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Child Study Center Grand Rounds 04.19.2022

May 18, 2022
Let's talk about sex, Doc: Video-based examples of sexual health conversations to help CAPs help kids
ID
7855

Transcript

  • 00:19To talk about.
  • 00:23We will.
  • 00:35I love you.
  • 00:38Pretty much.
  • 00:41Thank you we finally.
  • 00:51We literally wouldn't.
  • 00:54Well, I think it's too late.
  • 01:30OK.
  • 01:32Good afternoon and Kyle.
  • 01:34Can I ask you one more favor?
  • 01:36Could we put Lindas first? Slide on.
  • 01:41Thank you. I don't know if
  • 01:44people know who Kyle is,
  • 01:46but Kyle is the most important person
  • 01:49in grand rounds and I want you to
  • 01:51appreciate and hug him and love him.
  • 01:56And for those of you who didn't know,
  • 01:57let me embarrass him in public.
  • 01:59He is a Superman suit,
  • 02:01not Superman, Star Wars, konwiser,
  • 02:04reenactor, all sorts of things.
  • 02:07So if you want to know,
  • 02:08maybe we'll have him give Brian runs
  • 02:10one of these days because he knows,
  • 02:12like we tell psychiatrists and
  • 02:13psychologists and mental health,
  • 02:15he knows that play is a tool of healing.
  • 02:18Whatever you need to heal play,
  • 02:20he's a good player.
  • 02:21OK, someone else who plays
  • 02:23really well is today's speaker,
  • 02:25and I'm just so delighted before that.
  • 02:28Next week, Nathan Fox,
  • 02:30am I remembering, right?
  • 02:31I'm sorry, yes.
  • 02:33So next week,
  • 02:34just a heads up is going to be the first
  • 02:37of the two parts series this year of
  • 02:40the Viola Bernard Lecture which Tara
  • 02:42Davila and others are putting together.
  • 02:45But I'm really grateful to Tara for finding.
  • 02:48Carolyn Roberts,
  • 02:50Roberton Roberts,
  • 02:52who will be our speaker for
  • 02:54both parts and Doctor Roberts.
  • 02:56I hope it's Robertson.
  • 02:58Robertson,
  • 02:58apologies if I bungled that she is a
  • 03:02professor here at Yale and if I recall,
  • 03:06Department of African American
  • 03:07Studies her work is going to be very,
  • 03:10very relevant to all the many efforts
  • 03:13and initiatives about diversity,
  • 03:15equity and inclusion.
  • 03:16I'm really excited about it and.
  • 03:19Again, it's going to be a two part series,
  • 03:20so stay tuned for that and
  • 03:22how it's going to be divided.
  • 03:24Today I have the great
  • 03:26pleasure of introducing my dear
  • 03:28friend and recent graduates.
  • 03:30Maybe maybe three years ago
  • 03:32you graduated 2 years ago.
  • 03:34Very recent graduate Linda Drozdowicz.
  • 03:37I have had the the joy and
  • 03:38the pleasure of knowing.
  • 03:39Knowing Linda,
  • 03:40I think since her first year in
  • 03:42medical school or second year when
  • 03:44she was at the Mayo Clinic and Linda
  • 03:47was part of the Klingenstein Third
  • 03:49Generation Foundation network which
  • 03:51we started here in Yale in 2000.
  • 03:54Two on network named after
  • 03:56the late Donald Cohen.
  • 03:58Our former former former director.
  • 04:00If I get that right and he passed
  • 04:02in 2001 and by 2002 the network
  • 04:05was funded by the claimants teen
  • 04:07Third Generation Foundation,
  • 04:09they were so pleased with what we did
  • 04:11here at Yale that the next year or
  • 04:13two they funded the current 13 programs,
  • 04:16the Mayo Clinic being one of them.
  • 04:18So anyway,
  • 04:18Linda was there one of her many talents
  • 04:21making my point that plays a tool of healing.
  • 04:24Is that she was and known as a ukulele girl.
  • 04:28Right,
  • 04:28and I didn't say girl,
  • 04:30that's how she was known in her pre MD days.
  • 04:33Not not ukulele miss but ukulele
  • 04:35girl because what she did is that
  • 04:37she would plant herself at one of
  • 04:40the main fires or entries of this
  • 04:42magnificent Mayo Clinic playing the ukulele.
  • 04:46Welcoming people into the Mayo Clinic
  • 04:49and in some of the pediatric units.
  • 04:52And that's just amazing.
  • 04:53That's, you know, the power of play.
  • 04:56She played for our kids and
  • 04:57winning one when she was here.
  • 04:59And I see Sarah Kowalski when
  • 05:02one of our nurses
  • 05:04are associated. Yeah, patient,
  • 05:06the manager which is like I
  • 05:08never get their wording right,
  • 05:10but our nursing Director Co.
  • 05:13Director and she is smiling because she
  • 05:15remembers as we all remember fondly.
  • 05:17That reminds me of my Angelou,
  • 05:20who we all know said you'll forget
  • 05:22everything you are taught, but you will
  • 05:25never forget how you're made to feel.
  • 05:27So I'm sure that those kids have forgotten
  • 05:30everything about what we taught them about.
  • 05:32You know everything, but I'm sure
  • 05:34they haven't forgotten your ukulele.
  • 05:36Now, Linda has another great
  • 05:41superpower that I discovered.
  • 05:43Just by coincidence,
  • 05:45one day I was telling confessing to Linda.
  • 05:47I said, Linda, I'm I'm such a prude.
  • 05:50That I don't know how to say
  • 05:52body parts without blushing,
  • 05:53and I'm an MD who has been
  • 05:55practiced for 20 years.
  • 05:56I have no I, I just get like really anxious.
  • 05:59And you know, I say well euphemism,
  • 06:02euphemism.
  • 06:02And she starts naming 1 by 1 all
  • 06:05the body parts in great detail.
  • 06:08And I'm like damn how did you do that?
  • 06:11And I saw that it was not just her
  • 06:14natural ease which you will learn
  • 06:16about in the second in a millisecond.
  • 06:19But it was her intentionality.
  • 06:21About this.
  • 06:21Linda is,
  • 06:22I think,
  • 06:22one of one or two or three Charles
  • 06:26psychiatrists in the country who also has.
  • 06:29Training and sexual health.
  • 06:30She will tell us exactly the
  • 06:32name of her degree,
  • 06:33but she pursued this and she knows
  • 06:35a lot about this and she's going
  • 06:37to be talking about many things,
  • 06:39including a paper that I'll have her
  • 06:42talk about but with great pride.
  • 06:44Dorothy Stubby and I can tell you
  • 06:46that the paper she's going to talk
  • 06:48about with just published last
  • 06:50year won the award from Adword,
  • 06:52which is the Association of Directors
  • 06:55of Residency Training in Psychiatry.
  • 06:57She won the award for the best.
  • 06:59Paper published by a trainee that year
  • 07:02and we're incredibly proud of that.
  • 07:04And I'm just so delighted to
  • 07:06have played well with others,
  • 07:07including Linda.
  • 07:08So Linda Drozdowicz coming up.
  • 07:16Something really quick. Sorry about this.
  • 07:23Please hold for technical difficulties
  • 07:25all right, thank you for having me.
  • 07:27Andres has adjusted the screen so
  • 07:29that I can be seen on the screen
  • 07:31because I'm vertically challenged.
  • 07:33Thank you for coming to this talk
  • 07:34and this is a talk about sex,
  • 07:36which is a topic that we don't talk about
  • 07:38too openly or too often in child psychiatry.
  • 07:40I think not as often as
  • 07:42we should as you'll see,
  • 07:43so the title is video based.
  • 07:44Examples of sexual health
  • 07:46conversations to help child,
  • 07:47adolescent psychiatrists and practitioners
  • 07:49in general help kids and synchronize.
  • 07:52Multi site video conferencing
  • 07:53works and there's a little I don't
  • 07:55know what that thing is called.
  • 07:56The circle, the timing,
  • 07:58your QR code which will give you
  • 08:00access to the paper that was written
  • 08:02about this project as well to the
  • 08:04full sexual health didactic and
  • 08:05I'll show this again at the end so
  • 08:07don't worry if you don't get it now.
  • 08:09So my goal is today are for you to
  • 08:11learn the importance of discussing
  • 08:12sexual development and sexual health
  • 08:14in neurotypical and neurodiverse
  • 08:16kids and their families.
  • 08:17To see examples of videos used
  • 08:19for teaching these skills and to
  • 08:20learn the utility of synchronized.
  • 08:22Multi site video conferencing for
  • 08:24teaching niche content to a lot of people.
  • 08:27So you might be thinking this
  • 08:29seems like a really niche topic,
  • 08:31or for those who know me, why Linda why, so?
  • 08:33I would argue that this is not a niche
  • 08:36topic at all, and I'll tell you why.
  • 08:39As Andre saluted to when I was in residency
  • 08:41at Mount Sinai Hospital in the city,
  • 08:43I had the pleasure of actually
  • 08:46going downtown to NYU to do the
  • 08:48training program and human sexuality,
  • 08:50which is a sex therapy training program.
  • 08:53When I mentioned this to my mother,
  • 08:54she said you did,
  • 08:55what, and but.
  • 08:56What is sex therapy?
  • 08:58So sex therapy is where you help individuals
  • 09:01and couples with any sexual difficulties.
  • 09:03It is traditionally a
  • 09:05purely behavioral therapy,
  • 09:07but those of us who have ever done
  • 09:08psychotherapy with anyone knows
  • 09:10that relationships are everything.
  • 09:11So usually you're covering both
  • 09:12to help people feel better as
  • 09:14individuals and as couples.
  • 09:15So I had that background before
  • 09:17I came to child psychiatry,
  • 09:20but again, you know,
  • 09:20what about when I got to child fellowship?
  • 09:23Well, in month one I was on Winchester
  • 09:25one or inpatient unit and we admitted.
  • 09:28A 13 year old boy with autism,
  • 09:30mild intellectual disability and I think
  • 09:32he was admitted for aggression or some,
  • 09:34you know,
  • 09:35common reason that kids are admitted.
  • 09:36And as an aside,
  • 09:38his mother came in beside herself
  • 09:40and told us that she had caught
  • 09:42him ************ while looking at
  • 09:43his sister and she was convinced
  • 09:45that he was a sexual deviant.
  • 09:46That he was disgusting.
  • 09:47She was really really really disturbed
  • 09:49by this and it felt wrong to me.
  • 09:51I knew that there was something not
  • 09:53sitting right but I didn't really
  • 09:54know how to counsel her and it
  • 09:56turned out she had not
  • 09:57talked to him about puberty.
  • 09:59About sexual development.
  • 10:00About ************.
  • 10:01But again I really didn't know
  • 10:03what to tell her and that's what
  • 10:05really prompted this project.
  • 10:07So I got in touch with Andres
  • 10:09and I got in touch with one of
  • 10:11the sex therapists and NYU doctor
  • 10:13Elizabeth Horden and together
  • 10:14we we created this project.
  • 10:16So you need to be able to talk
  • 10:18to kids and their families
  • 10:19about the birds and the bees.
  • 10:20That's where we have this.
  • 10:21This lovely picture and sexual
  • 10:23health and mental health are
  • 10:24actually bidirectionally influential.
  • 10:26So if you're having sexual dysfunction,
  • 10:28you're two to three times more likely
  • 10:30to develop major depressive disorder.
  • 10:32And if you've got depression,
  • 10:34you're much more likely to
  • 10:35experience sexual dysfunction,
  • 10:36so this is directly relevant to the
  • 10:38population that we treat medical.
  • 10:40Sexual health education is also
  • 10:42imperative because if providers
  • 10:43are not bringing up the subject,
  • 10:45if we're placing the burden on patients.
  • 10:47For their parents to bring it up,
  • 10:48we're contributing to stigma
  • 10:49and when we're making it sort of
  • 10:51the the elephant in the room,
  • 10:52we don't go there unless you
  • 10:53are bold enough to bring it up.
  • 10:55We need to bring it up so that that's
  • 10:57another reason this is so important.
  • 10:58And finally,
  • 10:59sexual health education is often
  • 11:01not as openly available to
  • 11:03neurodiverse kids and adults,
  • 11:05but there's a tendency to infantilize people
  • 11:07with any level of perceived disability,
  • 11:09and these kids have just as
  • 11:10much of an interest in you know,
  • 11:12sex, partnership, romance,
  • 11:14whatever it is,
  • 11:15and so we need to make the information.
  • 11:18Equally available to them in whatever modes
  • 11:20of information transmission are going to be.
  • 11:23You know,
  • 11:24most identical.
  • 11:25And this is not as niche as you think it is.
  • 11:29So just in the last couple of
  • 11:31years on Netflix there have been
  • 11:32two shows about autism and sex.
  • 11:34One is called a typical that's
  • 11:36a scripted show.
  • 11:37It's wonderful and one is
  • 11:38called love on the spectrum,
  • 11:39which is a reality TV show about
  • 11:41people on the spectrum dating and
  • 11:42I'm going to show a very brief clip
  • 11:44from a typical you should watch it
  • 11:46if you haven't. How is your
  • 11:49session with your therapist today?
  • 11:50She thinks that I should put.
  • 11:52And find someone to have sex with.
  • 11:55She didn't say the sex part. I added that.
  • 11:59I'm a weirdo. That's what everyone
  • 12:01says sometimes I don't know what
  • 12:03people mean when they say things Sam.
  • 12:05People on the spectrum date, you know, girls
  • 12:07don't really notice me at all.
  • 12:08And I'm not great at picking
  • 12:09up signals. She's
  • 12:10smiling right at you.
  • 12:12You need to turn that
  • 12:13down like 70%. Casey, all
  • 12:18right. So wonderful show
  • 12:19if you haven't seen it,
  • 12:20check it out, but that's atypical.
  • 12:22So this is actually in the media.
  • 12:23People are talking about
  • 12:25neurodiverse kids and sexuality.
  • 12:28OK, So what did we do with this
  • 12:30project myself and Doctor Gordon
  • 12:31created a didactic on sexual
  • 12:33health issues relevant to child
  • 12:35and adolescent psychiatrists.
  • 12:37This included discussing sexual
  • 12:38health and development in
  • 12:40neurotypical and neurodiverse kids.
  • 12:42This included what to do when
  • 12:43the psychiatrist is the problem,
  • 12:45AKA sexual side effects of medications.
  • 12:49And special considerations
  • 12:50for kids on the spectrum.
  • 12:52We got together with Andres,
  • 12:55who's the director of the Center
  • 12:57for simulated participants,
  • 12:58which used to be called the
  • 13:00standardized patients here at Yale,
  • 13:01where he is professional actors
  • 13:02who can act out these scenarios to
  • 13:04help teach trainees what to do.
  • 13:06And so we wrote scripts for them,
  • 13:08recorded videos of ourselves as experts,
  • 13:10talking with the simulated participants,
  • 13:12and then created these videos.
  • 13:15Our plan was to present this to,
  • 13:17you know,
  • 13:1812 John Adolescent Psychiatry fellows
  • 13:20here at Yale and then COVID hit
  • 13:22and our plan went up in flames so
  • 13:24we had to pivot and this was back
  • 13:27before Zoom was familiar to all of
  • 13:29us and thanks mostly to Andres.
  • 13:31We set up the synchronized video
  • 13:33conferencing to 16 child and
  • 13:35adolescent psychiatry programs
  • 13:37across the country with 125 trainees,
  • 13:39so this was kind of a silver lining
  • 13:42of COVID where our audience actually blew up.
  • 13:44In a good way when our plans blew
  • 13:47up in a bad way.
  • 13:48But I want to again give a special
  • 13:50thanks to Doctor Martin and to Doctor Gordon.
  • 13:52OK,
  • 13:53so why you standardized patients?
  • 13:55Because showing people is better
  • 13:57than telling them when it comes to
  • 14:00learning and I hope you're going
  • 14:01to understand that today when
  • 14:03you see these videos.
  • 14:04All right,
  • 14:05this is a picture that brings
  • 14:07up all sorts of feelings.
  • 14:08This is when we're filming our videos,
  • 14:11and this was probably about a
  • 14:13week before everything shut down,
  • 14:15which was the last time we were
  • 14:17in person together before COVID
  • 14:18so little did we know that this
  • 14:20would be the end,
  • 14:20but we luckily did our recording
  • 14:23before everything got rough.
  • 14:26OK,
  • 14:26so when I ask you to think about talking
  • 14:29to parents and kids about sexuality,
  • 14:32including kids on the spectrum,
  • 14:34how does that make you feel?
  • 14:37Right,
  • 14:37we asked this to participants in the project.
  • 14:39The people participating in the
  • 14:40detected and they had some thoughts.
  • 14:43OK, so the biggest word, awkward, right,
  • 14:46awkward, uncomfortable, difficult,
  • 14:47but also words like necessary.
  • 14:49Important safety, privacy right?
  • 14:51So this was recognized as an important topic,
  • 14:54but one that kind of tends to
  • 14:56give people the the shakes.
  • 14:57And you know what's the the cure for fear,
  • 15:00knowledge, right knowledge and practice.
  • 15:02So we delivered the didactic.
  • 15:06All right,
  • 15:07So what content did we specifically cover?
  • 15:10Basic sexual health and development
  • 15:12in childhood talking about sexual
  • 15:14development and younger kids with autism.
  • 15:16Normal sexual development in
  • 15:19adolescence and ***********.
  • 15:21Management of medication induced
  • 15:23sexual dysfunction and then special
  • 15:25considerations and adolescents
  • 15:26with autism and sexuality.
  • 15:30So I just want to show this.
  • 15:31You don't need to read all the words,
  • 15:32but I want to show you that children
  • 15:35are sexual fetuses are sexual.
  • 15:37It is actually not uncommon for
  • 15:39ultrasonographers to have to
  • 15:40quickly move the wand when they're
  • 15:42doing a scan during pregnancy.
  • 15:43And the little girl or the
  • 15:45little boys touching themselves
  • 15:46fetuses self stimulate baby self,
  • 15:48stimulate young children self stimulate.
  • 15:50It feels good.
  • 15:51Whether you want to call it
  • 15:52overtly sexual versus for comfort.
  • 15:54You know kids are in touch
  • 15:56with their sexual parts.
  • 15:57So in children under four it
  • 15:59is normal to touch themselves.
  • 16:00The public or in private.
  • 16:01They have no idea,
  • 16:02and they don't really care.
  • 16:04They're interested in private parts.
  • 16:05They might be interested in women's breasts.
  • 16:07They might want to be naked,
  • 16:08talk about bodily functions,
  • 16:10peeing and pooping, and this and that.
  • 16:13So I don't know if it's happened to you,
  • 16:14but it's certainly happened to me
  • 16:16that parents come in concerned about
  • 16:17these sorts of behaviors and wondering
  • 16:19if there's something wrong with their child.
  • 16:20No,
  • 16:21there's usually nothing wrong with the child.
  • 16:24In four to six year olds,
  • 16:26things develop a little bit.
  • 16:27They might actually start to masturbate,
  • 16:29so purposefully touching
  • 16:30themselves for pleasure.
  • 16:31Parents blush at this.
  • 16:32There's often a lot of kind of shaming,
  • 16:34automatic reactions.
  • 16:35You know that.
  • 16:36Don't do that over here.
  • 16:37Don't ever do that.
  • 16:38They might talk about private parts
  • 16:40using naughty words without even
  • 16:41really knowing what they're saying,
  • 16:43but they picked up that it's naughty.
  • 16:45And then you know,
  • 16:46games like playing Doctor.
  • 16:47I'll show you mine if you show me yours.
  • 16:49These are, you know,
  • 16:50normal aspects in four to six year olds
  • 16:52with their sexual behavioral development.
  • 16:55Then in school aged children,
  • 16:56you know they typically do masturbate,
  • 16:58usually in private.
  • 16:59If they're not doing it in private,
  • 17:00that is a time for,
  • 17:01you know, redirection.
  • 17:02You know kind of gentle but firm redirection.
  • 17:05They'll play more sexually
  • 17:06oriented games like Truth or Dare,
  • 17:08so a little bit different
  • 17:10than playing Doctor.
  • 17:11They're going to view and listen
  • 17:12to sexual content in the media.
  • 17:13It's everywhere.
  • 17:14It's completely unavoidable.
  • 17:15And typically in this same range.
  • 17:17Actually,
  • 17:17at some point they'll be exposed to
  • 17:18**** which makes everybody nervous.
  • 17:20But I'm going to tell you and show you
  • 17:22why it doesn't have to make you as nervous,
  • 17:23because, again,
  • 17:24knowledge is power.
  • 17:25And at this age they want more privacy
  • 17:27and they become more reluctant about
  • 17:29talking about these issues with their
  • 17:30parents and adults in their lives.
  • 17:32And they begin to become actually
  • 17:33sexually attractive to peers.
  • 17:34So they're leaving latency.
  • 17:37All right, so let me show you.
  • 17:51This is going to be slow.
  • 17:53Give me a second. I can
  • 17:54feel Andre's blood pressure rising.
  • 17:58Hi Stephanie, it's so good to see you.
  • 18:00I still hang out in the waiting room.
  • 18:04I'm just getting so big.
  • 18:06How are you doing?
  • 18:07Oh, we're great, we're great.
  • 18:09You know things are finally, stabling out.
  • 18:11I am a little concerned
  • 18:12about having the talk soon.
  • 18:14You know she'll be hitting
  • 18:16puberty in a few years and
  • 18:18she might have questions and.
  • 18:19I'm maybe not, you know,
  • 18:22maybe it's too early to talk about this.
  • 18:24No, actually, it's never too early.
  • 18:26She's 8, almost nine and puberty isn't
  • 18:28far off and research really supports
  • 18:30that talking to children sooner
  • 18:32rather than later and starting age
  • 18:34appropriate sex Ed can support healthy
  • 18:36sexual development later in life so
  • 18:38that they relate to their sexuality
  • 18:40in a happy and healthy manner. And
  • 18:42I think having a talk would be very helpful.
  • 18:44OK, why is it coming up now?
  • 18:46So Hannah came home from school
  • 18:49the other day and she said that.
  • 18:50Someone was talking about
  • 18:52screwing and she asked
  • 18:53me what it meant.
  • 18:54I didn't know what to say,
  • 18:56so I told her it was a bad word
  • 18:59and not to say it again. But
  • 19:01at that moment I kind of thought I
  • 19:03should have said something about sex,
  • 19:05but I didn't know what to say.
  • 19:08So that's really normal.
  • 19:09At this age they start expressing
  • 19:11curiosity and ideally what you want
  • 19:13to do is talk to her about it in an
  • 19:16open way and be nonjudgmental so
  • 19:18that she doesn't feel ashamed or
  • 19:20embarrassed because the most important
  • 19:22component at this point is making sure
  • 19:24the door is open so she continues
  • 19:26to talk to you as she develops.
  • 19:27So I'm happy to go over some information
  • 19:29with you about how she can develop sexually.
  • 19:31Would that be helpful?
  • 19:32What have you talked to her about so far?
  • 19:35Well, actually I haven't shared much, I mean.
  • 19:37She knows that she has private parts like
  • 19:40a vagina. She knows that she's not to
  • 19:43share those parts with anyone she knows.
  • 19:46The boys and girls have different
  • 19:48private parts and she knows that
  • 19:50babies come from Mommy's bellies
  • 19:52and since she was adopted,
  • 19:53she knows that belly wasn't mine.
  • 19:55And other than that I mean.
  • 19:58I think that's about it. Actually,
  • 20:00that's great. You've provided her
  • 20:02with some good basic information.
  • 20:05You know my parents never really talked to
  • 20:08me about this stuff and she's just so young
  • 20:12but. You know now that I think
  • 20:14about it, she used to touch
  • 20:16herself when she was much younger
  • 20:18and we told her that that wasn't
  • 20:20nice and that she should stop it.
  • 20:23Now I'm thinking that that was
  • 20:24probably the wrong thing to do.
  • 20:26I mean, was I wrong
  • 20:27with that? No, that's not wrong.
  • 20:29It sounds as if you did set some very
  • 20:31appropriate boundaries about what is
  • 20:33public behavior versus private behavior,
  • 20:35but I might recommend a timing adjustment to
  • 20:38the approach overall so equally important
  • 20:40to telling them what they can't do.
  • 20:42Telling kids what they can't do
  • 20:44is telling them what they can
  • 20:45do and where they can do it.
  • 20:47You want to try to create a positive
  • 20:49approach from our perspective
  • 20:50from a health perspective,
  • 20:52************ is a normal and healthy part.
  • 20:54Of development and it starts very early.
  • 20:56Infants and kids masturbate and
  • 20:58they do it because it's soothing
  • 20:59and because it's pleasurable.
  • 21:01They don't relate to it as a sexual
  • 21:04activity the way that adults do,
  • 21:06but a lot of adults have these concerns,
  • 21:07so we can talk about how you and her
  • 21:10father could talk to her and support
  • 21:12her in her healthy sexual development.
  • 21:14Because with your support,
  • 21:15you could really ensure that
  • 21:17she relates to her sexuality in
  • 21:19a way that's healthy overall,
  • 21:20and you know she's developing now and
  • 21:22you want to help her through this.
  • 21:25From the issue with ************ too,
  • 21:27and I know it's really hard
  • 21:28to think about right now,
  • 21:29but her eventual future sex life.
  • 21:31Ohh my gosh. Yeah I think more
  • 21:34information would be helpful, great.
  • 21:38OK.
  • 21:43All right? So. The next topic
  • 21:46we went over was discussing
  • 21:48sexual development in kids with
  • 21:49autism and the main takeaways.
  • 21:51And I'm doing a very
  • 21:53abridged version of the talk.
  • 21:54So like I said, the full didactic
  • 21:56is available through those codes,
  • 21:57but kids with autism may require some extra
  • 22:00specifics and sexual health education,
  • 22:02so there's a lot of sex education that
  • 22:05occurs socially in groups of kids.
  • 22:06They pick things up from each other.
  • 22:08What is OK? What is not OK and kids
  • 22:10with autism may miss those cues,
  • 22:12so you may have to be a little bit more
  • 22:14or a lot more concrete in terms of.
  • 22:15Explaining what is public,
  • 22:17what is private, what can you say or do?
  • 22:19To whom, with whom,
  • 22:21when there are already great resources
  • 22:23geared towards this population,
  • 22:25so this is not a time to reinvent the wheel.
  • 22:27And I'm going to show you some of these
  • 22:30resources. All right, another video.
  • 22:34Or we just.
  • 22:40Well, that's
  • 22:45really helpful.
  • 22:48But I worry about Hannah because she's
  • 22:51not like normal kids. You know, she can
  • 22:53be quite persistent and repetitive.
  • 22:55For example, we were at the mall
  • 22:57the other day getting back to
  • 22:59school clothes and she kept yelling.
  • 23:01Screw Wayne, screw Wayne. Screw Wayne.
  • 23:05And I mean everyone stared at us.
  • 23:08Oh, that sounds like it was pretty difficult.
  • 23:10What did that bring up for you?
  • 23:12You know what?
  • 23:13Never? I think about it. I'm just
  • 23:14thinking she might be a bit too much.
  • 23:16You know, one of those women.
  • 23:19It's quite difficult with her autism.
  • 23:23I just. I just really didn't think that she
  • 23:25would be that interested in sex. You know?
  • 23:28Well, it's a really challenging topic.
  • 23:31Most people are not taught
  • 23:33how to talk about sexuality,
  • 23:34so we can go over some information and try
  • 23:37to practice to make it easier to begin with.
  • 23:40Can you tell me how you might expect Hannah
  • 23:43to develop into sexuality and adulthood?
  • 23:46You know, I really never
  • 23:48gave it much thought. I just.
  • 23:50I just kind of thought she
  • 23:52would wait until marriage.
  • 23:53I mean, that's what my parents told me.
  • 23:55I mean, I mean, that's not what I did,
  • 23:57but I just thought.
  • 24:00We kind of work through it as
  • 24:02she got older and definitely.
  • 24:05Much older than I did because.
  • 24:08I mean. Cheers, autism.
  • 24:11And I just didn't think that
  • 24:12she would be interested
  • 24:14in any type of sexual encounters.
  • 24:16I mean, you have to connect with someone
  • 24:19to want to have sex with them, right?
  • 24:21Well yes, but no, no no.
  • 24:24This is really not an uncommon
  • 24:26approach to sexuality.
  • 24:27Teaching sexuality to children and
  • 24:29most kids manage to figure it out.
  • 24:32They piece it together from the media,
  • 24:34their friends from the Internet,
  • 24:35where if we're being honest,
  • 24:37**** is pretty widely available.
  • 24:39But where did you really learn
  • 24:41your information? I guess
  • 24:42it was my friends and you
  • 24:44know I have an older sister.
  • 24:46Well, that's pretty common.
  • 24:47That's exactly where most people
  • 24:49learn it. They're friends.
  • 24:50So what did you learn from that?
  • 24:54I guess I learned that if I liked a
  • 24:57boy and I wanted him to go out with me,
  • 24:59I would talk to him or flirt with him and.
  • 25:03You know, maybe he would
  • 25:05become my boyfriend and.
  • 25:07That I shouldn't go all the way
  • 25:09because I didn't want a baby and.
  • 25:10Come to think of it, I never
  • 25:13understood how the two were connected.
  • 25:15OK, so The thing is though,
  • 25:17that even the parts that you did understand,
  • 25:19like flirting, involves some
  • 25:21understanding of the social cues
  • 25:23and the nuances and that can be more
  • 25:26difficult for neurotypical children,
  • 25:27particularly some of those with autism.
  • 25:30So since Hannah has some difficulty
  • 25:33with those nuances and those cues a
  • 25:35more active and direct approach from
  • 25:37you and her father could help support
  • 25:40the healthy sexual development.
  • 25:42The other component is unfortunately,
  • 25:44the reality is the neuroatypical population
  • 25:47is more vulnerable to exploitation or abuse.
  • 25:50So if you and her father really
  • 25:52tackle this directly,
  • 25:53you could help protect her against
  • 25:56that unfortunate consequence.
  • 25:57So that makes sense.
  • 25:58OK, so the most important place to start
  • 26:00is to try to understand where Hannah's at.
  • 26:03What does she think the word
  • 26:06screwing actually means?
  • 26:07From there you can see what she
  • 26:09understands about puberty about sexuality.
  • 26:11OK, so? Why don't we try it?
  • 26:13We could role play,
  • 26:14why don't you be Hannah?
  • 26:15OK, OK, so Hannah,
  • 26:17I want to talk to you about puberty.
  • 26:19Do you know what that is?
  • 26:22When I get my *****
  • 26:23well, ***** are a part of it.
  • 26:25Puberty is when the body changes
  • 26:26from a kid to adult and it
  • 26:28happens over a number of years.
  • 26:30There are a lot of changes,
  • 26:31some of it is that you get some hair and
  • 26:33some places that you haven't had hair before.
  • 26:35You grow a lot taller and there are changes
  • 26:37to some other parts that are inside of you.
  • 26:39Do you know what parts I'm talking about?
  • 26:41Do you mean my vagina? Yeah well, yes.
  • 26:44The vagina that's part of your
  • 26:46private parts or genitals.
  • 26:48But that's inside.
  • 26:49There's an outside called
  • 26:51the ***** and the *****.
  • 26:52Is connected by the vagina to the uterus,
  • 26:55which is where babies grow
  • 26:57in an adult so Steph.
  • 26:58This is the kind of information
  • 27:01that we recommend including and
  • 27:03in about this detail at this age.
  • 27:05Do you think that you'd be comfortable
  • 27:07talking to Hannah about this?
  • 27:08I can also provide a lot of resources.
  • 27:12But I would like those resources OK.
  • 27:14Anyway, this is nearly this is not
  • 27:18nearly close to what my friends from
  • 27:20our support group have to deal with.
  • 27:22The ones with teenage boys.
  • 27:24They say that there's
  • 27:25literally semen everywhere. Oh,
  • 27:27that's kind of a common problem.
  • 27:29A lot of parents have this issue and you
  • 27:33know I would like you to let them know
  • 27:34they could talk to somebody like me.
  • 27:36And there are a lot of really
  • 27:37great resources online.
  • 27:37I'm also happy to share with you,
  • 27:39but mainly the idea is to talk openly.
  • 27:41And very concretely,
  • 27:43about how to handle ************.
  • 27:44You want to tell the kids where they
  • 27:46can masturbate and where they can.
  • 27:47And as I said, be concrete.
  • 27:50For example,
  • 27:50if you just tell a child they
  • 27:52should masturbate in the bathroom,
  • 27:54that doesn't necessarily say you
  • 27:55don't masturbate in the school or
  • 27:57the mall bathroom and you want
  • 27:59to use very accurate terminology
  • 28:00and provide the child with words
  • 28:02so that they can communicate.
  • 28:03And this is definitely important
  • 28:05for girls too.
  • 28:06But with boys there's another
  • 28:08issue with the mechanics.
  • 28:09Where should they ejaculate?
  • 28:11How do they? Clean up.
  • 28:12And while this might seem like
  • 28:15an uncomfortable topic.
  • 28:16As I said,
  • 28:17there are a lot of resources we
  • 28:18can help guide you through it,
  • 28:20and it's a really important topic
  • 28:21to tackle to make sure that the
  • 28:24children are happy and are safe.
  • 28:25Sounds good, great.
  • 28:29So these are conversations that come up.
  • 28:34All right, So what are some of the resources?
  • 28:37These are two nice books that
  • 28:38you can recommend to families
  • 28:40of kids on the spectrum.
  • 28:41The growing up book for boys
  • 28:43and what's happening to Ellie.
  • 28:44These are gendered books,
  • 28:45so they may not be a good fit for everybody,
  • 28:47but it's you know it's a starting point and
  • 28:50they can tackle most things in puberty.
  • 28:52Menstrual hygiene,
  • 28:53************ for both sides.
  • 28:55And you know they're
  • 28:57they're helpful resources.
  • 28:58This is an example of teaching
  • 29:00materials that can be helpful for
  • 29:01kids you know on the spectrum.
  • 29:03Is with intellectual disability or
  • 29:05other developmental differences.
  • 29:06You know something that seems simple,
  • 29:08like how to use a menstrual
  • 29:09pad might not be that simple.
  • 29:11And in teaching it you might
  • 29:12think you can quickly show it,
  • 29:13but there are visual guides that
  • 29:14exist that you can actually
  • 29:15give the kid a print out.
  • 29:17Let them try,
  • 29:17walk them through it and they can
  • 29:19have a reminder of how to do these
  • 29:20really important things that feel
  • 29:22embarrassing to talk about and to ask
  • 29:23about after the fact.
  • 29:26The Vanderbilt Kennedy Center
  • 29:28has a lot of great materials.
  • 29:30This is one example.
  • 29:31The healthy bodies toolkit.
  • 29:32Again, these are gendered but healthy
  • 29:34bodies for boys and for girls.
  • 29:36Again, going through puberty,
  • 29:38hygiene growing up with a lot of good,
  • 29:42you know, images, social stories,
  • 29:43etcetera in there that parents can use,
  • 29:45and they can print them
  • 29:46for free off the Internet.
  • 29:47They're available in multiple languages.
  • 29:51All right and then most of us who
  • 29:52work with kids on the spectrum
  • 29:54have heard of social stories.
  • 29:55Social stories are a good way to teach,
  • 29:57you know, social skills and ways of relating.
  • 30:00So there are social stories about public
  • 30:02and private behaviors and this is critical.
  • 30:05How are kids going to get in trouble when
  • 30:06they do a private thing in public right?
  • 30:08And so this is an example of one for boys
  • 30:10about ************ or touching their
  • 30:12genitals about where you can do it,
  • 30:13when to do it,
  • 30:15what to do afterwards etcetera.
  • 30:17So again, these resources already exist
  • 30:19and I'm not big into fear mongering.
  • 30:21But fear is part of this and kids on
  • 30:23the spectrum are at higher risk of being
  • 30:26registered as sex offenders because of
  • 30:28a misunderstandings of public versus
  • 30:31private misunderstandings about boundaries.
  • 30:32So the sexual health information
  • 30:34is is really critical.
  • 30:35It's not all about safety,
  • 30:37they deserve pleasure and to
  • 30:39actually have fun, love lives.
  • 30:40But safety is part of this right and
  • 30:43more so than a neurotypical kids.
  • 30:45So again, talk about it.
  • 30:46Talk about it. Talk about it.
  • 30:48We talked about normal sexual
  • 30:51development and adolescence and
  • 30:53*********** so adolescent sexual health
  • 30:55education is preventive medicine.
  • 30:57High quality sex education is associated
  • 30:59with lower rates of pregnancy and STI,
  • 31:02lower risk taking behavior.
  • 31:03It increases the use of protection and
  • 31:05increases sexual pleasure which no
  • 31:07one wants to hear about in teenagers.
  • 31:09But that is another good thing that
  • 31:10comes out of it. So this is important.
  • 31:14This is what we all want to do right always,
  • 31:16especially when **** comes up.
  • 31:17Don't don't even get into *********** right?
  • 31:19Don't be an ostrich.
  • 31:20Don't put your head in the sand there.
  • 31:22There's resources for helping.
  • 31:25OK. And this is a fun one,
  • 31:27and this was with a simulated
  • 31:29participant who was was he the first
  • 31:31underage actor in in the center?
  • 31:34So so Andres got all sorts of rules
  • 31:37adjusted for Connor, who's who's
  • 31:39excellent and who's now in acting school.
  • 31:42Let's see here. Guide for parents.
  • 31:45OK, here we go. Good to see you Bobby.
  • 31:47How's the anxiety?
  • 31:51Doing ohh I'm I mean I've I've been OK,
  • 31:54he's been doing OK but but
  • 31:56I've got a concern, sure.
  • 31:58I found him looking at **** online.
  • 32:01And I looked at the history on
  • 32:03the computer and you know a lot
  • 32:05of a lot of **** sites came up.
  • 32:08I mean, I get it in 16 years
  • 32:10old and wants to see this stuff.
  • 32:12But I mean there were a lot of
  • 32:14sites and and so I'm just not
  • 32:17sure if that behavior is is normal
  • 32:20and and well how I should react.
  • 32:23Come on, Dad,
  • 32:24it's OK. I know this can
  • 32:26be an embarrassing subject,
  • 32:27but poor news is actually
  • 32:28incredibly common in teenagers.
  • 32:30Studies actually show that in the US.
  • 32:32The first viewing of **** is
  • 32:34as young as eight years old. On
  • 32:35that 18 boys. That is young, yeah,
  • 32:38and if you think about it,
  • 32:41it can sound scary,
  • 32:41but you used to have to go to
  • 32:43the store to get a magazine.
  • 32:44And these days, as you know,
  • 32:45kids have access to the Internet
  • 32:46so they can see these things.
  • 32:48Younger and younger.
  • 32:49It doesn't have to be scary
  • 32:50and it actually like to share
  • 32:51some information with you guys.
  • 32:52If that's OK with you,
  • 32:53is that right, Bobby?
  • 32:57Yeah, I'd like to like to hear about.
  • 32:58I mean, I just I.
  • 33:00Because I never really thought that
  • 33:02about Bobby being that age now,
  • 33:04and I certainly didn't realize that you know,
  • 33:07all the boys were looking at **** online.
  • 33:09I mean, when I was that age we just had
  • 33:13my father's Playboys dad come on, it's
  • 33:16it's OK. Poor news is
  • 33:18actually incredibly common.
  • 33:19Many, many people use it,
  • 33:20and there's nothing inherently bad about it.
  • 33:23I want to talk to you about something
  • 33:25called **** literacy, which basically
  • 33:26means what to know and think about.
  • 33:28If you're going to use it the same way,
  • 33:31you wouldn't learn how to drive from
  • 33:32playing Grand Theft Auto, right?
  • 33:34It's completely made up.
  • 33:35**** is the same way,
  • 33:36and so it's important to remember
  • 33:37that **** is not the same as real
  • 33:40relationships or sexual encounters.
  • 33:41Plenty of professionals who work
  • 33:43with people with sexual issues
  • 33:44agree that **** can be a very
  • 33:46healthy part of a normal sex life.
  • 33:47The issue comes up if there's a
  • 33:49blurring of that boundary and you
  • 33:50start to expect real relationships and
  • 33:52real sexual encounters to look like
  • 33:54****. Yeah, I guess that makes sense and
  • 33:58I know it's hard to talk about this stuff.
  • 34:00We don't have to belabor the point,
  • 34:02but I can give you guys some materials
  • 34:04and resources that you can look at
  • 34:05on your own to help educate you.
  • 34:07Yeah, I'd like to see that.
  • 34:09Of course, I have to tell my wife I
  • 34:11am reading it, that's just gross. It's
  • 34:14OK if you don't have any other
  • 34:16questions for now. Why don't Bobby
  • 34:17and I do our usual check in?
  • 34:23OK, all right. So oh The thing is
  • 34:28what corn is like Grand Theft Auto.
  • 34:30So in these videos we tried to give
  • 34:32people good take away lines right?
  • 34:34You're not going to remember every
  • 34:35single thing said in the teaching
  • 34:36videos but **** is like Grand Theft
  • 34:38Auto **** literacy prevents kids
  • 34:40from crashing in real Life OK?
  • 34:42Let me see here.
  • 34:44Yeah, so one example of an
  • 34:46excellent resource is amaze.org.
  • 34:48You can send teenagers there.
  • 34:49You can send families there
  • 34:50you can see all use the mouse.
  • 34:52You know one of the first videos
  • 34:53here is **** is not sex Ed.
  • 34:56So again, adults tend to have the
  • 34:58automatic reaction not wanting to talk
  • 35:00about it where we're not going there,
  • 35:02but **** is everywhere.
  • 35:03So so you might as well.
  • 35:04Do you know, harm reduction?
  • 35:06Not that **** is inherently harmful,
  • 35:07but it can be harmful if kids
  • 35:08don't know what they're looking
  • 35:10at and how to contextualize it.
  • 35:11Similar to to movies.
  • 35:12R rated movie.
  • 35:13You might be able to prepare your
  • 35:14kid as long as you discuss first that
  • 35:16we don't shoot people in real life,
  • 35:17right?
  • 35:18So point is the same way and amazed.org
  • 35:21has resources on all sorts of things
  • 35:23relevant to adolescent sexual development,
  • 35:24including **** use.
  • 35:27OK,
  • 35:27So what about when your psychiatrist
  • 35:29is the problem?
  • 35:30So medication induced sexual side effects.
  • 35:37OK.
  • 35:50Difficult to talk about. That's right,
  • 35:53Bobby's having a moment. Oh
  • 35:55come on, this is going to be
  • 35:56our our technical difficulty.
  • 35:57It was working before.
  • 36:03Fundrise forgive me, I hate
  • 36:06talking about that stuff.
  • 36:06Within there he and my mom were
  • 36:08so worried that I watched ****.
  • 36:10Well it didn't even work.
  • 36:12I can't finish.
  • 36:15Sorry I. I didn't mean to
  • 36:17talk about that stuff.
  • 36:18Bobby, it's good that you brought it up.
  • 36:20Your sexual health is just as important
  • 36:22as the rest of your health and it actually
  • 36:24connects to the rest of your health.
  • 36:26I'm wondering what you mean by you can't
  • 36:28finish when we talk about sexual function.
  • 36:31It can be helpful to think of
  • 36:33it in sort of three categories.
  • 36:34The first category is sort
  • 36:36of like the electrical.
  • 36:38Can you still get aroused when
  • 36:39you look at these images?
  • 36:40Like do you feel desire like you always have?
  • 36:42Yeah, OK, all right. So that's intact.
  • 36:45The next category is the mechanical.
  • 36:47Are you able to get the.
  • 36:48Even sort of erection that
  • 36:49you've always gotten.
  • 36:52And then the last category is the hydraulics,
  • 36:55and there's a lot of different words
  • 36:57you can use. But can you finish?
  • 36:58Can you come?
  • 36:59Can you ejaculate and achieve orgasm?
  • 37:02I think it's mechanics and hydraulics.
  • 37:06Takes a very long time for me
  • 37:08to finish, and sometimes I can
  • 37:09at all. Even with **** it's frustrating. Was
  • 37:13it always this way or is it different
  • 37:15since you started your antidepressant?
  • 37:19Now that you mentioned it,
  • 37:20it did change early this year.
  • 37:22I used to finish very quickly
  • 37:24when I did that, but now it takes
  • 37:29forever and I'm just frustrated.
  • 37:31But it's not like I'll even
  • 37:33get a girlfriend or anything.
  • 37:35I mean, regardless,
  • 37:36this isn't unusual and it's
  • 37:37good that you brought it up.
  • 37:39The medication you're taking can
  • 37:41actually impact sexual function
  • 37:42by making it harder to orgasm.
  • 37:44And if it's bugging you,
  • 37:45there's things we can do to address it.
  • 37:47Yeah, actually I am kind of worried
  • 37:50for if I do get a girlfriend,
  • 37:53so I've totally avoided Molly's
  • 37:55texts because. Aye, I thought
  • 37:58I was crazy.
  • 37:59You're not crazy. Thank you. OK.
  • 38:07All right, So what do you do if our
  • 38:10medications are causing a problem? The
  • 38:12first thing you want to do that a lot
  • 38:14of us don't do is track the symptoms.
  • 38:16So my favorite skill is the CSF Q, the
  • 38:19changes in sexual functioning questionnaire.
  • 38:21It goes in terrible detail into
  • 38:24every single aspect of sexuality
  • 38:25and you can track it over time.
  • 38:28It's very helpful for seeing small
  • 38:30changes for the better or for the worse.
  • 38:32And what do you do with the medication?
  • 38:34So sometimes people don't want
  • 38:36to change the Med at all.
  • 38:38I've run into that more times than
  • 38:40I would expect to, or someone says,
  • 38:41well, you know.
  • 38:42Recipro has changed my life and if
  • 38:44the trade off is that I have no sex
  • 38:46drive I don't care so I've had that
  • 38:48conversation a lot of times but I
  • 38:50always recommend making an adjustment
  • 38:51since if your sex life is suffering,
  • 38:53that's a pretty big quality of life impact.
  • 38:56So adjustments you can make are making
  • 38:58a decrease in the dose of medication.
  • 39:00Go to the next lowest dose,
  • 39:01see if the person still gets
  • 39:03a therapeutic effect,
  • 39:03but there might be less of a
  • 39:05sexual side effect.
  • 39:06You can switch if it's an SSRI,
  • 39:08you can switch to a different SSRI,
  • 39:09and sometimes that resolves the problem.
  • 39:12I've had that.
  • 39:13Happen,
  • 39:13you can either add or switch to Wellbutrin,
  • 39:16which tends to counteract SSRI
  • 39:18induced sexual dysfunction.
  • 39:20A lot of times people don't want
  • 39:21to be on more than one medicine
  • 39:22at the time at a time,
  • 39:23but you can offer it and do a
  • 39:25switch if it's more of a depression
  • 39:27than an anxiety issue.
  • 39:28You can augment with buspar and I
  • 39:30always like to make a shout out.
  • 39:35One second. If you can give women Viagra,
  • 39:39you can give men Viagra.
  • 39:40You can also give women Viagra.
  • 39:42So there's a small but existent literature
  • 39:44on using Viagra in women for SSRI induced
  • 39:47sexual dysfunction and it can work.
  • 39:49I have successfully used it with two of my.
  • 39:53Early 20s patients who had
  • 39:55sexual dysfunction from an SSRI.
  • 39:57The dose is 50 milligrams.
  • 39:58For those who have never prescribed
  • 39:59it because I had to look into this,
  • 40:00there are almost no contraindications
  • 40:03which surprised me.
  • 40:04But I guess half the country takes it.
  • 40:05There's almost no contraindications and
  • 40:07you can prescribe it, and it can work.
  • 40:09And what I told girls or women
  • 40:11rather is that women have just
  • 40:13as much erectile tissue as men,
  • 40:15but most of ours is internal,
  • 40:16so erectile dysfunction is
  • 40:18always used to talk about men.
  • 40:21But in fetuses, it's the same.
  • 40:22Kind of.
  • 40:23Apparatus that turns into you know vagina,
  • 40:26******** ***** versus penis.
  • 40:28We have internal erectile tissue
  • 40:29and we get erectile dysfunction
  • 40:31and so taking a medication that
  • 40:33increases blood flow can help.
  • 40:35It's not as much of a switch As for
  • 40:37men right men can be on or off but for
  • 40:39women it really can actually do the trick.
  • 40:41So I want to you know put that out there.
  • 40:43You psychiatrist can prescribe
  • 40:44Viagra or ask the PCP to do it if
  • 40:48you're not comfortable to help with
  • 40:50SSRI induced sexual dysfunction.
  • 40:52We also talked about adolescents and
  • 40:54sexuality in kids and teens with autism,
  • 40:57so again,
  • 40:57the sexual health needs of kids on
  • 40:59the spectrum should not be discounted.
  • 41:01OK,
  • 41:02they have the same needs as everyone else.
  • 41:03You may need to have an expanded focus
  • 41:06on the social ropes of you know,
  • 41:08romance, dating, sex, etcetera.
  • 41:12You know,
  • 41:12an example might be that if you have
  • 41:14a son who wants to ask a girl or a
  • 41:16boy out and you can tell them you
  • 41:18know you may ask the kid out once.
  • 41:20If they say they're busy or they
  • 41:22say no on another day,
  • 41:23you may ask them out one more time
  • 41:25and if they say they're busy again,
  • 41:27you may not ask them out again.
  • 41:28So kind of really going through
  • 41:30step-by-step what that would look like.
  • 41:32These are really nuanced conversations
  • 41:34and it it may not go well.
  • 41:36And you also want to do again.
  • 41:37I don't like doing the the fear
  • 41:39mongering but more education around
  • 41:40safety because kids on the spectrum
  • 41:42and kids with differences in general
  • 41:43are at higher risk of being victimized,
  • 41:45coerced.
  • 41:45So you want to talk to them in
  • 41:48great detail about how there are
  • 41:49never secrets from parents.
  • 41:51And you know, even if it feels embarrassing,
  • 41:53you know to talk to a trusted
  • 41:55adult if anything is going on.
  • 41:58You also want to make
  • 41:59sure to cover sexual orientation
  • 42:00and gender variance because the
  • 42:02rates of non heterosexuality and of
  • 42:04gender variance in the neurodiverse.
  • 42:06Population are higher than in
  • 42:07the neurotypical population,
  • 42:08so it's even more relevant to
  • 42:11this group of kids. All right,
  • 42:12let's look at one final video.
  • 42:26Having sex and.
  • 42:29One second OK, give it a second.
  • 42:34It has to brace itself for
  • 42:36this conversation. Oh no.
  • 42:44I I could not wait for this appointment.
  • 42:47I know it's been a while, but.
  • 42:48I wanted to get in here to
  • 42:50see you to tell you that
  • 42:53Hanna's having sex and she's only 16.
  • 42:56OK, well, we can definitely talk about this,
  • 42:59so tell me what's going on.
  • 43:01We had your sex Ed talk and we
  • 43:03went over all the recommendations
  • 43:05and we thought that she would.
  • 43:08Wait till marriage or wait till even
  • 43:09later we thought that she understood
  • 43:11everything we talked about. But
  • 43:13obviously she didn't because
  • 43:15now she's having sex and.
  • 43:17I'm just at a loss. I don't.
  • 43:19I don't know what to do.
  • 43:20You sound really upset so tell
  • 43:23me what happened if you would.
  • 43:26Well, she met this boy through
  • 43:27her dungeons and Dragons.
  • 43:28Meet up now we were excited
  • 43:31that she had some normal
  • 43:33friends to hang out with and.
  • 43:36They started
  • 43:37talking and they're obsessed with the
  • 43:39game, so that's all they talked
  • 43:40about. We never thought in
  • 43:42a million years that sex would
  • 43:43be a part of this equation
  • 43:45and. Now she's having sex.
  • 43:49We were happy that she had
  • 43:51a neurotypical friend,
  • 43:52but not if this is the cause.
  • 43:54Look, are you concerned that she's
  • 43:56being pushed to do something
  • 43:58that she doesn't want to do?
  • 44:00No, no, I mean she acts like she's
  • 44:03really proud that she has a boyfriend.
  • 44:06OK? I mean we were having brunch
  • 44:08with friends and she went on and
  • 44:10on about having a boyfriend
  • 44:12and what she's doing with him?
  • 44:13Well what was going on
  • 44:15that she brought this up?
  • 44:16Absolutely nothing, we just asked.
  • 44:18Hey, how's your weekend
  • 44:20dungeons and Dragons going?
  • 44:22And then she went on and on about
  • 44:25having this boyfriend and what
  • 44:26they're doing with each other.
  • 44:27I mean we were floored.
  • 44:29It sounds like it was a
  • 44:30lot to have sprung on you,
  • 44:31especially with your friends there.
  • 44:33Oh
  • 44:33my goodness, a lot is an understatement.
  • 44:36You know, it sounds like you
  • 44:38were understandably upset but
  • 44:40like to throw in that from a
  • 44:41health professional standpoint,
  • 44:43there's at least a couple
  • 44:44positives in there, one at least.
  • 44:46East Hawking to you and Pew.
  • 44:48It sounds like it was consensual,
  • 44:50which we always worry about.
  • 44:51And with an age appropriate partner,
  • 44:53and she's having some pleasure.
  • 44:54But but I totally understand that
  • 44:57your point is broader than that,
  • 44:58and that you're really worried that
  • 45:00she's not sticking with your family
  • 45:01values so we can talk about this,
  • 45:03and I can help you find some ways
  • 45:05to address your concerns with her.
  • 45:07You know, I get
  • 45:08that she's talking to us, and you know,
  • 45:10I get that no one's ****** her.
  • 45:12She's not being raped,
  • 45:13and she may even enjoy it, but
  • 45:15she's just too young to have sex.
  • 45:17Well, as her parents you definitely
  • 45:19have the right to explain that to
  • 45:21her and the right to provide some
  • 45:23rules and some boundaries that might
  • 45:25help decrease her opportunity to
  • 45:27engage in sexual behaviors such as
  • 45:29an open door policy in the home.
  • 45:31But really importantly is talking
  • 45:33to her and explaining it to her and
  • 45:36doing it in a very concrete way.
  • 45:38The way that you addressed sexuality
  • 45:40and puberty, because again using that
  • 45:43concrete mechanism can help when she
  • 45:45doesn't understand some of these nuances.
  • 45:47But also, you know it's really
  • 45:49important to have the conversation
  • 45:50more than once to keep having the
  • 45:53conversation along the way so that
  • 45:55she can incorporate this information
  • 45:57and really use it to help inform
  • 45:59some of her own value system as she
  • 46:01grows and becomes more of an adult
  • 46:04as she goes through adolescence and
  • 46:06creates her own value system as
  • 46:08adolescence ultimately need to do.
  • 46:10That makes sense, yeah,
  • 46:12this also brings up though.
  • 46:13The knee to remind Hannah of the
  • 46:16difference between public information.
  • 46:17And private information doing so
  • 46:20can help avoid things like this
  • 46:23embarrassment that you felt,
  • 46:24but it also very importantly can
  • 46:26help keep her safe.
  • 46:28Yeah, I definitely want don't want
  • 46:30anything like this to happen again,
  • 46:32and I don't want her to feel
  • 46:34ostracized or even worse because of
  • 46:36it. Yeah, and The thing is though,
  • 46:39that as much as you talk to her
  • 46:41even while you're reinforcing the
  • 46:43family values and wanting her to wait
  • 46:45and helping support that behavior,
  • 46:48it's still going to be very important
  • 46:50to continue to talk to Hannah
  • 46:52about healthy sexual development,
  • 46:54because ultimately,
  • 46:54if she is going to have sex again soon, or.
  • 46:58Hopefully wait as you would like her to do.
  • 47:02She will have hopefully a healthy sex
  • 47:04life and you can help determine that that
  • 47:07will be a happy and healthy sex life.
  • 47:10Of like well,
  • 47:12you know you mentioned you went over
  • 47:13the resources on puberty and sexuality
  • 47:15with her and would help to do so again.
  • 47:18Is there anything else I should be adding?
  • 47:20Absolutely I really recommend
  • 47:22that with Hannah.
  • 47:23You cover some of the social topics
  • 47:25such as dating and rejection and the
  • 47:27rituals around social interaction
  • 47:28with him and with having some of the
  • 47:31trouble picking up on the nuances
  • 47:33it can be really helpful to support
  • 47:35her in this so you know when you
  • 47:38help then she could have potential
  • 47:40to navigate those waters.
  • 47:42You also want to make sure that
  • 47:43you're covering the positives for
  • 47:45right to pleasure and her right
  • 47:46to feel cherished and an intimate
  • 47:48relationship as well as some of the
  • 47:50negatives you want to make sure
  • 47:52she understands what consent is,
  • 47:53what it looks like to be a victim,
  • 47:55and where she could go,
  • 47:56or whom she could talk to if
  • 47:58she feels unsafe.
  • 47:59And then as well,
  • 48:00you want to talk to her
  • 48:01about safer sex measures.
  • 48:03This is what we call measures such as
  • 48:06contraceptive and barrier methods,
  • 48:08because no sex is absolutely safe.
  • 48:10But with these safer X measures,
  • 48:12she could reduce her risk for
  • 48:14unwanted pregnancy and for
  • 48:16sexually transmitted infections.
  • 48:18So these are the topics that we
  • 48:19suggest that you touch base on and I'm
  • 48:21happy to go over it with you and to
  • 48:23provide you with a bunch of resources.
  • 48:25I'd love the resources.
  • 48:27This is so
  • 48:27much information it's
  • 48:28making my head spin well,
  • 48:30it can definitely feel
  • 48:31like a challenging topic and a
  • 48:33lot of parents feel this way,
  • 48:35but potentially a helpful reframe
  • 48:36is that this when you break it
  • 48:38down is no more difficult than
  • 48:40all of the other really difficult.
  • 48:42Topics that you're already handling
  • 48:44really successfully with Hannah.
  • 48:46OK, well thank
  • 48:47you of course.
  • 48:52OK. So one resource that I
  • 48:56want you to know about aside
  • 48:58from these videos that we made is a
  • 49:01resource called sex Ed for self advocates
  • 49:03by an autism organization online.
  • 49:06They have videos on everything
  • 49:09relevant to dating, intimacy,
  • 49:11etcetera made by people on the
  • 49:13spectrum for people on the spectrum.
  • 49:15It's wonderful and I want
  • 49:16to leave time for questions,
  • 49:17so I'm not going to show one of those videos,
  • 49:19but sex Ed for self advocates is the name,
  • 49:22and that's for older adolescents and
  • 49:23their parents to take a look at.
  • 49:25And they have wonderful videos.
  • 49:26So with this product product project,
  • 49:30we created a paper.
  • 49:32We did a study and we found that two weeks
  • 49:35after the session in the 125 learners,
  • 49:38there were statistically significant
  • 49:39improvements in skills and knowledge
  • 49:41as well as positive attitudes
  • 49:43towards talking to kids and families
  • 49:45about sex and sexual health.
  • 49:47We also found that using the multi
  • 49:49site synchronous videos for teaching
  • 49:51increased knowledge across programs and
  • 49:53across providers and also increased.
  • 49:55Equity,
  • 49:55it's it's not fair or not right that
  • 49:57if there's a couple of experts in one
  • 49:59spot that you know 10 providers know
  • 50:01something that the rest don't know,
  • 50:03so doing these sort of synchronous
  • 50:05video conferencing events can be a
  • 50:07good way to disseminate the more niche
  • 50:09areas of knowledge to a lot of people.
  • 50:13Again, don't reinvent the wheel.
  • 50:14There's lots of resources for these topics,
  • 50:16so don't be scared.
  • 50:17You can look them up.
  • 50:18You can ask me this didactic is available,
  • 50:20including all the resources in it.
  • 50:22It's available publicly.
  • 50:24And you can use it and thank you.
  • 50:26This is my family,
  • 50:28my husband,
  • 50:28my son,
  • 50:29my daughter and thanks to Andres and
  • 50:30Dorothy and Elizabeth Jordan thanks.
  • 50:40No sex was involved in the
  • 50:41making of those children.
  • 50:45Thank you.
  • 50:47Thank you Linda questions please and Kyle,
  • 50:51would you mind just changing
  • 50:52the view so that we can see?
  • 50:55Yes, I see Doctor Cardones hand raised
  • 50:57there. So Doctor Cardone go ahead.
  • 51:01Sure, are there opportunities for your
  • 51:04participants to have booster sessions
  • 51:06so that they can keep learning?
  • 51:08I I did a qualitative study on when he won,
  • 51:11introducing CBT to all our glorious
  • 51:14staff and I learned quickly that one
  • 51:17time is not enough in terms of didactic,
  • 51:19particularly in sensitive new
  • 51:21areas of learning.
  • 51:22And so I'm wondering if if you have
  • 51:24thought about the one year booster
  • 51:26session or write to me Doctor
  • 51:27Drozdowicz about your dilemma,
  • 51:29because I think adult learners
  • 51:30need that opportunity.
  • 51:32For continuous reflection on new content.
  • 51:36Absolutely. And can I answer into this thing?
  • 51:39OK, all right? I have not thought
  • 51:41about that until right now,
  • 51:43so I think that's a good idea.
  • 51:44And people can certainly contact me,
  • 51:46but I think the idea of a
  • 51:47booster session is good,
  • 51:48or maybe even sending out the videos again at
  • 51:51certain intervals as a reminder to refresh.
  • 51:53But yeah, it is specialized material,
  • 51:55so that's that's a good thought,
  • 51:56and we shouldn't.
  • 51:57We should think of it.
  • 51:59Next question
  • 52:01question again comes from Sarah Kowalski,
  • 52:03who is her wonderful nurse and when he won.
  • 52:06Hi Doctor Dee, thanks for being here.
  • 52:10Would love to bring this to our staff.
  • 52:12I'm sure Carol can shake
  • 52:13her head too. This would
  • 52:14be a great little
  • 52:17session for our staff to see
  • 52:18you and here we often do get
  • 52:21children on the unit that we hear,
  • 52:23you know have come in with acting out
  • 52:26sexually and there's kind of that
  • 52:28like let's put them in a single room.
  • 52:30Let's put them at a single
  • 52:31table and they can't.
  • 52:32So this would be a really great session
  • 52:34for us to have to just feel more
  • 52:37normal about understanding children.
  • 52:39My question.
  • 52:40Now it is for women when you
  • 52:43prescribed Viagra to women
  • 52:45is it covered by insurance?
  • 52:47So great question.
  • 52:48I didn't hear that it wasn't and for
  • 52:50any medication if there's an issue
  • 52:52with coverage, I always recommend
  • 52:54referring people to Good RX,
  • 52:56which which often you can buy things
  • 52:58without insurance over the counter
  • 52:59somewhere with a coupon for almost no money.
  • 53:02So I didn't hear of any issues
  • 53:03with the coverage and if there was
  • 53:05an issue I might call the company
  • 53:07and show them that paper and say.
  • 53:09This is needed, you know.
  • 53:13Well, someone in addition to your mom
  • 53:15who's very proud of you and I know
  • 53:16your mom and I know she's very proud
  • 53:18of you even though she has Linda.
  • 53:20What are you thinking about today?
  • 53:22Is your training director Dorothy.
  • 53:26So I. I think of myself as you're sort
  • 53:31of other mom and you make us all proud,
  • 53:36but this is really a terrific project.
  • 53:39I'm so glad you did it and I
  • 53:41am now starting to think of
  • 53:44next. What next? Because
  • 53:48I think as we said, seeing it once,
  • 53:51you actually have to practice and
  • 53:55like any exposure therapy.
  • 53:57So this has been just.
  • 54:01Absolutely terrific. And I
  • 54:03think I look forward to all
  • 54:04of us being able to, you know,
  • 54:07talk more openly about this issue.
  • 54:09One question I have talking about kids,
  • 54:14sexuality, religion, any of those things
  • 54:18have gotten to be sort of political.
  • 54:21How do you have thoughts about how to
  • 54:24sort of navigate some of those issues?
  • 54:28Because we were doctors,
  • 54:29we want to make sure that you know
  • 54:32we're giving information, but.
  • 54:35It's gotten really
  • 54:37sort of difficult at this point.
  • 54:38Do you have thoughts about that?
  • 54:40I do, it's gotten difficult.
  • 54:43You know, I always recommend addressing
  • 54:45these issues in the same way that
  • 54:47we do other sensitive topics,
  • 54:49which is especially the younger the child
  • 54:51is in front of the parent to the parent.
  • 54:54So instead of turning to
  • 54:55Johnny or Susie and saying,
  • 54:56you know how's your sex life going,
  • 54:58you can turn to the parent and say, you know,
  • 55:00we always talk about puberty at this age,
  • 55:02and the things that are coming up,
  • 55:03are you aware of?
  • 55:04Two sources let me tell you so.
  • 55:06If the parent says you know
  • 55:07we don't talk about that.
  • 55:08Whatever you can say, well, you know we
  • 55:10can talk about the health parts of it.
  • 55:11How about that?
  • 55:12You know I'm not promoting dating?
  • 55:14If that's not, you know,
  • 55:15something that you're OK with,
  • 55:16but we should still talk about the
  • 55:18physical changes and how to you know,
  • 55:20respond to other people and safety.
  • 55:21And, you know,
  • 55:22usually most parents are trying
  • 55:24to care about their kids.
  • 55:26And if you can kind of appeal to them,
  • 55:27even from a safety perspective,
  • 55:29to say we have to talk about this.
  • 55:30I think **** is the most universal
  • 55:33like head exploder for parents.
  • 55:34No matter how progressive,
  • 55:35no one wants to talk about **** but every
  • 55:37kid almost has seen it by the time it took.
  • 55:40And so I say like you,
  • 55:42I know,
  • 55:42I know, I know.
  • 55:43But the same way that we talk about
  • 55:45drinking and drugs and everything
  • 55:46else we need to talk about this,
  • 55:48because throwing your head in the
  • 55:49sand is not going to help and it
  • 55:51would be a shame if **** was your
  • 55:53child sex education and that that is,
  • 55:55I think,
  • 55:55a nice tactic with parents to say
  • 55:57that's what's going to happen
  • 55:59if we don't talk about this.
  • 56:01But you have to navigate.
  • 56:02And if they say no then you can
  • 56:03back away slowly, you know.
  • 56:04You can only
  • 56:05do what you can do
  • 56:06that that's wonderful. Thank you.
  • 56:07The next question comes from France and
  • 56:09Brazil, where I hear there is no sex.
  • 56:14Thank you, Andres.
  • 56:16I so you mentioned that you
  • 56:18have a several documents and and
  • 56:20video together on our website.
  • 56:21So I wonder would it be possible?
  • 56:24Have you thought about like having a
  • 56:27this kind of website accessible on
  • 56:28the kind of high level platform where
  • 56:31pediatricians can access it primary
  • 56:33care providers? Because I feel that
  • 56:35there are a lot of different content
  • 56:37different videos like autism for.
  • 56:42Sexual health in general,
  • 56:43but there is nothing
  • 56:45together where where a nurse could
  • 56:47log on and and look what what what
  • 56:50you wants to to see you know,
  • 56:52right? That's a good idea.
  • 56:54I feel like this.
  • 56:55They probably are a little bit hard to find.
  • 56:57It almost makes me think of access mental
  • 56:58health as potentially a good starting point.
  • 57:00I don't know if they have resources,
  • 57:02but I think that's a great idea to more
  • 57:04widely disseminate this sort of info,
  • 57:06and I would love if there were repositories
  • 57:08for teaching videos like this.
  • 57:09Just in general that medical school,
  • 57:11school, medical schools,
  • 57:13medical schools and residencies,
  • 57:15and other training programs I know
  • 57:18could easily access to teach, right?
  • 57:20Because not everybody has a bunch of people
  • 57:22you know who can talk on these topics.
  • 57:24And it's no.
  • 57:25It's not good to reinvent the wheel,
  • 57:26because it probably won't be as good
  • 57:27as as something thoughtfully done.
  • 57:29So I would love if there was a
  • 57:31better you know hub for these
  • 57:32sorts of specialized materials.
  • 57:35I see Adam and Bridget and Rob
  • 57:38Lebrillo and I wasn't sure if
  • 57:40Adam raising his bottle was.
  • 57:42I want to speak or Bridget or Rob,
  • 57:44but is that a yes Adam or Rob?
  • 57:48Any questions from there.
  • 57:51This is when we engage our zoom
  • 57:53friends hello zoom friends
  • 57:54rob Librillo go ahead. Sure
  • 57:57Linda. Thank you for this
  • 57:58awesome presentation. Always
  • 58:00good to see you doctor
  • 58:02should be raised an interesting
  • 58:03question about sexuality and
  • 58:04then also religion being tough topics.
  • 58:07How do you deal with
  • 58:08them when they merge together when like?
  • 58:12A parents belief system is really
  • 58:16opposed to even ***********.
  • 58:20And they and they and pushing
  • 58:21that on to the kid.
  • 58:24So again, I just tackle it
  • 58:25from a safety perspective,
  • 58:27the same way you know I'm not
  • 58:29pushing weed on your kid by talking
  • 58:31to them about weed and safety and
  • 58:33talking to them about alcohol.
  • 58:34I say it's the same thing I try to
  • 58:36advise the parents that you know.
  • 58:37I also don't want their child to
  • 58:39look at *********** if that's
  • 58:41not in their belief system,
  • 58:42but there's a high likelihood that they
  • 58:44will be exposed to it at some point.
  • 58:46I won't say no.
  • 58:47Your kids going to look,
  • 58:47but they're horrible friends.
  • 58:49They're indecent friends are going to
  • 58:50show it to them, and you know, it's that.
  • 58:53It's important to know.
  • 58:54And that even if you think
  • 58:56something is for adults,
  • 58:57we still teach children about you.
  • 58:59Know allowances and budgets and money,
  • 59:03even though they don't run their own
  • 59:04money until they're over 18, right?
  • 59:06But you can prepare children to be
  • 59:08ready for adult behaviors early on,
  • 59:10so that it's not a surprise.
  • 59:11And when the time comes they
  • 59:13are ready and not afraid.
  • 59:14And in sex therapy,
  • 59:15one of the most common situations
  • 59:17we see is people raised in very,
  • 59:18very religious households where
  • 59:20sex was demonized and then they
  • 59:21get married and all of a sudden
  • 59:23they're supposed to have lots
  • 59:24and lots of sex and procreate.
  • 59:25And they can't do it,
  • 59:27and so it is better to get the conversations
  • 59:29going and have it be less pressurized.
  • 59:32But again,
  • 59:32in the end it's the parents choice.
  • 59:34It's their child.
  • 59:34You don't want to,
  • 59:35you know,
  • 59:36make a a divide there so we feel
  • 59:38it out as we do with everything
  • 59:40in psychiatry and try to
  • 59:41maintain the relationship above
  • 59:43all else and then safety.
  • 59:46Thank you, thank you Linda.
  • 59:47We have one more question.
  • 59:49We're getting a Direct Line
  • 59:51from our embassy. Go ahead.
  • 59:54Well, so thank you for a great presentation.
  • 59:57It wasn't really a question,
  • 59:58it was just me saying hello but.
  • 01:00:04Great topic and lots of
  • 01:00:06things. We're working with
  • 01:00:08children on the spectrum and
  • 01:00:10adolescence on the spectrum,
  • 01:00:11and this is such a void in
  • 01:00:13education and strategies for kids,
  • 01:00:16and in fact like a few months back we
  • 01:00:18will looking for a good educational
  • 01:00:20program and as always a great things
  • 01:00:22come out of the Child Study Center so
  • 01:00:24we didn't need to go look too far away.
  • 01:00:27Linda, thank you.
  • 01:00:28This is really wonderful
  • 01:00:30intervention that we will
  • 01:00:31use a lot with with our.
  • 01:00:33He is on the spectrum in
  • 01:00:34particular. Thank you,
  • 01:00:36thank you and and again, Linda.
  • 01:00:38Thank you for making everything available.
  • 01:00:40We're very proud of you.
  • 01:00:41We love you dearly.
  • 01:00:42I know that Linda Mace is watching over.
  • 01:00:44Linda has been very key in having
  • 01:00:46you be still the part of the
  • 01:00:48Child Study Center which you are.
  • 01:00:50So please for Linda.
  • 01:00:58Yep.
  • 01:01:00Thanks for coming guys.