2004
Differences in Health-Related Quality of Life and Treatment Preferences Among Black and White Patients with End-Stage Renal Disease
Hicks LS, Cleary PD, Epstein AM, Ayanian JZ. Differences in Health-Related Quality of Life and Treatment Preferences Among Black and White Patients with End-Stage Renal Disease. Quality Of Life Research 2004, 13: 1129-1138. PMID: 15287279, DOI: 10.1023/b:qure.0000031350.56924.cc.Peer-Reviewed Original ResearchConceptsEnd-stage renal diseaseRenal transplantationPhysical activityRenal diseaseWhite patientsEffect of ESRDOverall healthWhite womenWhite menHealth-related qualityMeasures of HRQLRacial differencesBetter overall healthQuality of lifeBlack womenBlack menBetter HRQLClinical characteristicsBlack patientsHRQL measuresPotential confoundersPatient preferencesTreatment preferencesPatientsAge 18Physicians’ beliefs about racial differences in referral for renal transplantation
Ayanian JZ, Cleary PD, Keogh JH, Noonan SJ, David-Kasdan JA, Epstein AM. Physicians’ beliefs about racial differences in referral for renal transplantation. American Journal Of Kidney Diseases 2004, 43: 350-357. PMID: 14750101, DOI: 10.1053/j.ajkd.2003.10.022.Peer-Reviewed Original ResearchMeSH KeywordsAdultAsianAttitude of Health PersonnelBlack or African AmericanHealth Services AccessibilityHumansKidney Failure, ChronicKidney TransplantationMiddle AgedNephrologyPatient Acceptance of Health CarePhysician-Patient RelationsQuality of LifeReferral and ConsultationSurvival RateUnited StatesWhite PeopleConceptsRenal transplantationWhite patientsPatient-physician communicationBlack patientsQuality of lifeRacial differencesEnd-stage renal diseaseNephrologist's viewComorbid illnessesRenal diseaseTreatment optionsPatient preferencesPhysician biasPhysicians' beliefsPatientsPhysicians' viewsTransplantationPhysiciansCareSurvivalImportant reasonUS regionsNephrologistsDifferencesReferral
2001
Adjusting for Patient Characteristics When Analyzing Reports From Patients About Hospital Care
Hargraves J, Wilson I, Zaslavsky A, James C, Walker J, Rogers G, Cleary P. Adjusting for Patient Characteristics When Analyzing Reports From Patients About Hospital Care. Medical Care 2001, 39: 635-641. PMID: 11404646, DOI: 10.1097/00005650-200106000-00011.Peer-Reviewed Original ResearchConceptsPatient characteristicsHospital careHealth statusPatient-reported problemsCoordination of careTypes of patientsSample of patientsQuality improvement effortsInvolvement of familyPatient genderPatient preferencesHospital differencesPatientsHospital staffPhysical careConsistent associationHospitalHospital rankingsCareTelephone surveyImportant predictorEducation levelEmotional supportReportPresent data
1999
The Effect of Patients' Preferences on Racial Differences in Access to Renal Transplantation
Ayanian J, Cleary P, Weissman J, Epstein A. The Effect of Patients' Preferences on Racial Differences in Access to Renal Transplantation. New England Journal Of Medicine 1999, 341: 1661-1669. PMID: 10572155, DOI: 10.1056/nejm199911253412206.Peer-Reviewed Original ResearchConceptsEnd-stage renal diseaseRenal transplantationBlack patientsPatient preferencesRenal diseaseWhite patientsRacial differencesRate of referralPerceptions of careSubstantial racial differencesEligible patientsRenal failureTransplantation centersDialysis therapyMaintenance treatmentWaiting listPatientsTransplantationDialysis facilitiesHealth statusMedical careSociodemographic characteristicsStratified random sampleWhite womenWhite menThe Stability of Preferences for Life-sustaining Care among Persons with AIDS in the Boston Health Study
Weissman J, Haas J, Fowler F, Gatsonis C, Massagli M, Seage G, Cleary P. The Stability of Preferences for Life-sustaining Care among Persons with AIDS in the Boston Health Study. Medical Decision Making 1999, 19: 16-26. PMID: 9917016, DOI: 10.1177/0272989x9901900103.Peer-Reviewed Original ResearchConceptsLife-sustaining careCardiac resuscitationPatient preferencesBoston Health StudyPredictors of instabilityMedical record reviewLife-extending careSite of careHealth care providersHealth care settingsHypothetical health statesLife-extending treatmentsProgressive diseaseRecord reviewPhysical functionPatient surveyClinical severityEligible personsCare settingsCare providersHealth StudyPatientsHealth statusResuscitationCare
1993
Discussion of Preferences for Life-Sustaining Care by Persons With AIDS: Predictors of Failure in Patient-Physician Communication
Haas J, Weissman J, Cleary P, Goldberg J, Gatsonis C, Seage G, Fowler F, Massagli M, Makadon H, Epstein A. Discussion of Preferences for Life-Sustaining Care by Persons With AIDS: Predictors of Failure in Patient-Physician Communication. JAMA Internal Medicine 1993, 153: 1241-1248. DOI: 10.1001/archinte.1993.00410100067010.Peer-Reviewed Original ResearchHealth maintenance organizationPatient-physician communicationLife-sustaining careStaff-model health maintenance organizationInternal medicine group practiceUse of zidovudineSeverity of illnessPredictors of failureLife-sustaining therapySite of careMajority of personsDiscussion of preferencesPrivate teaching hospitalNonwhite physiciansHospitalization statusAIDS clinicImmunodeficiency syndromePatient interviewsPatient preferencesTeaching hospitalPatient's desireResuscitationPatientsClinical decisionLogistic regressionDiscussion of preferences for life-sustaining care by persons with AIDS. Predictors of failure in patient-physician communication.
Haas J, Weissman J, Cleary P, Goldberg J, Gatsonis C, Seage G, Fowler F, Massagli M, Makadon H, Epstein A. Discussion of preferences for life-sustaining care by persons with AIDS. Predictors of failure in patient-physician communication. JAMA Internal Medicine 1993, 153: 1241-8. PMID: 8494476, DOI: 10.1001/archinte.153.10.1241.Peer-Reviewed Original ResearchConceptsLife-sustaining careHealth maintenance organizationPatient-physician communicationStaff-model health maintenance organizationInternal medicine group practiceUse of zidovudineSeverity of illnessPredictors of failureLife-sustaining therapySite of careMajority of personsDiscussion of preferencesPrivate teaching hospitalNonwhite physiciansHospitalization statusAIDS clinicImmunodeficiency syndromePatient interviewsPatient preferencesTeaching hospitalPatient's desireResuscitationPatientsClinical decisionLogistic regression
1992
Using patient reports to assess hospital treatment of persons with AIDS: A pilot study
Cleary P, Fahs M, McMullen W, Fulop G, Strain J, Sacks H, Muller C, Foley M, Stein E. Using patient reports to assess hospital treatment of persons with AIDS: A pilot study. AIDS Care 1992, 4: 325-332. PMID: 1525203, DOI: 10.1080/09540129208253102.Peer-Reviewed Original ResearchConceptsAIDS unitsPilot studyGeneral medical bedsGeneral hospital bedsMajor teaching hospitalQuality of careEfficient medical careHIV infectionPain managementHospital treatmentInvolvement of familyPatient preferencesPatient educationTeaching hospitalDifferent treatment modelsHospital carePatient reportsUS hospitalsMedical carePatient carePatientsPhysical careAIDS knowledgeHospital bedsCare