safety.
- 59:46Thank you, thank you Linda.
- 59:47We have one more question.
- 59:49We're getting a Direct Line
- 59:51from our embassy. Go ahead.
- 59:54Well, so thank you for a great presentation.
- 59:57It wasn't really a question,
- 59:58it was just me saying hello but.
- 01:00:04Great topic and lots of
- 01:00:06things. We're working with
- 01:00:08children on the spectrum and
- 01:00:10adolescence on the spectrum,
- 01:00:11and this is such a void in
- 01:00:13education and strategies for kids,
- 01:00:16and in fact like a few months back we
- 01:00:18will looking for a good educational
- 01:00:20program and as always a great things
- 01:00:22come out of the Child Study Center so
- 01:00:24we didn't need to go look too far away.
- 01:00:27Linda, thank you.
- 01:00:28This is really wonderful
- 01:00:30intervention that we will
- 01:00:31use a lot with with our.
- 01:00:33He is on the spectrum in
- 01:00:34particular. Thank you,
- 01:00:36thank you and and again, Linda.
- 01:00:38Thank you for making everything available.
- 01:00:40We're very proud of you.
- 01:00:41We love you dearly.
- 01:00:42I know that Linda Mace is watching over.
- 01:00:44Linda has been very key in having
- 01:00:46you be still the part of the
- 01:00:48Child Study Center which you are.
- 01:00:50So please for Linda.
- 01:00:58Yep.
- 01:01:00Thanks for coming guys.