2024
Identity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations
Fins J, Merner A, Wright M, Lázaro-Muñoz G. Identity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations. The Hastings Center Report 2024, 54: 34-41. PMID: 38390681, PMCID: PMC11022755, DOI: 10.1002/hast.1567.Peer-Reviewed Original Research
2023
Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness
Lewis A, Young M, Rohaut B, Jox R, Claassen J, Creutzfeldt C, Illes J, Kirschen M, Trevick S, Fins J. Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness. Neurocritical Care 2023, 39: 565-577. PMID: 36977963, PMCID: PMC11023737, DOI: 10.1007/s12028-023-01708-2.Peer-Reviewed Original ResearchConceptsTranslation of researchDisclosure of resultsDisorders of consciousnessContinuum of researchEthical considerationsNeuropalliative careEthics Working GroupInterpretation of outcomesLegally authorized representativeCommunication of resultsComparison of risksStudy designCarePromote recoveryInvolved personsInclusion of minoritiesExclusion criteriaNeurocritical careWorking GroupPersonsInformal reviewOutcomesAwarenessParticipation rightsData protection
2020
The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis.
Ezer T, Wright M, Fins J. The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis. Health And Human Rights 2020, 22: 265-278. PMID: 32669806, PMCID: PMC7348445.Peer-Reviewed Original ResearchConceptsHuman rights analysisFreedom of expressionBlock to treatmentUnited StatesRights analysisLife of personsExperiences of personsTraumatic incidentsQuality of life of personsPersonsScientific progressNeglectMedical advancesBrain injuryInadequate accessLawViolationStateSignificant medical advancesFreedomEqualityInstitutionalizationUnitsInternationalPolicy
2018
Rights language and disorders of consciousness: a call for advocacy
Fins J, Wright M. Rights language and disorders of consciousness: a call for advocacy. Brain Injury 2018, 32: 670-674. PMID: 29393694, DOI: 10.1080/02699052.2018.1430377.Peer-Reviewed Original ResearchConceptsCivil rightsDisability rights lawsRights of PersonsRights-based argumentsReintegration of peopleRights lawUN ConventionRights languageProvision of rehabilitationRightsSociety itselfCivil societyIntegration of peopleReintegrationSocietyMedical mainstreamCare sectorCare of peopleBrain injuryPersonsLawMaximal integrationConventionBrain injury rehabilitationDisorders of consciousness
2017
Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants
2016
The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems
Kellmeyer P, Cochrane T, Müller O, Mitchell C, Ball T, Fins J, Biller-Andorno N. The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems. Cambridge Quarterly Of Healthcare Ethics 2016, 25: 623-633. PMID: 27634714, DOI: 10.1017/s0963180116000359.Peer-Reviewed Original ResearchConceptsClosed-loop medical devicesRepresentatives of patient advocacy groupsMedical lawLegal accountabilityLegal frameworkDecisionmaking capacityRestoring communication abilitiesPersonal autonomyMedical ethicsPatient autonomyMedical devicesAdvocacy groupsAutonomyMedical neuroscienceTask ForceAccountsPatient advocacy groupsPersonsLawConsentComputer scienceRefusalDecisionmakingEthicsAgencies
2012
How Happy Is Too Happy? Euphoria, Neuroethics, and Deep Brain Stimulation of the Nucleus Accumbens
Synofzik M, Schlaepfer T, Fins J. How Happy Is Too Happy? Euphoria, Neuroethics, and Deep Brain Stimulation of the Nucleus Accumbens. AJOB Neuroscience 2012, 3: 30-36. DOI: 10.1080/21507740.2011.635633.Peer-Reviewed Original ResearchNA DBSDeep brain stimulationBrain stimulationIntrinsic objectionsNeuropsychiatric interventionsMaladaptive onesManic stateMotivational stateButton pressMood statesEnhancing affective statesInduce euphoriaAffective statesPsychiatric diseasesSystematic ethical analysisCase vignettesRisk of severe harmExtrinsic argumentsEthical analysisEthical questionsHappinessPersonsEuphoriaIntervention costsContext-dependent
2000
Enrolling Decisionally Incapacitated Subjects in Neuropsychiatric Research
Fins J, Miller F. Enrolling Decisionally Incapacitated Subjects in Neuropsychiatric Research. CNS Spectrums 2000, 5: 32-42. PMID: 17632450, DOI: 10.1017/s1092852900007653.Peer-Reviewed Original Research