2020
Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
De Marchi F, Berry J, Chan J, Caldwell S, Ellrodt A, Scalia J, Burke K, Fang T, Clark Sisodia R, Schwamm L, Moura L, Paganoni S. Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis. Journal Of Neurology 2020, 267: 1754-1759. PMID: 32125520, DOI: 10.1007/s00415-020-09774-8.Peer-Reviewed Original ResearchConceptsOutcome measuresClinical careALS Functional RatingMental health subscoresALSFRS-R scoreOutpatient clinic visitsOutcomes Measurement Information SystemClinical outcome measuresRoutine clinical careMental health scoresAmyotrophic lateral sclerosisMeasurement Information SystemQuality of lifeTablet-based surveyALS careALS clinicClinic visitsPROM scoresFunctional ratingClinic staffHealth scoresLateral sclerosisPROM collectionPatientsPhysical health
2016
Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic
Moura L, Schwamm E, Moura Junior V, Seitz M, Hsu J, Cole A, Schwamm L. Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic. Neurology 2016, 87: 2435-2442. PMID: 27815405, PMCID: PMC5177682, DOI: 10.1212/wnl.0000000000003409.Peer-Reviewed Original ResearchConceptsPatient-reported outcome measuresT-scoreNeurology clinicAmbulatory neurology clinicMental health T-scoresGeneral neurology clinicPatient-reported outcomesMental health scoresUS general populationQuality of lifeMental health assessmentMean T-scoreQOLIE-10Rankin ScaleNeurology patientsEpilepsy scoresClinical dataOutcome measuresHealth scoresAdministrative claimsGeneral populationPatientsStudy periodVulnerable populationsDemographic characteristics