2025
Compassionate Extubation of Neurologic Patients in an ICU Versus Inpatient Hospice Setting
Lowe J, Lau W, Meeks N, Neale M, Drickamer M, Hwang D, Hanson L. Compassionate Extubation of Neurologic Patients in an ICU Versus Inpatient Hospice Setting. Journal Of Pain And Symptom Management 2025, 69: e586-e587. DOI: 10.1016/j.jpainsymman.2025.02.251.Peer-Reviewed Original ResearchPerceptions of careHospice settingCompassionate extubationHealthcare decision makersInpatient hospiceUniversity of North Carolina Medical CenterHospital settingHospice groupCaregiver perceptionsEnd-of-life careInpatient hospice settingHospice inpatient unitModels of careTrained research assistantsNeurological patientsHigh levels of satisfactionSemi-structured interviewsCaregiver outcomesBereavement servicesBereavement supportProvider communicationCompassionate careLevel of satisfactionQuality of communicationHospicePalliative care in acute care surgery: research challenges and opportunities
Maiga A, Ho V, Morris R, Kodadek L, Puzio T, Tominaga G, Tabata-Kelly M, Cooper Z. Palliative care in acute care surgery: research challenges and opportunities. Trauma Surgery & Acute Care Open 2025, 10: e001615. PMID: 40124208, PMCID: PMC11927415, DOI: 10.1136/tsaco-2024-001615.Peer-Reviewed Original ResearchAcute care surgeryPalliative care researchPalliative careCare researchEnd-of-life carePractice palliative carePalliative care interventionsPrimary palliative careSpecialty palliative careLife-prolonging careEnd-of-lifeRelief of sufferingQuality of lifeHigh-quality researchCare interventionsSymptom managementAdministrative dataAcute care surgeonsCareEmergency surgical conditionsSurgical illnessPrimary data collectionEffective communicationNarrative reviewCritical surgical illness
2024
EMERGENCY DEPARTMENT USE AND HEALTH CARE EXPENDITURES AMONG OLDER ADULTS AT END-OF-LIFE
Gettel C, Kitchen C, Rothenberg C, Song Y, Venkatesh A, Hastings S. EMERGENCY DEPARTMENT USE AND HEALTH CARE EXPENDITURES AMONG OLDER ADULTS AT END-OF-LIFE. Innovation In Aging 2024, 8: 43-43. PMCID: PMC11689632, DOI: 10.1093/geroni/igae098.0130.Peer-Reviewed Original ResearchEnd-of-lifeED visitsMedicare beneficiariesED useTerminal phase of lifeEnd-of-life careHealthcare spendingEmergency departmentMedicare Current Beneficiary SurveyEmergency department usePrimary outcomeOut-of-pocket (OOPTotal health care spendingCommunity serviceZero-inflated negative binomial regression modelsHealth care expendituresHealth care spendingTotal healthcare spendingNegative binomial regression modelsCross-sectional analysisAdult decedentsBinomial regression modelsDepartment useInadequate accessPhase of lifeIMPLEMENTATION OF COMMUNITY-BASED PALLIATIVE CARE: A SYSTEMATIC SCOPING REVIEW
Ho D, Dissault N, Vick J, Skalla L, Dukkipati H, Ma J, Kaufman B. IMPLEMENTATION OF COMMUNITY-BASED PALLIATIVE CARE: A SYSTEMATIC SCOPING REVIEW. Innovation In Aging 2024, 8: 233-233. PMCID: PMC11689857, DOI: 10.1093/geroni/igae098.0753.Peer-Reviewed Original ResearchCommunity-based palliative carePalliative careSystematic scoping reviewPerceived BarriersScoping ReviewProvider perspectiveEnd-of-life careSocial needs resourcesLeadership buy-inInter-provider communicationEnd-of-lifeReviewers screened articlesImprove quality of lifeQuality of lifePC teamIllness carePC educationCare partnersFramework synthesisProvider levelCategorize themesPractice settingsSpecialty clinicsNeeds resourcesProgram implementationPalliative Care and End-of-Life Care in Metastatic Pancreatic Cancer
O’Brien J, Halsey B, Connors M, Deng M, Handorf E, Berardi G, Lynch S, Sorice K, Reddy S, Meyer J, Bauman J, Dotan E. Palliative Care and End-of-Life Care in Metastatic Pancreatic Cancer. Journal Of Palliative Medicine 2024, 28: 217-223. PMID: 39636708, DOI: 10.1089/jpm.2024.0313.Peer-Reviewed Original ResearchEnd of lifeAggressive EOL carePalliative careDay of deathEOL carePC consultationIntegration of palliative careEnd of life careEnd-of-life careAssociated with worse qualityHealth care resourcesMetastatic pancreatic cancerQuality of lifePC teamAggressive careCare resourcesHospiceAverage length of timeTertiary cancer centerCareWorse qualityAverage timeCancer CenterBenefit patientsPancreatic cancerHarnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer
Lindsay M, de Oliveira S, Sciacca K, Lindvall C, Ananth P. Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer. JCO Clinical Cancer Informatics 2024, 8: e2400134. PMID: 39265122, PMCID: PMC11407740, DOI: 10.1200/cci.24.00134.Peer-Reviewed Original ResearchConceptsEnd-of-life carePalliative care consultationGoals of careLocation of deathProportion of decedentsDocumented discussionCare consultationEvidence-based quality measuresMeasure quality of careGold standard manual chart reviewQuality measuresQuality of careEnd of lifeContent of clinical notesLife-sustaining treatmentEnd-of-lifeManual chart reviewCancer decedentsEfficient quality measureCohort of childrenAssess qualityMulti-center researchQuality improvementMeasure qualityCareLeveraging an Electronic Health Record Patient Portal to Help Patients Formulate Their Health Care Goals: Mixed Methods Evaluation of Pilot Interventions
Naimark J, Tinetti M, Delbanco T, Dong Z, Harcourt K, Esterson J, Charpentier P, Walker J. Leveraging an Electronic Health Record Patient Portal to Help Patients Formulate Their Health Care Goals: Mixed Methods Evaluation of Pilot Interventions. JMIR Formative Research 2024, 8: e56332. PMID: 39207829, PMCID: PMC11393498, DOI: 10.2196/56332.Peer-Reviewed Original ResearchConceptsPatient portalsPatient prioritiesElectronic health record patient portalEnd-of-life carePatient Priorities CareFamily medicine practiceMixed methods evaluationHealth care goalsComplex medication regimensEnd-of-lifeMedian completion timeMedian session timePrevisit questionnaireCare goalsInvited patientsPilot interventionPriority careSession timeHealth priorityFocus groupsPhone interviewsYears of ageMedication regimensMedicine practiceEPIC questionnaireParent-Clinician Communication and Prolonged Grief in Parents Whose Child Died From Cancer
Ouyang N, Baker J, Ananth P, Knobf M, Snaman J, Feder S. Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died From Cancer. Journal Of Pain And Symptom Management 2024, 68: 516-524.e1. PMID: 39142495, DOI: 10.1016/j.jpainsymman.2024.08.003.Peer-Reviewed Original ResearchEnd-of-lifeParent-clinician communicationProlonged grief symptomsGrief symptomsChild's end-of-lifeCross-sectional survey of parents of childrenEnd-of-life careHigh-quality end-of-lifeProlonged griefSum scoreSurvey of parents of childrenCross-sectional surveyParents of childrenAdequate prognostic informationBereaved parentsPrognostic informationChild deathsParents' experiencesMultiple linear regressionPG-13Analyzed dataLinear regressionAssociationGriefChildrenSystemic Anticancer Therapy and Overall Survival in Patients With Very Advanced Solid Tumors
Canavan M, Wang X, Ascha M, Miksad R, Showalter T, Calip G, Gross C, Adelson K. Systemic Anticancer Therapy and Overall Survival in Patients With Very Advanced Solid Tumors. JAMA Oncology 2024, 10: 887-895. PMID: 38753341, PMCID: PMC11099840, DOI: 10.1001/jamaoncol.2024.1129.Peer-Reviewed Original ResearchNational Quality ForumQuintile 5Quintile 1Improve end-of-life careEnd-of-life careCohort studyNationwide population-based cohort studyPopulation-based cohort studyEnd of lifeElectronic health record databaseHealth care practicesColorectal cancerPopulation of patientsCox proportional hazards modelsAmerican Society of Clinical OncologyQuality ForumCare practicesOverall survivalPayment incentivesProportional hazards modelHighest quintileMultivariate Cox proportional hazards modelQuintileFlatiron HealthHazard ratioOpportunities to Improve End-of-Life Care Quality among Patients with Short Terminal Admissions
Sullivan D, Jones K, Wachterman M, Griffin H, Kinder D, Smith D, Thorpe J, Feder S, Ersek M, Kutney-Lee A. Opportunities to Improve End-of-Life Care Quality among Patients with Short Terminal Admissions. Journal Of Pain And Symptom Management 2024, 68: 329-339. PMID: 38810950, DOI: 10.1016/j.jpainsymman.2024.05.020.Peer-Reviewed Original ResearchEnd-of-lifeLife-limiting conditionsTerminal admissionPalliative careEnd-of-life care quality indicatorsEnd-of-life care qualityEnd-of-life careImprove end-of-lifeDepartment of Veterans Affairs (VAVA inpatient settingsVeterans Affairs (VACare quality indicatorsNon-cancer conditionsCare qualityInpatient decedentsHealthcare useVeteran decedentsAcute careNon-VAInpatient settingVA hospitalsShort admissionsCareLonger admissionsQuality indicatorsA Natural Language Processing Study to Assess Quality of End-of-Life Care for Children with Cancer (RP215)
Lindsay M, De Oliveira S, Ward D, Sciacca K, Lindvall C, Ananth P. A Natural Language Processing Study to Assess Quality of End-of-Life Care for Children with Cancer (RP215). Journal Of Pain And Symptom Management 2024, 67: e763. DOI: 10.1016/j.jpainsymman.2024.02.425.Peer-Reviewed Original ResearchEnd-of-life careGoals of care discussionsEnd-of-lifePalliative care consultationLocation of deathProportion of decedentsNatural language processingCode status limitationsCancer decedentsHospice discussionCare discussionsCare consultationDocumented goals of care discussionsEnd-of-life care qualityEvidence-based process measuresKeyword libraryLanguage processingElectronic health recordsManual chart abstractionMonths of lifeQuality measuresRule-based natural language processingCare qualityNatural language processing technologyNatural language processing studies
2023
Assessment of health-care workers' attitudes, knowledge, and skills in the care of critically ill Muslim children in New York.
Ijaz N, Hassan A, Ghannoum S, Choudhury T, Piracha N. Assessment of health-care workers' attitudes, knowledge, and skills in the care of critically ill Muslim children in New York. Palliative & Supportive Care 2023, 22: 1-6. PMID: 37443426, DOI: 10.1017/s1478951523001049.Peer-Reviewed Original ResearchHealth-care workersMuslim patientsEducational interventionEnd-of-life careHealth-care workers knowledgeAppropriate care deliveryPotential educational interventionsCulturally competent careCare deliveryCompetent careImprove careAppropriate carePediatric intensive care unitWorkers' knowledgeInstitutional resourcesElectronic surveyCareNew York CityIntensive care unitWritten materialsTraining moduleParticipantsInterventionCare unitYork CityPalliative care referral criteria and application in pediatric illness care: A scoping review
Carney K, Goodrich G, Lao A, Tan Z, Kiza A, Cong X, Hinderer K. Palliative care referral criteria and application in pediatric illness care: A scoping review. Palliative Medicine 2023, 37: 692-706. PMID: 36971413, DOI: 10.1177/02692163231163258.Peer-Reviewed Original ResearchConceptsPalliative care needsPalliative care referralUnmet palliative care needsPediatric palliative care servicesPalliative care servicesCare needsCare referralReferral criteriaIllness careCare servicesScoping ReviewImprove palliative care accessEnd-of-life careRates of service usePalliative care accessPalliative care teamAcute care needsEnd-of-lifePopulation-specific interventionsCare management needsContent analysis approachProspective cohort studyUnmet careCare teamCare access
2021
Is Deliberative Democracy Possible During a Pandemic? Reflections of a Bioethicist
Fins J. Is Deliberative Democracy Possible During a Pandemic? Reflections of a Bioethicist. Journal Of Theoretical And Philosophical Psychology 2021, 41: 216-225. DOI: 10.1037/teo0000191.Peer-Reviewed Original ResearchNew York State Task Force on LifeDeliberative democracyPhysician-assisted suicideProcess of deliberative democracySurrogate decision makingTask ForceAbdication of responsibilityInterface of medicineCrisis standards of careEnd-of-life careDeliberative bodiesEnd-of-lifeVentilator allocationLawAssisted reproductionLandmark reportInterdisciplinary spaceBrain deathDemocracyCOVID-19Health equityVaccine allocationNewborn carePolicy deliberationsPandemic flu
2019
Disorders of Consciousness in Clinical Practice
Fins J. Disorders of Consciousness in Clinical Practice. 2019, 449-478. DOI: 10.1093/med/9780190208875.003.0011.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifeLong-term careImpaired decision-making capacityDisorders of consciousnessClinical practiceDecision-making capacityAncillary care obligationsVulnerable populationsProfessional obligationsCareMinimally conscious stateNeuroimaging assessmentsIntensive careCare obligationsDiagnostic classificationBrain injuryCommunication strategiesCovert consciousnessClinicInitial presentationConscious stateEthical implicationsPatientsRehabilitation
2017
My Time in Medicine
Fins J. My Time in Medicine. Perspectives In Biology And Medicine 2017, 60: 19-32. PMID: 28890446, DOI: 10.1353/pbm.2017.0016.Peer-Reviewed Original Research
2016
Neuroethics and Disorders of Consciousness: Discerning Brain States in Clinical Practice and Research
Fins J. Neuroethics and Disorders of Consciousness: Discerning Brain States in Clinical Practice and Research. The AMA Journal Of Ethic 2016, 18: 1182. PMID: 28009244, DOI: 10.1001/journalofethics.2016.18.12.ecas2-1612.Peer-Reviewed Original ResearchConceptsDisorders of consciousnessMinimally conscious stateEnd-of-life careConscious stateEnd-of-lifeEthical obligationNeuropalliative careDeep brain stimulationPatientsBrain statesClinicians' ethical obligationsClinical practiceCivil rightsConsciousnessScientific advancesDiagnostic discernmentClinical researchBrain stimulationResearch decisionsDisordersFunctional communicationInvestigate useCareNeuroethicsPain
2013
Clinical Ethics Consultation in Oncology
Shuman A, Montas S, Barnosky A, Smith L, Fins J, McCabe M. Clinical Ethics Consultation in Oncology. JCO Oncology Practice 2013, 9: 240-245. PMID: 23943899, DOI: 10.1200/jop.2013.000901.Peer-Reviewed Original ResearchConceptsClinical ethics consultationEthics consultationNational Cancer Institute-designated comprehensive cancer centerCancer Institute-designated comprehensive cancer centerEnd-of-life careDo-not-resuscitate ordersOverall goals of carePalliative care expertsPalliative care consultationGoals of carePatient casesEnd-of-lifeComprehensive cancer centerCare consultationCode statusSources of interpersonal conflictAdvance directivesCare expertsStaff educationSurrogate decisionPatient's wishesMedical futilityOncology populationCommunication lapsesClinical care
2012
Clinical ethics consultation in oncology.
Shuman A, Montas S, Barnosky A, Smith L, Kissane D, Fins J, McCabe M. Clinical ethics consultation in oncology. Journal Of Clinical Oncology 2012, 30: 9121-9121. DOI: 10.1200/jco.2012.30.15_suppl.9121.Peer-Reviewed Original ResearchClinical ethics consultationEthics consultationGoals of careCode statusEnd-of-life careOverall goals of careInvolvement of palliative careNCI-designated Comprehensive Cancer CenterPalliative care consultationPalliative care involvementPatient's code statusSurrogate decision-makersEnd of lifeEnd-of-lifeComprehensive cancer centerSystem improvementSources of interpersonal conflictAdult oncology patientsMedical futilityCare consultationPalliative careAdvance directivesCare involvementEthicsChart abstractionImproving end-of-life care for head and neck cancer patients
Shuman A, Fins J, Prince M. Improving end-of-life care for head and neck cancer patients. Expert Review Of Anticancer Therapy 2012, 12: 335-343. PMID: 22369325, DOI: 10.1586/era.12.6.Peer-Reviewed Original ResearchConceptsEnd-of-life experiencesHead and neck cancer patientsEnd-of-lifeNeck cancer patientsImprove end-of-life careEnd-of-life carePalliative care team involvementTerminal head and neck cancer patientsHead and neck cancerCancer patientsQuality of lifeNeck cancerClinical decision-makingPractice improvementTeam involvementSymptom controlEthical challengesPatient populationTreatment of head and neck cancerRelevant dataDecision-makingPatientsCancerCareProactive consideration
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