2025
A Family Peer Advocate Model to Address Disparities in Access to Care for Minority Autistic Children with Co-Occurring Attention-Deficit/Hyperactivity Disorder
Trelles P, Mahjani B, Wilkinson E, Buonagura N, Donnelly L, Foss Feig J, Halpern D, McKay M, Siper P, Buxbaum J, Kolevzon A. A Family Peer Advocate Model to Address Disparities in Access to Care for Minority Autistic Children with Co-Occurring Attention-Deficit/Hyperactivity Disorder. Journal Of Developmental And Physical Disabilities 2025, 37: 217-238. DOI: 10.1007/s10882-024-10001-9.Peer-Reviewed Original ResearchFamily quality of lifeQuality of lifeCaregiver stressCaregivers of autistic childrenIntervention groupFamily qualityCare of autistic childrenLevels of caregiver stressCo-occurring attention deficit/hyperactivity disorderWait-list control designAccess to careSystems of careAttention deficit/hyperactivity disorderAssociated with significant burdenParent empowerment programPrimary outcome measureClinically significant improvementCaregiver strainPeer advocatesService utilizationChild behavioral outcomesCaregiversOutcome measuresCareSecondary outcomes
2024
“Faith and a sunny day”: Association of patient frailty with strain experienced by informal caregivers of older adults with non-muscle-invasive bladder cancer
Garg T, Maheshwari C, Frank K, Johns A, Rabinowitz K, Danella J, Becker H, Kirchner H, Nielsen M, Cohen H, Murphy T, McMullen C. “Faith and a sunny day”: Association of patient frailty with strain experienced by informal caregivers of older adults with non-muscle-invasive bladder cancer. Journal Of Geriatric Oncology 2024, 15: 102060. PMID: 39244892, PMCID: PMC11560472, DOI: 10.1016/j.jgo.2024.102060.Peer-Reviewed Original ResearchCaregiver Strain IndexDeficit accumulation indexInformal caregiversOlder adultsCaregiver strainInformal caregivers of older adultsCaregivers of older adultsAging-related conditionsCoping strategiesQualitative thematic content analysisDyads of older adultsCross-sectional survey studyConditions of older adultsInformal caregiver strainMultivariable negative binomial regressionThematic content analysisMeasures of frailtyCross-sectional studyNegative binomial regressionNon-muscle-invasive bladder cancerPre-frailSocial supportCaregiversSelf-report measuresGeriatric assessmentTelebehavioral Health for Caregivers of Children With Behavioral Health Needs to Address Caregiver Strain: Cohort Study
Loo T, Altman M, Grodberg D, La Guardia J, Bravata D. Telebehavioral Health for Caregivers of Children With Behavioral Health Needs to Address Caregiver Strain: Cohort Study. JMIR Pediatrics And Parenting 2024, 7: e59475. PMID: 39186369, PMCID: PMC11384170, DOI: 10.2196/59475.Peer-Reviewed Original ResearchCaregiver strainBehavioral health conditionsBehavioral health careHealth careHealth conditionsFinancial strainPre-post study designChild disease severityCaregivers of childrenSymptom clustersFuture care planningBehavioral health servicesBehavioral health needsDisrupted family relationshipsCaregivers' feelingsCare planningCommercially insured populationTelebehavioral healthHealth needsHealth servicesCaregiversChild's conditionCohort studyStudy designObjective strain
2019
Child and Family Team Meeting Characteristics and Outcomes in a Statewide System of Care
Schreier A, Horwitz M, Marshall T, Bracey J, Cummins M, Kaufman JS. Child and Family Team Meeting Characteristics and Outcomes in a Statewide System of Care. American Journal Of Community Psychology 2019, 63: 487-498. PMID: 30848833, PMCID: PMC6597283, DOI: 10.1002/ajcp.12323.Peer-Reviewed Original ResearchConceptsSystems of carePlan of careGreater caregiver strainCommunity-based servicesPoor outcomeCare coordinatorsCaregiver outcomesCaregiver strainCaregiver functioningCare processesWraparound careCareNumber of daysOutcomesMultiple regression analysisRegression analysisTeam meetingsPractice standardsChildrenBetter youth outcomesFamily outcomesStatewide systemBehavioral difficultiesHigh percentageMeasures of youth
2018
Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life?
Vick J, Ornstein K, Szanton S, Dy S, Wolff J. Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life? Journal Of Pain And Symptom Management 2018, 57: 199-208.e2. PMID: 30453054, PMCID: PMC6348024, DOI: 10.1016/j.jpainsymman.2018.11.004.Peer-Reviewed Original ResearchConceptsEnd of lifeDementia caregiversOlder adultsNondementia caregiversCaregivers of older adultsCommunity-living older adultsEnd-of-life statusHigher caregiver strainOlder adult deathsPrevalence of dementiaProportion of caregiversCare of personsMedicare enrollment filesEnd-of-lifeNationally Representative SampleMultivariate logistic regressionFamily caregiversCaregiving strainCaregiver strainCaregiver factorsProviding careSelf-CareEnrollment filesPrimary caregiversCaregivers
2014
Clinical Correlates and Predictors of Caregiver Strain in Children With Chronic Tic Disorders
Ramanujam K, Himle MB, Hayes LP, Woods DW, Scahill L, Sukhodolsky DG, Wilhelm S, Deckersbach T, Peterson AL, Specht M, Walkup JT, Chang S, Piacentini J. Clinical Correlates and Predictors of Caregiver Strain in Children With Chronic Tic Disorders. Children's Health Care 2014, 44: 249-263. PMID: 26855465, PMCID: PMC4739807, DOI: 10.1080/02739615.2014.948166.Peer-Reviewed Original ResearchChronic tic disorderCaregiver strainClinical correlatesInattention/hyperactivityTic disordersRandomized-controlled trialTic intensityParents of childrenCare providersBehavior therapyComorbid internalizingExternalizing problemsDisruptive behaviorChildrenObjective strainHyperactivityPredictorsDisordersCurrent studyBest predictorCorrelatesTherapyImpairmentTrials
2012
Rumination, gender, and depressive symptoms associated with caregiving strain in bipolar disorder
Perlick D, Gonzalez J, Michael L, Huth M, Culver J, Kaczynski R, Calabrese J, Miklowitz D. Rumination, gender, and depressive symptoms associated with caregiving strain in bipolar disorder. Acta Psychiatrica Scandinavica 2012, 126: 356-362. PMID: 22607486, PMCID: PMC3870006, DOI: 10.1111/j.1600-0447.2012.01874.x.Peer-Reviewed Original ResearchConceptsDepressive symptomsCaregiver strainBipolar disorderSystematic Treatment Enhancement ProgramAffective Disorders EvaluationPatient's clinical statusClinical Monitoring FormGreater caregiver strainCross-sectional studyRuminative styleClinical statusLifetime diagnosisPatientsDisorder evaluationSymptomsFemale caregiversPrimary caregiversMonitoring formCaregiversMild levelsDisordersDepressionFamily strainApparent associationFamily members
This site is protected by hCaptcha and its Privacy Policy and Terms of Service apply