2023
Easing Suffering for ICU Patients and Their Families: Evidence and Opportunities for Primary and Specialty Palliative Care in the ICU
Doherty C, Feder S, Gillespie-Heyman S, Akgün K. Easing Suffering for ICU Patients and Their Families: Evidence and Opportunities for Primary and Specialty Palliative Care in the ICU. Journal Of Intensive Care Medicine 2023, 39: 715-732. PMID: 37822226, DOI: 10.1177/08850666231204305.Peer-Reviewed Original ResearchSurrogate decision makersPalliative needsCritical illnessICU patientsPalliative medicineIntensive care unit admissionChronic critical illnessPalliative medicine teamsPost-ICU disabilitySpecialty palliative careCare unit admissionTransitions of careImprovement of patientsAdvanced practice nursesFamily-centered carePerson-centred careUnit admissionICU carePalliative supportPalliative carePractice nursesPalliative principlesMedicine teamPatientsICU
2022
Experiences of Medical Interpreters During Palliative Care Encounters With Limited English Proficiency Patients: A Qualitative Study
Latif Z, Makuvire T, Feder S, Abrahm J, Pinzon P, Warraich H. Experiences of Medical Interpreters During Palliative Care Encounters With Limited English Proficiency Patients: A Qualitative Study. Journal Of Palliative Medicine 2022, 26: 784-789. PMID: 36516127, PMCID: PMC11079501, DOI: 10.1089/jpm.2022.0320.Peer-Reviewed Original ResearchConceptsPalliative care encountersPalliative care involvementPalliative careCare of patientsLimited English proficiencyCare encountersCare involvementLEP patientsLimited English proficiency patientsPalliative care utilizationPoor patient understandingMedical interpretersAcademic medical centerCare utilizationMedical CenterPatient understandingTreatment goalsPatientsSerious illnessTreatment planMean experienceCareSuboptimal timingInvolvementQualitative studyThe Quality of Telehealth-Delivered Palliative Care During the Initial COVID-19 Pandemic Surge (S530)
Soliman A, Akgün K, Coffee J, Kapo J, Morrison L, Blatt L, Schulman-Green D, Feder S. The Quality of Telehealth-Delivered Palliative Care During the Initial COVID-19 Pandemic Surge (S530). Journal Of Pain And Symptom Management 2022, 63: 921-922. PMCID: PMC9001042, DOI: 10.1016/j.jpainsymman.2022.02.153.Peer-Reviewed Original ResearchPC consultationDiscussion of goalsPalliative carePandemic surgeSerious illnessFamily understandingCOVID-19 pandemic surgeLarge hospitalsInitial pandemic surgeInpatient PC consultationsQuality of telehealthPercent of patientsPalliative care servicesPrimary cancer diagnosisAssessment of patientsEarly COVID-19 pandemicCOVID-19 infection ratesCOVID-19 ratesElectronic health recordsMedian timePC servicesMean ageInitial consultationInterdisciplinary carePatientsCHALLENGES FACING HEART FAILURE PATIENTS WITH LIMITED ENGLISH PROFICIENCY: A QUALITATIVE ANALYSIS LEVERAGING MEDICAL INTERPRETERS’ PERSPECTIVES
Latif Z, Makuvire T, Feder S, Garan A, Pinzon P, Warraich H. CHALLENGES FACING HEART FAILURE PATIENTS WITH LIMITED ENGLISH PROFICIENCY: A QUALITATIVE ANALYSIS LEVERAGING MEDICAL INTERPRETERS’ PERSPECTIVES. Journal Of The American College Of Cardiology 2022, 79: 566. DOI: 10.1016/s0735-1097(22)01557-1.Peer-Reviewed Original Research
2021
Palliative Care During a Pandemic
Feder S, Schulman-Green D, Akgün K. Palliative Care During a Pandemic. Respiratory Medicine 2021, 345-372. DOI: 10.1007/978-3-030-81788-6_18.Peer-Reviewed Original ResearchCare deliveryLung diseasePalliative careSevere acute respiratory syndromeChronic lung diseasePalliative care deliveryAcute respiratory syndromeDisease careRespiratory pathogensRespiratory syndromeFamily caregiversHealthcare providersPrevious pandemicsCarePatient autonomyDiseasePalliative communicationVirus pandemicPandemicDeliveryPatientsProvidersSyndromeCaregivers
2020
Palliative care strategies offer guidance to clinicians and comfort for COVID-19 patient and families
Feder S, Akgün KM, Schulman-Green D. Palliative care strategies offer guidance to clinicians and comfort for COVID-19 patient and families. Heart & Lung 2020, 49: 227-228. PMID: 32307120, PMCID: PMC7128096, DOI: 10.1016/j.hrtlng.2020.04.001.Commentaries, Editorials and LettersNational trends in palliative care use among older adults with cardiopulmonary and malignant conditions
Feder SL, Jean RA, Bastian L, Akgün KM. National trends in palliative care use among older adults with cardiopulmonary and malignant conditions. Heart & Lung 2020, 49: 370-376. PMID: 32115242, PMCID: PMC7305962, DOI: 10.1016/j.hrtlng.2020.02.004.Peer-Reviewed Original ResearchEnd-of-Life Care Quality Varies Among Facilities in the Department of Veterans Affairs for Patients with Heart Failure (S732)
Feder S, Ersek M, Kutney-Lee A, Luhrs C, Bastian L, Akgun K. End-of-Life Care Quality Varies Among Facilities in the Department of Veterans Affairs for Patients with Heart Failure (S732). Journal Of Pain And Symptom Management 2020, 59: 546-547. DOI: 10.1016/j.jpainsymman.2019.12.294.Peer-Reviewed Original Research
2019
Perspectives of Patients in Identifying Their Values‐Based Health Priorities
Feder SL, Kiwak E, Costello D, Dindo L, Hernandez‐Bigos K, Vo L, Geda M, Blaum C, Tinetti ME, Naik AD. Perspectives of Patients in Identifying Their Values‐Based Health Priorities. Journal Of The American Geriatrics Society 2019, 67: 1379-1385. PMID: 30844080, PMCID: PMC6612577, DOI: 10.1111/jgs.15850.Peer-Reviewed Original ResearchConceptsPrimary care providersHealth priorityTreatment optionsPatients' perceptionsCare providersOlder adultsSelection of patientsSpecific patient characteristicsMultiple chronic conditionsPerspectives of patientsClinical characteristicsMost patientsPatient characteristicsPatient activationMean ageInvolvement of familyPatient interviewsChronic conditionsFacilitator contactDisease processFacilitation visitsPatientsCaregiver involvementHealth-related tasksHealthcare goals
2018
Integrating Family Caregivers into Palliative Oncology Care Using the Self- and Family Management Approach
Schulman-Green D, Feder S. Integrating Family Caregivers into Palliative Oncology Care Using the Self- and Family Management Approach. Seminars In Oncology Nursing 2018, 34: 252-263. PMID: 30143346, DOI: 10.1016/j.soncn.2018.06.006.Peer-Reviewed Original ResearchConceptsPalliative oncology careOncology careFamily caregiversFamily caregiver involvementNumber of interventionsCaregiver goalsPalliative oncologyCancer careIllness needCaregiver involvementFamily management approachesFamily Management FrameworkNursing practiceCareCaregiversInvolvementOngoing communicationPatientsCancerNursesOncologyPatients' and oncologists' views on family involvement in goals of care conversations
Lin JJ, Smith CB, Feder S, Bickell NA, Schulman‐Green D. Patients' and oncologists' views on family involvement in goals of care conversations. Psycho-Oncology 2018, 27: 1035-1041. PMID: 29315989, DOI: 10.1002/pon.4630.Peer-Reviewed Original ResearchConceptsGOC conversationsAdvanced cancerCare conversationsEffects of cancerFamily involvementCancer patient treatmentFamily membersOncologist's perspectivePalliative careOncologists' viewsMunicipal HospitalPatient understandingPhysician perspectivesPatientsPhysician educationOncologistsPatient treatmentCancerInterpretive descriptionPatients' emotionsFamily supportInvolvementTreatmentMembers' feelingsFamily expectations
2017
Oncologists’ experiences with goals of care conversations.
Smith C, Solomon R, Lin J, Feder S, Bickell N, Schulman-Green D. Oncologists’ experiences with goals of care conversations. Journal Of Clinical Oncology 2017, 35: 50-50. DOI: 10.1200/jco.2017.35.31_suppl.50.Peer-Reviewed Original ResearchGOC conversationsGOC discussionsCare conversationsYounger patient ageGoals of careActive patient participationCommunication training interventionsASCO guidelinesEnd of lifePatient ageAdvanced cancerCare discussionsPatient's failurePatients' beliefsOncologists' experiencesTreatment goalsPatient participationCancer severityCare plansRural hospitalsOncologistsPatientsCommunication interventionsInterpretive descriptionTraining intervention“They Need to Have an Understanding of Why They're Coming Here and What the Outcomes Might Be.” Clinician Perspectives on Goals of Care for Patients Discharged From Hospitals to Skilled Nursing Facilities
Feder SL, Britton M, Chaudhry SI. “They Need to Have an Understanding of Why They're Coming Here and What the Outcomes Might Be.” Clinician Perspectives on Goals of Care for Patients Discharged From Hospitals to Skilled Nursing Facilities. Journal Of Pain And Symptom Management 2017, 55: 930-937. PMID: 29097273, DOI: 10.1016/j.jpainsymman.2017.10.013.Peer-Reviewed Original ResearchMeSH KeywordsAttitude of Health PersonnelContinuity of Patient CareFamilyHealth CommunicationHealth Knowledge, Attitudes, PracticeHospital AdministratorsHumansInterviews as TopicNursesPatient Care PlanningPatient DischargePhysiciansProfessional-Patient RelationsQualitative ResearchSkilled Nursing FacilitiesSocial WorkersConceptsSkilled nursing facilitiesAcute care hospitalsSNF careHospital readmissionCare hospitalHospitalized patientsClinician's perspectiveNursing facilitiesUnplanned hospital readmissionGoals of careNumber of patientsExperience poor outcomesPoor patient outcomesGOC conversationsSNF cliniciansUnrealistic patientPoor outcomeGOC discussionsTreatment optionsPatient goalsPatient outcomesCare continuumPatient dissatisfactionDisease processPatients
2014
How to create a successful cancer self-management intervention: Development, evaluation, and lessons learned.
Goldberg J, Hinchey J, Feder S, Schulman-Green D. How to create a successful cancer self-management intervention: Development, evaluation, and lessons learned. Journal Of Clinical Oncology 2014, 32: 168-168. DOI: 10.1200/jco.2014.32.31_suppl.168.Peer-Reviewed Original ResearchBreast cancer patientsSMS interventionCancer patientsNon-metastatic breast cancer patientsMetastatic breast cancer patientsNon-metastatic patientsMedian ratingSelf-management interventionsFrequency of useNon-metastatic samplesSymptoms ModuleMetastatic patientsCancer carePatientsReal-world settingCare optionsIntervention efficacyAssessment interviewsInterventionAdditional revisionsPopulation sampleCancerDescriptive statisticsFocus group dataPilot testing