2020
Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care
Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M. Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care. JAMA Network Open 2020, 3: e206016. PMID: 32469413, PMCID: PMC7260622, DOI: 10.1001/jamanetworkopen.2020.6016.Peer-Reviewed Original ResearchConceptsSickle cell diseaseSickle Cell Disease Implementation ConsortiumCell diseaseInherited red blood cell disorderResponse rateQuality careAdequate quality carePerception of outpatientsUsual care cliniciansUsual care physiciansEmergency department careAcute care settingRed blood cell disordersHealth careMedical care experienceWorse health outcomesQuality of careMultiple health disparitiesBlood cell disordersQuality health careED satisfactionAcute painED visitsSevere painYounger patients
2019
The Relationship between Mental Health, Educational Attainment, Employment Outcomes, and Pain in Sickle Cell Disease
Harris K, Varughese T, Bauer A, Howdeshell S, Calhoun C, Abel R, King A. The Relationship between Mental Health, Educational Attainment, Employment Outcomes, and Pain in Sickle Cell Disease. Blood 2019, 134: 419. DOI: 10.1182/blood-2019-129874.Peer-Reviewed Original ResearchLength of painSickle cell diseaseSeverity of painHistory of depressionSevere painPain outcomesAnnual household incomePain crisisPain frequencyCell diseaseSocioeconomic statusMultivariate analysisSeverity of SCDSignificant associationEmployment statusMental healthHigher pain frequencyHospital admission frequencyEnd-organ damageFrequency of painVariety of complicationsPatients' educational attainmentCross-sectional studyOnly significant associationPatient survey data