Collecting patient-reported outcome measures in the electronic health record: Lessons from the NIH pragmatic trials Collaboratory
Zigler C, Adeyemi O, Boyd A, Braciszewski J, Cheville A, Cuthel A, Dailey D, Del Fiol G, Ezenwa M, Faurot K, Justice M, Ho P, Lawrence K, Marsolo K, Patil C, Paek H, Richesson R, Staman K, Schlaeger J, O'Brien E. Collecting patient-reported outcome measures in the electronic health record: Lessons from the NIH pragmatic trials Collaboratory. Contemporary Clinical Trials 2023, 137: 107426. PMID: 38160749, PMCID: PMC10922303, DOI: 10.1016/j.cct.2023.107426.Peer-Reviewed Original ResearchPatient-reported outcome measuresElectronic health recordsPragmatic clinical trialsOutcome measuresHealth recordsClinical trialsHealth system's electronic health recordPatient-reported outcome dataOutcome measure selectionLow-resource settingsSecondary outcomesOutcome dataResource settingsLack of consensusStudy teamTrialsSystem prioritiesRecordsCliniciansAdministrationMeasuresPotential bias and lack of generalizability in electronic health record data: reflections on health equity from the National Institutes of Health Pragmatic Trials Collaboratory.
Boyd A, Gonzalez-Guarda R, Lawrence K, Patil C, Ezenwa M, O'Brien E, Paek H, Braciszewski J, Adeyemi O, Cuthel A, Darby J, Zigler C, Ho P, Faurot K, Staman K, Leigh J, Dailey D, Cheville A, Del Fiol G, Knisely M, Grudzen C, Marsolo K, Richesson R, Schlaeger J. Potential bias and lack of generalizability in electronic health record data: reflections on health equity from the National Institutes of Health Pragmatic Trials Collaboratory. Journal Of The American Medical Informatics Association 2023, 30: 1561-1566. PMID: 37364017, PMCID: PMC10436149, DOI: 10.1093/jamia/ocad115.Peer-Reviewed Original ResearchConceptsElectronic health record dataPragmatic clinical trialsHealth record dataPopulation health problemElectronic health record systemsClinical trialsEHR-derived dataHealth record systemsHealth problemsSocial determinantsHealth equityRecord dataVulnerable populationsEHR dataHealthcare systemNational InstituteRecord systemLack of generalizabilityHealthDifferent subsetsGeneralizable researchEPCTsPopulationPotential biasTrialsEquity and bias in electronic health records data
Boyd A, Gonzalez-Guarda R, Lawrence K, Patil C, Ezenwa M, O'Brien E, Paek H, Braciszewski J, Adeyemi O, Cuthel A, Darby J, Zigler C, Ho P, Faurot K, Staman K, Leigh J, Dailey D, Cheville A, Del Fiol G, Knisely M, Marsolo K, Richesson R, Schlaeger J. Equity and bias in electronic health records data. Contemporary Clinical Trials 2023, 130: 107238. PMID: 37225122, PMCID: PMC10330606, DOI: 10.1016/j.cct.2023.107238.Peer-Reviewed Original Research