2025
At-home Breast Oncology care Delivered with EHealth solutions (ABODE) study protocol: a randomised controlled trial
Mac A, Kalia M, Reel E, Amir E, Isenberg A, Kim R, Kennedy E, Koch C, Li M, McCready D, Metcalfe K, Okrainec A, Papadakos J, Rotstein S, Rodin G, Xu W, Zhong T, Cleland J, Forbes R, Easson A, Escallon J, Haykal S, Jarvis S, Leong W, McCuaig J, Santa Mina D, Peck L, Reedijk M, Sarvanantham S, Schaffer D, Thain E, Walimohamed F, Cil T. At-home Breast Oncology care Delivered with EHealth solutions (ABODE) study protocol: a randomised controlled trial. BMJ Open 2025, 15: e091579. PMID: 40345693, PMCID: PMC12067776, DOI: 10.1136/bmjopen-2024-091579.Peer-Reviewed Original ResearchConceptsRandomised controlled trialsPatient activationStandard careEHealth solutionsCancer care continuumPatient-reported outcome measuresHealth service outcomesBreast cancerMeasuring patient activationControlled TrialsAmbulatory care servicesTertiary care cancer centreMonths post-diagnosisIn-person servicesPatient-reported outcomesMeasured waiting timePeer-reviewed journalsQuality of lifeCare continuumCare servicesIntervention groupHealthcare deliveryRemote carePatient programmeIndividualised supportInsights into the morbidity profiles of epidemiologically excluded COVID-19 patients in primary care settings during the third wave of the pandemic in the Anuradhapura District, Sri Lanka
Abeyrathna P, Agampodi S, Samaranayake S, Pushpakumara P. Insights into the morbidity profiles of epidemiologically excluded COVID-19 patients in primary care settings during the third wave of the pandemic in the Anuradhapura District, Sri Lanka. BMC Primary Care 2025, 26: 95. PMID: 40181290, PMCID: PMC11967136, DOI: 10.1186/s12875-025-02792-3.Peer-Reviewed Original ResearchConceptsPrivate primary care facilitiesPrimary care settingMorbidity profilePrimary careCare settingsInternational Classification of Primary CareAnuradhapura districtDelivery of healthcare servicesHealthcare-seeking patternsPrimary care servicesPrimary care facilitiesCOVID-19 patientsPrimary care encountersNature of illnessBackgroundThe COVID-19 pandemicInstitution-based studyCOVID-19 pandemicCare encountersCare servicesPrivate sectorHealthcare seekersAnuradhapura district of Sri LankaComprehensive careHealthcare servicesCare facilitiesAbsence of care among community-dwelling older adults with dementia and functional limitations
Lin Z, Qian Y, Gill T, Hou X, Allore H, Chen S, Chen X. Absence of care among community-dwelling older adults with dementia and functional limitations. Nature Aging 2025, 5: 548-557. PMID: 40097773, PMCID: PMC12003173, DOI: 10.1038/s43587-025-00836-y.Peer-Reviewed Original ResearchConceptsActivities of daily livingFormal careDaily livingFunctional limitationsInstrumental activitiesInstrumental activities of daily living limitationsActivities of daily living limitationsInstrumental activities of daily livingLongitudinal survey dataCommunity-dwelling older adultsDaily living limitationsRegional development levelAbsence of careCare availabilityCare gapsSurvey dataCare servicesOlder adultsAdequate careEuropean countriesCareVulnerable populationsDevelopment levelInformation supportDementiaResearch Priorities in Neuropalliative Care
Lau W, Fehnel C, Macchi Z, Mehta A, Auffret M, Bogetz J, Fleisher J, Graber J, Leeper H, Manglani-Terranova H, Muehlschlegel S, Mroz E, Pedowitz E, Ramanathan U, Sarmet M, Shlobin N, Sokol L, Weeks S, Xu J, Medsger H, Creutzfeldt C, Vranceanu A, Zahuranec D, Hwang D. Research Priorities in Neuropalliative Care. JAMA Neurology 2025, 82: 295-302. PMID: 39899319, DOI: 10.1001/jamaneurol.2024.4932.Peer-Reviewed Original ResearchConceptsNeuropalliative careCare partnersIntegration of palliative careSpecialty palliative care servicesGoal-concordant carePalliative care servicesInterdisciplinary panel of expertsArea of practiceImprove quality of lifeQuality of lifePalliative careCare interventionsCare servicesPanel of expertsDelivery modelsPriority research areasCareInterdisciplinary panelImprove qualityCare SocietyResearch prioritiesResearch funding mechanismsResearch CommitteeSpecialized communicationNeurological diseasesCharacteristics and Healthcare Utilization Among Aging Veterans in Supported Housing: A Comparison With Independently Housed Age-Matched Veterans
Beydoun H, Szymkowiak D, Kinney R, Jones A, Tsai J. Characteristics and Healthcare Utilization Among Aging Veterans in Supported Housing: A Comparison With Independently Housed Age-Matched Veterans. The Gerontologist 2025, 65: gnaf001. PMID: 39758051, DOI: 10.1093/geront/gnaf001.Peer-Reviewed Original ResearchHealthcare utilizationHealthcare needsHoused veteransSupportive housingU.S. Department of Veterans Affairs (VA) healthcare systemDepartment of Veterans Affairs (VA) healthcare systemVeterans Affairs (VA) healthcare systemPatterns of healthcare utilizationHoused counterpartsMental health morbidityInpatient care servicesInpatient healthcare utilizationOutpatient medical servicesPermanent supportive housingCorporate Data WarehouseCross-sectional analysisLogistic regression modelsOlder veteransCare servicesHealth morbidityAging veteransHealthcare servicesSubstance use disordersMedical servicesReduce barriers
2024
DEVELOPMENT OF A TRAINING MODEL WITHIN HOSPICE AND PALLIATIVE CARE FOR NURSE PRACTITIONERS
Laffer A, Kumar C, Shamas T, Gillespie-Heyman S, Podosek A, Ruskin A. DEVELOPMENT OF A TRAINING MODEL WITHIN HOSPICE AND PALLIATIVE CARE FOR NURSE PRACTITIONERS. Innovation In Aging 2024, 8: 962-963. PMCID: PMC11691278, DOI: 10.1093/geroni/igae098.3101.Peer-Reviewed Original ResearchNurse practitionersPalliative careWorkforce shortagesInterprofessional palliative care teamVA Community Living CentersVeterans AdministrationPalliative care trainingPalliative care servicesPalliative care teamCommunity Living CentersQuality improvement projectDeliver high-qualityAcademic medical centerInterprofessional teamworkPrimary careCare teamCare trainingClinical care responsibilitiesCare servicesInterprofessional learningClinical hoursHospiceLiving CentersClinician skillsImprovement projectDEVELOPING A CULTURALLY TAILORED INTERVENTION FOR AFRICAN AMERICAN PARENT–ADULT DAUGHTER DEMENTIA DYADS
Johnson K, Lyons K, Monin J, Daniel G, Powell W, Hepburn K. DEVELOPING A CULTURALLY TAILORED INTERVENTION FOR AFRICAN AMERICAN PARENT–ADULT DAUGHTER DEMENTIA DYADS. Innovation In Aging 2024, 8: 569-570. PMCID: PMC11691074, DOI: 10.1093/geroni/igae098.1865.Peer-Reviewed Original ResearchOlder adultsQuality of lifeSuperwoman SchemaDementia dyadsNon-Hispanic White older adultsAfrican American older adultsModerate quality of lifeCare decision-making processWhite older adultsHealth care servicesAmerican older adultsAdult daughtersAssociated health disparitiesAfrican American personsModerate cognitive impairmentMaintenance of quality of lifeExplanatory sequential designCare partnersHealth disparitiesPrototype interventionTailored interventionsCare decisionsCare servicesIntervention developmentModerate qualityBurden of non-communicable diseases due to population ageing in China: challenges to healthcare delivery and long term care services
Lv Y, Fan L, Zhou J, Ding E, Shen J, Tang S, He Y, Shi X. Burden of non-communicable diseases due to population ageing in China: challenges to healthcare delivery and long term care services. The BMJ 2024, 387: e076529. PMID: 39424307, PMCID: PMC11484826, DOI: 10.1136/bmj-2023-076529.Peer-Reviewed Original ResearchComparison of clinical pharmacist practitioners’ headache care roles across clinical contexts within the Veterans Health Administration: Optimizing pharmacist integration
Goldman R, Damush T, Guirguis A, Datre O, Baird S, Sico J. Comparison of clinical pharmacist practitioners’ headache care roles across clinical contexts within the Veterans Health Administration: Optimizing pharmacist integration. Headache The Journal Of Head And Face Pain 2024, 65: 631-642. PMID: 39269026, DOI: 10.1111/head.14834.Peer-Reviewed Original ResearchVeterans Health AdministrationClinical pharmacist practitionersVHA facilitiesHeadache careCare teamEnhance patient outcomesPharmacist practitionersSpecialist servicesHealth AdministrationPracticing pharmacistsQualitative studyCross-sectional qualitative studyAdvanced practice pharmacistBehavior change skillsPatient outcomesSpecialty care servicesNon-formulary medicationsReading of transcriptsPharmacist integrationPrimary carePain teamCaring roleCare servicesHeadache neurologistPhysician educationCommunication trends over time in new-onset refractory status epilepticus (NORSE): Interim analysis from the NORSE/FIRES Family Registry
Kazazian K, Gaspard N, Hirsch L, Kellogg M, Hocker S, Wong N, Farias-Moeller R, Eschbach K, Gofton T. Communication trends over time in new-onset refractory status epilepticus (NORSE): Interim analysis from the NORSE/FIRES Family Registry. Epilepsy & Behavior 2024, 160: 110023. PMID: 39241640, DOI: 10.1016/j.yebeh.2024.110023.Peer-Reviewed Original ResearchPalliative care servicesFamily RegistryCare servicesImprove overall carePrognostic conversationsAcute hospitalsOverall careEpidemiological informationConsensus definitionPhysician-patient-family relationshipRegistryNORSE/FIRESMinority of patientsPrognostic informationSatisfactionFamilySystematic effortRecovery processServicesCarePatientsHospitalPrevalenceQualityEpilepsy syndromesAdaptation of a Theory-Based Mobile App to Improve Access to HIV Prevention Services for Transgender Women in Malaysia: Focus Group Study
Gautam K, Shrestha R, Dlamini S, Razali B, Paudel K, Azwa I, Saifi R, Toh Y, Lim H, Sutherland R, Restar A, Phanuphak N, Wickersham J. Adaptation of a Theory-Based Mobile App to Improve Access to HIV Prevention Services for Transgender Women in Malaysia: Focus Group Study. JMIR Formative Research 2024, 8: e56250. PMID: 39137407, PMCID: PMC11350319, DOI: 10.2196/56250.Peer-Reviewed Original ResearchHIV prevention servicesTransgender womenFocus groupsPrEP uptakePreventive servicesCare servicesHIV preventionFG sessionsBarriers to PrEP uptakeUptake of HIV pre-exposure prophylaxisHIV pre-exposure prophylaxisTailored HIV preventionMobile appsReduce HIV vulnerabilityPre-exposure prophylaxisFocus group studyPrEP knowledgeTheater testingDedoose softwareMobile healthMultifaceted barriersDeliver interventionsHIV vulnerabilityPrEP barriersWomen's needsReal‐world impacts from a decade of Quality Enhancement Research Initiative‐partnered projects to translate the Diabetes Prevention Program in the Veterans Health Administration
Damschroder L, Hamilton A, Farmer M, Bean‐Mayberry B, Richardson C, Chanfreau C, Oberman R, Lesser R, Lewis J, Raffa S, Goldstein M, Haskell S, Finley E, Moin T. Real‐world impacts from a decade of Quality Enhancement Research Initiative‐partnered projects to translate the Diabetes Prevention Program in the Veterans Health Administration. Health Services Research 2024, 59: e14349. PMID: 38967218, PMCID: PMC11540559, DOI: 10.1111/1475-6773.14349.Peer-Reviewed Original ResearchDiabetes Prevention ProgramVeterans Health AdministrationDiabetes prevention servicesVA sitesPreventive servicesPrevention programsWomen veteransHealth AdministrationEvidence-based lifestyle interventionType 2 diabetesOnline diabetes prevention programObesity prevention effortsNational care guidelinesLifestyle change programPreventive care servicesHealth of womenNational evidence baseGender-tailoredCare servicesCare guidelinesVA MOVELifestyle interventionPhysical healthIn-personPrevention effortsFunctional disability and receipt of informal care among Chinese adults living alone with cognitive impairment
Liu X, Li C, Jin S, Cao X, Hoogendijk E, Han L, Xu X, Allore H, Feng Q, Zhang Q, Liu Z. Functional disability and receipt of informal care among Chinese adults living alone with cognitive impairment. Experimental Gerontology 2024, 194: 112490. PMID: 38876449, DOI: 10.1016/j.exger.2024.112490.Peer-Reviewed Original ResearchActivities of daily livingBurden of functional disabilityInformal careFunctional disabilityActivities of daily living disabilityCognitive impairmentChinese adultsInstrumental Activities of Daily Living (IADLReceipt of informal careNormal cognitionLong-term care servicesIADL disabilityInstrumental activitiesMobility disabilityProvision of long-term care servicesChina HealthFunctional healthCare servicesDaily livingMatched comparatorsOdds ratioMonthly hoursVulnerable subpopulationsCareDisabilityMeasuring Access to Mental Health Services Among Primary Care Patients
Hargraves J, Cosenza C, Cleary P. Measuring Access to Mental Health Services Among Primary Care Patients. Medical Care 2024, 62: 559-566. PMID: 38842445, PMCID: PMC11226347, DOI: 10.1097/mlr.0000000000002029.Peer-Reviewed Original ResearchConceptsConsumer Assessment of Healthcare Providers and SystemsMental health servicesPrivately insured respondentsMental health medicinesHealth servicesHealth medicineHealth careAssessment of Healthcare Providers and SystemsHealthcare Providers and SystemsRisk of mental health disordersMental health prescriptionsPatient experience surveysPrimary care servicesPrimary care patientsMental health carePrimary care settingBehavioral health careMental health medicationsMental health disordersInternal consistency reliabilityStratified probability sampleMeasure accessAdequate internal consistency reliabilityCare settingsCare servicesSocial Determinants of Health in Dementia
Hendrie K, Tampi R, Jeste D, Joshi P. Social Determinants of Health in Dementia. American Journal Of Geriatric Psychiatry 2024, 32: s7. DOI: 10.1016/j.jagp.2024.01.048.Peer-Reviewed Original ResearchSocial determinants of healthDeterminants of healthSocial determinantsDeterminants of dementiaAcute care servicesLonger time to diagnosisNon-medical factorsPrevalence of Alzheimer's diseaseEthnic minority groupsAnti-dementia therapyPublic health problemCare servicesTime to diagnosisSDOHHispanic AmericansPersonal healthDementiaHealth problemsHealthMinority groupsUnhealthy environmentPublic policy fieldSocial connectionsPolicy fieldsAmericanCommunity-based active-case finding for tuberculosis: navigating a complex minefield
MacPherson P, Shanaube K, Phiri M, Rickman H, Horton K, Feasey H, Corbett E, Burke R, Rangaka M. Community-based active-case finding for tuberculosis: navigating a complex minefield. BMC Global And Public Health 2024, 2: 9. PMID: 39681899, PMCID: PMC11622870, DOI: 10.1186/s44263-024-00042-9.Peer-Reviewed Original ResearchActive case findingCommunity-based active case-findingCommunity-based ACFImpact of active case findingChest X-ray screeningPrimary care servicesPublic health practitionersHealth system participantsScale-up of treatmentRisk of TBElimination of TBStructural risk factorsHealth promotionPopulation-level impactScreening guidelinesSynthesise evidenceX-ray screeningCare servicesHigh-burden countriesHealth servicesHealth practitionersEffective scale-upCase findingEvidence baseTB transmissionGrowing Concern About Unsheltered Homelessness Among Veterans: Clinical Characteristics and Engagement in Health Care Services
Kinney R, Szymkowiak D, Tsai J. Growing Concern About Unsheltered Homelessness Among Veterans: Clinical Characteristics and Engagement in Health Care Services. Public Health Reports 2024, 139: 582-590. PMID: 38323557, PMCID: PMC11344986, DOI: 10.1177/00333549241227155.Peer-Reviewed Original ResearchUnsheltered homelessnessHomeless ProgramHomeless veteransVA homeless programsMilitary sexual traumaVeterans AffairsPublic health approachVeteran homelessnessCollege educationHousing instabilityVA service-connected disabilityHomeless populationHealth care servicesSheltered statusUS Department of Veterans AffairsHomelessnessDepartment of Veterans AffairsHierarchical multivariable logistic regressionService-connected disabilityCorporate Data WarehouseSexual traumaCare servicesRepeated-measures analysisMultivariate logistic regressionHealth approach
2023
Care integration goes Beyond Co-Location: Creating a Medical Home
Flanagan E, Wyatt J, Pavlo A, Kang S, Blackman K, Ocasio L, Guy K, O’Connell M, Bellamy C. Care integration goes Beyond Co-Location: Creating a Medical Home. Administration And Policy In Mental Health And Mental Health Services Research 2023, 51: 123-133. PMID: 38015324, DOI: 10.1007/s10488-023-01317-3.Peer-Reviewed Original ResearchConceptsPrimary care centersMental health centerCare integrationMedical homeHealth centersMental healthMental health center staffCommunity mental health centerPrimary care servicesPeer health navigationUrban northeastern cityMedical recordsMortality of peopleCo-located servicesStudy investigates integrationHealth navigatorsPrimary careCare servicesOn-line surveyMental illnessFocus groupsCareCare centerStaffTreating peopleValidation of the Portuguese version of the supportive care needs survey short-form questionnaire (SCNS-SF34-Pt) and the breast cancer supplementary module (SCNS-BR8-Pt)
Mendes-Santos C, Nóbrega C, Quinta-Gomes A, Weiderpass E, Santana R, Andersson G. Validation of the Portuguese version of the supportive care needs survey short-form questionnaire (SCNS-SF34-Pt) and the breast cancer supplementary module (SCNS-BR8-Pt). Journal Of Psychosocial Oncology 2023, 42: 486-505. PMID: 37975563, DOI: 10.1080/07347332.2023.2282015.Peer-Reviewed Original ResearchUnmet supportive care needsBreast cancer survivorsSupportive care needsFear of cancer spreadingCare needsCancer survivorsSupportive Care Needs Survey-Short Form 34Sample of breast cancer survivorsSupportive care servicesLack of energy/tirednessDaily living needsPatient Health QuestionnaireShort-form questionnaireSingle-factor structureHealth QuestionnaireCare servicesHealth systemKnown-groupsPatient supportFour-factor solutionPortuguese versionPsychometric propertiesConvergent validityCancer spreadLiving needs“It has to be better, otherwise we will get stuck.” A Review of Novel Directions for Mental Health Reform and Introducing Pilot Work in the Netherlands
van Os J, Scheepers F, Milo M, Ockeloen G, Guloksuz S, Delespaul P. “It has to be better, otherwise we will get stuck.” A Review of Novel Directions for Mental Health Reform and Introducing Pilot Work in the Netherlands. Clinical Practice And Epidemiology In Mental Health 2023, 19: e17450179271206. PMID: 38680529, PMCID: PMC11046893, DOI: 10.2174/0117450179271206231114064736.Peer-Reviewed Original ResearchMental health careHealth careEnhance public mental healthDutch mental health care systemMental health care servicesMental health care systemIntegrated public health approachHigh-quality careMental health reformHealth care consumptionHealth care servicesPublic health approachHealth care systemMental health problemsSmall area indicatorsPublic mental healthSocial care organizationsPopulation-based approachGroup-based treatmentEcosystem of careRecovery CollegesEmpower patientsCare servicesHealthcare providersCare consumption
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