2022
The evolving privacy and security concerns for genomic data analysis and sharing as observed from the iDASH competition
Kuo T, Jiang X, Tang H, Wang X, Harmanci A, Kim M, Post K, Bu D, Bath T, Kim J, Liu W, Chen H, Ohno-Machado L. The evolving privacy and security concerns for genomic data analysis and sharing as observed from the iDASH competition. Journal Of The American Medical Informatics Association 2022, 29: 2182-2190. PMID: 36164820, PMCID: PMC9667175, DOI: 10.1093/jamia/ocac165.Peer-Reviewed Original ResearchConceptsSensitive personal informationGenomic data analysisPotential future research directionsPersonal informationSecurity concernsGenomics data repositoryData repositoryReport lessonsProtection techniquesFuture research directionsPrivacyResearch directionsData usePractical challengesGenomic dataData analysisAnonymizationCommunity effortsRepositorySecurityBiomedical researchInformationDataChallenges
2013
Genomes in the cloud: balancing privacy rights and the public good.
Ohno-Machado L, Farcas C, Kim J, Wang S, Jiang X. Genomes in the cloud: balancing privacy rights and the public good. AMIA Joint Summits On Translational Science Proceedings 2013, 2013: 128. PMID: 24303320.Peer-Reviewed Original Research
2012
iDASH: integrating data for analysis, anonymization, and sharing
Ohno-Machado L, Bafna V, Boxwala A, Chapman B, Chapman W, Chaudhuri K, Day M, Farcas C, Heintzman N, Jiang X, Kim H, Kim J, Matheny M, Resnic F, Vinterbo S, team A. iDASH: integrating data for analysis, anonymization, and sharing. Journal Of The American Medical Informatics Association 2012, 19: 196-201. PMID: 22081224, PMCID: PMC3277627, DOI: 10.1136/amiajnl-2011-000538.Commentaries, Editorials and LettersConceptsHigh-performance computing environmentPrivacy-preserving mannerCollaborative tool developmentData-sharing capabilitiesData ownersComputing environmentData consumersBiomedical computingHealth Insurance PortabilityTechnology researchTool developmentAccountability ActBiological projectsBiological dataInsurance PortabilityAnonymizationComputingPortabilityBehavioral researchersAlgorithmSoftwareCloudNew National CenterDataCapability
2004
Protecting patient privacy by quantifiable control of disclosures in disseminated databases
Ohno-Machado L, Silveira P, Vinterbo S. Protecting patient privacy by quantifiable control of disclosures in disseminated databases. International Journal Of Medical Informatics 2004, 73: 599-606. PMID: 15246040, DOI: 10.1016/j.ijmedinf.2004.05.002.Peer-Reviewed Original ResearchConceptsSensitive patient dataPattern recognition algorithmsLevel of confidentialitySensitive dataPrivacy protectionSensitive informationDisseminated dataRecognition algorithmDegree of anonymityPatient privacyAlgorithmPrivacyPatient dataDatabaseAnonymizationQuantifiable controlPublic health purposesConfidentialityInformationAnonymityHealth care organizationsHealth purposesCare organizationsCommon practiceAmbiguation
2002
Disambiguation Data: Extracting Information from Anonymized Sources
Dreiseitl S, Vinterbo S, Ohno-Machado L. Disambiguation Data: Extracting Information from Anonymized Sources. Journal Of The American Medical Informatics Association 2002, 9: s110-s114. PMCID: PMC419432, DOI: 10.1197/jamia.m1240.Peer-Reviewed Original Research
2001
Disambiguation data: extracting information from anonymized sources.
Dreiseitl S, Vinterbo S, Ohno-Machado L. Disambiguation data: extracting information from anonymized sources. AMIA Annual Symposium Proceedings 2001, 144-8. PMID: 11825171, PMCID: PMC2243291.Peer-Reviewed Original Research
1999
Using Boolean reasoning to anonymize databases
Øhrn A, Ohno-Machado L. Using Boolean reasoning to anonymize databases. Artificial Intelligence In Medicine 1999, 15: 235-254. PMID: 10206109, DOI: 10.1016/s0933-3657(98)00056-6.Peer-Reviewed Original ResearchConceptsBoolean reasoningMedical data repositoriesMeasure of anonymitySensitive dataPrivacy issuesDatabase fieldAmount of trustConfidential informationDegree of anonymityData repositoryDeterministic inferenceIndividual objectsAnonymityParticular pieceAlgorithmElectronic medical recordsSpecific needsReasoningDatabasePossible misuseAnonymizationInformationRepositoryOutside worldIssues