2020
P12 Effect of liver disease, neurological disease and mental health issues on quality of life in patients with wilson disease
Camarata M, Ala A, Maciejewski K, To U, Zimbrean P, Rubman S, Coskun A, Patel A, Wadhwa A, Apdik T, Tomlin R, Deng Y, Gonzalez-Peralta R, Schilsky M. P12 Effect of liver disease, neurological disease and mental health issues on quality of life in patients with wilson disease. Gut 2020, 69: a13-a13. DOI: 10.1136/gutjnl-2020-basl.23.Peer-Reviewed Original ResearchMental health issuesWilson's diseaseHealth issuesSeverity of liverMental health QOLPhysical health QoLReview of imagingP-QOL scoresQuality of lifeFIB4 scoreAdult patientsRegistry studyNeurological assessmentPhysical health issuesChronic diseasesOutcome measuresPatientsNeurological diseasesWD patientsQoLAssess qualityDiseaseCirrhosisSignificant differencesScores
2018
Clinical Research Participation
Tomlin R. Clinical Research Participation. Clinical Gastroenterology 2018, 213-222. DOI: 10.1007/978-3-319-91527-2_13.ChaptersPrimary care physiciansClinical researchWillingness of patientsClinical research participationPrevention of diseaseCare physiciansInformed consent processStudy participationRare diseasePatientsStudy participantsWilson's diseaseDiseaseConsent processResearch participationParticipantsPhysiciansDiagnosisPrevention