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Stigma and Substance Use Disorder - the Silent Killer | December 14, 2021

February 10, 2022
  • 00:30So good afternoon I'm David Fiellin
  • 00:32and I'm director of the Yale
  • 00:34Program in Addiction medicine.
  • 00:36I wanted to welcome you to today's talk
  • 00:38and are finding solutions to the opioid
  • 00:41crisis speaker series in collaboration
  • 00:43with the Sandgaard Foundation.
  • 00:45We're joined today by Gary Mendell,
  • 00:48who is the founder and CEO of
  • 00:50Shatterproof who will speak on the topic.
  • 00:52Stigma and substance use disorder,
  • 00:55the silent killer.
  • 00:57Before we get started,
  • 00:58we just want to review a
  • 01:00few housekeeping items
  • 01:01on the following slides.
  • 01:05As a reminder, you can learn more about
  • 01:07the Yale program and addiction medicine
  • 01:09and access the Finding solution series
  • 01:11to the opioid crisis speaker series
  • 01:14by visiting addictionmedicine.yale.edu.
  • 01:17Following our program and the Sandgaard
  • 01:20Foundation on Twitter @YaleADM
  • 01:23or @SandgaardFnd and joining
  • 01:26our program listserv by emailing
  • 01:29emma.biegacki@yale.edu
  • 01:34If you be live tweeting today's talk,
  • 01:37be sure to tag us and include the event,
  • 01:39hashtag, #findingsolutions
  • 01:43and #bandtogether.
  • 01:46To participate in today's session,
  • 01:48use the chat box to tag US.
  • 01:51I'm sorry, use the chat box to
  • 01:53share comments and observations
  • 01:55with your fellow attendees,
  • 01:57and post your questions in the Q&A box.
  • 02:01Finally, CME credit is available for
  • 02:04today's event and to receive credit,
  • 02:07please text the code
  • 02:1030847 to the phone number in red.
  • 02:13This information will be provided in the
  • 02:15chat at the beginning of the session.
  • 02:19We'd like to acknowledge the Sandgaard
  • 02:22Foundation for assistance and support
  • 02:24of today's talk, and I'd like to
  • 02:26introduce you to Kyle Henderson,
  • 02:27who's the Executive director of
  • 02:29the Sandgaard Foundation, Kyle.
  • 02:32Thank you so much David.
  • 02:34Honor to be aligned with the old
  • 02:36program and addiction medicine
  • 02:37on this wonderful initiative.
  • 02:39It's been incredible speaker
  • 02:40series this year and we're ending
  • 02:43it on a wonderful high note.
  • 02:45Get Gary Mendell shatterproof,
  • 02:48who's wonderful human being that's got
  • 02:50an incredible story to share and some
  • 02:53incredible insights as it relates to stigma.
  • 02:55Our story starts about 25 years ago.
  • 02:57Thomas Sandgaard founded Zynex
  • 02:59Medical to publicly traded medically.
  • 03:02Medical device company that
  • 03:03helps with pain management.
  • 03:04So we get people off of addictive.
  • 03:07Potentially lethal painkilling
  • 03:09drugs such as oxy etc.
  • 03:12And that's our exclusive focus on the
  • 03:16Sandgaard Foundation and but really what?
  • 03:19That helps people do is get away
  • 03:22from these addictive painkilling
  • 03:24drugs without any side effects etc.
  • 03:26So we've all lost people in our
  • 03:29lives that are very close to us
  • 03:31from this tragic epidemic.
  • 03:33And again, this is our number
  • 03:35one focus on the foundation side,
  • 03:37so we've helped to distribute
  • 03:39over half a million units.
  • 03:40Of naloxone to recovery
  • 03:42homes and hospitals around the
  • 03:44country since January 1st.
  • 03:46We've been helping with sober concerts,
  • 03:48some funding, some films,
  • 03:50and really broadening horizons.
  • 03:51So if you have any ideas for
  • 03:53the Sandgaard Foundation,
  • 03:54please don't hesitate to reach out.
  • 03:56I also run Thomas's investment group,
  • 03:59so we own a football club in England
  • 04:01so it's a little plug for that,
  • 04:03but we do help the club with opiate
  • 04:07related pain issues as well,
  • 04:09so it's it's.
  • 04:10It's very much a part of our
  • 04:12culture on this end and we're so
  • 04:13excited to hear from Gary today,
  • 04:15so Gary thank you for joining us and Yale.
  • 04:18Thank you for all your help with
  • 04:19this wonderful speaker series.
  • 04:22Thank you tile.
  • 04:23So now it's my honor to introduce
  • 04:26Gary Mendell, who's the founder and
  • 04:29CEO of Shatterproof Shatterproof,
  • 04:30is a national nonprofit focused
  • 04:32on reversing the course of the
  • 04:35addiction crisis in America.
  • 04:36Mr Mendell received his bachelor's
  • 04:38degree from Cornell University School
  • 04:40of Hotel Management and his MBA with
  • 04:43distinction from the Wharton School
  • 04:45at the University of Pennsylvania.
  • 04:47He founded ATI Hotels and Resorts
  • 04:50and his former trustee and president
  • 04:52of the Starwood Lodging Trust.
  • 04:55It's really true that that business
  • 04:57world experience gives him a unique
  • 05:00perspective in running a nonprofit
  • 05:02organization like Shatterproof
  • 05:03since founding shatterproof in 2012.
  • 05:06Gary has been a national leader
  • 05:08in the addiction space,
  • 05:09creating solutions that will create
  • 05:11more access to treatment for
  • 05:12opioid and substance use disorders,
  • 05:15including the creation of the
  • 05:17shatterproof national principles
  • 05:18of care to guide providers,
  • 05:20payers and patients to quality treatment.
  • 05:24He advocates for state and
  • 05:26federal policy changes,
  • 05:27and most recently launched the
  • 05:29national strategy and call to action
  • 05:31to address stigma related to the
  • 05:33opioid and substance use disorders
  • 05:35that you will hear more about today.
  • 05:38Personal note what has impressed me
  • 05:40most about Gary and Shatterproof's
  • 05:42work is the extent to which they have
  • 05:44taken a laser focus on the untapped key
  • 05:46levers of change in the field of addiction.
  • 05:49These include evidence employers and payers
  • 05:54quality transparent access and stigma,
  • 05:58as you will hear today.
  • 05:59History is how of how an outsider
  • 06:02became an insider and decided enough
  • 06:05was was enough and how he'd erupted,
  • 06:07disrupted the business as usual.
  • 06:09Model for the better.
  • 06:11Gary,
  • 06:12thank you for speaking
  • 06:13with us today.
  • 06:15David, thank you, Emma.
  • 06:18Thank you, Tyler.
  • 06:20Thank you for all the all the
  • 06:23support of the Scanguard Foundation.
  • 06:26And for this event for Yale and
  • 06:30all of you, not only bringing.
  • 06:33Awareness right now and attention to the
  • 06:36addiction crisis in the United States.
  • 06:38But also for solutions.
  • 06:42For solutions through this
  • 06:44speaker series finding solutions.
  • 06:47Speaker series sponsored by Yale
  • 06:51in the Sand Garden Foundation.
  • 06:53And I also want to acknowledge and
  • 06:56appreciate the Scanguard Foundation
  • 06:57and the Hartford for all their
  • 07:00support from for these initiatives,
  • 07:02for shatterproof in the Yale
  • 07:04Program in Addiction Medicine.
  • 07:06So thank you all for having
  • 07:08me and their support.
  • 07:10And I'm honored to be here.
  • 07:13I'd like to begin by telling
  • 07:15you one story of two boys.
  • 07:18Boys were growing up in a small
  • 07:20town where I was raising my family.
  • 07:22Eastern Connecticut the year is 2004.
  • 07:26And both boys were in high school.
  • 07:30The first Mikey was diagnosed with cancer.
  • 07:34As you'd expect, his family was devastated.
  • 07:38However, they were easily able to access
  • 07:41the highest quality medical care.
  • 07:43All based on science.
  • 07:46Mikey's parents told their friends
  • 07:48about what Mikey was struggling with.
  • 07:51And I remember it like it was yesterday.
  • 07:53Our entire town rallied
  • 07:55behind Mikey and his family.
  • 07:57Fear, excuse me.
  • 08:00Pair families came to their
  • 08:04home with cooked meals.
  • 08:05Drove carpools and the kids in our element.
  • 08:09Our elementary school held bake
  • 08:11sales on the weekends for Mikey
  • 08:13and his new charity for cancer.
  • 08:18In the whole time Mikey was sick.
  • 08:20He received all the love and
  • 08:22compassion that anyone with the
  • 08:24disease could ever ask for.
  • 08:29Or two streets away.
  • 08:31My son Brian was also
  • 08:34struggling with the disease.
  • 08:36But for Brian and our family.
  • 08:38It was so different.
  • 08:40Like Mikey's parents,
  • 08:42we look for medical care for our son.
  • 08:45But unlike Mikey's parents,
  • 08:46we couldn't find treatment
  • 08:48that was based on science.
  • 08:52Unlike Mikey's parents,
  • 08:54I didn't tell any of our friends
  • 08:56with Brian was struggling with.
  • 08:58To be honest. I was embarrassed.
  • 09:02I felt ashamed as a father
  • 09:05as a like a failure.
  • 09:07And our community didn't rally behind us.
  • 09:11No cook meals, no carpools.
  • 09:14But even worse. Unlike Mikey,
  • 09:18when he came home from treatment,
  • 09:20he found a welcoming community with kids
  • 09:23with bake sales to raise money for him.
  • 09:26When Brian came home to visit.
  • 09:29There were no bake sales.
  • 09:31There was no welcoming community.
  • 09:34It was just silence.
  • 09:36The disease my son struggle
  • 09:38with with addiction.
  • 09:42A little bit more about my son.
  • 09:45When he was born. He was.
  • 09:48He was the Simon I'd always dreamed of.
  • 09:52Always smiling, always hugging me,
  • 09:55my little companion.
  • 09:58And as he grew into a young boy,
  • 10:00he did many of the things
  • 10:02that young boys do.
  • 10:03He used to like play in his room
  • 10:05with his little trucks forever.
  • 10:07Or run around the backyard
  • 10:09chasing butterflies.
  • 10:12And then as he grew into a teenager,
  • 10:14he did many of the things that teenagers do.
  • 10:17Including trying beer, wine and pot.
  • 10:22However, for Brian,
  • 10:23that's where things changed.
  • 10:27His use escalated. And he needed
  • 10:30to go to treatment where he went.
  • 10:32In over 8 years he went to 8
  • 10:35different treatment programs and
  • 10:36his use escalated tragically into
  • 10:39harder and harder drugs. Eight years,
  • 10:42eight different treatment programs.
  • 10:44Every treatment program was the same.
  • 10:49Not one of them treated my son.
  • 10:52It's with treatment protocols
  • 10:53that were based on silence,
  • 10:55so excuse me based on science.
  • 10:59However, there was one difference
  • 11:01between another difference
  • 11:02between Mikey and Brian.
  • 11:04When Mikey was going to treatment
  • 11:06based on that was based on science,
  • 11:09that's what he was battling his disease.
  • 11:12When Brian was going to treatment.
  • 11:15Going to treatment programs that were
  • 11:17not following science based practices.
  • 11:19He was also battling something else.
  • 11:22Shame stigma.
  • 11:26When I think back on those years.
  • 11:29There were some good times
  • 11:30and there were some bad.
  • 11:31There were times that Brian wouldn't listen.
  • 11:34But there were other times that Brian
  • 11:36went at it with so much enthusiasm.
  • 11:40I remember so many good times and I also
  • 11:43remember one time I visit him I visited him
  • 11:46in Florida at a treatment program he was at.
  • 11:49I flew in really late the night before.
  • 11:53And the next morning I set my alarm
  • 11:55early early to be honest with you
  • 11:57I I just wanted to watch him sleep.
  • 12:00I hadn't seen him in five months.
  • 12:03So I walked into his bedroom at
  • 12:067:00 o'clock in the morning.
  • 12:08And he surprised me he was already up,
  • 12:10especially if he knew Brian.
  • 12:11He was up 7:00 o'clock.
  • 12:13I walked into his room,
  • 12:14and when he heard me come in.
  • 12:16He looked up at me with that big
  • 12:18smile of his 'cause when I walked in.
  • 12:20He was laying there on his bed flipping
  • 12:22through the pages of his treatment book.
  • 12:24He heard me looked up at me
  • 12:26and he smiled and said, dad?
  • 12:28Don't worry. I got this.
  • 12:31I'm going to beat it.
  • 12:34But addiction always doesn't work that way.
  • 12:37On October 20th, 2011.
  • 12:40I was waking up in the middle of
  • 12:42the night by my cell phone, right?
  • 12:44When I picked it up,
  • 12:45I was told that my son had just died.
  • 12:49He was 25 years old.
  • 12:52And he hadn't used a substance in 13 months.
  • 12:56Equally tragic.
  • 12:59It wasn't just addiction that
  • 13:01took my son's life.
  • 13:03It was the feeling of shame.
  • 13:05He had every morning when he opened his eyes.
  • 13:10Of all day long.
  • 13:12Being looked at.
  • 13:13As the other kid who wouldn't
  • 13:15try hard enough.
  • 13:19It caused him to wake up that morning.
  • 13:21Research suicide notes.
  • 13:23Write a note of his own.
  • 13:26Integ his own life. Alone.
  • 13:33And ever since that day, I've continually
  • 13:35asked myself the same question.
  • 13:37If both boys had a disease,
  • 13:39why the story is so vastly different?
  • 13:43Science tells us that addiction is a disease
  • 13:45just like any other its causes or genetic,
  • 13:48biological and or environmental.
  • 13:51How many most of our society disagrees?
  • 13:55They say those with this
  • 13:57disease have a character flaw.
  • 13:58And they and their families.
  • 14:01Or isolated? Judged stigmatized.
  • 14:06And silenced.
  • 14:09The answer to my question.
  • 14:11Mikey was a patient.
  • 14:13And Brian was an outcast.
  • 14:20Two weeks later, after my bride,
  • 14:22after my son passed away.
  • 14:26My wife came into our bedroom
  • 14:28and found me crying on the bed.
  • 14:30I thanked her for having
  • 14:32frame the serenity prayer and
  • 14:34placing it on my night stand.
  • 14:36And I told her that the only
  • 14:38thing that was keeping me alive.
  • 14:40Was reading that first sentence
  • 14:42over and over again.
  • 14:44God grant me the serenity to
  • 14:47accept what I just can't change.
  • 14:51Brian would not be coming home.
  • 14:56However, as the weeks went on.
  • 14:59I began to read and think
  • 15:01about that second sentence.
  • 15:03The courage to be able to
  • 15:05change the things that we can.
  • 15:10The wisdom to know the difference.
  • 15:13And as I did so, I began
  • 15:15to focus on 2 questions.
  • 15:18What could I have done
  • 15:20differently as a father?
  • 15:22And what could be done to spare
  • 15:23other families of the tragedy
  • 15:25that our family had suffered?
  • 15:29And with Brian in my heart.
  • 15:32It took time away from my business
  • 15:34and I traveled the country for three
  • 15:36months in search of answers to those
  • 15:39two questions. And as I did so.
  • 15:42I learned so much that I hadn't
  • 15:45learned when Brian was alive.
  • 15:47I learned how pervasive this disease was.
  • 15:51Over 20 million Americans with a
  • 15:54substance use disorder. Third large,
  • 15:57which is 1/4 of American families.
  • 15:59Excuse me, one quarter of American
  • 16:01families, mother, father,
  • 16:02son or daughter were more than one.
  • 16:07I also learned it's a third
  • 16:08largest cause of death in this
  • 16:10country behind heart and cancer.
  • 16:12Third largest. And it was growing
  • 16:16every year and no one seemed to care.
  • 16:21I also learned that it's
  • 16:23mostly about our children.
  • 16:25Eight out of 10 of those addicted.
  • 16:29Weird **** have been become addicted before.
  • 16:31They're eight had become addicted
  • 16:33before their 18th birthday.
  • 16:34Not 100% but 80%.
  • 16:38Because their brains are
  • 16:40not fully developed and not,
  • 16:41and those teenagers don't have the
  • 16:44ability to protect themselves and we as
  • 16:47a society are just letting it happen.
  • 16:51But the next thing I learned was the worst.
  • 16:55I wrote on a piece of paper the word tragic.
  • 16:59When I wrote that word, I remember it
  • 17:01like it was just like a minute ago.
  • 17:03It was like my son had
  • 17:06just died all over again.
  • 17:08I learned that our federal government had
  • 17:11provided grants of 10s of billions of dollars
  • 17:14to researchers all all across the globe.
  • 17:17And those researchers had successfully
  • 17:20used that funding and created
  • 17:22this wonderful body of knowledge.
  • 17:24Knowledge it had proven without any
  • 17:27doubt to randomly control trials.
  • 17:30Be able to significantly prevent
  • 17:31many of our loved ones from ever
  • 17:33developing the disease of addiction.
  • 17:38And also knowledge I had proven without any
  • 17:41doubt also the randomly controlled trials.
  • 17:45To be able to significantly
  • 17:47improve outcomes for those who
  • 17:49had developed this disease.
  • 17:51Get all this information was sitting
  • 17:53in peer reviewed medical journals.
  • 17:55All the researchers knew it.
  • 17:57And hardly any of it is being implemented.
  • 18:01I read and learn about,
  • 18:03learned about information that
  • 18:05could have saved my son's life.
  • 18:08And literally hundreds of
  • 18:09thousands of others.
  • 18:11It had if it had only been implemented.
  • 18:13If I had known about it.
  • 18:17Implemented in our healthcare system,
  • 18:18our communities and our families.
  • 18:22And in a businessman from a businessman,
  • 18:24I looked at it in two ways.
  • 18:26Work from a career in business one?
  • 18:28How could this be?
  • 18:30How could all this information
  • 18:33sitting there not being used?
  • 18:35But I also saw an opportunity.
  • 18:39An opportunity to get this
  • 18:41information out there and save lives.
  • 18:45Information existed today that
  • 18:47could start saving lives tomorrow.
  • 18:49In all we needed to do was get
  • 18:53it implemented. And from this.
  • 18:56Of vision began to emerge.
  • 19:00That our society would look this
  • 19:02disease straight in the eye,
  • 19:03prevent it and treat it with
  • 19:06programs based on science.
  • 19:09Without any shame, judgment,
  • 19:11or stigma.
  • 19:15And seeing this vision.
  • 19:18I soon left my business and have
  • 19:19dedicated the rest of my life
  • 19:21to this cause and from this our
  • 19:23organization shatterproof was born.
  • 19:29As I speak to you now. I miss
  • 19:34my son horribly. All the time.
  • 19:40And I now know that if I had
  • 19:43better understood this disease.
  • 19:45He might have died, nor had uttered
  • 19:48more potentially many others.
  • 19:51But even worse, far worse for me.
  • 19:57Is now better understanding shame and
  • 20:00stigma than I did when he was alive.
  • 20:03And thinking about what he felt.
  • 20:06The last eight years of his life.
  • 20:10It kills me greatly.
  • 20:15However. In many respects many respects.
  • 20:21I feel wonderfully blessed.
  • 20:24I've had the opportunity meet so many
  • 20:26wonderful people all across our country.
  • 20:29Hundreds of thousands have now
  • 20:30joined with us, dozens of states,
  • 20:33hundreds of companies,
  • 20:35and together together.
  • 20:36We are making our vision a reality.
  • 20:41So with that. I'd love to show you
  • 20:45a short video that brings to life.
  • 20:47Some of the people that have joined with us.
  • 21:05I think we need to add the sound Emma.
  • 21:10I apologize about that. Give me
  • 21:11one second and I will re share it.
  • 21:21This is why we do audio tests.
  • 21:26Let go.
  • 21:47While we are rightly focusing much of
  • 21:49our nation's energy on coronavirus,
  • 21:51this is not the only health
  • 21:53crisis we are battling.
  • 21:54Unfortunately, across the nation,
  • 21:56drug overdose deaths are
  • 21:58rising among the coronavirus.
  • 22:00Negating much of the
  • 22:01progress that we made over
  • 22:02the last several
  • 22:18Dear Brian, dear Greg, Michael honey,
  • 22:20from the moment you were born.
  • 22:22You were the sweetest kid.
  • 22:24You brought us such joy and happiness.
  • 22:26Thank you for those 29 years.
  • 22:36We have a vision, but our society will
  • 22:38look this disease straight in the eye,
  • 22:41prevent it and treat it with
  • 22:43love and empathy. And with protocols
  • 22:46based on science.
  • 23:12We are coming together to increase
  • 23:13awareness and funding for the prevention,
  • 23:15treatment and recovery of this disease.
  • 23:17I'm repelling from my son, Paul.
  • 23:19I'm repelling from my dad,
  • 23:20I'm repelling from my sister-in-law.
  • 23:24Go shatterproof.
  • 23:27We are here for friends.
  • 23:29We are here for family.
  • 23:32We are here for community
  • 23:33and we are here to bring the
  • 23:36disease of addiction out of the
  • 23:39darkness and into the light.
  • 23:58My older son Brian struggled with addiction
  • 24:00for eight years and during that time he
  • 24:04went to 8 different treatment programs.
  • 24:06Each one was different after Brian's death.
  • 24:09I was haunted. What could be done to
  • 24:13spare other families from this tragedy?
  • 24:14Shatterproof is currently developing
  • 24:16public databases and multiple states that,
  • 24:19if successful, will allow the
  • 24:21public to identify, evaluate,
  • 24:22and compare substance use treatment programs.
  • 24:26I would like to extend my appreciation
  • 24:28to President Bill Clinton,
  • 24:30Chelsea Clinton and their
  • 24:32Health matters initiative.
  • 24:33I'm very grateful to be here today
  • 24:35at a critical time to talk about
  • 24:39why we must tackle this issue.
  • 24:41In what Congress must do
  • 24:43to tackle this issue,
  • 24:44we need to start treating people
  • 24:45in this country, not jailing them.
  • 24:47We need to give them the
  • 24:49tools they need to recover,
  • 24:50because every life is precious.
  • 24:53Every life is an individual gift
  • 24:55from God and we have to stop
  • 24:58judging and start getting them
  • 24:59the tools they need to get better.
  • 25:00I don't think about this issue as a public
  • 25:03official or as a health care guide.
  • 25:05I think about it as a father.
  • 25:06I've talked to people who've
  • 25:08been in the middle of this.
  • 25:10They're among the grittiest and
  • 25:12gutsiest people I've ever met,
  • 25:13and they deserve our respect
  • 25:16and our love and our support.
  • 25:18Let's create that world that
  • 25:20Brian didn't see.
  • 25:21Let's create that world for the next
  • 25:23young man that comes along the next
  • 25:25young woman that comes along the next family.
  • 25:28Let's drag addiction out of
  • 25:30the shadows into our hearts.
  • 25:33I can't imagine a more perfect
  • 25:36expression of humanity.
  • 25:37Thank you.
  • 26:07So am I. You can move right on to
  • 26:10the next slide. That would be great.
  • 26:13Perfect thank you. So thank you everyone.
  • 26:17I mean I just I just feel so blessed
  • 26:20to be side by side with so many
  • 26:23wonderful people all across our country.
  • 26:25Thank you. As you can see here,
  • 26:29our work falls into three
  • 26:30areas that we have focused on.
  • 26:33Number one is transforming
  • 26:34the treatment system.
  • 26:35United States #2 is educating our
  • 26:39families and #3 ending addiction stigma.
  • 26:43And I'm really proud to say that our
  • 26:46work is not only saving lives today.
  • 26:49But we're changing the system.
  • 26:51We're changing the way that addiction
  • 26:53will be prevented and treated.
  • 26:55For generations.
  • 26:56For our children, our great grandchildren.
  • 27:01Our great, great grandchildren.
  • 27:04So as I mentioned,
  • 27:06three areas related to transforming
  • 27:08addiction treatment.
  • 27:09We are doing several things.
  • 27:11We are working with states to
  • 27:13adopt A payment model that has
  • 27:16proven to improve outcomes by 50%.
  • 27:19We are also working with the United
  • 27:21States Senators and Rep and House
  • 27:24representatives for national standard
  • 27:25for the education of healthcare
  • 27:27provision professionals and the
  • 27:29prevention and treatment of addiction.
  • 27:31If signed into law.
  • 27:34This will bring addiction treatment
  • 27:36into our health care system finally.
  • 27:40We have also developed our nation's
  • 27:43first ever. National quality system.
  • 27:45National quality measurement
  • 27:47system for addiction treatment.
  • 27:49In this next short video will
  • 27:52provide you an overview of our
  • 27:54quality measurement system Atlas.
  • 28:01Addiction is a treatable chronic
  • 28:04disease like diabetes or asthma
  • 28:06and similar to other diseases.
  • 28:08Personalized addiction treatment based
  • 28:10on science is shown to help people
  • 28:13manage their disease and enter recovery,
  • 28:15but you may not know what type of
  • 28:18treatment you need and searching for
  • 28:20quality care can be overwhelming.
  • 28:22When faced with misleading advertisements
  • 28:24and other confusing information,
  • 28:26it's hard to know who to trust
  • 28:28and what treatment works best.
  • 28:30The national nonprofit Shatterproof has
  • 28:32created Atlas to help you navigate to
  • 28:36the care that meets your specific needs.
  • 28:38Database and transparency is the
  • 28:41type of information that American
  • 28:44families deserve to have,
  • 28:47and they deserve to have it.
  • 28:48Now.
  • 28:48When you're ready to search,
  • 28:50you can use Atlas to sort through addiction
  • 28:53treatment by factors important to you,
  • 28:55like location, services and insurance,
  • 28:58and payment options.
  • 29:00Experts agree that certain practices
  • 29:02should be used when treating addiction.
  • 29:04Atlas displays information on whether
  • 29:07facilities offer these best practices.
  • 29:10We also make it easy for patients
  • 29:12to leave feedback on their
  • 29:14experiences at the facilities.
  • 29:16And display this information
  • 29:18to support your care decision.
  • 29:20As you explore options,
  • 29:22compare up to three facilities
  • 29:25side-by-side to help choose
  • 29:27treatment that is best for you.
  • 29:29Among many others,
  • 29:30I lost three of my friends to
  • 29:32overdose all from the same sober
  • 29:34living in the San Fernando Valley.
  • 29:37And now I think,
  • 29:38what if they had some access to
  • 29:41something like Atlas in 2014?
  • 29:43It's not a new idea.
  • 29:44Shatterproof is finally doing it,
  • 29:46and they're doing it right.
  • 29:49I imagine my departed friends,
  • 29:52having had a universal starting point.
  • 29:55When they might have used to
  • 29:57pinpoint a path to true recovery,
  • 29:59and they might still be here.
  • 30:02We've got to stop losing people
  • 30:04this way and we are going to
  • 30:06stop losing people this way.
  • 30:08And Atlas is absolutely going to help.
  • 30:11At Shatter proof,
  • 30:12our goal is to help you find care that
  • 30:15best meets your needs and leads to
  • 30:17improved health and long term recovery.
  • 30:19We are also invested in supporting
  • 30:21the addiction treatment system in
  • 30:23aligning with these best practices.
  • 30:25Ultimately, this will save lives.
  • 30:29Atlas is the first resource of
  • 30:31its kind to help those seeking
  • 30:33additional addiction treatments
  • 30:36helps them to find high quality
  • 30:38care and appropriate care.
  • 30:40It was launched in six states.
  • 30:42I'm happy to say West Virginia
  • 30:44was one of them, with the hopes
  • 30:46expanding it to many more.
  • 30:58Thank you, Emma. If you could just go to
  • 30:59the next slide would be great. Thank you.
  • 31:04So as you heard, we were launched at Atlas,
  • 31:07launched a year and a half ago in
  • 31:10July 2021 to 2020 in six states.
  • 31:13Knows of the states in orange on this slide.
  • 31:17In this slide, which prepared just weeks ago,
  • 31:21we were expanding into
  • 31:23five additional states,
  • 31:24but I'm thrilled to say just in the
  • 31:26last weeks we have two additional states.
  • 31:30So with the 12 choose me the 13 states
  • 31:33that are now fully funded for 2022.
  • 31:37Atlas, where we will be available to 38%
  • 31:41of the families in the United States.
  • 31:44We're going from 13% this
  • 31:46year to 38% next year.
  • 31:50Because of the size of the States and the
  • 31:52new states are Washington and Connecticut
  • 31:54and I want to thank Yale for their
  • 31:56help in bringing Atlas to Connecticut.
  • 32:00It's just an unbelievable resource
  • 32:01that has never existed before and
  • 32:04we're talking to half a dozen other
  • 32:06states right now to move into to
  • 32:08bring it to their families as well.
  • 32:10Next slide, please.
  • 32:13The second area that I spoke
  • 32:15about I mentioned three areas.
  • 32:17Movement system.
  • 32:18And two is getting the right
  • 32:21information to families.
  • 32:23That's based on science.
  • 32:24The issue today in our society is
  • 32:27there is so much information out there
  • 32:29on the Internet about this disease.
  • 32:32Some of it is based on science
  • 32:34and some of it.
  • 32:35A lot of it is not and it's
  • 32:37a lot of information.
  • 32:39So as a family member,
  • 32:40how do you find the right information?
  • 32:43Well, to solve this,
  • 32:44we've done two things, number one.
  • 32:47We have gone through all
  • 32:49the information out there.
  • 32:51We spent two years and hundreds of
  • 32:53thousands of dollars doing this.
  • 32:54And we condensed into six lessons
  • 32:58of five minutes each.
  • 33:01An education program for families.
  • 33:0330 minutes, six lessons,
  • 33:045 minutes each.
  • 33:06You can see the topics there on
  • 33:08on the right side of this slide.
  • 33:10And we're distributing it through employers.
  • 33:13And you can see some of the
  • 33:15companies that have joined with us
  • 33:16to provide it to their employees.
  • 33:18That list is is we now have 50 partners.
  • 33:20We can't fit them all on one slide.
  • 33:22It's actually actually as of last
  • 33:24week 60 partners that are giving
  • 33:26it out to their their employees.
  • 33:28We just I just also added
  • 33:30states which are also employers.
  • 33:32The state of Pennsylvania and the state
  • 33:34of North Dakota for their state employees.
  • 33:36The City of New York all 5
  • 33:39boroughs for their employees.
  • 33:40It's also convertible to Spanish.
  • 33:42We're reaching over.
  • 33:43One million families right
  • 33:45now with this information.
  • 33:46That's good, but it's not enough.
  • 33:48It needs to be 10s of millions of families.
  • 33:52We've also look at the results here
  • 33:55on pre and post surveys of some
  • 33:57of the people that have that have
  • 34:01taken this educational program.
  • 34:03And again, this is completely anonymous,
  • 34:05but for those who took a survey
  • 34:07in the beginning and at the end
  • 34:10online completely anonymous,
  • 34:11I now how to help.
  • 34:13I know know,
  • 34:14I now know how to help a
  • 34:16family or excuse me,
  • 34:18help someone addicted to drugs and
  • 34:20alcohol pre taking the lessons 39%
  • 34:22after taking the six lessons 80%.
  • 34:26I feel confident I could recognize
  • 34:28the signs of drug or alcohol
  • 34:31addictions from 53% to 85%.
  • 34:35This session is about stigma.
  • 34:37Let's look at the bottom question.
  • 34:39People who are addicted to drugs and alcohol.
  • 34:42Are not at fault for their addiction.
  • 34:44It went from 62% to 82%.
  • 34:47Look at how well it's working.
  • 34:51Next slide, please.
  • 34:54We've also provided a lot of
  • 34:57this information on our website
  • 34:58in two sections in the learn
  • 35:01section in the Find Help section.
  • 35:03And this is reaching millions
  • 35:05of families also.
  • 35:06My next slide please.
  • 35:12Actually, if we can take off slides
  • 35:14for now, we'll come back to this.
  • 35:19So I mentioned the two of the three areas.
  • 35:22Transforming the addiction treatment system.
  • 35:25In providing highly curated science
  • 35:28based information for families.
  • 35:31However. We can do more.
  • 35:35And we must must do more.
  • 35:38So I'm here today to ask for your help.
  • 35:42Your help in what I believe.
  • 35:44Is the most important but
  • 35:47also difficult obstacle.
  • 35:49That we as a society must overcome.
  • 35:53It's the way that we
  • 35:55think about this disease.
  • 35:56The way we speak about it,
  • 35:58the stigma would we attach to it?
  • 36:02If you think about it,
  • 36:03we don't ask people to line up in
  • 36:06public shaming rituals who have cancer.
  • 36:10On the sidewalk to get their chemotherapy.
  • 36:14We don't tell someone who's a diabetic.
  • 36:17That the very medication
  • 36:19that can save your life.
  • 36:21Can't be carried in on an ambulance.
  • 36:23Or in an ambulance.
  • 36:25We don't tell someone with heart disease.
  • 36:28Who has not followed
  • 36:29their treatment protocol?
  • 36:30You must go to jail. Yeah, we do.
  • 36:34All three of these things with those
  • 36:36with the disease of addiction.
  • 36:38Stigma extinguishes the very hope.
  • 36:41And self respect that someone
  • 36:44battling and a difficult disease.
  • 36:47So rightly needs.
  • 36:49And deserves.
  • 36:53So I'd like to ask that each of you take
  • 36:56a moment right now and think about how
  • 36:59stigma might be affecting your thinking.
  • 37:02Are there some of you were listening
  • 37:05right now? Who have someone in
  • 37:07your family is who is addicted.
  • 37:09And because of stigma.
  • 37:11Are you ashamed to tell others?
  • 37:14The way I was.
  • 37:16If so, how do you think that
  • 37:18makes your family member feel?
  • 37:22Are there some of you who this
  • 37:25disease has not touched your
  • 37:27family yet or hopefully never?
  • 37:29And the stigma cause you to think.
  • 37:32This could never happen
  • 37:33to someone in my family.
  • 37:35I'm too good a parent.
  • 37:37In the same way that substances
  • 37:40distort a drug user's thinking.
  • 37:42Is it possible that stigma
  • 37:44has distorted years?
  • 37:48If we as a society can change the
  • 37:50way that we think about this disease.
  • 37:53More people will feel loved and connected.
  • 37:57More will seek treatment.
  • 38:01More or less will feel the shame and
  • 38:04stigma that my son fell in so many others.
  • 38:08Fewer will die.
  • 38:11And fewer families will be shattered.
  • 38:13Beyond any repair. As has mine.
  • 38:24To better understand the depth and
  • 38:27severity of addiction stigma because
  • 38:29it is so important shatterproof
  • 38:31in collaboration with the Hartford
  • 38:34Ipsos and Indiana User University.
  • 38:37Conduct recently conducted the
  • 38:39largest and most comprehensive survey.
  • 38:42Of addiction stigma ever done ever?
  • 38:46And the data is extremely troubling.
  • 38:5075% of the public do not believe that a
  • 38:53person with a substance use disorder is
  • 38:56experiencing experiencing a chronicle.
  • 38:58Medical loans such as diabetes,
  • 39:00arthritis or heart disease.
  • 39:0451%. 51% or unwilling to associate
  • 39:08with someone with a substance use
  • 39:11disorder as their close friend,
  • 39:13neighbor, co-worker.
  • 39:14We're marrying into their family.
  • 39:20But even more troubling, far troubling.
  • 39:24People that receive evidence
  • 39:26based treatment still experience
  • 39:27much of this public stigma.
  • 39:3137% of the public.
  • 39:33Is still unwilling to associate
  • 39:35with someone as a friend, coworker,
  • 39:37neighbor, or marrying into their family.
  • 39:41For someone who has received evidence
  • 39:44based treatment and continues to
  • 39:46receive evidence based treatment
  • 39:48and whose symptoms have been under
  • 39:51control for a year or longer.
  • 39:53Think about that someone received treatment.
  • 39:56Is doing totally fine.
  • 39:59Hasn't had any symptoms for over a year.
  • 40:02And more than 1/3 of the public is still
  • 40:05unwilling to associate with that someone.
  • 40:07As a friend, co-worker, neighbor,
  • 40:09or marrying into their family.
  • 40:12This is why the third segment of our
  • 40:14work is directed ending the stigma
  • 40:17so unjustly associated with this
  • 40:19disease that was afflicted with it,
  • 40:22their families,
  • 40:22and the medications that treat it.
  • 40:28So I'd like to share a few slides
  • 40:30that that tell you a little
  • 40:31bit about our work and stigma.
  • 40:33Number one everything we do.
  • 40:36It's the word proof,
  • 40:38and shatter proof is based on science.
  • 40:41So so the study stigma.
  • 40:43We work with one of the leading
  • 40:45consulting firms in the world.
  • 40:49And we studied first.
  • 40:50Can we reduce and ultimately
  • 40:52end the stigma of addiction?
  • 40:55And if we decided we couldn't,
  • 40:56we'd stop our work.
  • 40:57But if we felt we could,
  • 40:59after a few months of work, we'd continue.
  • 41:02After a few months we felt we
  • 41:05could reduce it and we worked
  • 41:06for the for an entire year.
  • 41:08We studied 11 analogous social movements.
  • 41:12How did our country change
  • 41:13its views of HIV AIDS?
  • 41:15How did our country change its views
  • 41:17of marriage equality and all the
  • 41:19other social issues listed there?
  • 41:22We prioritized and read and reviewed
  • 41:25over 100 pieces of published literature.
  • 41:27We conducted hour and a half individuals
  • 41:30individually with 50 experts who went
  • 41:33through those 11 social movements.
  • 41:36And bringing together the
  • 41:39literature in the interviews.
  • 41:41We put together a national strategy
  • 41:43to to reduce the stigma of addiction.
  • 41:48Next slide, please.
  • 41:52Our work that we put together
  • 41:57a national strategy involved.
  • 41:596 sectors of our society.
  • 42:02That we would provide.
  • 42:04Easy to use toolkits in three areas.
  • 42:08Educating changing language
  • 42:11and changing policies.
  • 42:15In one of those sectors was state the states,
  • 42:18one of those six sectors.
  • 42:21And and with anything you can't
  • 42:23start and do everything all at once.
  • 42:25We started with a state based
  • 42:28initiative that we thought,
  • 42:29based on the research would work,
  • 42:31but it was a pilot we weren't sure.
  • 42:34It involved educating.
  • 42:37Educating with what's called
  • 42:39contact based education.
  • 42:41It's not about words on a piece of paper.
  • 42:44It's not about convincing somebody with words
  • 42:46on a piece of paper that this is a disease.
  • 42:48Showing a picture of a brain.
  • 42:51Now this was about stories of people
  • 42:54who had in recovery doing well.
  • 42:58We use social listening technology
  • 43:00in in the state of Pennsylvania and
  • 43:04found almost 1000 people that had
  • 43:07been talking about their recovery
  • 43:09from opiate addiction online.
  • 43:11In social channels.
  • 43:15We we cut down that list by a couple 100
  • 43:17and we reached out to them to see who
  • 43:19would be willing to share their stories.
  • 43:22That took the list list a little smaller.
  • 43:24We then had our interviews with each
  • 43:27of them and narrowed the list to 200.
  • 43:30And we have now collected stories,
  • 43:31either short videos or a picture in a
  • 43:35paragraph of 200 different individuals
  • 43:37who live in the state of Pennsylvania.
  • 43:40Who fall into different categories.
  • 43:42Some white collar,
  • 43:43some blue collar black, white, brown.
  • 43:47Suburban urban rural and
  • 43:51they each tell their story.
  • 43:54And the story.
  • 43:55Based on prompts that we have given them
  • 43:57the story, the message that we know
  • 44:00that we thought through research would work.
  • 44:02Is hi I'm Johnny. I work at Walmart.
  • 44:07I've been here 10 years.
  • 44:09I've been promoted three times.
  • 44:12I have a family I coach Little
  • 44:14League on Tuesday nights.
  • 44:15I have barbecues on Saturdays in my
  • 44:18neighborhood for our neighbors and friends.
  • 44:20And I'm addicted to heroin.
  • 44:23But that's OK.
  • 44:25My life is beautiful.
  • 44:27My life is beautiful.
  • 44:28I've been treated with evidence
  • 44:30based treatment.
  • 44:31And I'm doing great.
  • 44:33And that changes the perception of,
  • 44:35yes, you can work next to somebody
  • 44:38who's been treated and doing well.
  • 44:40You can live next to somebody they can marry,
  • 44:42enter your family.
  • 44:43They can be your friend.
  • 44:45In that every story is
  • 44:46exactly the same obviously,
  • 44:48but that theme that they're doing well.
  • 44:52And then we take those stories and
  • 44:54we and we distribute them through
  • 44:57on social media and three channels.
  • 45:00And state in Pennsylvania we form
  • 45:02relationships with seven with 75 to
  • 45:0578 community based organizations and
  • 45:08we give them the content for free.
  • 45:10And they distribute it out
  • 45:12through their channels.
  • 45:13And it's not.
  • 45:14US leading this driving this a
  • 45:17national organization.
  • 45:18We've formed partnerships with
  • 45:20those community based organizations
  • 45:22and they're part of this with us.
  • 45:24When we hold monthly webcast
  • 45:25where we all do this together.
  • 45:27And they get it out through your
  • 45:29channels and we help them teach them.
  • 45:31Best way to get this out
  • 45:33through their channels.
  • 45:34And then we add a little bit of of
  • 45:37of paid media boosting in certain
  • 45:39geographic areas that we believe it's
  • 45:41important to get the information out.
  • 45:43So we're hitting everyone.
  • 45:45We also engage with digital influencers.
  • 45:49We engage with them and it's not someone.
  • 45:52You know it's not someone on a celebrity
  • 45:55who has a million followers now.
  • 45:58This is the local pastor who
  • 46:01has 15,000 followers and people
  • 46:03trust in their community.
  • 46:05It's the local Baker,
  • 46:06the local school Superintendent,
  • 46:07the local local Little League
  • 46:09coach who have 10 to 55 to 15,000
  • 46:11followers and they get it out
  • 46:14through their channels.
  • 46:15And then we have a state based
  • 46:16website that gets it out.
  • 46:19And the results are phenomenal.
  • 46:21Better than we expected.
  • 46:22This was a pilot,
  • 46:23we weren't sure it was going to work.
  • 46:25It was based on research,
  • 46:26but we had to prove that it worked
  • 46:28for ourselves and the state.
  • 46:29And if you can go to the next light please,
  • 46:31I'm thrilled to show you these
  • 46:33results after just six months.
  • 46:35We reached almost a quarter of the
  • 46:3713 million people in the state.
  • 46:39We reached 3 million people.
  • 46:41And for those 3 million people that saw
  • 46:44our content, look at the differences.
  • 46:47It's addiction, opiate addiction.
  • 46:48The state wanted to focus
  • 46:50on opiate addiction,
  • 46:50but we can do it all substance use disorder,
  • 46:53or just opioids.
  • 46:54The state wanted to start with opioids.
  • 46:57Is opiate addiction and medical
  • 46:58illness like other like other
  • 47:00chronic illnesses 58% to 66%?
  • 47:04Are medications effective 21% to 43%?
  • 47:09Null oxone which you carry it to
  • 47:11help save someone's life 49% to 65%.
  • 47:15I would be willing to have a person
  • 47:18with opiate use disorder as my neighbor.
  • 47:2238% to 52%. It's now running.
  • 47:26Look at these results.
  • 47:27It's now running a year and we're scrubbing.
  • 47:31We have the year the one year
  • 47:33results were scrubbing them
  • 47:34and they'll be released soon.
  • 47:36In the coming weeks.
  • 47:39The state of Pennsylvania is
  • 47:41so thrilled they just extended
  • 47:43this program for two more years.
  • 47:45And they gave us additional money
  • 47:47to create a new pilot in two of
  • 47:49their hospitals to see how we can
  • 47:51reduce stigma of professional medical
  • 47:53professionals in the hospital.
  • 47:54Doctors and nurses.
  • 47:56The state of Oregon excuse me.
  • 47:58The States of Kentucky in Colorado
  • 48:01saw these results and we just started
  • 48:04November 1st with this state based
  • 48:07campaign in Kentucky and Colorado.
  • 48:10And we're expecting to announce two
  • 48:12other states in the next four to five weeks.
  • 48:15The results are just too powerful.
  • 48:17It's science based.
  • 48:18It's work, it works.
  • 48:19It's not about creating impressions,
  • 48:21it's about these results.
  • 48:27On next slide please.
  • 48:30So if you want to learn more about this.
  • 48:33Please feel free to reach out
  • 48:35at shatterproof on our website.
  • 48:36There's a contact, there's information,
  • 48:38there's information there
  • 48:39where you can contact someone,
  • 48:41or if you want to learn about our
  • 48:45stigma initiative specifically.
  • 48:47Reach out to Matt at M.
  • 48:49Steven koatshadowproof.org.
  • 48:55I want to close with.
  • 48:59Sharing that. As I mentioned earlier.
  • 49:03My son didn't die of an overdose.
  • 49:07He took his own life.
  • 49:11So why? Why did someone?
  • 49:1625 years old, physically healthy.
  • 49:19Hadn't used a substance in 13 months.
  • 49:21Had a great relationship
  • 49:23with his family and friends.
  • 49:26Why did someone with that
  • 49:27profile take his own life?
  • 49:32I've never had to wonder. 'cause he
  • 49:35wrote about it in his suicide note.
  • 49:38After telling us all how much he loved us.
  • 49:45And about feeling so bad about the shame he
  • 49:48had brought to our family. He wrote dad.
  • 49:53It's about not being treated as a human.
  • 49:57After I tried so hard to get back to normal.
  • 50:02My son didn't see a world where as a
  • 50:05young man he could develop a disease,
  • 50:08get treated in our health care system.
  • 50:11By trained professionals. Get better.
  • 50:15And live a full and fulfilling life.
  • 50:20Well, I'm here to ask to to
  • 50:23ask you today to join with us.
  • 50:26Please let everyone know
  • 50:28that change is coming.
  • 50:29Because it is coming. And together.
  • 50:32We can end the stigma of addiction.
  • 50:35We've proved that in the
  • 50:37state of Pennsylvania,
  • 50:38we're going to prove it in two hospitals.
  • 50:40We're going to prove it in other states.
  • 50:42We're going to bring it to to health
  • 50:44care providers across the country.
  • 50:46We're going to bring it to employers.
  • 50:48We're going to bring it to
  • 50:50the criminal justice system.
  • 50:51We're going to bring it
  • 50:52to media entertainment,
  • 50:52and we're going to bring it to our
  • 50:55local communities and together.
  • 50:56We can do this shadowproof
  • 50:58could never do it on our own.
  • 51:01But working together we can.
  • 51:04So thank you.
  • 51:05And I'm really honored to be here today.
  • 51:09And I'm thrilled to take any questions.
  • 51:12Thank you.
  • 51:16Thank you Gary. I wish you were here.
  • 51:18We could give you a standing.
  • 51:20Ovation and round of applause,
  • 51:22but more importantly really appreciate.
  • 51:26Your openness and willingness to Share
  • 51:28your story and the way you've taken that
  • 51:32story as a as a message and a impetus
  • 51:35to to change the system so that things
  • 51:38don't have to be the same for others
  • 51:41as they unfortunately were for you.
  • 51:43So thank you for for that work.
  • 51:46We've had a couple of questions
  • 51:48that I want to share.
  • 51:50I think most of them have to do with
  • 51:53making sure folks know that they'll be
  • 51:55able to access this event afterwards.
  • 51:58If you've registered for the for the session,
  • 52:02then you will receive a link following the
  • 52:05session that will allow you to access this.
  • 52:08And please feel free to share
  • 52:11that with your colleagues.
  • 52:13Gary, I'm going to take the sort
  • 52:16of the host prerogative to.
  • 52:18To ask you about the issue
  • 52:21that you briefly touched on,
  • 52:22which is the stigma.
  • 52:24In the lack of perhaps understanding
  • 52:28and maybe the two are interrelated.
  • 52:31Within the health care system within
  • 52:34health care professionals and what what
  • 52:36are the what are the options that we
  • 52:39have about about changing that because?
  • 52:41You know you would think if if somebody
  • 52:43came to a health care professional,
  • 52:45then those individuals should be poised
  • 52:48to to provide the least stigmatized
  • 52:52and most evidence based care.
  • 52:55But unfortunately,
  • 52:56that's not always the case,
  • 52:58so thoughts on that. Sure.
  • 53:03For the pilot again state based.
  • 53:07Changing the way the public
  • 53:09feels about this disease,
  • 53:10which then pushes down to structural stigma
  • 53:13and self stigma and medication stigma.
  • 53:15We've proven it. We know how to do it.
  • 53:17It's working, we're adding.
  • 53:18We just added two more states.
  • 53:20We're going to add others,
  • 53:20and we're going to.
  • 53:21We're going to get better and better
  • 53:22as we do this related to changing
  • 53:24the stigma in the healthcare system.
  • 53:27We have a pilot, so it's not proven yet.
  • 53:30That we're starting in two hospitals
  • 53:32in the state of Pennsylvania.
  • 53:35We're looking for funding to test it in
  • 53:37two to five other hospitals somewhere else.
  • 53:39So we have a large enough sample size,
  • 53:42and we designed a pilot that has
  • 53:46three options randomly controlled.
  • 53:48We'll be we'll be doing things in three
  • 53:50different ways and see what works better,
  • 53:52or if they all work or what
  • 53:54works better or they don't work.
  • 53:56We're going to learn something so number one.
  • 53:58Again, this is for health care professionals.
  • 54:01In the hospital, nurses, doctors,
  • 54:04etc.
  • 54:04So one of the audience one one of that
  • 54:07data set one of the segments of people
  • 54:10will be served up just only just five.
  • 54:14That education program.
  • 54:15Another one will be served up.
  • 54:21A stigma reduction program that
  • 54:23was developed by Dell Medical
  • 54:26School solely for professionals.
  • 54:28And the third one will be served up.
  • 54:31A connection to ECHO,
  • 54:33which I suspect everybody listening
  • 54:35here is familiar with ECHO it's it's.
  • 54:38It's basically to get for professionals
  • 54:40to get advice from other professionals
  • 54:42in the consolidated, efficient way.
  • 54:44We're going to be developing a
  • 54:46program that Eco will distribute
  • 54:48to health care professionals,
  • 54:50so that's the three ways
  • 54:51that we're going to do it,
  • 54:52and we're going to learn from it.
  • 54:55But we're also looking for funding to
  • 54:56try it in two or three other hospitals,
  • 54:58so we have a larger sample size,
  • 55:00but we've already got the funding
  • 55:01from the state of Pennsylvania.
  • 55:02We're moving forward there.
  • 55:05Again, kudos for developing the program,
  • 55:07and kudos for taking a scientific approach
  • 55:11to the evaluation of these programs.
  • 55:13I think we all understand and agree
  • 55:16that addressing stigma is important,
  • 55:18but we need to be able to say we're
  • 55:20doing it with effective strategies
  • 55:22with the greatest return on investment.
  • 55:25And there's.
  • 55:26Kyle, I couldn't tell if you had a
  • 55:28question or if I can move on to the.
  • 55:31The audience questions.
  • 55:34I just I just want to say what an
  • 55:37exceptional presentation Gary.
  • 55:39You had me tearing up a few times.
  • 55:41I'm definitely going to be sharing
  • 55:43and watching this one again.
  • 55:45I just wanted to say thank
  • 55:47you and I love how you're.
  • 55:49You're turning your story,
  • 55:50you know, from tragedy,
  • 55:52to triumph and inspiring others so.
  • 55:55It's wonderful.
  • 55:56We're definitely going
  • 55:56to be connecting more.
  • 55:57Great. Thanks Kyle, and thanks
  • 55:59to this angered foundation for
  • 56:01all the support. Thank you. Yeah,
  • 56:05so Alexa banista indicates that
  • 56:08they're looking to implement
  • 56:10justify that Lockheed Martin,
  • 56:11hopefully early in 2022.
  • 56:13So right here, that's that's a
  • 56:16large manufacturer, obviously.
  • 56:20John Hamilton has a question.
  • 56:22John says thank you for all
  • 56:24you're doing for the field.
  • 56:26Johns, a local guy.
  • 56:27In case you
  • 56:28don't actually know John well.
  • 56:32Thanks for joining John,
  • 56:33and he's asking why not lean
  • 56:37into discrimination over stigma?
  • 56:40Is making a contrast between
  • 56:42discrimination and stigma,
  • 56:43and is there a is a rationale for that?
  • 56:47Sure.
  • 56:50We actually played with both words when we
  • 56:53that year that we were doing this research.
  • 56:56And we were a little worried about.
  • 57:00Possible Chris criticism by using the
  • 57:03word discrimination where there could
  • 57:07be no criticism of the word stigma.
  • 57:10Having said that, so that is why we use
  • 57:12the word stigma versus discrimination.
  • 57:15Having said that,
  • 57:16we are very focused right now,
  • 57:18and if anybody wants
  • 57:19further information on it,
  • 57:20please reach out to shadowproof and ask
  • 57:21to speak to me and we'll send it to you.
  • 57:23Or you can ask Matt Stefanko you
  • 57:25had his email address there.
  • 57:27We are very focused on the fact
  • 57:30of the discrimination against.
  • 57:32Black people right now.
  • 57:36People who are Caucasian have 30 * 30
  • 57:39times the probability of being prescribed
  • 57:42Lupron orphine than those who are black.
  • 57:44And I can go on and on with the statistics
  • 57:47we put together statistics in in a deck,
  • 57:49and we can. We'll be happy to send it
  • 57:52to anybody so you can see the data.
  • 57:54And we are very focused on what
  • 57:56we can do to improve that.
  • 57:59So some of the things we've done just
  • 58:01five is now convertible to Spanish,
  • 58:03so we have it available for that audience.
  • 58:05Atlas is now convertible to Spanish,
  • 58:07actually just five.
  • 58:08We have two versions,
  • 58:09Spanish and in English, just five right?
  • 58:11In the website you can just click Spanish
  • 58:14the whole the whole site turns to Spanish.
  • 58:16We just got a grant from
  • 58:18the state of California.
  • 58:19When we take Atlas to California,
  • 58:21we have a separate pot of money to
  • 58:23go into underserved neighborhoods to
  • 58:25make sure Atlas is being served up
  • 58:27to those underserved neighborhoods.
  • 58:29And we're looking at a bunch of other
  • 58:31areas to attack this right now and again,
  • 58:33a lot is based on funding coming
  • 58:34in and being able to do that,
  • 58:36but we have identified a list of
  • 58:38things that we can do to reduce that.
  • 58:43Thank you, that's very.
  • 58:44That's that's wonderful and and so important.
  • 58:47It's a real challenge,
  • 58:48quite frankly in the field of
  • 58:50addiction and addiction medicine to
  • 58:52make for sure that we're creating a
  • 58:55workforce that we flex the spectrum of
  • 58:58individuals with with these diseases.
  • 59:00And it's an area we've been
  • 59:02focusing on. This
  • 59:03we want to bring back to the previous
  • 59:05question I forgot to mention.
  • 59:06One thing that I wanted to
  • 59:08mention when you mentioned about.
  • 59:09You asked about what we're going
  • 59:10to be doing to reduce stigma
  • 59:12with health care prevention,
  • 59:13and I meant 33 segmented ways of
  • 59:15approaching it and see what works,
  • 59:17doesn't Work etc.
  • 59:18You know we did a survey just
  • 59:21to give you some stats on it.
  • 59:231 stat troubling.
  • 59:24We partnered with the Medical Society
  • 59:27in the state of Massachusetts and
  • 59:30we surveyed primary care doctors
  • 59:32in the state of Massachusetts.
  • 59:36Why don't you treat those who are addicted?
  • 59:39Half said because I was never
  • 59:41taught in medical school.
  • 59:42I don't know anything about it.
  • 59:43Why weren't they taught medical school?
  • 59:45Because medical schools mostly like.
  • 59:47From him, it's not a disease.
  • 59:49Why do we have to require it to be taught?
  • 59:51Not all, but most.
  • 59:54Also,
  • 59:54the second reason they listed just
  • 59:57below 50% was if there's an issue.
  • 60:00I don't know.
  • 01:00:01Therapist or behavioral health
  • 01:00:03specialist that I can refer people to,
  • 01:00:05why 'cause they haven't been
  • 01:00:07taught enough in schools and
  • 01:00:08there's not enough of them.
  • 01:00:10You know what the third reason was?
  • 01:00:11A quarter of primary care,
  • 01:00:13doctors said,
  • 01:00:14I,
  • 01:00:14I don't want to treat people
  • 01:00:16anybody addicted to opioids
  • 01:00:18'cause it might hurt my practice.
  • 01:00:20Having those people in my waiting room.
  • 01:00:231/4
  • 01:00:26But we're starting in Pennsylvania,
  • 01:00:28and as we get funding,
  • 01:00:29we'll test other hospitals.
  • 01:00:30Our whole thing is testing
  • 01:00:31things once at work, scale it,
  • 01:00:33but we don't want to scale
  • 01:00:34it and spend money scaling
  • 01:00:35until we know that it works.
  • 01:00:38Thank you for sharing that carrier,
  • 01:00:39I've been. Working in that area
  • 01:00:42for for quite some time so and
  • 01:00:44I have heard those stories,
  • 01:00:45I think the thing that I found
  • 01:00:47to be most successful is patient
  • 01:00:50success and patient experience.
  • 01:00:52Having patients come back doing well
  • 01:00:54is very reinforcing for the clinician
  • 01:00:57and they come back and tell me I'm the
  • 01:00:59best prescribe you know best physician
  • 01:01:01they've ever had and and you know,
  • 01:01:04I think it's really important that we
  • 01:01:07provide trainees with the opportunity
  • 01:01:09to see individuals who are doing well.
  • 01:01:12In their treatment,
  • 01:01:13not just the the the toughest cases
  • 01:01:16that they often may see in the hospital,
  • 01:01:18I want to make sure I I'm catching
  • 01:01:20up on the the Q&A Rana chamois from
  • 01:01:23Stamford asked what do you believe
  • 01:01:25the root causes of the stigma are?
  • 01:01:28I understand the media plays a role and
  • 01:01:30and that's a really important point,
  • 01:01:32but do you believe education about drugs?
  • 01:01:35That's geared towards youth has perpetuated
  • 01:01:37stigma towards people who use drugs
  • 01:01:39and those who suffer with addiction.
  • 01:01:42The answer to that last question of
  • 01:01:45the of the broader question is yes.
  • 01:01:49And it's how you how we talk about it,
  • 01:01:51which I mentioned earlier.
  • 01:01:54I learned prior to this
  • 01:01:55research that we did in 2019.
  • 01:01:58Shadowproof was doing it wrong.
  • 01:02:01We were out there saying addiction is
  • 01:02:02a disease. Addiction is a disease.
  • 01:02:05Yes, it's important to change the
  • 01:02:07perception that this is a disease,
  • 01:02:09but that actually could be stigmatized.
  • 01:02:13Would you rather be neighbors with
  • 01:02:15someone who is not trying hard
  • 01:02:18enough that can change like that?
  • 01:02:20Or neighbors with someone that's got a
  • 01:02:23chronic illness that can never change.
  • 01:02:25It actually could make it worse.
  • 01:02:27The right message is.
  • 01:02:29It's a treatable disease.
  • 01:02:31When we studied all the literature
  • 01:02:33and all the history.
  • 01:02:34What changed with HIV AIDS?
  • 01:02:36It wasn't when Magic Johnson came
  • 01:02:38out and said and said he had aids.
  • 01:02:41No, it's when he came back two
  • 01:02:42years later and he was sweating on
  • 01:02:44the court with nine other guys.
  • 01:02:46And yes, you can get into a taxi cab with me.
  • 01:02:49You can be. You can eat dinner with me.
  • 01:02:51I can be in your neighborhood.
  • 01:02:52It's not going to explode on you.
  • 01:02:54These stories of people with success
  • 01:02:57changes the perception that someone with
  • 01:02:59this disease is not in a back alley.
  • 01:03:02Sticking a needle in their arm.
  • 01:03:03That's going to break into your
  • 01:03:05house now there's 10s of millions of
  • 01:03:07people in this country that have been
  • 01:03:10treated properly and are doing well.
  • 01:03:11And that is the.
  • 01:03:13It's a treatable disease.
  • 01:03:15And then the other messages that's
  • 01:03:17been proven in research is.
  • 01:03:18Here's the barriers that I went
  • 01:03:20through to get treated and that
  • 01:03:22changes structural stigma policies.
  • 01:03:24Those are the two messages
  • 01:03:25that we're working on,
  • 01:03:26as well as the message about medications.
  • 01:03:29'cause there's such a
  • 01:03:30stigma against medications,
  • 01:03:31but also just to keep going on that question.
  • 01:03:33If I could,
  • 01:03:34because part of that question was the media.
  • 01:03:37So remember I mentioned 66 sectors of
  • 01:03:40society that we want to give content to.
  • 01:03:44One of those is media.
  • 01:03:47I can't tell you how many
  • 01:03:48wonderful stories that I have read,
  • 01:03:50written by a journalist.
  • 01:03:52That had their heart in the right place.
  • 01:03:55Total wrote a meaningful editorial
  • 01:03:57or story about someone who had a
  • 01:04:01substance use disorder or had died.
  • 01:04:04And they met all with the best intentions.
  • 01:04:07Writing that article,
  • 01:04:08and they described that person
  • 01:04:09as A at an attic or a junkie.
  • 01:04:13That is stigmatising.
  • 01:04:15There was a study done several years ago.
  • 01:04:18300 health care professionals.
  • 01:04:20150 in one room, 150 in another,
  • 01:04:23and these are healthcare professions.
  • 01:04:25The first group randomly controlled
  • 01:04:27which room you were in the first group
  • 01:04:30was told the story about John Doe.
  • 01:04:33Who was an addict?
  • 01:04:35The second group was told the
  • 01:04:37exact same story about John Doe,
  • 01:04:39who was addicted to drugs.
  • 01:04:41But he was John Doe.
  • 01:04:42He was Johnny.
  • 01:04:45Then they surveyed the people when
  • 01:04:47they got out. The first group.
  • 01:04:49We're more likely to say by far.
  • 01:04:53He needs to go to the criminal
  • 01:04:55justice system. He's an addict.
  • 01:04:57Second group was more likely
  • 01:04:58to say get him to the health
  • 01:05:01care system 'cause he's Johnny.
  • 01:05:02He has a substance use disorder
  • 01:05:04or he is addicted to drugs or he
  • 01:05:06has diabetes or whatever it is.
  • 01:05:07Let's get him to health care.
  • 01:05:10So that's one of the six sectors we
  • 01:05:13need to bring the media together.
  • 01:05:16And just make sure that they all
  • 01:05:18understand the right language and
  • 01:05:19we celebrate the journalists,
  • 01:05:21do it right and we call out the
  • 01:05:23ones that do it wrong.
  • 01:05:26I agree, pretty simple. Very
  • 01:05:28important message and very impactful
  • 01:05:31research done both with health professionals
  • 01:05:34and with the the Community at large.
  • 01:05:38Part time David.
  • 01:05:39I saw a comment on there.
  • 01:05:40I'm not sure if it turned into a question,
  • 01:05:42but somebody said there was a comment
  • 01:05:44I saw by a less aleska talking about.
  • 01:05:47We need this in all corporations.
  • 01:05:49That's also one of the six sectors, so again,
  • 01:05:52the six sectors are corporations healthcare.
  • 01:05:54State government could be national,
  • 01:05:57but let's focus on states first.
  • 01:06:00Media, entertainment,
  • 01:06:01criminal justice system and communities.
  • 01:06:04We just prior to COVID.
  • 01:06:07We were going into States and
  • 01:06:09companies as our first two.
  • 01:06:11And then COVID disrupted.
  • 01:06:13Going into companies,
  • 01:06:14we have a program already
  • 01:06:16designed to go into companies.
  • 01:06:17Our thought is to wait till after
  • 01:06:20employees are back at work.
  • 01:06:21But a lot of the same methodology
  • 01:06:23where we're using in the state of
  • 01:06:25Pennsylvania we could use in companies.
  • 01:06:27It's interesting.
  • 01:06:27It's a distribution channel of getting
  • 01:06:30out the short videos and the stories.
  • 01:06:33Absolutely,
  • 01:06:33it'll work.
  • 01:06:35Well then also sends a message right
  • 01:06:37that the company is acknowledged
  • 01:06:39that this is not something that
  • 01:06:41they shouldn't talk about or they
  • 01:06:43don't talk about that by stepping
  • 01:06:45up their modeling the type of
  • 01:06:47behavior that we want individuals
  • 01:06:49absolutely and we already have a list
  • 01:06:52of policies ready for companies.
  • 01:06:53Here's what you do with the stories.
  • 01:06:55Here's how you here's how languages
  • 01:06:57should never be used in any corporate.
  • 01:07:00Communication never.
  • 01:07:01Junkie addict, nothing.
  • 01:07:03Not that it would be typically used anyway,
  • 01:07:04but that's an easy lift for companies.
  • 01:07:07We have a list of policies,
  • 01:07:09easy lift and harder lift.
  • 01:07:11Do the easier lifts their stuff 1st
  • 01:07:13and aspire to do the harder lift.
  • 01:07:16So again, trying to catch up with the chat,
  • 01:07:18I want to acknowledge the the
  • 01:07:20sharing that Joseph Adams has done.
  • 01:07:22He's given us some links to NVIDIA to videos
  • 01:07:27about people who are receiving medication.
  • 01:07:30I happen to know a couple of the
  • 01:07:32names Walter Ginter and Joycelyn
  • 01:07:34Woods are really sort of the the early
  • 01:07:37individuals in the field ten 1520 years
  • 01:07:41ago who formed the National Alliance
  • 01:07:44for Medication Assisted Recovery.
  • 01:07:46Remember our and so I would encourage
  • 01:07:47you to take a look at those videos
  • 01:07:49and he makes the point that we rarely
  • 01:07:51if ever see individuals who are doing
  • 01:07:53well who are receiving medication,
  • 01:07:55and that's that's gotta change and
  • 01:07:59brentmoor also followed provides
  • 01:08:01narratives from from veterans as
  • 01:08:04he works in the VA system.
  • 01:08:07Let's see Joseph Adams also notes
  • 01:08:10that 70% of residential treatment
  • 01:08:12programs do not allow offer or allow.
  • 01:08:15Medications for opioid use disorders.
  • 01:08:19Many of these programs are getting
  • 01:08:21state licensing or accreditation.
  • 01:08:23Is there something we should be
  • 01:08:25doing and from that perspective,
  • 01:08:27sort of from the regulatory perspective
  • 01:08:29to address the lack of potentially
  • 01:08:32lack of evidence based treatment at
  • 01:08:35quote UN quote treatment facilities.
  • 01:08:39Absolutely 100% that is,
  • 01:08:41Atlas Atlas provides that information
  • 01:08:44to States and states will be states
  • 01:08:47are telling us they're going to
  • 01:08:49start using this for licensing.
  • 01:08:51Again, we've only been up and running
  • 01:08:53now in six states for a year and a
  • 01:08:56little less than a year and a half.
  • 01:08:59But as this and now we're adding
  • 01:09:01seven new states will be in states
  • 01:09:04representing 4243% of the population.
  • 01:09:08Absolutely, states are already
  • 01:09:09telling us they're going to
  • 01:09:10start using this for licensing.
  • 01:09:13And then along that line to Kathleen Ward,
  • 01:09:16Ward says thank you for sharing your work.
  • 01:09:19She does some work evaluating
  • 01:09:21a aissam levels of care,
  • 01:09:25certified drug and Alcohol Assessment
  • 01:09:27Center in Philadelphia and wonders if
  • 01:09:30Atlas collaborates with these types of
  • 01:09:33sites to use assessment to refer patients
  • 01:09:35to evidence based treatment locally.
  • 01:09:37So I think again the question is great.
  • 01:09:40Great question.
  • 01:09:43We first for Atlas.
  • 01:09:45We first developed the national
  • 01:09:47principles of care. And you know,
  • 01:09:49coming from a background in business,
  • 01:09:51it was very clear to me that what we
  • 01:09:54needed was one national standard of care.
  • 01:09:56Which unbelievably didn't exist.
  • 01:09:58And there were dozens of practices that that
  • 01:10:02night at National Institute of Drug Abuse
  • 01:10:04and others and put out there Sam's etc.
  • 01:10:07So from background in business,
  • 01:10:08you realize you can't have dozens.
  • 01:10:11There's no business in the world
  • 01:10:12that bonuses any people on anybody,
  • 01:10:14on dozens of things.
  • 01:10:15What are the less than 10 core things
  • 01:10:18that should be in every treatment
  • 01:10:21program in the United States?
  • 01:10:23Based on certain 2016 Surgeon
  • 01:10:26General's report.
  • 01:10:27And then we we work together with
  • 01:10:29Pew Charitable Trust in the leading
  • 01:10:31author of the Surgeon General's report,
  • 01:10:33and we drafted 7 Principles of Care Plus
  • 01:10:36one screening to get into treatment.
  • 01:10:38And then we brought together a
  • 01:10:42group of experts around the country
  • 01:10:44and got consensus on this.
  • 01:10:45So that's our national standard.
  • 01:10:47Then we built a business plan for Atlas
  • 01:10:50for bringing in data from three sources.
  • 01:10:54Providers patience.
  • 01:10:55And claims data to create the
  • 01:10:59quality measurement system,
  • 01:11:00and we built a business plan around that.
  • 01:11:02To do that, we raised 5,000,000 in funding.
  • 01:11:05We received the funding
  • 01:11:07and we started building it.
  • 01:11:09And when we hired a team to do
  • 01:11:11so once that team was hired,
  • 01:11:12we looked at the next question.
  • 01:11:13Which exactly is the question
  • 01:11:15that was just asked.
  • 01:11:16You can give the best care
  • 01:11:17in the world to someone,
  • 01:11:18but if they're if they're better to be
  • 01:11:20in residential and they're in outpatient,
  • 01:11:23it's not going to work, or vice versa.
  • 01:11:24And as we all know,
  • 01:11:26a Sam has the gold standard of level of care,
  • 01:11:29but it's 12 levels of care,
  • 01:11:31so we went to a Sam and we said,
  • 01:11:33look, we have a request.
  • 01:11:35Your criteria for levels of care is superb.
  • 01:11:40It's the best ever.
  • 01:11:42It's the gold standard.
  • 01:11:43But the problem is, it's usually usually
  • 01:11:45not always usually given too late.
  • 01:11:47Someone already had a treatment program,
  • 01:11:50and if they're at a residential
  • 01:11:52and they need outpatient,
  • 01:11:52they're in the wrong place.
  • 01:11:54So would you work with us in in there?
  • 01:11:57There's because it's comprehensive.
  • 01:11:58It needs to be delivered by
  • 01:12:01a clinician to a patient.
  • 01:12:03So I said,
  • 01:12:04would you work with us and create a
  • 01:12:07summary version of your sophisticated,
  • 01:12:09comprehensive levels of care
  • 01:12:12that only has two outputs?
  • 01:12:15Outpatient or residential?
  • 01:12:16Less than 15 minutes that a consumer
  • 01:12:19can take confidentially on their
  • 01:12:20own to just steer them down.
  • 01:12:22One of two paths and then when they
  • 01:12:25get there, they take the a Sam.
  • 01:12:28Comprehensive assessment he said,
  • 01:12:31hey Sam, wonderfully said yes,
  • 01:12:33we worked on it together with
  • 01:12:35open beds and over a year and a
  • 01:12:38half it was developed.
  • 01:12:39It's turned into a little bit more
  • 01:12:41comprehensive than I had originally asked.
  • 01:12:43That's OK.
  • 01:12:44The science is all a Sam,
  • 01:12:46not ours. All a Sam.
  • 01:12:4913 questions less than 10 minutes and
  • 01:12:53it got a little bit more sophisticated.
  • 01:12:55It's at 2 levels of care.
  • 01:12:56Outpatient residential.
  • 01:12:57It was five hospitalization
  • 01:13:00residential intensive,
  • 01:13:01outpatient outpatient or you don't need care.
  • 01:13:05You need an intervention.
  • 01:13:07And a SIM added another feature which we
  • 01:13:09had in conceptualized, which is great base.
  • 01:13:11Once they tell you one of those five things,
  • 01:13:14or one of the four where you need treatment,
  • 01:13:15here's what additional services you need.
  • 01:13:17You need medication for opiate use disorder.
  • 01:13:19You need mental health services or you don't,
  • 01:13:21etc. And that was completed by a
  • 01:13:26Sam a year last June June of 2020.
  • 01:13:29So a year and a half ago we
  • 01:13:31we launched Atlas in July.
  • 01:13:33A month later, when you go to Atlas.
  • 01:13:35Now we combine the two.
  • 01:13:37So the first thing is taking assessment.
  • 01:13:39If you take the assessment and it
  • 01:13:41determines you need intensive outpatient
  • 01:13:43for opiate use disorder and then
  • 01:13:46you search for treatment programs,
  • 01:13:47it will only show you treatment
  • 01:13:49programs that hit that criteria.
  • 01:13:51If you skip that and go right to
  • 01:13:52the search for treatment programs,
  • 01:13:54obviously you can't filter by that
  • 01:13:55'cause you haven't taken the assessment.
  • 01:13:57It's completely 100% confidential
  • 01:13:59and unlike the search feature,
  • 01:14:01we only have data for right now
  • 01:14:04states six states anywhere in the
  • 01:14:06country can go onto Atlas right
  • 01:14:09now and take the assessment.
  • 01:14:10In its treatment atlas.org.
  • 01:14:12It's all free.
  • 01:14:1710 minutes completely confidential.
  • 01:14:19All based on a sale ACM built in.
  • 01:14:24You know, and I think I'm like,
  • 01:14:28I'm often flipping a little bit in this,
  • 01:14:29but you know, I think you're the story
  • 01:14:32you tell at the beginning highlights
  • 01:14:35this that if you have cancer.
  • 01:14:38You know you go and ask an
  • 01:14:40oncologist what you should do and
  • 01:14:42and if you have cardiac disease,
  • 01:14:43you go to a cardiologist,
  • 01:14:45but I think for addiction.
  • 01:14:48Often times people feel like
  • 01:14:50everybody and their grandmother
  • 01:14:51knows what's best for her for
  • 01:14:53Johnny or or Jane in that situation.
  • 01:14:55And the the extent to which we've
  • 01:14:58been able to create this cadre
  • 01:15:01in this algorithm that that takes
  • 01:15:04into account what the condition is,
  • 01:15:06the severity of the condition,
  • 01:15:09and then work with existing strategies
  • 01:15:11to match patients to push an
  • 01:15:13appropriate treatment really resonates
  • 01:15:15with with me as a clinician and.
  • 01:15:18And reflects where the science is?
  • 01:15:20I think so that's that's very important.
  • 01:15:23So John Kimberly asks.
  • 01:15:25It strikes him that shatter proof is
  • 01:15:29close to hitting a tipping point.
  • 01:15:32The momentum is impressive,
  • 01:15:34and the way you are learning
  • 01:15:37you're learning as you go is
  • 01:15:39particularly noteworthy.
  • 01:15:39So those are some comments from John
  • 01:15:41Kimberly from the University of Pennsylvania.
  • 01:15:45Well thanks Shannon,
  • 01:15:46and I feel like we are as well.
  • 01:15:49I I have presented to our board that.
  • 01:15:53Let's not consider anything new right now
  • 01:15:55for the next year or two, at a minimum.
  • 01:15:59We could do research. We can we.
  • 01:16:01We have information on prevention
  • 01:16:03on our website and on justified,
  • 01:16:05but we're not doing prevention
  • 01:16:08programming in communities.
  • 01:16:09Let's focus on what we have.
  • 01:16:12Let's get Atlas in every state for
  • 01:16:14every American that's looking for
  • 01:16:15treatment with the assessment.
  • 01:16:17Let's get policies changed in states related
  • 01:16:19to how they pay for addiction treatment.
  • 01:16:22Using the collaborative care model.
  • 01:16:25Let's get a bill signed by the President,
  • 01:16:27United States,
  • 01:16:28that requires every health care professional.
  • 01:16:31They have basic coursework in the prevention
  • 01:16:34and treatment and recovery of addiction,
  • 01:16:36and if we get that done then medical
  • 01:16:38schools will accredit it and then we
  • 01:16:41brought it all into the healthcare system.
  • 01:16:43Let's get stigma ended.
  • 01:16:46And once we move,
  • 01:16:48we continue on the momentum we have
  • 01:16:50now and we make national impact
  • 01:16:53not 5% of the 15 points of the
  • 01:16:55people who see it in Pennsylvania.
  • 01:16:58By the third saw it,
  • 01:17:00but by the end of the year.
  • 01:17:01So that was about a five point
  • 01:17:03of across the entire population.
  • 01:17:04Let's get this in every state,
  • 01:17:06not just in Pennsylvania,
  • 01:17:07and let's get 20-30 forty point reductions,
  • 01:17:10and then we can move on to something else.
  • 01:17:14Terry, can I ask you to reflect a
  • 01:17:16little bit on this issue around health
  • 01:17:19professional training and the data
  • 01:17:212000 and the X waiver your organization
  • 01:17:24has made some tactical decisions
  • 01:17:27about the legislation and legislative
  • 01:17:31changes that I think speak to to some
  • 01:17:33of your thoughts about this issue.
  • 01:17:35'cause you're you're acknowledging
  • 01:17:36that health care professionals may
  • 01:17:38lack the expertise or the knowledge
  • 01:17:41and the skills and the attitude.
  • 01:17:43To treat addiction on the other hand,
  • 01:17:46you're advocating for more
  • 01:17:47ready access to to treatment.
  • 01:17:49So how do we?
  • 01:17:50How do we reconcile those
  • 01:17:52great question? And it's a simple answer.
  • 01:17:55And that's how we're working at politically
  • 01:17:58with the health care professionals that
  • 01:18:00work for congressmen and senators.
  • 01:18:02Let's end data. 2000.
  • 01:18:03So there's not this extra level of care that
  • 01:18:07you need to go through liberal treatment.
  • 01:18:10Excuse me to prescribe something
  • 01:18:12that treats someone who's addicted.
  • 01:18:15But let's make sure that every
  • 01:18:17health care and replace that with.
  • 01:18:21Required we absolutely required
  • 01:18:23education and prevention and
  • 01:18:25treatment recovery of addiction.
  • 01:18:27It's unconscionable in this country today.
  • 01:18:30That a doctor doesn't need any extra
  • 01:18:35level of education to prescribe an opioid.
  • 01:18:40But they go through these hurdles
  • 01:18:42to prescribe something that will
  • 01:18:43treat someone addicted to opioid.
  • 01:18:45I actually don't think it was unconscionable
  • 01:18:46when it was created back into.
  • 01:18:48You know,
  • 01:18:48back when the medications were created,
  • 01:18:51I think it was probably smart to do it then,
  • 01:18:53but not today and let's replace
  • 01:18:56it with comprehensive education.
  • 01:19:01OK, I think we're winding
  • 01:19:03up two more questions.
  • 01:19:04One is is is there a well?
  • 01:19:06The first is?
  • 01:19:08What's the estimated success rate?
  • 01:19:10Of drug addiction recovery in general,
  • 01:19:13and that's some comes from
  • 01:19:15Gabriella Garden, Tigard Rama.
  • 01:19:19Properly treated well,
  • 01:19:20that's a hard question to answer because.
  • 01:19:23It's you know there's.
  • 01:19:25All levels of addiction.
  • 01:19:27You know there's slight,
  • 01:19:28you know, there's moderate.
  • 01:19:29There's medium, there's there is
  • 01:19:31very extensive addiction and it
  • 01:19:33depends what you're addicted to. So.
  • 01:19:35It's a it's a so because of that there's
  • 01:19:38two matrices you have to put together.
  • 01:19:40How addicted somebody is and
  • 01:19:43what they're addicted to.
  • 01:19:45So that's hard to answer.
  • 01:19:46I will say generally though.
  • 01:19:49If you're addicted to opioids.
  • 01:19:52And you're treated and you don't
  • 01:19:54have mental health issues and
  • 01:19:56you're treated with medications.
  • 01:19:59The success rate is extremely high.
  • 01:20:03If you have mental health issues
  • 01:20:05and you're treated product,
  • 01:20:07depends what they are and how extensive,
  • 01:20:09but you're treated with one
  • 01:20:11of the six therapies that are
  • 01:20:14on Atlas that we talk about.
  • 01:20:16The providers offer these six 'cause
  • 01:20:20these six are based on randomly
  • 01:20:22controlled trials and proven to work.
  • 01:20:25Obviously outcomes are better
  • 01:20:26if you're treated with others.
  • 01:20:27We don't know if they work or don't work,
  • 01:20:29they could, which there's the
  • 01:20:30research hasn't proven it yet.
  • 01:20:32We're not saying they're bad,
  • 01:20:33it's just we haven't proved they work.
  • 01:20:35But these six on our website on
  • 01:20:37Atlas we know work and it's been.
  • 01:20:40It's in the Surgeon General's report.
  • 01:20:41They're listed these are the six and
  • 01:20:45if you're addicted to cocaine harder.
  • 01:20:47There's no medications for it right now,
  • 01:20:50harder.
  • 01:20:52If you're addicted to alcohol,
  • 01:20:54there are medications that work really well,
  • 01:20:57but they don't,
  • 01:20:58but they work for a smaller percent of
  • 01:21:00the population that's addicted to alcohol.
  • 01:21:03But for the ones that work,
  • 01:21:04it works for it.
  • 01:21:06They work great.
  • 01:21:07So I know that's not a succinct answer,
  • 01:21:09but it's the best I can give.
  • 01:21:11Now
  • 01:21:12it's a very important concept.
  • 01:21:13I think for individuals to understand
  • 01:21:15that not all substance use is the same.
  • 01:21:18Not all substances the same,
  • 01:21:20and that there are variety of treatment
  • 01:21:23modalities that include counseling,
  • 01:21:25behavioral treatments,
  • 01:21:27medication and location of care.
  • 01:21:29As you were addressing.
  • 01:21:31And David, I want to
  • 01:21:32jump in and stress again.
  • 01:21:33I mentioned it earlier that nothing that
  • 01:21:37shatterproof does is my opinion, nothing.
  • 01:21:39The word proof is in shadow proof.
  • 01:21:42It's all based on what the CDC,
  • 01:21:45HHS SAMHSA randomly controlled
  • 01:21:48trials Surgeon General's report.
  • 01:21:50We're simply the implementer.
  • 01:21:53That's it, we're getting.
  • 01:21:55We're using basic business practices
  • 01:21:57which are fairly intuitive.
  • 01:21:58National National standard of care.
  • 01:22:01Gather data,
  • 01:22:02show which treatment programs
  • 01:22:03are delivering quality care,
  • 01:22:04and which ones aren't.
  • 01:22:06Keep that information to consumers
  • 01:22:07so they can choose treatment and then
  • 01:22:10supply and demand takes over and the
  • 01:22:12better quality care gets more demand
  • 01:22:14and the whole level of care rises.
  • 01:22:16It's it's.
  • 01:22:17It's not rocket science, what we're doing.
  • 01:22:20It's basic intuitive.
  • 01:22:22The rocket science is all the researchers.
  • 01:22:25And they have developed this content.
  • 01:22:26We're simply following it.
  • 01:22:30And convening bringing people together.
  • 01:22:32We can't do this on our own.
  • 01:22:34Its partnerships with states,
  • 01:22:35Lockheed Martin doing just
  • 01:22:37fine for their employees.
  • 01:22:38The 13 states partnering with us
  • 01:22:40without Atlas, JP Morgan Chase
  • 01:22:42with just five on and on and on,
  • 01:22:4460 companies and every day
  • 01:22:45we're adding another one.
  • 01:22:46We just added Aetna and CVS
  • 01:22:48for all their employees.
  • 01:22:50I mean, as this grows,
  • 01:22:52we're just taking the science
  • 01:22:53and getting it out there.
  • 01:22:57That's a great model, so I'm gonna
  • 01:22:59let Emma have the last question.
  • 01:23:02She's wondering if there is a hope for
  • 01:23:05a provider facing version of Atlas.
  • 01:23:09Yeah, so I I'm curious about
  • 01:23:13obviously Atlas does this tremendous
  • 01:23:16tremendous work of putting knowledge
  • 01:23:18into the hands of families and
  • 01:23:20patients knowledge that can be really
  • 01:23:22difficult to collate when you are,
  • 01:23:24you know, calling this number and
  • 01:23:26that trying to figure out where your
  • 01:23:27loved one can go to seek treatment.
  • 01:23:29And I'm wondering if a system like
  • 01:23:31Atlas can be similarly useful for
  • 01:23:34providers who are trying to have an
  • 01:23:36understanding the treatment landscape,
  • 01:23:38especially at that critical point.
  • 01:23:40Between.
  • 01:23:43Transition between residential
  • 01:23:44and outpatient care.
  • 01:23:46Where can I send my patient?
  • 01:23:49Already have it in addition
  • 01:23:51to the consumer site,
  • 01:23:52we have 3 password protected sites,
  • 01:23:54one for providers, one for states.
  • 01:23:59In 114 health care health care insurance,
  • 01:24:03so a health care insurer can use it
  • 01:24:05to see which providers are delivering
  • 01:24:08evidence based care and which ones aren't.
  • 01:24:11And if they see providers that are not
  • 01:24:12in their network that are doing well,
  • 01:24:14they can reach out to them and see
  • 01:24:16if they will join their network.
  • 01:24:17Alternatively, they can see if
  • 01:24:19there's providers in their network
  • 01:24:21not delivering care.
  • 01:24:22They can speak with that provider
  • 01:24:25about following the practices
  • 01:24:27and they can start to use it for
  • 01:24:29for incentive payment models.
  • 01:24:30For commercial payers states can use it.
  • 01:24:33Where where do I see lack of
  • 01:24:36providers in certain GF erratic areas?
  • 01:24:38What areas of the principles of care?
  • 01:24:41Or providers in my state not following
  • 01:24:44versus the average of other states.
  • 01:24:46So we don't give a state with every
  • 01:24:48other states doing but we give him
  • 01:24:50the average of other States and they
  • 01:24:51can see where their providers are
  • 01:24:53doing in relation to the average
  • 01:24:55of the other States and we do the
  • 01:24:57same thing with commercial payers
  • 01:24:59and we do the exact same thing.
  • 01:25:00We have a password protected
  • 01:25:02site for providers,
  • 01:25:03so every provider in those six
  • 01:25:05states right now is soon to be 13.
  • 01:25:06Can go on there and see exactly
  • 01:25:08where they are in the principles of
  • 01:25:10care and what is the state average.
  • 01:25:12And what is the state average
  • 01:25:14for all providers?
  • 01:25:15If they're outpatient,
  • 01:25:15they can just click a button and they'll
  • 01:25:17show the average for all outpatient.
  • 01:25:19If they're residential,
  • 01:25:20they can click a button that will
  • 01:25:22show the average of all residential,
  • 01:25:23and there's loads of information there,
  • 01:25:25and we also have three times a year.
  • 01:25:28Trainings,
  • 01:25:28you know,
  • 01:25:29webcast where we invite all the
  • 01:25:32providers in and we we.
  • 01:25:33We basically provide a segment of
  • 01:25:35learning for the areas that all
  • 01:25:37providers are not doing as well.
  • 01:25:39We also take that information and
  • 01:25:40look at it from a policy perspective.
  • 01:25:43You know if one state is doing
  • 01:25:44poor in one area of the principles
  • 01:25:47of care compared to the average
  • 01:25:49of all the other states,
  • 01:25:50it could be as simple as a policy change.
  • 01:25:53It needs to be done in that state.
  • 01:25:55Everyone always blames providers.
  • 01:25:56This is not about bad providers.
  • 01:25:58This is about making sure providers
  • 01:26:00have the right resources and
  • 01:26:02the right policies in place.
  • 01:26:03To do their jobs so we have all
  • 01:26:05this and anybody interested just
  • 01:26:07reach out to just go to our website
  • 01:26:10andshatterproof.org and ask to speak to Gary.
  • 01:26:11I'll put you in touch with the right
  • 01:26:13person or they can contact you,
  • 01:26:14Emma or Dave or any way you want.
  • 01:26:16We have all that.
  • 01:26:17We'll do a demo of the provider sites.
  • 01:26:20Or anything we're talking about
  • 01:26:21today we have it all.
  • 01:26:25Yeah, and I'll say that we
  • 01:26:27want to always make it better.
  • 01:26:29Any provider that goes to our site
  • 01:26:31and says if you could add this,
  • 01:26:33it'll help me more will add it.
  • 01:26:36I mean, it's just here to help people.
  • 01:26:38It's not proprietary to us.
  • 01:26:43So Gary again, I want to say thank you
  • 01:26:46for taking the time for sharing the
  • 01:26:49wonderful resources that shatterproof
  • 01:26:51and for sharing your story with us,
  • 01:26:54and to Kyle and the Sandgaard
  • 01:26:56Foundation for supporting this.
  • 01:26:58We look forward to future events
  • 01:27:01such as this in future sessions.
  • 01:27:04Please feel free to follow us.
  • 01:27:06You can follow SAndgaard foundation.
  • 01:27:09You can follow shatterproof you can
  • 01:27:10follow Gary and you can follow us at the
  • 01:27:13Yale program and addiction medicine.
  • 01:27:15So thank you,
  • 01:27:16everybody really appreciate your
  • 01:27:18attention time this afternoon and Gary.
  • 01:27:20Thank you again for all you've
  • 01:27:21done for the field.
  • 01:27:22Well, thank you all as well.
  • 01:27:24We're doing this together. Thanks.
  • 01:27:25Everybody. Take care. Here.