PROSPER study

Transcript

• 00:00So the PROSPER study is a newly
• 00:03funded project that we are very
• 00:06excited about as a way to have a
• 00:09scalable solution for navigation for
• 00:12patients with early onset cancers.
• 00:15So this particular study team is very broad
• 00:18and includes expertise from physicians,
• 00:20from researchers and from patients
• 00:22and advocates themselves.
• 00:24So the expertise that we have on
• 00:26this team includes medical oncology,
• 00:29radiation oncology, cancer genetics,
• 00:31community outreach and engagement.
• 00:33Disparities research,
• 00:33population science research,
• 00:35social work and really from the psychosocial
• 00:37needs perspective of patients as well.
• 00:40So we're very excited to engage a
• 00:43very diverse team for the prosperous
• 00:46study for really meaningful outcomes.
• 00:48The E navigation tool or electronic
• 00:51navigation tool is one of the
• 00:53exciting novel aspects of our program
• 00:55for the early onset cancer program
• 00:57and also for the prosperous study.
• 01:00The reason that we are developing
• 01:02this E navigation tool is because
• 01:04we know that we need a scalable
• 01:06solution for navigation of patients
• 01:08with early onset cancers.
• 01:10Another benefit of an eye navigation
• 01:12tool is that it can be self-directed,
• 01:15so a person can be using the
• 01:18tool on their own time.
• 01:20With those specific questions
• 01:21and needs that they have,
• 01:23so it can be much more personalized as well.
• 01:26So we're very excited to develop this
• 01:28E navigation tool which will have
• 01:30modules of information that are relevant
• 01:33to what patients might be seeking.
• 01:35So for example,
• 01:36where are there resources to help
• 01:38with financial concerns or insurance
• 01:40concerns for their healthcare?
• 01:41Are there resources available for
• 01:43childcare or helping to deal with family
• 01:46responsibilities that an individual may have?
• 01:48What are the resources for
• 01:50fertility concerns?
• 01:50Or sexuality medicine and in addition,
• 01:52lots of resources for transportation
• 01:54needs and really thinking about coping
• 01:56with cancer from a mental health
• 01:58perspective as well as alternative
• 02:00strategies that might be really
• 02:01important to help with cope with
• 02:03cancer such as meditation techniques,
• 02:05et cetera.
• 02:05So we're very excited to develop about
• 02:08a very novel E navigation tool that
• 02:10covers all of this information in one
• 02:12place that a patient can go to with
• 02:15an early onset cancer diagnosis to
• 02:17get some information that they need.
• 02:19A really important aspect is
• 02:20that we're planning to do.
• 02:22Develop this in multiple languages,
• 02:24so if English is not the
• 02:25primary language for a patient,
• 02:27we still want to resource that
• 02:28is going to be really important
• 02:30for them and meaningful to engage
• 02:32patients across the spectrum.