Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchMeSH KeywordsBiomedical ResearchConsciousness DisordersHumansLegal GuardiansTherapeutic Human ExperimentationUnited StatesConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants