2019
North of Home: Obligations to Families of Undocumented Patients
Fins J, Real de Asúa D. North of Home: Obligations to Families of Undocumented Patients. The Hastings Center Report 2019, 49: 12-14. PMID: 30790302, DOI: 10.1002/hast.972.Peer-Reviewed Original ResearchConceptsLife-sustaining therapyWithdrawal of life-sustaining therapyIncapacitated patientsEthical concernsSocial workersDoctors' desireFurther careFamily inputState lawsUndocumented patientsIntensive care unitDoctorsCare unitMultisystem organ failureObligationsDecision-United StatesOrgan failureDesireFamily
2017
Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants