2024
Navigating life after New-onset refractory status epilepticus (NORSE) and Febrile infection-related epilepsy syndrome (FIRES): Insights from caregiver and patient interviews
Eschbach K, Reedy J, Gofton T, Gopaul M, Farias-Moeller R, Kellogg M, Knupp K, Hirsch L, Wong N, Dorsey Holliman B. Navigating life after New-onset refractory status epilepticus (NORSE) and Febrile infection-related epilepsy syndrome (FIRES): Insights from caregiver and patient interviews. Epilepsy & Behavior 2024, 163: 110236. PMID: 39740258, DOI: 10.1016/j.yebeh.2024.110236.Peer-Reviewed Original ResearchConceptsQuality of lifeCaregivers' quality of lifeDyadic semi-structured interviewsEmotional quality of lifeThematic content analysis approachComorbid health concernsHealth concernBehavioral health concernsContent analysis approachSignificant life changesMedication side effectsSemi-structured interviewsPatients' quality of lifeRisk of mortalityLife-altering impactPatient interviewsPatient independenceCaregiversNeurologically healthy individualsLife changesNew-onset refractory status epilepticusImpact patients' quality of lifeFebrile infection-related epilepsy syndromeFamily membersLong-term impactA Model for Understanding Lived Expertise to Support Effective Recruitment of Peer Roles
Byrne L, Roennfeldt H. A Model for Understanding Lived Expertise to Support Effective Recruitment of Peer Roles. Administration And Policy In Mental Health And Mental Health Services Research 2024, 52: 482-493. PMID: 39538088, DOI: 10.1007/s10488-024-01424-9.Peer-Reviewed Original ResearchPeer roleFocus groupsLived expertiseLived experienceImprove recruitment strategiesMulti-disciplinary organizationPeer workforceImpact of adverse experiencesPeer workersMental healthIndividual interviewsRecruitment strategiesQualitative studyRecruitment materialsDrug servicesCombination of individualLife changesEffects of rolesEffective recruitmentParticipantsPosition descriptionsExperiential knowledgeEssential knowledgeLivingPeer
2022
Systemic Anticancer Therapy at the End of Life—Changes in Usage Pattern in the Immunotherapy Era
Canavan ME, Wang X, Ascha MS, Miksad RA, Calip GS, Gross CP, Adelson KB. Systemic Anticancer Therapy at the End of Life—Changes in Usage Pattern in the Immunotherapy Era. JAMA Oncology 2022, 8: 1847-1849. PMID: 36264566, PMCID: PMC9585458, DOI: 10.1001/jamaoncol.2022.4666.Peer-Reviewed Original Research
2021
Naturalistic Use of Mescaline Is Associated with Self-Reported Psychiatric Improvements and Enduring Positive Life Changes
Agin-Liebes G, Haas T, Lancelotta R, Uthaug M, Ramaekers J, Davis A. Naturalistic Use of Mescaline Is Associated with Self-Reported Psychiatric Improvements and Enduring Positive Life Changes. ACS Pharmacology & Translational Science 2021, 4: 543-552. PMID: 33860184, PMCID: PMC8033766, DOI: 10.1021/acsptsci.1c00018.Peer-Reviewed Original ResearchPost-traumatic stress disorderMescaline experienceDrug use disordersPsychological insightsPositive life changesMental health benefitsPsychiatric improvementStress disorderPsychiatric conditionsPsychiatric treatmentUse disorderMystical-typeNaturalistic settingsNaturalistic usePsychotherapeutic potentialMescalineSelf-reported improvementPsychoactive alkaloidPsychological factorsLife changesAnxietyAssociated with increased oddsDepressionDisordersHealing ceremonies
2020
Long-term follow-up of psilocybin-assisted psychotherapy for psychiatric and existential distress in patients with life-threatening cancer
Agin-Liebes G, Malone T, Yalch M, Mennenga S, Ponté K, Guss J, Bossis A, Grigsby J, Fischer S, Ross S. Long-term follow-up of psilocybin-assisted psychotherapy for psychiatric and existential distress in patients with life-threatening cancer. Journal Of Psychopharmacology 2020, 34: 155-166. PMID: 31916890, DOI: 10.1177/0269881119897615.Peer-Reviewed Original ResearchConceptsPsilocybin-assisted psychotherapyLife-threatening cancerAnxiolytic responseExistential distressPsychiatric distressLong-term reliefQuality of lifeGroup effect sizesSubset of participantsSelf-reported symptomatologyParent trialPresent studySecond followPsilocybin administrationParent studyCrossover designPositive life changesTherapy experiencePatientsSpiritual wellDistressTherapyCancerEffect sizeLife changes
2015
Clubhouse Community Support for Life: Staff–Member Relationships and Recovery
Tanaka K, Craig T, Davidson L. Clubhouse Community Support for Life: Staff–Member Relationships and Recovery. Journal Of Psychosocial Rehabilitation And Mental Health 2015, 2: 131-141. DOI: 10.1007/s40737-015-0038-1.Peer-Reviewed Original Research
2013
Family and Relationship Influences on Parenting Behaviors of Young Parents
Kershaw T, Murphy A, Lewis J, Divney A, Albritton T, Magriples U, Gordon D. Family and Relationship Influences on Parenting Behaviors of Young Parents. Journal Of Adolescent Health 2013, 54: 197-203. PMID: 24113495, PMCID: PMC3947006, DOI: 10.1016/j.jadohealth.2013.08.012.Peer-Reviewed Original ResearchConceptsSense of competenceFamily factorsParenting behaviorsRomantic relationshipsParents' romantic relationshipsPositive life changesInfluence of relationshipsNegative parentingYoung parentsFemale parentingRelationship factorsParenting involvementMonths postpartumRelationship influencesImportance of relationshipsMale parenting behaviorExpectant couplesMothers' involvementPositive experiencesLife changesParentingYoung mothersParentsCompetenceChildhood
2012
Support Group Processes: Perspectives from HIV-Infected Women in South Africa
Mundell J, Visser M, Makin J, Forsyth B, Sikkema K. Support Group Processes: Perspectives from HIV-Infected Women in South Africa. Qualitative Research In Psychology 2012, 9: 173-187. PMID: 22514790, PMCID: PMC3326420, DOI: 10.1080/14780887.2010.500350.Peer-Reviewed Original Research
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