2022
Perspectives on adapting a mobile application for pain self-management in neurofibromatosis type 1: results of online focus group discussions with individuals living with neurofibromatosis type 1 and pain management experts
Grau LE, Larkin K, Lalloo C, Stinson JN, Zempsky WT, Ball SA, Buono FD. Perspectives on adapting a mobile application for pain self-management in neurofibromatosis type 1: results of online focus group discussions with individuals living with neurofibromatosis type 1 and pain management experts. BMJ Open 2022, 12: e056692. PMID: 35840301, PMCID: PMC9295671, DOI: 10.1136/bmjopen-2021-056692.Peer-Reviewed Original ResearchMeSH KeywordsAdultChronic PainFocus GroupsHumansMobile ApplicationsNeurofibromatosis 1Pain ManagementSelf-ManagementConceptsPain management expertsNeurofibromatosis type 1Type 1Self-management mobile appAudio-recorded focus groupsChronic painAPP levelsFocus groupsPainPotential associationMobile health applicationsNF1 groupTypes of participantsGenetic disordersNeeds of individualsOnline focus group discussionsOnline focus groupsFocus group discussionsAppropriate visualsGroupParticipant groupsFree accessSpecific needsIndividualsHealth applications
2021
The mediating effects of quality of life, depression, and generalized anxiety on perceived barriers to employment success for people diagnosed with Neurofibromatosis Type 1
Buono FD, Sprong ME, Paul E, Martin S, Larkin K, Garakani A. The mediating effects of quality of life, depression, and generalized anxiety on perceived barriers to employment success for people diagnosed with Neurofibromatosis Type 1. Orphanet Journal Of Rare Diseases 2021, 16: 234. PMID: 34020694, PMCID: PMC8138923, DOI: 10.1186/s13023-021-01866-6.Peer-Reviewed Original ResearchMeSH KeywordsAnxietyCross-Sectional StudiesDepressionEmploymentHumansNeurofibromatosis 1Quality of LifeSurveys and Questionnaires