2024
Perspectives of Patients With Relapsed and Refractory Acute Myeloid Leukemia and High-Risk Myelodysplastic Syndrome on Patient–Clinician Communication About Prognosis and the Future
Rao V, Linsky S, Knobf M. Perspectives of Patients With Relapsed and Refractory Acute Myeloid Leukemia and High-Risk Myelodysplastic Syndrome on Patient–Clinician Communication About Prognosis and the Future. Palliative Medicine Reports 2024, 5: 53-62. PMID: 38249836, PMCID: PMC10797310, DOI: 10.1089/pmr.2023.0064.Peer-Reviewed Original ResearchPatient-clinician communicationHigh-risk myelodysplastic syndromeAcute myeloid leukemiaPerspectives of patientsMyelodysplastic syndromeU.S. cancer centersSemi-structured interviewsFog of uncertaintyMaintaining normalityDisease trajectoryMyeloid leukemiaPrognostic uncertaintyThematic analysisQualitative studyParticipants' perspectivesR/R acute myeloid leukemiaRefractory acute myeloid leukemiaCancer CenterLived experienceDay-to-day lived experiencesParticipantsHigh riskInterviewsHealthCommunication strategies
2011
Understanding the cancer pain experience in American Indians of the Northern Plains
Haozous EA, Knobf MT, Brant JM. Understanding the cancer pain experience in American Indians of the Northern Plains. Psycho-Oncology 2011, 20: 404-410. PMID: 20878836, DOI: 10.1002/pon.1741.Peer-Reviewed Original ResearchConceptsCancer painDistrust of outsidersBrief Pain Inventory-Short FormAmerican IndiansSemi-structured interviewsAverage pain scoreDescription of painTime of interviewCancer pain experienceDominant themesNeuropathic painPain scoresModerate painCultural groupsPain managementEnjoyment of lifePain interventionsAI patientsHematologic malignanciesPsychosocial distressPainPain experienceQualitative descriptive studyFeelings of guiltDescriptive study