2024
Trustworthy and ethical AI-enabled cardiovascular care: a rapid review
Mooghali M, Stroud A, Yoo D, Barry B, Grimshaw A, Ross J, Zhu X, Miller J. Trustworthy and ethical AI-enabled cardiovascular care: a rapid review. BMC Medical Informatics And Decision Making 2024, 24: 247. PMID: 39232725, PMCID: PMC11373417, DOI: 10.1186/s12911-024-02653-6.Peer-Reviewed Original ResearchConceptsHealthcare provider perspectiveRisk of patient harmCardiovascular careProvider perspectiveAI-based medical devicesPatient harmLoss of patient autonomyLack of robust evidenceTrust barriersHealthcare inequalitiesImprove careHealthcare providersCitation chasingPerceived lack of transparencyHealthcare existPatient careEthical concernsIntegration of AIPatient autonomyPatient interestLiterature reviewPerceived lackPractice guidelinesCareStudy designPublic perspectives on increased data sharing in health research in the context of the 2023 National Institutes of Health Data Sharing Policy
de Rivera S, Creber R, Zhao Y, Eslami S, Mangal S, Dugdale L, Turchioe M. Public perspectives on increased data sharing in health research in the context of the 2023 National Institutes of Health Data Sharing Policy. PLOS ONE 2024, 19: e0309161. PMID: 39197051, PMCID: PMC11357082, DOI: 10.1371/journal.pone.0309161.Peer-Reviewed Original ResearchConceptsNational Institutes of HealthHealthcare providersEnglish-speaking US adultsNational Institutes of Health policyNational InstitutePatient perspectivePotential unintended consequencesInstitutes of HealthUS adultsHealth researchPatient autonomyBlack participantsPatients' willingnessSexual healthParticipants' perspectivesParticipants' preferencesAfrican AmericansResearch fundersHealthRacial differencesOnline surveyParticipantsHealthcareEffective JanuaryHealth technology companiesPost-Roe v Wade psychiatry: legal, clinical, and ethical challenges in psychiatry under abortion bans
Kraguljac N, Bruns D, Appelbaum P, Botello E, King V, Remiszewski N, Widge A, Alpert J, Carpenter L, Grzenda A, Krystal J, McDonald W, Nemeroff C. Post-Roe v Wade psychiatry: legal, clinical, and ethical challenges in psychiatry under abortion bans. The Lancet Psychiatry 2024, 11: 853-862. PMID: 38795722, DOI: 10.1016/s2215-0366(24)00096-8.Peer-Reviewed Original ResearchRoe v WadeAbortion banDobbs v Jackson Women's Health OrganizationUS Supreme Court rulingLiberalization of abortion lawsSupreme Court rulingPsychiatric careAbortion careConstitutional rightsCourt rulingsLegal landscapeAbortion lawsPsychiatric groundsPatient autonomyEthical conductBanEthical challengesPublic health consequencesEthical responsibilityPsychiatristsMedical necessityPracticing psychiatristsAbortionTopical overviewPersonal viewUsing the Electronic Medical Record to Correlate Patient–Provider Perspectives in the Care of Black Individuals With High-Risk Pregnancies [ID 2683496]
Nadkarni S, Falako S, Antwi A, Campbell K, Adeyemo O. Using the Electronic Medical Record to Correlate Patient–Provider Perspectives in the Care of Black Individuals With High-Risk Pregnancies [ID 2683496]. Obstetrics And Gynecology 2024, 143: 31s-31s. DOI: 10.1097/01.aog.0001013352.94183.a5.Peer-Reviewed Original ResearchElectronic medical recordsElectronic medical record documentationHigh-risk pregnanciesPatient perspectiveImprove patient-provider communicationProvision of obstetric careElectronic medical record chart reviewBlack individualsPatient-provider communicationMedical recordsOne-on-one interviewsManagement of painDiagnosis of diabetesPatient-providerObstetric carePostpartum experiencesProvider perspectivePatient autonomyChart notesDecision-making rationaleCompare participantsQuality improvementTertiary hospitalCarePerceived coercion
2023
"I don't have a telephone to the fetus": Clinicians' conceptions of fetal patienthood in maternal-fetal surgery counseling
Hyatt E, Wilpers A, Bahtiyar M, Hu Y, Leon-Martinez D, Chervenak F, McCoyd J. "I don't have a telephone to the fetus": Clinicians' conceptions of fetal patienthood in maternal-fetal surgery counseling. Social Science & Medicine 2023, 342: 116525. PMID: 38199011, DOI: 10.1016/j.socscimed.2023.116525.Peer-Reviewed Original Research
2022
Practical and Ethical Considerations in Telehealth: Pitfalls and Opportunities.
Hull SC, Oen-Hsiao JM, Spatz ES. Practical and Ethical Considerations in Telehealth: Pitfalls and Opportunities. The Yale Journal Of Biology And Medicine 2022, 95: 367-370. PMID: 36187411, PMCID: PMC9511944.Peer-Reviewed Original ResearchMedical Student Perspectives on the Ethics of Pelvic Exams Under Anesthesia: A Multi-Institutional Study✰
Kaur K, Salwi S, McNew K, Kumar N, Millimet H, Ravichandran N, Tytus K, Zhang A, Garrett Wood A, Grimm B, Fairbrother E. Medical Student Perspectives on the Ethics of Pelvic Exams Under Anesthesia: A Multi-Institutional Study✰. Journal Of Surgical Education 2022, 79: 1413-1421. PMID: 35672245, DOI: 10.1016/j.jsurg.2022.05.015.Peer-Reviewed Original ResearchConceptsUniversity School of MedicineSchool of MedicineFemale pelvic anatomyMulti-institutional studyEmory University School of MedicineMedical studentsPelvic examinationGynecologic surgeryPelvic anatomyPelvic examPatient autonomyObservation patientsPatientsProfessional ethical normsPatient consent processMedical CollegeIndiana University School of MedicineVanderbilt University School of MedicineRoutine componentWarren Alpert Medical School of Brown UniversityAlpert Medical School of Brown UniversityConsent processEthical normsMeharry Medical CollegeEUA
2021
Palliative Care During a Pandemic
Feder S, Schulman-Green D, Akgün K. Palliative Care During a Pandemic. Respiratory Medicine 2021, 345-372. DOI: 10.1007/978-3-030-81788-6_18.Peer-Reviewed Original ResearchCare deliveryLung diseasePalliative careSevere acute respiratory syndromeChronic lung diseasePalliative care deliveryAcute respiratory syndromeDisease careRespiratory pathogensRespiratory syndromeFamily caregiversHealthcare providersPrevious pandemicsCarePatient autonomyDiseasePalliative communicationVirus pandemicPandemicDeliveryPatientsProvidersSyndromeCaregiversThe Role of Anesthesiologists in Perioperative Limitation of Potentially Life-Sustaining Medical Treatments: A Narrative Review and Perspective
Cushman T, Waisel DB, Treggiari MM. The Role of Anesthesiologists in Perioperative Limitation of Potentially Life-Sustaining Medical Treatments: A Narrative Review and Perspective. Anesthesia & Analgesia 2021, 133: 663-675. PMID: 34014183, DOI: 10.1213/ane.0000000000005559.Peer-Reviewed Original ResearchConceptsLife-sustaining medical treatmentPerioperative careMedical treatmentPerioperative Registered NursesImmediate perioperative periodGoals of careGoal-concordant careDaily clinical practiceRole of anesthesiologistsPrimary care colleaguesPerioperative periodElective surgeryGeneral anesthesiaCare discussionsResuscitate ordersPatient's wishesAmerican CollegeClinical practiceRegistered NursesNarrative reviewPhysiologic homeostasisAnesthesiologistsCareAmerican SocietyPatient autonomyI’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer
Alpert A, Gampa V, Lytle M, Manzano C, Ruddick R, Poteat T, Quinn G, Kamen C. I’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer. Patient Education And Counseling 2021, 104: 2552-2558. PMID: 33745786, PMCID: PMC9320277, DOI: 10.1016/j.pec.2021.03.007.Peer-Reviewed Original ResearchConceptsOncology careGroup interviewsTransgender peopleInterpretive description approachAnalyzed verbatim transcriptsExperiences of transgender peopleCancer careAssess barriersCare accessVerbatim transcriptsCancer objectivesDecrease barriersPeer debriefingMember checkingPatient autonomyImpact transgender peopleGender expectationsCareOncology spaceTreating peopleDescriptive approachPhysiciansThemesCliniciansInterviews
2020
The cost of safety: Balancing risk and liberty in psychiatric units
Zhong R, Wasser T. The cost of safety: Balancing risk and liberty in psychiatric units. Bioethics 2020, 35: 173-177. PMID: 32939790, DOI: 10.1111/bioe.12804.Peer-Reviewed Original Research
2018
Palliative Care Competencies and Readiness for Independent Practice: A Report on the American Academy of Hospice and Palliative Medicine Review of the U.S. Medical Licensing Step Examinations
Carey EC, Paniagua M, Morrison LJ, Levine SK, Klick JC, Buckholz GT, Rotella J, Bruno J, Liao S, Arnold RM. Palliative Care Competencies and Readiness for Independent Practice: A Report on the American Academy of Hospice and Palliative Medicine Review of the U.S. Medical Licensing Step Examinations. Journal Of Pain And Symptom Management 2018, 56: 371-378. PMID: 29935969, DOI: 10.1016/j.jpainsymman.2018.06.006.Peer-Reviewed Original ResearchConceptsPC itemsHeart diseasePC knowledgeEnd-stage heart diseasePalliative care competenciesPalliative care contentSubstance use disordersSurrogate decision makersMultimorbid illnessesPC competenciesPain managementMedicine ReviewsSymptom managementPC physiciansCare competenciesUse disordersAmerican AcademyCare contentMultiple-choice questionsCompetency domainsLicensed physiciansExamination formPatient autonomyPatientsOne-third
2017
The Care of the Ultra-Orthodox Jewish Patient
Gabbay E, McCarthy M, Fins J. The Care of the Ultra-Orthodox Jewish Patient. Journal Of Religion And Health 2017, 56: 545-560. PMID: 28102466, DOI: 10.1007/s10943-017-0356-6.Peer-Reviewed Original ResearchConceptsStigma associated with mental illnessEnd-of-life decisionsEnd-of-lifeUltra-Orthodox Jewish patientsSystem of valuesModern hospital settingUltra-Orthodox worldEthical scenariosReligious traditionsEnhance careUltra-Orthodox Jewish communityMental illnessPrenatal careModern medical practicePatient autonomyJewish communityHospital settingStandard risk assessmentTraditional societiesMedical practiceCareJewish patientsUnique challengesDivineTradition
2016
The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems
Kellmeyer P, Cochrane T, Müller O, Mitchell C, Ball T, Fins J, Biller-Andorno N. The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems. Cambridge Quarterly Of Healthcare Ethics 2016, 25: 623-633. PMID: 27634714, DOI: 10.1017/s0963180116000359.Peer-Reviewed Original ResearchConceptsClosed-loop medical devicesRepresentatives of patient advocacy groupsMedical lawLegal accountabilityLegal frameworkDecisionmaking capacityRestoring communication abilitiesPersonal autonomyMedical ethicsPatient autonomyMedical devicesAdvocacy groupsAutonomyMedical neuroscienceTask ForceAccountsPatient advocacy groupsPersonsLawConsentComputer scienceRefusalDecisionmakingEthicsAgencies
2010
Accepting a donor kidney: an evaluation of patients’ and transplant surgeons’ priorities
Solomon DA, Rabidou N, Kulkarni S, Formica R, Fraenkel L. Accepting a donor kidney: an evaluation of patients’ and transplant surgeons’ priorities. Clinical Transplantation 2010, 25: 786-793. PMID: 20964716, PMCID: PMC4846340, DOI: 10.1111/j.1399-0012.2010.01342.x.Peer-Reviewed Original ResearchConceptsKidney qualityDonor kidneysTransplant surgeonsEvaluation of patientsMann-Whitney U testTransplant outcomesPatient characteristicsSpearman correlation coefficientPatient prioritiesWaiting listPatientsAvailable kidneysClinical practiceSurgeon rankingsKidneyU testSurgeonsCategorical variablesPatient autonomyComputer surveyCorrelation coefficientTransplantationFactorsGreat value
2008
Informed Consent Revisited: A Doctrine in the Service of Cancer Care
Schachter M, Fins J. Informed Consent Revisited: A Doctrine in the Service of Cancer Care. The Oncologist 2008, 13: 1109-1113. PMID: 18849321, DOI: 10.1634/theoncologist.2008-0101.Peer-Reviewed Original ResearchConceptsLegal obligationsPatients' rightsEthical dutyDecisional autonomyPatient autonomyDoctrineConsentInformed consentOngoing discussionsProtectionAutonomyTreatment enterpriseObligationsRightsDutyDominionComplianceCancer carePsychosocial concernsCommitmentPaternityTherapeutic endeavorsDoctorsPhysiciansClinical response
2004
Mental Capacity, Legal Competence and Consent to Treatment
Buchanan A. Mental Capacity, Legal Competence and Consent to Treatment. Journal Of The Royal Society Of Medicine 2004, 97: 415-420. DOI: 10.1177/014107680409700902.Peer-Reviewed Original Research
2003
What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics
Joffe S, Manocchia M, Weeks J, Cleary P. What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics. Journal Of Medical Ethics 2003, 29: 103. PMID: 12672891, PMCID: PMC1733711, DOI: 10.1136/jme.29.2.103.Peer-Reviewed Original ResearchConceptsHospital carePatients' overall evaluationCoordination of careLogistic regression analysisPatient autonomyCross-sectional surveyAvailability of staffPatient evaluationMAIN OUTCOMEPatient valuesHospitalCareHealth careSurvey recipientsRegression analysisTreatmentRandom samplePhysical comfortInvolvementOverall evaluationProvidersHospitalisationEvaluation
2001
Truth-Telling and Reciprocity in the Doctor-Patient Relationship: A North American Perspective
Fins J. Truth-Telling and Reciprocity in the Doctor-Patient Relationship: A North American Perspective. 2001, 81-94. DOI: 10.1093/oso/9780195132205.003.0006.Peer-Reviewed Original ResearchTruth-tellingDying patientsDoctor-patient relationshipNorth American perspectiveGlobal normsPhysician beneficencePatient autonomyAmerican practiceImportant life decisionsBioethics programGrave diagnosisLife decisionsAmerican perspectiveNorth American practiceBioethicsBeneficenceEthicsNormsTruthAutonomyProponentsDeceptionPatients
1993
Limits of Patient Autonomy: Physician Attitudes and Practices Regarding Life-Sustaining Treatments and Euthanasia
Fried T, Stein M, O'Sullivan P, Brock D, Novack D. Limits of Patient Autonomy: Physician Attitudes and Practices Regarding Life-Sustaining Treatments and Euthanasia. JAMA Internal Medicine 1993, 153: 722-728. DOI: 10.1001/archinte.1993.00410060032006.Peer-Reviewed Original ResearchPatient's requestPercent of respondentsPhysicians' attitudesClinical practicePatient autonomyDose of narcoticsLife-sustaining treatmentDifficult clinical decisionsLethal injectionLife-prolonging measuresRespiratory failureRespiratory compromiseIll patientsPatient deathPatientsPhysician's abilityClinical situationsClinical decisionMedical interventionsPhysiciansLife-sustaining medical interventionsDeathRespiratorsLife decisionsInjection
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