2020
Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease
Bakshi N, Katoch D, Sinha C, Ross D, Quarmyne M, Loewenstein G, Krishnamurti L. Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease. JAMA Network Open 2020, 3: e206742. PMID: 32469414, PMCID: PMC7260617, DOI: 10.1001/jamanetworkopen.2020.6742.Peer-Reviewed Original ResearchConceptsBone marrow transplantCaregivers of patientsSickle cell diseasePatient decision aidMarrow transplantMedian ageCurative treatmentCell diseaseGroup 2Group 1Caregiver attitudesNovel disease-modifying therapiesDisease-modifying therapiesSickle cell clinicAssessment of patientsFuture prospective studiesRandomized clinical trialsParent trialProspective studyTreatment optionsClinical trialsNeeds assessment phaseMAIN OUTCOMECell clinicPatients
2011
Attitudes and Beliefs of African‐Americans Toward Genetics, Genetic Testing, and Sickle Cell Disease Education and Awareness
Long K, Thomas S, Grubs R, Gettig E, Krishnamurti L. Attitudes and Beliefs of African‐Americans Toward Genetics, Genetic Testing, and Sickle Cell Disease Education and Awareness. Journal Of Genetic Counseling 2011, 20: 572-592. PMID: 21748660, DOI: 10.1007/s10897-011-9388-3.Peer-Reviewed Original Research
2007
Health beliefs among African American women regarding genetic testing and counseling for sickle cell disease
Gustafson S, Gettig E, Watt-Morse M, Krishnamurti L. Health beliefs among African American women regarding genetic testing and counseling for sickle cell disease. Genetics In Medicine 2007, 9: 303-310. PMID: 17505208, DOI: 10.1097/gim.0b013e3180534282.Peer-Reviewed Original ResearchConceptsSickle cell diseaseAfrican American womenCell diseaseGenetic testingHealth beliefsAmerican womenLikelihood of benefitHealth Belief ModelGynecology clinicHigh prevalenceDisease preventionDiseaseAnonymous questionnaireBelief ModelSeverityLikert scale responsesGenetic counselingWomenCounselingCounseling strategiesCumulative meanRiskLow acceptanceChildrenLikert scale