Big Data in Transplantation Practice-the Devil Is in the Detail-Fontan-associated Liver Disease.
Kim M, Nguyen A, Lo M, Kumar S, Bucuvalas J, Glynn E, Hoffman M, Fischer R, Emamaullee J. Big Data in Transplantation Practice-the Devil Is in the Detail-Fontan-associated Liver Disease. Transplantation 2020, 105: 18-22. PMID: 32639398, DOI: 10.1097/tp.0000000000003308.Peer-Reviewed Original ResearchMeSH KeywordsAdolescentAdultAge FactorsAgedAged, 80 and overBig DataChildChild, PreschoolData CollectionData MiningDatabases, FactualFemaleFontan ProcedureHeart Defects, CongenitalHumansInfantInfant, NewbornLiver DiseasesLiver TransplantationMaleMiddle AgedRisk AssessmentRisk FactorsTreatment OutcomeYoung AdultConceptsFontan-associated liver diseasePatients post-FontanPost-FontanLiver diseaseSingle-ventricle heart diseaseHeart-liver transplantationProgressive hepatic fibrosisMultiple health systemsConsequences of chronic exposureFontan procedureFontan RegistryNoncardiac complicationsHeart-liverTime of heartFontan hemodynamicsLiver transplantationHepatocellular carcinomaFontanHepatic fibrosisIndividual patientsHeart diseasePatientsHealth systemAffected childrenTransplantationLong-Term Financial, Psychosocial, and Overall Health-Related Quality of Life After Living Liver Donation
Raza M, Kim M, Ding L, Fong T, Romero C, Genyk Y, Sher L, Emamaullee J. Long-Term Financial, Psychosocial, and Overall Health-Related Quality of Life After Living Liver Donation. Journal Of Surgical Research 2020, 253: 41-52. PMID: 32320896, PMCID: PMC8351216, DOI: 10.1016/j.jss.2020.03.025.Peer-Reviewed Original ResearchConceptsHealth-related quality of lifeHealth-related qualityQuality of lifeHRQoL outcomesU.S. population normsShort Form-36Quality of Life SurveyFollow-upDiverse patient populationsPhysical activityHealthy potential donorsPopulation normsLiving liver donorsShort formHealth insuranceLifetime follow-upU.S. populationQuality of Life Survey dataLife SurveyAging populationLiver donationPatient populationPostdonation follow-upOutcomesWork performance