2018
Emotional Impact of Illness and Care on Patients with Advanced Kidney Disease
O'Hare AM, Richards C, Szarka J, McFarland LV, Showalter W, Vig EK, Sudore RL, Crowley ST, Trivedi R, Taylor JS. Emotional Impact of Illness and Care on Patients with Advanced Kidney Disease. Clinical Journal Of The American Society Of Nephrology 2018, 13: 1022-1029. PMID: 29954826, PMCID: PMC6032592, DOI: 10.2215/cjn.14261217.Peer-Reviewed Original ResearchConceptsAdvanced kidney diseaseKidney diseasePatients' emotional experiencesIndividual providersHealth systemAdvance care planningEmotional impactHealth care systemWider health systemPeritoneal dialysisCenter hemodialysisCare planningClinicians' viewsPatient experiencePatientsIllnessAbstractTextIllness experienceCare systemCareDiseaseHealthcare systemOngoing studiesDialysisEmotional toll
2017
“Maybe They Don't Even Know That I Exist”: Challenges Faced by Family Members and Friends of Patients with Advanced Kidney Disease
O'Hare AM, Szarka J, McFarland LV, Vig EK, Sudore RL, Crowley S, Reinke LF, Trivedi R, Taylor JS. “Maybe They Don't Even Know That I Exist”: Challenges Faced by Family Members and Friends of Patients with Advanced Kidney Disease. Clinical Journal Of The American Society Of Nephrology 2017, 12: 930-938. PMID: 28356337, PMCID: PMC5460720, DOI: 10.2215/cjn.12721216.Peer-Reviewed Original ResearchConceptsAdvanced kidney diseaseFriends of patientsHealth care systemCourse of illnessKidney diseaseCare systemPatient careSound Health Care SystemFamily membersAdvanced chronic illnessPatients' family membersAdvance care planningComplex medical careChronic illnessPatient's illnessTreatment decisionsCare planningPatientsMedical careVeterans AffairsIllnessAbstractTextDiseaseCareInvolvement