A multidisciplinary approach to the clinical management of Prader–Willi syndrome
Duis J, van Wattum P, Scheimann A, Salehi P, Brokamp E, Fairbrother L, Childers A, Shelton A, Bingham N, Shoemaker A, Miller J. A multidisciplinary approach to the clinical management of Prader–Willi syndrome. Molecular Genetics & Genomic Medicine 2019, 7: e514. PMID: 30697974, PMCID: PMC6418440, DOI: 10.1002/mgg3.514.Peer-Reviewed Original ResearchMeSH KeywordsDisease ManagementHealth Knowledge, Attitudes, PracticeHealth PersonnelHumansInterdisciplinary CommunicationPrader-Willi SyndromeSurveys and QuestionnairesConceptsPrader-Willi syndromeMultidisciplinary clinicQuality family-centered careAppropriate clinical outcome measuresClinical outcome measuresMultidisciplinary approachFamily-centered careUnmet medical needPatient-centered careComplex neuroendocrine disorderCenters of excellenceCaregiver burdenClinical managementCare teamDearth of evidenceMedical homeNeuroendocrine disordersOutcome measuresNew therapiesRare diseaseAcademic centersCare practicesCare expertsMedical needNatural history