2025
Evaluating survivorship-related communication gaps to develop a community health worker-led intervention for Hispanic/Latino young adult childhood cancer survivors and their families.
Smith S, Martin-Villa B, Pu K, Lewinsohn R, Smith M, Boynton H, Schapira L. Evaluating survivorship-related communication gaps to develop a community health worker-led intervention for Hispanic/Latino young adult childhood cancer survivors and their families. Journal Of Clinical Oncology 2025, 43: 10072-10072. DOI: 10.1200/jco.2025.43.16_suppl.10072.Peer-Reviewed Original ResearchYoung adult childhood cancer survivorsAdult childhood cancer survivorsCommunity-based organizationsFamily-centered communicationChildhood cancer survivorsCancer survivorsCommunity health worker-led interventionCommunity-based organization staffCommunication barriersCommunity-clinical partnershipsSurvivorship clinic visitCancer survivorship careCommunity health workersSurvivorship care needsIntervention design processPediatric oncology clinicYears post-diagnosisSurvivorship careCare needsDedoose softwareHealth workersCancer historyEmotional burdenClinical encountersOncology clinicCommunication in AYA survivorship clinical settings: Best practices and challenges.
Smith S, Martin-Villa B, Kochenderfer M, Schapira L. Communication in AYA survivorship clinical settings: Best practices and challenges. Journal Of Clinical Oncology 2025, 43 DOI: 10.1200/jco.2025.43.16_suppl.e22020.Peer-Reviewed Original ResearchAdolescent/young adultCancer survivorsSemi-structured individual interviewsBarriers to effective communicationAdolescent/young adult survivorsClinician communication strategiesImprove health outcomesEffective communicationLack of timeDiverse practice settingsCommunication best practicesInformation survivorsBest practicesSurvivorship careSurvivorship settingTranscribed verbatimNurse practitionersPrimary careDedoose softwareEvaluate best practicesPerceived BarriersHealth outcomesIndividual interviewsFuture healthPsychosocial effectsAdolescent Perceptions of HIV Testing Access and Utilization Across Two States with Varying Laws Regulating Minors’ Access to Confidential Sexual Health Services: A Qualitative Study in Connecticut and New Jersey
Aivadyan C, Takenaka B, Rutledge J, Kershaw T. Adolescent Perceptions of HIV Testing Access and Utilization Across Two States with Varying Laws Regulating Minors’ Access to Confidential Sexual Health Services: A Qualitative Study in Connecticut and New Jersey. AIDS And Behavior 2025, 29: 2816-2830. PMID: 40272738, DOI: 10.1007/s10461-025-04738-3.Peer-Reviewed Original ResearchSexual health servicesHealth servicesHealth informationAndersen's Behavioral Model of Health Services UseBehavioral Model of Health Services UseSexually active adolescentsModel of Health Services UseQualitative studyConfidentiality concernsDiscussion of sexual health issuesHIV testing uptakeHealth service useHealth service utilizationPrivacy of health informationAndersen's Behavioral ModelActive adolescentsSexual health issuesSexual health informationSemi-structured interviewsTesting uptakeDedoose softwareService useService utilizationHealthcare providersConfidential care
2024
User preferences for an mHealth app to support HIV testing and pre-exposure prophylaxis uptake among men who have sex with men in Malaysia
Palmer L, Wickersham J, Gautam K, Maviglia F, Bruno B, Azwa I, Khati A, Altice F, Paudel K, Pagoto S, Shrestha R. User preferences for an mHealth app to support HIV testing and pre-exposure prophylaxis uptake among men who have sex with men in Malaysia. PLOS Digital Health 2024, 3: e0000643. PMID: 39475851, PMCID: PMC11524455, DOI: 10.1371/journal.pdig.0000643.Peer-Reviewed Original ResearchHIV prevention servicesHIV testingPreventive servicesPre-exposure prophylaxis uptakeHIV prevention appIncrease HIV testingMobile appsPrevalence of HIVHard-to-reach populationsStudy assessed attitudesOnline focus groupsMalaysian MSMCost of servicesPrEP uptakeDedoose softwareMHealth appsPrevention appsFocus groupsIntervention modalitiesMSMEngagement strategiesHIVConfidentiality risksThematic contentMenAdaptation of a Theory-Based Mobile App to Improve Access to HIV Prevention Services for Transgender Women in Malaysia: Focus Group Study
Gautam K, Shrestha R, Dlamini S, Razali B, Paudel K, Azwa I, Saifi R, Toh Y, Lim H, Sutherland R, Restar A, Phanuphak N, Wickersham J. Adaptation of a Theory-Based Mobile App to Improve Access to HIV Prevention Services for Transgender Women in Malaysia: Focus Group Study. JMIR Formative Research 2024, 8: e56250. PMID: 39137407, PMCID: PMC11350319, DOI: 10.2196/56250.Peer-Reviewed Original ResearchHIV prevention servicesTransgender womenFocus groupsPrEP uptakePreventive servicesCare servicesHIV preventionFG sessionsBarriers to PrEP uptakeUptake of HIV pre-exposure prophylaxisHIV pre-exposure prophylaxisTailored HIV preventionMobile appsReduce HIV vulnerabilityPre-exposure prophylaxisFocus group studyPrEP knowledgeTheater testingDedoose softwareMobile healthMultifaceted barriersDeliver interventionsHIV vulnerabilityPrEP barriersWomen's needs
2022
Ethical Issues in the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men
Khati A, Wickersham J, Rosen A, Luces J, Copenhaver N, Jeri-Wahrhaftig A, Halim M, Azwa I, Gautam K, Ooi K, Shrestha R. Ethical Issues in the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men. JMIR Formative Research 2022, 6: e42939. PMID: 36563046, PMCID: PMC9823573, DOI: 10.2196/42939.Peer-Reviewed Original ResearchHIV prevention programsHIV preventionPrevention programsHIV prevention cascadeMobile health platformMalaysian MSMPrevention cascadeImplementation of appsKey populationsFocus group studyInformed consentDedoose softwareGroup studySmartphone appMSMPreventionHealth informationPersonal health informationHealth platformMenUnintended harmFocus group discussionsSexEthical concernsEquitable accessPerspectives on Ethical Issues Around the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men
Khati A, Shrestha R, Rosen A, Luces J, Wickersham J, Azwa I, Halim M. Perspectives on Ethical Issues Around the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men. Iproceedings 2022, 8: e39372. DOI: 10.2196/39372.Peer-Reviewed Original ResearchHIV prevention effortsHIV prevention programsHIV preventionMalaysian MSMPrevention effortsPrevention programsHIV prevention cascadePrevention cascadeImplementation of appsKey populationsFocus group studyMSMDedoose softwareGroup studySmartphone appPreventionMenOnline focus group discussionsFocus group discussionsApp useSexRiskParticipantsConfidentiality concernsEthical concerns
This site is protected by hCaptcha and its Privacy Policy and Terms of Service apply