2025
Anchoring the Hemophilia Joint Health Score for Conventional Value Assessment in the Care of People Living with Severe Hemophilia A
Ito S, Sra M, Goshua G. Anchoring the Hemophilia Joint Health Score for Conventional Value Assessment in the Care of People Living with Severe Hemophilia A. PharmacoEconomics 2025, 43: 761-764. PMID: 40410545, PMCID: PMC12167127, DOI: 10.1007/s40273-025-01508-w.Peer-Reviewed Original ResearchContemporary approaches to treat people with hemophilia: what’s new and what’s not?
Valentino L, Santaella M, Carlson S, Recht M. Contemporary approaches to treat people with hemophilia: what’s new and what’s not? Research And Practice In Thrombosis And Haemostasis 2025, 9: 102696. PMID: 40084158, PMCID: PMC11905833, DOI: 10.1016/j.rpth.2025.102696.Peer-Reviewed Original ResearchComprehensive interdisciplinary careCare of peopleMiddle-income countriesBispecific monoclonal antibodyStandard of careHealth equityNonfactor productsFactor replacementHemophilia AJoint bleedsGenetic therapiesHemophiliaNormal hemostasisMonoclonal antibodiesAnticoagulant mechanismsTargeted inhibitorsUnaffected peersHaemophilia careBleedingNarrative reviewTreatmentTreatment of peopleAverage life expectancyInterdisciplinary careDiagnosis
2024
413-P: Comparative Effectiveness of Glucose-Lowering Agents on Kidney Outcomes in Adults with Type 2 Diabetes at Moderate Cardiovascular Risk
NEUMILLER J, HERRIN J, SWARNA K, POLLEY E, GALINDO R, UMPIERREZ G, DENG Y, MICKELSON M, MCCOY R. 413-P: Comparative Effectiveness of Glucose-Lowering Agents on Kidney Outcomes in Adults with Type 2 Diabetes at Moderate Cardiovascular Risk. Diabetes 2024, 73 DOI: 10.2337/db24-413-p.Peer-Reviewed Original ResearchPatient-Centered Outcomes Research InstituteModerate CVD riskKidney composite outcomeAssociated with lower riskGLP-1RACVD riskType 2 diabetesKidney outcomesComposite outcomeKidney diseaseLow riskHigh riskInitiation of kidney replacement therapyEffects of glucose-lowering agentsCardiovascular diseaseHigh risk of cardiovascular diseaseAssociated with increased riskBaseline CVD riskAssociated with higher riskRisk of cardiovascular diseaseGlucose-lowering agentsCare of peopleIncident kidney diseaseModerate cardiovascular riskTarget trial frameworkCare interruptions and mortality among adults in Europe and North America
Trickey A, Zhang L, Rentsch C, Pantazis N, Izquierdo R, Antinori A, Leierer G, Burkholder G, Cavassini M, Palacio-Vieira J, Gill M, Teira R, Stephan C, Obel N, Vehreschild J, Sterling T, Van Der Valk M, Bonnet F, Crane H, Silverberg M, Ingle S, Sterne J. Care interruptions and mortality among adults in Europe and North America. AIDS 2024, 38: 1533-1542. PMID: 38742863, PMCID: PMC11239093, DOI: 10.1097/qad.0000000000003924.Peer-Reviewed Original ResearchCare interruptionsMortality riskCohort studyHazard ratioAnalysis of cohort studiesAntiretroviral therapyCare of peopleRobust to sensitivity analysesMortality hazard ratioCrude mortality rateHazard of mortalityAntiretroviral therapy initiationObservational cohort studyAntiretroviral therapy startUninterrupted careFollow-up groupCareAssociated with adverse outcomesPWHCox regressionAdverse outcomesFollow-up timeMortality rateCompare hazardsComposite outcomeTrainee advocacy for medical education on the care of people with intellectual and/or developmental disabilities: a sequential mixed methods analysis
Clarke L, O’Neill N, Patel B, Steeman S, Segal G, Merrell S, Gisondi M. Trainee advocacy for medical education on the care of people with intellectual and/or developmental disabilities: a sequential mixed methods analysis. BMC Medical Education 2024, 24: 491. PMID: 38702741, PMCID: PMC11067383, DOI: 10.1186/s12909-024-05449-4.Peer-Reviewed Original ResearchConceptsDevelopmental disabilitiesCare of peopleAdvocacy effortsMedical educationExperiences of traineesMixed methods studyImprove medical educationMixed methods analysisAdministrative challengesAdvocacyDisabilityCurriculum implementationPatient partnersCurriculum developmentCurricular initiativesQualitative dataNeeds assessmentMethods studyEducational strategiesParticipant interviewsTeam-basedKern's frameworkConstructivist paradigmTarget learnersSurvey participantsAdaptive multi-interventional trial platform to improve patient care for fibrotic interstitial lung diseases
Kawano-Dourado L, Kulkarni T, Ryerson C, Rivera-Ortega P, Baldi B, Chaudhuri N, Funke-Chambour M, Hoffmann-Vold A, Johannson K, Khor Y, Montesi S, Piccari L, Prosch H, Molina-Molina M, Torres J, Bauer-Ventura I, Rajan S, Jacob J, Richards D, Spencer L, Wendelberger B, Jensen T, Quintana M, Kreuter M, Gordon A, Martinez F, Kaminski N, Cornelius V, Lewis R, Adams W, Jenkins G, consortium R, Bravery A, Goodwin A, Etges A, Boshoff A, Günther A, Briggs A, Palmer A, Wilson A, Crawshaw A, Hoffmann-Vold A, Bergeron A, Holland A, Gordon A, Prasse A, Tzouvelekis A, Trachalaki A, Wells A, Nair A, Adegunsoye A, Wendelberger B, Hope-Gill B, Kaul B, Gooptu B, Baldi B, Crestani B, Polanczyk C, Vancheri C, Crobal C, Summers C, Grainge C, Ryerson C, von Garnier C, Huntley C, Ravaglia C, Valenzuela C, Hayton C, McCarthy C, Chambers D, Babalis D, Thicket D, Turner D, Talwar D, Anand D, Dhasmana D, Parek D, Griffiths D, Villegas D, Richards D, Santucci E, Bendstrup E, Balestro E, Tsitoura E, Falaschetti E, Gupta E, Farrand E, Khan F, Martinez F, Bonella F, Lombardi F, Hunninghake G, Saini G, Jenkins G, Gudmundsson G, Collard H, Parfrey H, Prosch H, Fainberg H, Adamali H, Stewart I, Forrest I, Glaspole I, Bauer-Ventura I, Noth I, Cox I, Strambu I, Sellares J, Eaden J, Johnston J, Swigris J, Blaikley J, Kim J, Chung J, Lasky J, Jacob J, Lee J, Behr J, Storrer K, Lewandowska K, Johnson K, Antoniou K, Hostettler K, Johannson K, Hurley K, Hett K, Schwarzkopf L, Fabbri L, Price L, Pearmain L, Kawano-Dourado L, Galvin L, Spencer L, Watson L, Crowley L, Richeldi L, Piccari L, Funke-Chambour M, Molina-Molina M, Jones M, Spears M, Toshner M, Wijsenbeek-Lourens M, Brutsche M, Vasakova M, Quintana M, Gibbons M, Henry M, Keane M, Kreuter M, Man M, Sadatsafavi M, Kaminski N, Chaudhuri N, Weatherley N, Hirani N, Mladinescu O, Spagnolo P, Beirne P, Bryce P, George P, Molyneaux P, Rivera-Ortega P, Crisan-Dabija R, Maida R, Borie R, Takei R, Lewis R, Rolo R, Guler S, Paganoni S, Singh S, Freitas S, Piciucchi S, Malik S, Barratt S, Hart S, Dal Corso S, Fletcher S, Stanel S, Bianchi S, Jones S, Nathan S, Rajan S, Birring S, Montesi S, Reoto T, Corte T, Zaman T, Kulkarni T, Gatheral T, Jensen T, McMillan T, Quinn V, Poletti V, Cornelius V, Cottin V, Adams W, Wuyts W, Kondoh Y, Miyazaki Y, Khor Y, Haider Y. Adaptive multi-interventional trial platform to improve patient care for fibrotic interstitial lung diseases. Thorax 2024, 79: 788-795. PMID: 38448221, PMCID: PMC11287572, DOI: 10.1136/thorax-2023-221148.Peer-Reviewed Original ResearchConceptsFibrotic interstitial lung diseaseInterstitial lung diseaseRandomised controlled trial approachTarget populationCare of peopleImprove patient careLung diseaseDisease associated with significant morbiditySafety of interventionsDissemination of resultsTrial deliveryImprove careProgression of fibrosisPatient careResponse adaptive randomisationPrimary outcomeCareSignificant morbidityAdult patientsApproaches to drug developmentClinical trialsDrug development pipelineTrial approachHeterogeneous groupPatientsFeasibility and Acceptability of an Agenda-Setting Kit in the Care of People With Type 2 Diabetes: The QBSAFE ASK Feasibility Study
Haider S, Gonzalez-Lopez C, Clark J, Gravholt D, Breslin M, Boehmer K, Hartasanchez S, Sanchez B, Montori V, Lipska K. Feasibility and Acceptability of an Agenda-Setting Kit in the Care of People With Type 2 Diabetes: The QBSAFE ASK Feasibility Study. Clinical Diabetes 2024, 42: 358-363. PMID: 39015172, PMCID: PMC11247036, DOI: 10.2337/cd23-0062.Peer-Reviewed Original Research
2023
Assessment of regional body composition, physical function and sarcopenia among peruvian women aging with HIV: A cross-sectional study.
Cabrera D, Cornejo M, Pinedo Y, Garcia P, Hsieh E. Assessment of regional body composition, physical function and sarcopenia among peruvian women aging with HIV: A cross-sectional study. PLOS Global Public Health 2023, 3: e0000814. PMID: 37594923, PMCID: PMC10437949, DOI: 10.1371/journal.pgph.0000814.Peer-Reviewed Original ResearchShort Physical Performance BatteryActive antiretroviral therapyLimb lean massTrunk fat massCross-sectional studyFat massBody compositionSPPB scorePhysical functionPeruvian womenDual X-ray absorptiometryPhysical performancePhysical Performance BatteryGrip strength testChronic disease managementMultivariable regression analysisPopulation of womenX-ray absorptiometryCare of peopleLower SPPB scoresPhysical performance scoreRegional body compositionGlobal health concernEWGSOP criteriaAntiretroviral therapyAntiretroviral Drugs for Treatment and Prevention of HIV Infection in Adults
Gandhi R, Bedimo R, Hoy J, Landovitz R, Smith D, Eaton E, Lehmann C, Springer S, Sax P, Thompson M, Benson C, Buchbinder S, del Rio C, Eron J, Günthard H, Molina J, Jacobsen D, Saag M. Antiretroviral Drugs for Treatment and Prevention of HIV Infection in Adults. JAMA 2023, 329: 63-84. PMID: 36454551, DOI: 10.1001/jama.2022.22246.Peer-Reviewed Original ResearchConceptsPrevention of HIVAntiretroviral therapySubstance use disordersAntiretroviral drugsUse disordersCertain antiretroviral medicationsDaily oral regimenInhibitor-containing regimensManagement of comorbiditiesMonkeypox virus infectionDiagnosis of HIVSARS-CoV-2 pandemicCare of peopleGlobal health emergencyInitial therapyOral regimenAdherence supportMetabolic complicationsPreexposure prophylaxisViral suppressionAntiretroviral medicationsOral medicationsHIV infectionLaboratory monitoringInjectable therapies
2022
Grief at the Heart of the Opioid Overdose Crisis: Past Lessons and Present Implications
Morford KL, Batchelor HM, Tetrault JM. Grief at the Heart of the Opioid Overdose Crisis: Past Lessons and Present Implications. Journal Of Addiction Medicine 2022, 16: 613-615. PMID: 35165230, DOI: 10.1097/adm.0000000000000976.Peer-Reviewed Original ResearchConceptsOpioid use disorderOpioid overdose crisisOverdose crisisImmunodeficiency syndrome (AIDS) epidemicCare of peopleTreatment outcomesOverdose deathsUse disordersEmotional burdenSocial support networksContext of stigmaHarmful consequencesSupport networksRole of griefGriefPatientsOverdoseClinicians
2021
The role of evidence-based guidelines in the diagnosis and treatment of functional neurological disorder
Tolchin B, Baslet G, Carson A, Dworetzky BA, Goldstein LH, LaFrance WC, Martino S, Perez DL, Reuber M, Stone J, Szaflarski JP. The role of evidence-based guidelines in the diagnosis and treatment of functional neurological disorder. Epilepsy & Behavior Reports 2021, 16: 100494. PMID: 34877515, PMCID: PMC8627961, DOI: 10.1016/j.ebr.2021.100494.Peer-Reviewed Original ResearchEvidence-based guidelinesClinical practice guidelinesPractice guidelinesEvidence-based clinical practice guidelinesFunctional neurological disorderCare of peopleMental health cliniciansFormal clinical trainingInterdisciplinary careBody of evidenceFunctional seizuresHealth cliniciansPsychiatric disordersGuideline developmentNeurological disordersPatient careSystematic reviewAmerican AcademyAmerican Psychiatric AssociationDisorder subtypesMultidisciplinary teamworkDiagnosisCarePsychiatric AssociationTreatmentPreferred practices for rescue treatment of seizure clusters: A consensus-driven, multi-stakeholder approach
Buchhalter J, Shafer PO, Buelow JM, French JA, Gilchrist B, Hirsch LJ, Nasuta M, Santilli N. Preferred practices for rescue treatment of seizure clusters: A consensus-driven, multi-stakeholder approach. Epilepsy & Behavior 2021, 117: 107836. PMID: 33640567, DOI: 10.1016/j.yebeh.2021.107836.Peer-Reviewed Original ResearchConceptsSeizure action planRescue therapySeizure clustersConsensus-derived recommendationsCare of peoplePreferred termPhase 2Seizure frequencyPreferred practicesRescue treatmentEpilepsy expertsRescue medicineSpecialist physiciansTreatment interventionsEpilepsyHealthcare professionalsEpilepsy FoundationPWEIndividualized mannerShort durationTherapyFinal consensusPhase 1Education/communicationCaregivers
2019
Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis
Paganoni S, van de Rijn M, Drake K, Burke K, Doyle M, Ellrodt A, Nicholson K, Atassi N, de Marchi F, Babu S, Estrada J, Schwamm L, Berry J. Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis. Muscle & Nerve 2019, 60: 147-154. PMID: 31136007, PMCID: PMC6772103, DOI: 10.1002/mus.26606.Peer-Reviewed Original Research
2018
Is early management of psychosis designed for migrants? Improving transcultural variable collection when measuring duration of untreated psychosis
Martin R, Moro M, Benoit L. Is early management of psychosis designed for migrants? Improving transcultural variable collection when measuring duration of untreated psychosis. Early Intervention In Psychiatry 2018, 13: 347-357. PMID: 29927107, DOI: 10.1111/eip.12701.Peer-Reviewed Original ResearchRights language and disorders of consciousness: a call for advocacy
Fins J, Wright M. Rights language and disorders of consciousness: a call for advocacy. Brain Injury 2018, 32: 670-674. PMID: 29393694, DOI: 10.1080/02699052.2018.1430377.Peer-Reviewed Original ResearchConceptsCivil rightsDisability rights lawsRights of PersonsRights-based argumentsReintegration of peopleRights lawUN ConventionRights languageProvision of rehabilitationRightsSociety itselfCivil societyIntegration of peopleReintegrationSocietyMedical mainstreamCare sectorCare of peopleBrain injuryPersonsLawMaximal integrationConventionBrain injury rehabilitationDisorders of consciousness
2015
Human Immunodeficiency Virus and Heart Failure in Low- and Middle-Income Countries
Bloomfield GS, Alenezi F, Barasa FA, Lumsden R, Mayosi BM, Velazquez EJ. Human Immunodeficiency Virus and Heart Failure in Low- and Middle-Income Countries. JACC Heart Failure 2015, 3: 579-590. PMID: 26251085, PMCID: PMC4530470, DOI: 10.1016/j.jchf.2015.05.003.Peer-Reviewed Original ResearchConceptsHuman immunodeficiency virusHeart failureMiddle-income countriesImmunodeficiency virusChronic diseasesBurden of HIVTraditional cardiovascular risk factorsCommon cardiac diagnosesCardiovascular risk factorsLarge observational studiesLife expectancySuccessful combination therapyCare of peopleAntiretroviral therapyClinical characteristicsTreatment patternsSociety guidelinesCombination therapyRisk factorsClinical studiesObservational studyDiagnostic criteriaCardiac diagnosisHigh mortalityCardiac glycosides
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