2023
Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness
Lewis A, Young M, Rohaut B, Jox R, Claassen J, Creutzfeldt C, Illes J, Kirschen M, Trevick S, Fins J. Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness. Neurocritical Care 2023, 39: 565-577. PMID: 36977963, PMCID: PMC11023737, DOI: 10.1007/s12028-023-01708-2.Peer-Reviewed Original ResearchConceptsTranslation of researchDisclosure of resultsDisorders of consciousnessContinuum of researchEthical considerationsNeuropalliative careEthics Working GroupInterpretation of outcomesLegally authorized representativeCommunication of resultsComparison of risksStudy designCarePromote recoveryInvolved personsInclusion of minoritiesExclusion criteriaNeurocritical careWorking GroupPersonsInformal reviewOutcomesAwarenessParticipation rightsData protection
2001
14 Research in the Intensive Care Unit Ethical and Methodological Issues
Barie P, Bacchetta M, Fins J, Eachempati S. 14 Research in the Intensive Care Unit Ethical and Methodological Issues. 2001, 137-154. DOI: 10.1016/b978-012655330-7/50016-2.Peer-Reviewed Original ResearchIntensive care unitAffecting quality of careQuality of careOrganizational characteristics of ICUsInterpretation of research studiesIll patientsCritically ill patientsMethodological issuesQuality management programCharacteristics of intensive care unitVariability of outcomesOutcomes of critically ill patientsManagement programsCare unitOrganizational characteristicsPatient/research subjectClinical researchAffecting qualitySample sizeOutcomesResearch studiesClinical managementCareTranslational researchPatients