Sophia De Oliveira
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Biography
Sophia is a research assistant at the PACE Lab. Her responsibilities include participant recruitment and data collection. Her research interests lie in the intersection between policy and healthcare, with a particular interest in the development of policy and healthcare services to ameliorate healthcare disparities and encourage culturally competent care. She is currently a freshman at Yale College. In her free time, she enjoy recreating recipes from shows on the Food Network and spending time with her family and their three dogs, two chameleons, and goldfish!
Last Updated on September 28, 2024.
Research
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Research at a Glance
Yale Co-Authors
Frequent collaborators of Sophia De Oliveira's published research.
Meghan Lindsay, MPH
Prasanna Ananth, MD, MPH
Publications
2025
The Pediatric Cancer Care Experience (PACE) Questionnaire: Development and Validation of a Novel Instrument
Kocinsky S, Lindsay M, De Oliveira S, Ananth P. The Pediatric Cancer Care Experience (PACE) Questionnaire: Development and Validation of a Novel Instrument. Journal Of Pain And Symptom Management 2025, 71: e173-e182. PMID: 41232624, PMCID: PMC12743596, DOI: 10.1016/j.jpainsymman.2025.10.034.Peer-Reviewed Original ResearchThis study describes the development and validation of the Pediatric Cancer Care Experience (PACE) questionnaire, showing it effectively assesses care quality and experience for children with advanced cancer."A Double-Edged Sword": Influence of the 21st Century Cures Act on the Childhood, Adolescent, and Young Adult Cancer Care Experience.
Lindsay M, Clappier M, de Oliveira S, Gleeson D, Feifer D, O'Bryan S, Kessler A, Mali N, Crabtree V, Dean S, Campbell P, Snaman J, Kaye E, Ananth P. "A Double-Edged Sword": Influence of the 21st Century Cures Act on the Childhood, Adolescent, and Young Adult Cancer Care Experience. Journal Of The National Comprehensive Cancer Network 2025, 23 PMID: 40953607, DOI: 10.6004/jnccn.2025.7053.Peer-Reviewed Original ResearchThis study investigates the impact of the 21st Century Cures Act on young cancer patients' care, showing increased patient agency but heightened anxiety, suggesting policy reforms for improved outcomes.
2024
Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer
Lindsay M, de Oliveira S, Sciacca K, Lindvall C, Ananth P. Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer. JCO Clinical Cancer Informatics 2024, 8: e2400134. PMID: 39265122, PMCID: PMC11407740, DOI: 10.1200/cci.24.00134.Peer-Reviewed Original ResearchCitationsAltmetricMeSH Keywords and ConceptsConceptsEnd-of-life carePalliative care consultationGoals of careLocation of deathProportion of decedentsDocumented discussionCare consultationEvidence-based quality measuresMeasure quality of careGold standard manual chart reviewQuality measuresQuality of careEnd of lifeContent of clinical notesLife-sustaining treatmentEnd-of-lifeManual chart reviewCancer decedentsEfficient quality measureCohort of childrenAssess qualityMulti-center researchQuality improvementMeasure qualityCare
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