2024
Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools
Alpert A, Hernandez T, Ruddick R, Manzano C, Adams S, Rivers L, Ramos-Pibernus A, Sevelius J, Poteat T, Obedin-Maliver J, Cicero E, Radix A, Lett E, Operario D, Chapman B, Wittink M, Cupertino A, Murchison G, Nunez-Smith M, Cartujano-Barrera F. Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools. Patient Education And Counseling 2024, 130: 108473. PMID: 39471780, DOI: 10.1016/j.pec.2024.108473.Peer-Reviewed Original ResearchTGD peopleGender identity questionTGD participantsConflation of sexConcepts of sexIdentical questionsTGD adultsGender identityCommunity membersTGDContextual factorsQualitative dataGenderDecrease stigmaPeopleData collection toolTemplate analysisQuantitative dataAnalyzed quantitative dataCisgenderismCollective preferencesQuestionsTransgenderMedical careMixing methodDoes cancer clinical trial enrollment for sexual and gender minority people differ from heterosexual, cisgender people?
Alpert A, Obedin-Maliver J, Gjelsvik A, Amanullah S, Shireman T, Blosnich J. Does cancer clinical trial enrollment for sexual and gender minority people differ from heterosexual, cisgender people? Contemporary Clinical Trials 2024, 146: 107695. PMID: 39303766, DOI: 10.1016/j.cct.2024.107695.Peer-Reviewed Original ResearchBehavioral Risk Factor Surveillance SurveyCancer clinical trial enrollmentClinical trial enrollmentTrial enrollmentRisk Factor Surveillance SurveySGM peopleNon-SGM individualsClinical trial participationCancer disparitiesSurveillance SurveyReport participationGender minority peopleTrial participantsSGM statusSGM individualsPartnership statusLogistic regressionCisgender peopleData collection methodsEnrollmentOncological treatmentOddsMinority peopleParticipantsSGMAssociations between violence, distress, and cancer in transgender and non-transgender people.
Alpert A, Sayegh S, Cunliffe S, Sevelius J, Operario D, Pachankis J, Irwin M, Cerulli C, Griggs J, Strawderman M. Associations between violence, distress, and cancer in transgender and non-transgender people. Journal Of Clinical Oncology 2024, 42: 10566-10566. DOI: 10.1200/jco.2024.42.16_suppl.10566.Peer-Reviewed Original ResearchCancer risk factorsDiagnosis codesRisk factorsRates of violenceElectronic medical record dataTransgender peopleCross-sectional cohort studyMedical record dataGender identity informationGender identityIncreased cancer morbidityBias-corrected bootstrap confidence intervalsAssess distressProbability of cancerScreening questionsCancer riskCancer morbidityChi-square testComparison of violenceExperiences of violenceCohort studyAcademic hospitalVariable of violenceIndirect pathsRecord dataDoing Justice: Ethical Considerations Identifying and Researching Transgender and Gender Diverse People in Insurance Claims Data
Alpert A, Babbs G, Sanaeikia R, Ellison J, Hughes L, Herington J, Dembroff R. Doing Justice: Ethical Considerations Identifying and Researching Transgender and Gender Diverse People in Insurance Claims Data. Journal Of Medical Systems 2024, 48: 96. PMID: 39394534, PMCID: PMC11469973, DOI: 10.1007/s10916-024-02111-w.Peer-Reviewed Original ResearchConceptsTGD individualsSelf-identificationHealth of transgenderGender diverse peopleGender self-identificationTGD peopleTGD populationsDiverse peopleEpistemic injusticeTransgenderTGDGenderHealth researchHealth services researchEthical complexitiesPeopleServices researchClaims-based algorithmInjusticeInsuranceHealthIndividualsEthical considerationsResearchClaims
2023
Prevalence and correlates of current cigarette smoking among transgender women in Argentina
Cartujano-Barrera F, Mejia R, Radusky P, Cardozo N, Duarte M, Fabian S, Caballero R, Zalazar V, Ramos-Pibernus A, Alpert A, Cupertino A, Frola C, Aristegui I. Prevalence and correlates of current cigarette smoking among transgender women in Argentina. Frontiers In Public Health 2023, 11: 1279969. PMID: 38115852, PMCID: PMC10728477, DOI: 10.3389/fpubh.2023.1279969.Peer-Reviewed Original ResearchConceptsGender identity stigmaCurrent cigarette smokingTransgender womenIdentity stigmaAssociated with current cigarette smokingHistory of sex workSubstance useCigarette smokingHazardous drinkingBuenos AiresPrevalence of current cigarette smokingPerceived health statusSexual violenceTransgender individualsSmoking cessation interventionsBaseline dataSex workCisgender womenAssociated with educationSecondary data analysisProspective cohort studyPoliceHazardous alcohol drinkingLogistic regression modelsCessation interventionsTransgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study
Alpert A, Mehringer J, Orta S, Hernandez T, Redwood E, Rivers L, Manzano C, Ruddick R, Adams S, Sevelius J, Belanger E, Operario D, Griggs J. Transgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study. The Annals Of Family Medicine 2023, 21: 408-415. PMID: 37748898, PMCID: PMC10519763, DOI: 10.1370/afm.3010.Peer-Reviewed Original ResearchConceptsCommunity-based participatory research approachFocus groupsSafety of clinical careTransgender peopleFamily medicine cliniciansInterpretive description methodologyParticipatory research approachQualitative focus groupsData collection toolSuboptimal careTransgender people's experiencesSubstandard careHealth informationClinical encountersDescriptive methodologyPeer debriefingClinical careClinicians' questionsQualitative studyPurposive samplingMedical cultureCareCommunity membersTransgender adultsMedical systemDebunking Sex and Disentangling Gender From Oncology
Alpert A, Rivers L, Manzano C, Ruddick R, Adams S, Obedin-Maliver J, Harvey R, Griggs J, Operario D. Debunking Sex and Disentangling Gender From Oncology. Journal Of Clinical Oncology 2023, 41: 3791-3795. PMID: 37235816, PMCID: PMC10860932, DOI: 10.1200/jco.22.02037.Peer-Reviewed Original ResearchPartnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations.
Katz N, Alpert A, Aristizabal M, McDaniels-Davidson C, Sacks B, Sanft T, Chou C, Martinez M. Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations. American Society Of Clinical Oncology Educational Book 2023, 43: e397264. PMID: 37200592, DOI: 10.1200/edbk_397264.Peer-Reviewed Original ResearchConceptsPediatric populationOncology careFamily-centered careQuality of carePatient populationCancer careCancer morbidityOncology cliniciansClinical trialsEffective patientPatientsCare provisionCancer diagnosisCareHealth careCaregiversCertain populationsUnequal burdenResearch participationCliniciansInequitable accessIndividual needsPopulationMorbidityMortalityThe Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content.
Freedman-Cass D, Fischer T, Alpert A, Obedin-Maliver J, Kunz P, Koh W, Carlson R. The Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content. Journal Of The National Comprehensive Cancer Network 2023, 21: 434-441. PMID: 37156485, DOI: 10.6004/jnccn.2023.7025.Peer-Reviewed Original ResearchConceptsCancer careEquitable cancer careEffective cancer careNCCN Clinical Practice GuidelinesClinical practice guidelinesOptimal oncology careRepresentation of diverse populationsCancer informationOncology careAnti-fat biasPractice guidelinesCareDiverse populationsNCCN GuidelinesGoals of equityNCCNHigh-qualityGuidelinesInclusionSexual orientationInclusive languagePatientsNonstigmatizingIndividualsProfessional contentMethodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Griggs J, Cerulli C. Methodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences. Medical Care 2023, 61: 384-391. PMID: 37072686, PMCID: PMC10168107, DOI: 10.1097/mlr.0000000000001852.Peer-Reviewed Original ResearchConceptsElectronic medical record dataElectronic medical recordsExperiences of violenceCisgender peopleTransgender peopleCisgender cohortRates of violenceMedical recordsImplement effective interventionsCross-sectional studyIdentified violenceStop violenceTransgenderImprove careViolenceScreening questionsCisgenderUpstate New YorkDiagnostic codesEffective interventionsDiagnosis codesRegional referral centerMedical sequelaeMcNemar testCohortDisparities in health condition diagnoses among aging transgender and cisgender medicare beneficiaries, 2008-2017
Hughto J, Varma H, Babbs G, Yee K, Alpert A, Hughes L, Ellison J, Downing J, Shireman T. Disparities in health condition diagnoses among aging transgender and cisgender medicare beneficiaries, 2008-2017. Frontiers In Endocrinology 2023, 14: 1102348. PMID: 36992801, PMCID: PMC10040837, DOI: 10.3389/fendo.2023.1102348.Peer-Reviewed Original ResearchConceptsHealth condition diagnosisCisgender individualsMedicare beneficiariesHealth diagnosisProportion of transgenderMedicare fee-for-service dataGender differencesModifiable risk factorsTrans masculineTransgender individualsTransgender populationCisgender sampleCisgender maleTransgenderMonths of enrollmentCisgenderNon-HispanicCondition diagnosisBetween-group gender differencesDocumented disparitiesNational estimatesHealth conditionsAnalytic sampleEnrollment lengthHighest burden
2022
Sexual and gender minority cultural humility training for oncology settings: An example of iterative adaptation and implementation
Kamen C, Reichelt M, Dadgostar P, Alpert A, Doucette C, Vaughan P, Keuroghlian A, Yousefi-Nooraie R. Sexual and gender minority cultural humility training for oncology settings: An example of iterative adaptation and implementation. Frontiers In Health Services 2022, 2: 958274. PMID: 36925900, PMCID: PMC10012625, DOI: 10.3389/frhs.2022.958274.Peer-Reviewed Original ResearchCultural humility trainingOncology practiceOncology settingOncology care settingsCancer care providersMultiple national organizationsThe Fenway InstituteImplementing such trainingInstitutional culture changeOncology providersTraining team membersReporting AdaptationsCare providersCare settingsHealth needsSGM patientsTraining interventionHealth carePractice environmentTraining sessionsOncology departmentContent of trainingTeam membersNational organizationsRadiation oncology departmentsAddressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data
Alpert A, Brewer J, Adams S, Rivers L, Orta S, Blosnich J, Miedlich S, Kamen C, Dizon D, Pazdur R, Beaver J, Fashoyin-Aje L. Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data. Journal Of Clinical Oncology 2022, 41: 1825-1829. PMID: 36302204, PMCID: PMC10082226, DOI: 10.1200/jco.22.01174.Peer-Reviewed Original ResearchGender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology.
Alpert A, Scout N, Schabath M, Adams S, Obedin-Maliver J, Safer J. Gender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology. American Society Of Clinical Oncology Educational Book 2022, 42: 1-17. PMID: 35658501, DOI: 10.1200/edbk_350175.Peer-Reviewed Original ResearchConceptsTransgender identityTransgender peopleGender minoritiesImpact of stigmaGender identitySexual orientationSGM peopleStructural discriminationSGM patientsSGMPromote inclusionGenderSystem changesU.S. populationOncology settingPeopleStigmaIdentityGenderqueerQueerTransgenderAgenderComprehensive data collectionCancer disparitiesInequalityAssociations between interpersonal violence and cancer risk factors for transgender and cisgender people.
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Cupertino A, Griggs J, Cerulli C. Associations between interpersonal violence and cancer risk factors for transgender and cisgender people. Journal Of Clinical Oncology 2022, 40: 6516-6516. DOI: 10.1200/jco.2022.40.16_suppl.6516.Peer-Reviewed Original ResearchCancer risk factorsRates of smokingCisgender peopleRisk factorsTransgender peopleRobust Poisson regression modelsDecrease socioeconomic disparitiesCancer prevention researchPoisson regression modelsRisk of cancerInterpersonal violenceFollow-up timeSocioeconomic disparitiesPrevalence ratiosPrevention researchRates of interpersonal violenceExperiences of violenceLife courseSmokingSignificantly higher ratesBMIExposure to interpersonal violenceRegression modelsOncology communityStatistically significant differenceCancer risk factors and cancer in transgender versus cisgender people: Real-world data from a tertiary health care institution.
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Cupertino A, Cerulli C, Griggs J. Cancer risk factors and cancer in transgender versus cisgender people: Real-world data from a tertiary health care institution. Journal Of Clinical Oncology 2022, 40: 6538-6538. DOI: 10.1200/jco.2022.40.16_suppl.6538.Peer-Reviewed Original ResearchCancer risk factorsElectronic health recordsBody mass indexPrevalence of cancerHuman immunodeficiency virusCisgender peopleRisk factorsElectronic health record fieldsInstitutional electronic health recordsAssessed body mass indexTransgender peopleTertiary health care institutionHuman papilloma virusRates of smokingHealth care institutionsPremalignant lesionsGender identity dataYears of follow-upPrevalence of premalignant lesionsTobacco cessationHealth recordsStructural stigmaChi-square testSmoking statusTransmission of human immunodeficiency virusExperiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study
Alpert A, Mehringer J, Orta S, Redwood E, Hernandez T, Rivers L, Manzano C, Ruddick R, Adams S, Cerulli C, Operario D, Griggs J. Experiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study. Journal Of General Internal Medicine 2022, 38: 970-977. PMID: 35641720, PMCID: PMC10039220, DOI: 10.1007/s11606-022-07671-6.Peer-Reviewed Original ResearchConceptsElectronic health recordsExperiences of transgender peopleHealth recordsAudio-recordings of focus groupsFocus groupsElectronic health record documentationPatients immediate accessTransgender peopleInterpretive description methodologyPatient-clinician rapportPatient-clinician relationshipCommunity-engaged researchResultsFour themesDesignQualitative studyOpenNotes movementQuality careDigital audio recordingsCentury Cures ActClinician notesStigmatized patientsDescriptive methodologyReduce harmSnowball samplingPurposive samplingCures ActAn international analysis evaluating frontline bendamustine with rituximab in extranodal marginal zone lymphoma
Alderuccio J, Arcaini L, Watkins M, Beaven A, Shouse G, Epperla N, Spina M, Stefanovic A, Sandoval-Sus J, Torka P, Alpert A, Olszewski A, Kim S, Hess B, Gaballa S, Ayyappan S, Castillo J, Argnani L, Voorhees T, Saba R, Chowdhury S, Vargas F, Reis I, Kwon D, Alexander J, Zhao W, Edwards D, Martin P, Cencini E, Kamdar M, Link B, Logothetis C, Herrera A, Friedberg J, Kahl B, Luminari S, Zinzani P, Lossos I. An international analysis evaluating frontline bendamustine with rituximab in extranodal marginal zone lymphoma. Blood Advances 2022, 6: 2035-2044. PMID: 35196377, PMCID: PMC9006265, DOI: 10.1182/bloodadvances.2021006844.Peer-Reviewed Original ResearchConceptsProgression-free survivalEastern Cooperative Oncology GroupMALT-IPIRituximab maintenanceOverall survivalHerpes zosterAssociated with longer progression-free survivalPerformance status 0 to 1Associated with shorter progression-free survivalHeterogeneous non-Hodgkin lymphomasPresence of B symptomsLonger progression-free survivalShorter progression-free survivalExtranodal marginal zone lymphomaOccurrence of herpes zosterMarginal zone lymphomaInternational Prognosis IndexNon-Hodgkin's lymphomaAdvanced-stage diseaseCooperative Oncology GroupStandard-of-careAdverse prognosis factorsAssociated with occurrenceImpact OSUpfront regimensImproving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data
Hughto J, Hughes L, Yee K, Downing J, Ellison J, Alpert A, Jasuja G, Shireman T. Improving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data. LGBT Health 2022, 9: 254-263. PMID: 35290746, PMCID: PMC9150133, DOI: 10.1089/lgbt.2021.0433.Peer-Reviewed Original ResearchConceptsTransgender peopleGender categoriesTransgender individualsSample of transgender individualsChronic health conditionsTransgender populationTransgender samplesSex-specific conditionsOdds of post-traumatic stress disorderDrug use disordersHealth conditionsHealth disparitiesGender categorizationGenderCensus regionPeopleUse disorderTransgenderInsuranceAlcohol use disorderPost-traumatic stress disorderCensusIndividualsAtherosclerotic cardiovascular disordersLogistic regression
2021
“I'm a transgender man… I have to quit smoking for treatment and surgery”: Describing the experience of a Latino transgender man during his attempt to quit smoking
Cartujano-Barrera F, Cox L, Catley D, Shah Z, Alpert A, Cupertino A. “I'm a transgender man… I have to quit smoking for treatment and surgery”: Describing the experience of a Latino transgender man during his attempt to quit smoking. Explore: The Journal Of Science & Healing 2021, 19: 131-135. PMID: 34823998, PMCID: PMC9110554, DOI: 10.1016/j.explore.2021.11.005.Peer-Reviewed Original ResearchConceptsTransgender menQuit smokingMessaging interventionMobile interventionsSmoking cessation randomized controlled trialTransgender peopleGender-affirming surgeryGender identitySmoking cessation interventionsLow social supportSelf-reported abstinenceSelf-reported cigarette useRandomized controlled trialsCessation interventionsAffirmation surgeryLatino smokersIntervention periodSocial supportCigarette useHigh satisfactionText messagesControlled trialsSmokingGenderIntervention