Disease-Related Distress in Pediatric IBD: Development and Validation of the Crohn’s and Colitis Distress Scale
Stellway J, Cummings C, Paternostro J, Stoeckel M, Muir L, Harris M. Disease-Related Distress in Pediatric IBD: Development and Validation of the Crohn’s and Colitis Distress Scale. Clinical Practice In Pediatric Psychology 2023, 11: 147-156. DOI: 10.1037/cpp0000444.Peer-Reviewed Original ResearchDistress ScaleEmotional distressDisease-related distressSubscale internal consistencyMental health concernsInflammatory bowel diseaseHealth outcomesPediatric inflammatory bowel diseaseRoutine careCronbach's alphaDetection of riskInternal consistencyTreatment engagementPsychometric propertiesPsychosocial functioningHealth concernDistressIncreased riskDiagnosis of ulcerative colitisDiverse sampleAssess psychopathologyGlobal anxietyYouthPeriods of exacerbationBowel diseasePiloting an Innovative System-Level Intervention for Pediatric Patients with Inflammatory Bowel Disease and Social Risk
Wagner D, Stoeckel M, Hansen T, Muir L, Harris M. Piloting an Innovative System-Level Intervention for Pediatric Patients with Inflammatory Bowel Disease and Social Risk. Clinical Practice In Pediatric Psychology 2023, 11: 134-146. DOI: 10.1037/cpp0000481.Peer-Reviewed Original ResearchHigh social riskRecommended preventive careAcute care useSystem-level interventionsHealthcare utilization dataFrequency of hospital admissionsInflammatory bowel diseasePretest-posttest designCare useImprove disease managementPreventive careEHR recordsED visitsSocial risksUtilization dataHospital admissionNovel interventionsDemographic informationDisease managementService initiativesAttendance dataChildren's HealthcareIncreased engagementBowel diseaseChart review