2019
“I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes
Commissariat PV, Harrington KR, Whitehouse AL, Miller KM, Hilliard ME, Van Name M, DeSalvo DJ, Tamborlane WV, Anderson BJ, DiMeglio LA, Laffel LM. “I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes. Pediatric Diabetes 2019, 21: 377-383. PMID: 31808586, PMCID: PMC7830825, DOI: 10.1111/pedi.12956.Peer-Reviewed Original ResearchConceptsType 1 diabetesGlycemic controlDiabetes burdenSecondary caregiversEmotional burdenChildren's glycemic controlYoung childrenCare of childrenAge 5.2Parents' perceptionsCaregivers' knowledgeClinical centersSemi-structured qualitative interviewsDiabetesDiabetes educationParental burdenHealthcare providersAge groupsInsulin pumpParents' burdenT1DChildren's qualityChild's diabetesParents' knowledgeParents' confidence
2011
Health Utilities for Children and Adults With Type 1 Diabetes
Lee JM, Rhee K, O'Grady MJ, Basu A, Winn A, John P, Meltzer DO, Kollman C, Laffel LM, Lawrence JM, Tamborlane WV, Wysocki T, Xing D, Huang ES. Health Utilities for Children and Adults With Type 1 Diabetes. Medical Care 2011, 49: 924-931. PMID: 21544001, PMCID: PMC3210197, DOI: 10.1097/mlr.0b013e318216592c.Peer-Reviewed Original ResearchConceptsParent-proxy reportsType 1 diabetesHealth utilityProxy reportsEnd-stage renal diseaseEnd-stage complicationsStage renal diseaseChild Self-ReportSelf-ReportSignificant differencesRenal diseaseAdult Self-ReportHigher overall QoLOverall QoLCurrent QoLOverall qualityHigher QoLQoLFunction of ageType 1DiabetesAdultsComplicationsMethods of assessmentChildren
2010
Perception of the Impact of Type 1 Diabetes on Low-Income Families
Edmonds-Myles S, Tamborlane WV, Grey M. Perception of the Impact of Type 1 Diabetes on Low-Income Families. The Science Of Diabetes Self-Management And Care 2010, 36: 318-325. PMID: 20410369, DOI: 10.1177/0145721709349219.Peer-Reviewed Original ResearchConceptsType 1 diabetesExcellent metabolic controlImpact of T1DMPatient-parent dyadsView of diabetesHealth care systemLow-income familiesTreatment modalitiesCare needsDiabetesDiabetes educationMetabolic controlPsychosocial impactAbility of familiesCare systemSocioeconomic statusAfrican AmericansInterview guideFamily attitudes