2020
Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
De Marchi F, Berry J, Chan J, Caldwell S, Ellrodt A, Scalia J, Burke K, Fang T, Clark Sisodia R, Schwamm L, Moura L, Paganoni S. Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis. Journal Of Neurology 2020, 267: 1754-1759. PMID: 32125520, DOI: 10.1007/s00415-020-09774-8.Peer-Reviewed Original ResearchConceptsOutcome measuresClinical careALS Functional RatingMental health subscoresALSFRS-R scoreOutpatient clinic visitsOutcomes Measurement Information SystemClinical outcome measuresRoutine clinical careMental health scoresAmyotrophic lateral sclerosisMeasurement Information SystemQuality of lifeTablet-based surveyALS careALS clinicClinic visitsPROM scoresFunctional ratingClinic staffHealth scoresLateral sclerosisPROM collectionPatientsPhysical health
2017
Experience with telemedicine in a multi-disciplinary ALS clinic
Van De Rijn M, Paganoni S, Levine-Weinberg M, Campbell K, Ellrodt A, Estrada J, Cohen A, Schwamm L, Berry J. Experience with telemedicine in a multi-disciplinary ALS clinic. Amyotrophic Lateral Sclerosis And Frontotemporal Degeneration 2017, 19: 143-148. PMID: 29250986, DOI: 10.1080/21678421.2017.1392577.Peer-Reviewed Original Research