2024
Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act
Fins J, Shulman K, Wright M, Shapiro Z. Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act. Neurorehabilitation 2024, 54: 141-147. PMID: 38217618, DOI: 10.3233/nre-230118.Peer-Reviewed Original ResearchConceptsDisability lawLegal protection of patientsInterface of medicineProtection of patientsAmerican jurisprudenceConstitutional protectionLegal protectionLawConstitutive elementsNewfound abilityMedical progressProtectionJurisprudenceLegislationBrain injuryAmericanModerate to severe brain injuryDisabilityParadoxBrain injury professionalsProfessionalsADASevere brain injuryBrainIdentity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations
Fins J, Merner A, Wright M, Lázaro-Muñoz G. Identity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations. The Hastings Center Report 2024, 54: 34-41. PMID: 38390681, PMCID: PMC11022755, DOI: 10.1002/hast.1567.Peer-Reviewed Original Research
2023
The Scholarly and Pedagogical Benefits of the Legal Laboratory: Lessons from the Consortium for the Advanced Study of Brain Injury at Yale Law School.
Shapiro Z, Deb C, Lawrence C, Golden A, Wright M, Kraschel K, Fins J. The Scholarly and Pedagogical Benefits of the Legal Laboratory: Lessons from the Consortium for the Advanced Study of Brain Injury at Yale Law School. The Journal Of Law, Medicine & Ethics 2023, 51: 672-683. PMID: 38088597, DOI: 10.1017/jme.2023.126.Peer-Reviewed Original ResearchCOVID-19 and Clinical Ethics
Fins J. COVID-19 and Clinical Ethics. 2023, 17-27. DOI: 10.1017/9781009265690.004.Peer-Reviewed Original Research
2022
The Unintended Consequences of Chile’s Neurorights Constitutional Reform: Moving beyond Negative Rights to Capabilities
Fins J. The Unintended Consequences of Chile’s Neurorights Constitutional Reform: Moving beyond Negative Rights to Capabilities. Neuroethics 2022, 15: 26. DOI: 10.1007/s12152-022-09504-z.Peer-Reviewed Original ResearchNegative rightsHuman rights lawInternational human rightsUnintended consequencesRights lawDisability lawChilean ConstitutionHuman rightsScience fiction fantasyConstitutional reformHealth justiceRightsScholarly scrutinyMartha NussbaumInternal disabilitiesNeurorightsLawFall preyReformConceptual confusionAmartya SenScientific progressLitigationJurisdictionsCapability approachBioethics, Ukraine, and the Peril of Silence
Fins J. Bioethics, Ukraine, and the Peril of Silence. Cambridge Quarterly Of Healthcare Ethics 2022, 32: 1-3. PMID: 35801289, DOI: 10.1017/s0963180122000238.Peer-Reviewed Original ResearchTowards a Governance Framework for Brain Data
Ienca M, Fins J, Jox R, Jotterand F, Voeneky S, Andorno R, Ball T, Castelluccia C, Chavarriaga R, Chneiweiss H, Ferretti A, Friedrich O, Hurst S, Merkel G, Molnár-Gábor F, Rickli J, Scheibner J, Vayena E, Yuste R, Kellmeyer P. Towards a Governance Framework for Brain Data. Neuroethics 2022, 15: 20. DOI: 10.1007/s12152-022-09498-8.Peer-Reviewed Original ResearchRegulating Posttrial Access to In-Dwelling Class III Neural Devices
Wright M, Fins J. Regulating Posttrial Access to In-Dwelling Class III Neural Devices. 2022, 256-267. DOI: 10.1017/9781108975452.020.Peer-Reviewed Original ResearchMedical device regulationRegulatory lawsDevice regulationCambridge CorePosttrial accessMedical devicesRegulatory concernsOpen AccessPatient privacyRegulationPublic healthMedical providersLawInnovative productsEUBookConcernsControversiesPrivacyPolicymakersAccessUSStakeholdersCambridgeMultidisciplinary evaluation
2021
Is Deliberative Democracy Possible During a Pandemic? Reflections of a Bioethicist
Fins J. Is Deliberative Democracy Possible During a Pandemic? Reflections of a Bioethicist. Journal Of Theoretical And Philosophical Psychology 2021, 41: 216-225. DOI: 10.1037/teo0000191.Peer-Reviewed Original ResearchNew York State Task Force on LifeDeliberative democracyPhysician-assisted suicideProcess of deliberative democracySurrogate decision makingTask ForceAbdication of responsibilityInterface of medicineCrisis standards of careEnd-of-life careDeliberative bodiesEnd-of-lifeVentilator allocationLawAssisted reproductionLandmark reportInterdisciplinary spaceBrain deathDemocracyCOVID-19Health equityVaccine allocationNewborn carePolicy deliberationsPandemic fluInternational Legal Approaches to Neurosurgery for Psychiatric Disorders
Chandler J, Cabrera L, Doshi P, Fecteau S, Fins J, Guinjoan S, Hamani C, Herrera-Ferrá K, Honey C, Illes J, Kopell B, Lipsman N, McDonald P, Mayberg H, Nadler R, Nuttin B, Oliveira-Maia A, Rangel C, Ribeiro R, Salles A, Wu H. International Legal Approaches to Neurosurgery for Psychiatric Disorders. Frontiers In Human Neuroscience 2021, 14: 588458. PMID: 33519399, PMCID: PMC7838635, DOI: 10.3389/fnhum.2020.588458.Peer-Reviewed Original ResearchDisorders of Consciousness, Disability Rights and Triage During the COVID-19 Pandemic
Fins J. Disorders of Consciousness, Disability Rights and Triage During the COVID-19 Pandemic. The Journal Of Philosophy Of Disability 2021, 1: 211-229. DOI: 10.5840/jpd20218174.Peer-Reviewed Original ResearchNew York State Task Force on LifeStruggle for ConsciousnessVentilator allocation guidelinesDisorders of consciousnessTask ForceNot consciousnessEthical integritySpring surgeAllocation guidelinesCOVID-19 pandemicClinical ethicistsAuthorsNew YorkCOVID-19LawBrain injuryConsciousnessDisordersEthicistsNewPeopleMotor outputEthics
2020
The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis.
Ezer T, Wright M, Fins J. The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis. Health And Human Rights 2020, 22: 265-278. PMID: 32669806, PMCID: PMC7348445.Peer-Reviewed Original ResearchConceptsHuman rights analysisFreedom of expressionBlock to treatmentUnited StatesRights analysisLife of personsExperiences of personsTraumatic incidentsQuality of life of personsPersonsScientific progressNeglectMedical advancesBrain injuryInadequate accessLawViolationStateSignificant medical advancesFreedomEqualityInstitutionalizationUnitsInternationalPolicyDisability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
Guidry-Grimes L, Savin K, Stramondo J, Reynolds J, Tsaplina M, Burke T, Ballantyne A, Kittay E, Stahl D, Scully J, Garland-Thomson R, Tarzian A, Dorfman D, Fins J. Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care. The Hastings Center Report 2020, 50: 28-32. PMID: 32596899, DOI: 10.1002/hast.1128.Peer-Reviewed Original ResearchConceptsCrisis standards of careDisability justiceCrisis standardsInclusion of disabled peopleJusticeRecognition justiceStandard of careEquitable processDisabled peopleDecision-makingInstitute of MedicineMovement demandsCrisisHealth careLawVision statementsProvider engagementFairnessCareCOVID-19InterestCrisis planningCommitmentDisaster situationsDisability
2018
Rights language and disorders of consciousness: a call for advocacy
Fins J, Wright M. Rights language and disorders of consciousness: a call for advocacy. Brain Injury 2018, 32: 670-674. PMID: 29393694, DOI: 10.1080/02699052.2018.1430377.Peer-Reviewed Original ResearchConceptsCivil rightsDisability rights lawsRights of PersonsRights-based argumentsReintegration of peopleRights lawUN ConventionRights languageProvision of rehabilitationRightsSociety itselfCivil societyIntegration of peopleReintegrationSocietyMedical mainstreamCare sectorCare of peopleBrain injuryPersonsLawMaximal integrationConventionBrain injury rehabilitationDisorders of consciousness
2017
Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants
2016
The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems
Kellmeyer P, Cochrane T, Müller O, Mitchell C, Ball T, Fins J, Biller-Andorno N. The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems. Cambridge Quarterly Of Healthcare Ethics 2016, 25: 623-633. PMID: 27634714, DOI: 10.1017/s0963180116000359.Peer-Reviewed Original ResearchConceptsClosed-loop medical devicesRepresentatives of patient advocacy groupsMedical lawLegal accountabilityLegal frameworkDecisionmaking capacityRestoring communication abilitiesPersonal autonomyMedical ethicsPatient autonomyMedical devicesAdvocacy groupsAutonomyMedical neuroscienceTask ForceAccountsPatient advocacy groupsPersonsLawConsentComputer scienceRefusalDecisionmakingEthicsAgencies
2008
Islam and Informed Consent: Notes from Doha
DEL POZO P, FINS J. Islam and Informed Consent: Notes from Doha. Cambridge Quarterly Of Healthcare Ethics 2008, 17: 273-279. PMID: 18495067, DOI: 10.1017/s096318010808033x.Peer-Reviewed Original Research
2002
Patently Controversial: Markets, Morals, and the President's Proposal for Embryonic Stem Cell Research
Fins J, Schachter M. Patently Controversial: Markets, Morals, and the President's Proposal for Embryonic Stem Cell Research. Kennedy Institute Of Ethics Journal 2002, 12: 265-278. PMID: 12472079, DOI: 10.1353/ken.2002.0016.Peer-Reviewed Original Research