2023
Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations.
Katz N, Alpert A, Aristizabal M, McDaniels-Davidson C, Sacks B, Sanft T, Chou C, Martinez M. Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations. American Society Of Clinical Oncology Educational Book 2023, 43: e397264. PMID: 37200592, DOI: 10.1200/edbk_397264.Peer-Reviewed Original ResearchConceptsPediatric populationOncology careFamily-centered careQuality of carePatient populationCancer careCancer morbidityOncology cliniciansClinical trialsEffective patientPatientsCare provisionCancer diagnosisCareHealth careCaregiversCertain populationsUnequal burdenResearch participationCliniciansInequitable accessIndividual needsPopulationMorbidityMortalityThe Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content.
Freedman-Cass D, Fischer T, Alpert A, Obedin-Maliver J, Kunz P, Koh W, Carlson R. The Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content. Journal Of The National Comprehensive Cancer Network 2023, 21: 434-441. PMID: 37156485, DOI: 10.6004/jnccn.2023.7025.Peer-Reviewed Original ResearchConceptsCancer careEquitable cancer careEffective cancer careNCCN Clinical Practice GuidelinesClinical practice guidelinesOptimal oncology careRepresentation of diverse populationsCancer informationOncology careAnti-fat biasPractice guidelinesCareDiverse populationsNCCN GuidelinesGoals of equityNCCNHigh-qualityGuidelinesInclusionSexual orientationInclusive languagePatientsNonstigmatizingIndividualsProfessional content
2021
Trainings needs of allied health professionals caring for sexual and gender minority adolescents and young adults with cancer: A qualitative analysis.
Alpert A, Gampa V, Vadaparampil S, Quinn G. Trainings needs of allied health professionals caring for sexual and gender minority adolescents and young adults with cancer: A qualitative analysis. Journal Of Clinical Oncology 2021, 39: e18532-e18532. DOI: 10.1200/jco.2021.39.15_suppl.e18532.Peer-Reviewed Original ResearchAllied health professionalsHealth professionalsOpen-ended questionsAYA cancer careQuality of careInterpretive description methodologyReproductive health needsYoung adultsReproductive health counselingDecrease stigmaCancer careThematic saturationQualitative survey responsesHealth needsEducational interventionPatient interactionsHealth counselingDescriptive methodologyInterrater reliabilityElectronic surveyQualitative itemsRelevant educationTraining needsCareSurvey responsesI’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer
Alpert A, Gampa V, Lytle M, Manzano C, Ruddick R, Poteat T, Quinn G, Kamen C. I’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer. Patient Education And Counseling 2021, 104: 2552-2558. PMID: 33745786, PMCID: PMC9320277, DOI: 10.1016/j.pec.2021.03.007.Peer-Reviewed Original ResearchConceptsOncology careGroup interviewsTransgender peopleInterpretive description approachAnalyzed verbatim transcriptsExperiences of transgender peopleCancer careAssess barriersCare accessVerbatim transcriptsCancer objectivesDecrease barriersPeer debriefingMember checkingPatient autonomyImpact transgender peopleGender expectationsCareOncology spaceTreating peopleDescriptive approachPhysiciansThemesCliniciansInterviews
2020
Responding to narrowing discrimination protections: Can hospital policies protect transgender and gender diverse patients with cancer?
Alpert A, Tarras E, Sampson A, Strawderman M, Sutter M, Quinn G. Responding to narrowing discrimination protections: Can hospital policies protect transgender and gender diverse patients with cancer? Journal Of Clinical Oncology 2020, 38: e14126-e14126. DOI: 10.1200/jco.2020.38.15_suppl.e14126.Peer-Reviewed Original ResearchNCI-designated cancer centersBill of RightsNon-discrimination policiesCancer careCancer CenterNational Cancer Institute (NCI)-designated cancer centersPatient billingU.S. Department of Health and Human ServicesDepartment of Health and Human ServicesGender identityHealth and Human ServicesFederal protectionPatient's Bill of RightsLocal policy changesNCI-designatedFederal financial assistanceGender diverse patientsHealth programsHospital policiesDiverse patientsTGD individualsDiscrimination protectionsLegal documentsPatient ProtectionPaired outcomes