2018
Disorders of Consciousness, Agency, and Health Care Decision Making: Lessons From a Developmental Model
Wright M, Kraft C, Ulrich M, Fins J. Disorders of Consciousness, Agency, and Health Care Decision Making: Lessons From a Developmental Model. AJOB Neuroscience 2018, 9: 56-64. DOI: 10.1080/21507740.2018.1425755.Peer-Reviewed Original ResearchDisorders of consciousnessHealth care decision makingCare decision makingLegal systemPermanent incapacitySelf-determinationHealthDevelopmental modelDecision-making frameworkDecisionIncreasing roleDisordersPatientsPatient evolutionDecision makingRecovery processIncapacityPersonhoodPhysiciansAgenciesDisabilityMaximal extentParticipants
2005
Contracts, covenants and advance care planning: an empirical study of the moral obligations of patient and proxy
Fins J, Maltby B, Friedmann E, Greene M, Norris K, Adelman R, Byock I. Contracts, covenants and advance care planning: an empirical study of the moral obligations of patient and proxy. Journal Of Pain And Symptom Management 2005, 29: 55-68. PMID: 15652439, DOI: 10.1016/j.jpainsymman.2004.07.004.Peer-Reviewed Original ResearchConceptsPatient self-determinationMoral obligationSelf-determinationAdvance care planningExercise of autonomyPatient-proxy relationshipLife-sustaining therapyObligations of patientsMoral judgmentCare planningNarrow notionsDisease trajectoryPatient instructionsLegal normsPatient-proxy pairsJudgmentPrincipal autonomyAggressive careAutonomyModified Likert scaleQuality of informationPatient educationCovenantersNegative instructionsCovenants