2023
Health literacy correlates with abbreviated full‐scale IQ in adolescent and young adults with sickle cell disease
Bhatt N, Calhoun C, Longoria J, Nwosu C, Howell K, Varughese T, Kang G, Jacola L, Hankins J, King A. Health literacy correlates with abbreviated full‐scale IQ in adolescent and young adults with sickle cell disease. Pediatric Blood & Cancer 2023, 70: e30281. PMID: 36861391, PMCID: PMC10425156, DOI: 10.1002/pbc.30281.Peer-Reviewed Original ResearchConceptsSickle cell diseaseFull-scale intelligence quotientAdequate health literacyHealth literacyCell diseaseNeurocognitive deficitsInadequate health literacyLow health literacyCross-sectional studyDevelopment of interventionsChronic conditionsAdult careHigh school educationSign toolHealth outcomesYounger ageLogistic regressionAge 15Young adultsYoung adulthoodHealthcare decisionsAYAsIntelligence quotientWechsler Abbreviated ScaleDisease
2020
Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study
Hankins JS, Shah N, DiMartino L, Brambilla D, Fernandez ME, Gibson RW, Gordeuk VR, Lottenberg R, Kutlar A, Melvin C, Simon J, Wun T, Treadwell M, Calhoun C, Baumann A, Potter MB, Klesges L, Bosworth H, . Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study. JMIR Research Protocols 2020, 9: e16319. PMID: 32442144, PMCID: PMC7388044, DOI: 10.2196/16319.Peer-Reviewed Original ResearchSickle Cell Disease Implementation ConsortiumSickle cell diseaseINTERNATIONAL REGISTERED REPORT IDENTIFIERMHealth interventionsDisease complicationsSickle cell disease careAcute disease complicationsImplementation-effectiveness studyNational Health LungHealth-related qualityEvidence-based guidelinesProportion of daysHealth appsHealth LungHydroxyurea useHydroxyurea therapyAppropriate prescribingMedication adherenceDisease careChronic diseasesMobile health appsCell diseasePrescribing behaviorHealth literacyPatients
2019
Evaluation of Factors Influencing Health Literacy in Adolescents and Adults with Sickle Cell Disease
Bhatt N, Calhoun C, Hodges J, Nwosu C, Kang G, King A, Zhao X, Hankins J. Evaluation of Factors Influencing Health Literacy in Adolescents and Adults with Sickle Cell Disease. Blood 2019, 134: 2110. DOI: 10.1182/blood-2019-130755.Peer-Reviewed Original ResearchSt. Jude Children's Research HospitalLimited health literacySickle cell diseaseHealth literacy levelsNewest Vital SignAdequate health literacyResearch HospitalFurther clinical developmentHealth literacyNVS scoresCell diseaseSevere genotypeClinical developmentHealth outcomesSt. Louis Children's HospitalLow health literacy levelsYoung adultsDisease-modifying therapiesHealth literacy assessmentHealth literacy scoresLow health literacyCross-sectional studyAppropriate health decisionsCare of adolescentsAdults ages 15