2023
Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD Summit
Chandran M, Alves I, Carpenter T, Davis M, Hsiao E, Petryk A, Semler J, Sleiman M. Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD Summit. Osteoporosis International 2023, 34: 1301-1310. PMID: 37294334, PMCID: PMC10382343, DOI: 10.1007/s00198-023-06791-x.Peer-Reviewed Original ResearchConceptsCare pathwaysRare bone diseasesImprove care pathwaysImprove patient outcomesObstacles to diagnosisCare providersHealthcare professionalsExpert carePatient communityUnmet needsImprove awarenessPatient outcomesDiagnostic delayAction planCareBone diseaseCommunication gapHeterogeneous group of disordersVirtual meetingsGroup of disordersOutcomesPeopleHealthcareInformation exchangeSpecial treatment
2010
NIH consensus development conference statement: Lactose intolerance and health.
Suchy FJ, Brannon PM, Carpenter TO, Fernandez JR, Gilsanz V, Gould JB, Hall K, Hui SL, Lupton J, Mennella J, Miller NJ, Osganian SK, Sellmeyer DE, Wolf MA. NIH consensus development conference statement: Lactose intolerance and health. NIH Consensus And State-of-the-Science Statements 2010, 27: 1-27. PMID: 20186234.Peer-Reviewed Original ResearchConceptsLactose intoleranceEvidence-based dietary approachesClinical lactose intoleranceScientific evidenceAdverse health outcomesImportant clinical syndromeHealth care providersSymptoms of individualsAdult endocrinologyDietary ApproachesBone healthVitamin DClinical syndromeDairy avoidanceFetal nutritionResponsible assessmentLactose malabsorptionMineral metabolismCare providersTrue prevalenceDairy consumptionHealth outcomesMinnesota EvidencePractice centerHealthcare providers