2023
Disease-Related Distress in Pediatric IBD: Development and Validation of the Crohn’s and Colitis Distress Scale
Stellway J, Cummings C, Paternostro J, Stoeckel M, Muir L, Harris M. Disease-Related Distress in Pediatric IBD: Development and Validation of the Crohn’s and Colitis Distress Scale. Clinical Practice In Pediatric Psychology 2023, 11: 147-156. DOI: 10.1037/cpp0000444.Peer-Reviewed Original ResearchDistress ScaleEmotional distressDisease-related distressSubscale internal consistencyMental health concernsInflammatory bowel diseaseHealth outcomesPediatric inflammatory bowel diseaseRoutine careCronbach's alphaDetection of riskInternal consistencyTreatment engagementPsychometric propertiesPsychosocial functioningHealth concernDistressIncreased riskDiagnosis of ulcerative colitisDiverse sampleAssess psychopathologyGlobal anxietyYouthPeriods of exacerbationBowel diseasePiloting an Innovative System-Level Intervention for Pediatric Patients with Inflammatory Bowel Disease and Social Risk
Wagner D, Stoeckel M, Hansen T, Muir L, Harris M. Piloting an Innovative System-Level Intervention for Pediatric Patients with Inflammatory Bowel Disease and Social Risk. Clinical Practice In Pediatric Psychology 2023, 11: 134-146. DOI: 10.1037/cpp0000481.Peer-Reviewed Original ResearchHigh social riskRecommended preventive careAcute care useSystem-level interventionsHealthcare utilization dataFrequency of hospital admissionsInflammatory bowel diseasePretest-posttest designCare useImprove disease managementPreventive careEHR recordsED visitsSocial risksUtilization dataHospital admissionNovel interventionsDemographic informationDisease managementService initiativesAttendance dataChildren's HealthcareIncreased engagementBowel diseaseChart review
2022
THE CROHN’S AND COLITIS DISTRESS SCALE: ASSESSING THE DOMAINS OF IMPACT IN YOUTH WITH IBD
Cummings C, Stellway J, Paternostro J, Stoeckel M, Muir L, Harris M. THE CROHN’S AND COLITIS DISTRESS SCALE: ASSESSING THE DOMAINS OF IMPACT IN YOUTH WITH IBD. Inflammatory Bowel Diseases 2022, 28: s97-s97. DOI: 10.1093/ibd/izac015.158.Peer-Reviewed Original ResearchExploratory factor analysisFive-factor structureDistress ScaleAverage length of timeFactor analysisMeasures of anxietyFactor loadingsSymptom-related distressInflammatory bowel diseaseDomains of impactAdequate factor loadingsSubsample of participantsMedication side effectsLength of timeDisease-related processesInternalizing symptomsPhysician-relatedFactor structureEmotional burdenHealth populationPsychometric soundnessChronic illnessEmotional experienceRegimen-relatedDistress domains
2019
P027 THE EMOTIONAL EXPERIENCE OF IBD: ARE THEY ALL DEPRESSED OR ARE WE MISSING SOMETHING?
Harris M, Paternostro J, Stoeckel M, Mackay H, Muir L. P027 THE EMOTIONAL EXPERIENCE OF IBD: ARE THEY ALL DEPRESSED OR ARE WE MISSING SOMETHING? Inflammatory Bowel Diseases 2019, 25: s13-s13. DOI: 10.1093/ibd/izy393.031.Peer-Reviewed Original ResearchExperience of inflammatory bowel diseaseEmotional experienceIdentification of psychopathologyMeasures of depressionGeneral depressionDevelopment of treatment approachesMedication side effectsDisease burdenDiagnosed depressionAnxietyInflammatory bowel diseaseDuration of inflammatory bowel diseaseInflammatory bowel disease symptomsDepressionDistress ScaleDistressGastroenterology appointmentProgressive chronic diseaseState of disease activityThreat of complicationsTreatment approachesTraditional mode of treatmentExtant researchCronbach's alphaClinical care