2021
A scoping review of person and family engagement in the context of multiple chronic conditions
Vick J, Wolff J. A scoping review of person and family engagement in the context of multiple chronic conditions. Health Services Research 2021, 56: 990-1005. PMID: 34363217, PMCID: PMC8515220, DOI: 10.1111/1475-6773.13857.Peer-Reviewed Original ResearchConceptsMultiple chronic conditionsConceptual model of engagementFamily engagementModel of engagementElements of self-managementChanges to care deliveryReview of reviewsBarriers to engagementInvolvement of familiesArticles meeting criteriaIndividual-level strategiesCare deliveryEngagement interventionsChronic conditionsSelf-managementFull-text considerationVulnerable populationsMeeting criteriaReview typesAreas of emphasisReview definitionsPersonsEngagementFamilyDecision making
2018
Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life?
Vick J, Ornstein K, Szanton S, Dy S, Wolff J. Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life? Journal Of Pain And Symptom Management 2018, 57: 199-208.e2. PMID: 30453054, PMCID: PMC6348024, DOI: 10.1016/j.jpainsymman.2018.11.004.Peer-Reviewed Original ResearchConceptsEnd of lifeDementia caregiversOlder adultsNondementia caregiversCaregivers of older adultsCommunity-living older adultsEnd-of-life statusHigher caregiver strainOlder adult deathsPrevalence of dementiaProportion of caregiversCare of personsMedicare enrollment filesEnd-of-lifeNationally representative sampleMultivariate logistic regressionFamily caregiversCaregiving strainCaregiver strainCaregiver factorsProviding careSelf-careEnrollment filesPrimary caregiversCaregivers