2023
SMS-text messaging for collecting outcome measures after acute stroke
DiCarlo J, Erler K, Petrilli M, Emerson K, Gochyyev P, Schwamm L, Lin D. SMS-text messaging for collecting outcome measures after acute stroke. Frontiers In Digital Health 2023, 5: 1043806. PMID: 36910572, PMCID: PMC9996089, DOI: 10.3389/fdgth.2023.1043806.Peer-Reviewed Original ResearchModified Rankin ScaleAcute strokeOutcomes Measurement Information System (PROMIS) Global-10Acute stroke treatmentText messaging programsNIH Stroke ScaleOutcome data collectionHospitalization dischargeSMS text messagingHospital stayStroke ScaleMRS scoreRankin ScaleStroke treatmentFunctional outcomePROM scoresOutcome measuresWeighted Cohen's kappaPatientsSignificant associationStrokeTraditional followSMS textOutcomesParticipant satisfaction
2020
Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
De Marchi F, Berry J, Chan J, Caldwell S, Ellrodt A, Scalia J, Burke K, Fang T, Clark Sisodia R, Schwamm L, Moura L, Paganoni S. Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis. Journal Of Neurology 2020, 267: 1754-1759. PMID: 32125520, DOI: 10.1007/s00415-020-09774-8.Peer-Reviewed Original ResearchConceptsOutcome measuresClinical careALS Functional RatingMental health subscoresALSFRS-R scoreOutpatient clinic visitsOutcomes Measurement Information SystemClinical outcome measuresRoutine clinical careMental health scoresAmyotrophic lateral sclerosisMeasurement Information SystemQuality of lifeTablet-based surveyALS careALS clinicClinic visitsPROM scoresFunctional ratingClinic staffHealth scoresLateral sclerosisPROM collectionPatientsPhysical health