vascular_malformations_treatment

Transcript

• 00:09The vascular system moves blood
• 00:12and it moves fluid all
• 00:13throughout your body for different
• 00:15purposes.
• 00:17So blood uses arteries to
• 00:18leave the heart,
• 00:20go out to all your
• 00:20organs, your brain, your liver,
• 00:22your toes, everywhere
• 00:23to provide nutritious blood so
• 00:25that you can keep working.
• 00:27And then the veins bring
• 00:28the blood back to the
• 00:30heart and then they pump
• 00:31it to the lungs to
• 00:32get more nutrients.
• 00:34There's another vascular system that
• 00:36a lot of people don't
• 00:37know is out there, which
• 00:37is the lymphatic system,
• 00:39which bathes the entire body
• 00:42with a fluid that helps
• 00:43keep you healthy.
• 00:45When blood vessels become disorganized
• 00:48or dysfunctional, they can become
• 00:50clustered
• 00:51and they can create a
• 00:52lump in the body.
• 00:54And when blood doesn't move
• 00:56normally,
• 00:57it can get caught up
• 00:58in these clusters and cause
• 00:59clots, and that can be
• 01:01very painful, and it can
• 01:02cause a lump on the
• 01:03body which can be disfiguring.
• 01:06Vascular anomalies
• 01:07incorporates two separate types of
• 01:10conditions.
• 01:10There are hemangiomas
• 01:12on one side, which are
• 01:13benign tumors of the blood
• 01:14vessels, and then there are
• 01:16vascular malformations,
• 01:17which can occur in arteries,
• 01:19veins, lymphatic channels, or a
• 01:22combination.
• 01:31So I have this wonderful
• 01:33patient, Bella. She's a teenager
• 01:35and she noticed her arm
• 01:36was starting to hurt her
• 01:37a lot and the pain
• 01:38just kept getting worse and
• 01:40worse.
• 01:42So the pain, I guess,
• 01:43like, on a scale of
• 01:44one to ten, sometimes it
• 01:46would get to, like, a
• 01:46ten because I would sleep
• 01:47on it a lot, and
• 01:48I would just wake up
• 01:50in, like, the middle of
• 01:50the night or, like, right
• 01:51before I'd go to school.
• 01:52I would, like it would
• 01:54hurt me a lot.
• 01:55Knowing that something was wrong,
• 01:57not understanding
• 01:58what it was, we'd been
• 02:00given feedback that it could
• 02:02be any of a host
• 02:02of things. And
• 02:05in some of those conversations,
• 02:07it was worst case scenario.
• 02:12These things are misdiagnosed
• 02:15so often.
• 02:16They're very rare, in fact.
• 02:18It makes you very special,
• 02:20but they are very rare.
• 02:21So oftentimes,
• 02:23kids go through appointments with
• 02:25multiple different kinds of doctors
• 02:27before they actually get to
• 02:29where they need to be.
• 02:30I'll never forget when we
• 02:31came to see you,
• 02:33your message was,
• 02:35yes, this is unusual,
• 02:36but we are expert at
• 02:37dealing with it, which was
• 02:39a really special kind of
• 02:41feeling together.
• 02:44So the vascular anomalies committee
• 02:46meets once a month where
• 02:47we all get together and
• 02:49talk about new or existing
• 02:50patients that need ongoing multidisciplinary
• 02:53care. And we have specialists
• 02:54for every single part of
• 02:56the body
• 02:57that will help with treating
• 02:59these malformations.
• 03:00And we talk about each
• 03:02patient individually and come up
• 03:03with a specialized care plan.
• 03:05We diagnosed it immediately as
• 03:06a venous malformation
• 03:08and we got her enrolled
• 03:09to go through treatment.
• 03:19There are many different ways
• 03:20that we can treat the
• 03:22malformations that the child has.
• 03:24So that can range from
• 03:26medical treatment with the pill,
• 03:28then we can do what's
• 03:29called sclerotherapy.
• 03:31Sclerotherapy means you inject a
• 03:34medication into the malformation,
• 03:37and that intentionally
• 03:38will
• 03:39essentially cause a localized
• 03:42chemical burn to the lesion.
• 03:45So going into the procedure,
• 03:47my expectation
• 03:48was that it would take
• 03:49a lot longer than it
• 03:51did. But, like, coming here,
• 03:53it was really easy and
• 03:54it was super quick and
• 03:55everyone told me what was
• 03:57gonna happen.
• 03:58We injected a medication to
• 04:00do the sclerotherapy.
• 04:01And then with one treatment,
• 04:03within a couple weeks later,
• 04:04she was fully recovered. She
• 04:06was able to to do
• 04:07everything that she wanted to
• 04:08do after one treatment.
• 04:11Yeah. I remember being
• 04:14very surprised in a good
• 04:16way
• 04:17and almost relieved at how
• 04:18fast it all went. And
• 04:20seeing your expression when you
• 04:21came out and how excited
• 04:23you were with how it
• 04:24went
• 04:25was huge. A big sigh
• 04:27of relief. That sense was
• 04:29with us the entire process
• 04:30all the way through.
• 04:32You can have a huge
• 04:33impact when you can help
• 04:34a child.
• 04:35Here at Yale, we have
• 04:37all the tools that we
• 04:38need in order to treat
• 04:40our most precious little patients.