2022
Health Equity, History, and a New Presidential Bioethics Commission: Lessons from the “Lost” Reports
Kolbe L, Fins J. Health Equity, History, and a New Presidential Bioethics Commission: Lessons from the “Lost” Reports. Journal Of General Internal Medicine 2022, 37: 3471-3474. PMID: 35882708, PMCID: PMC9321266, DOI: 10.1007/s11606-022-07733-9.Peer-Reviewed Original ResearchConceptsHealthcare accessHealth equityAvailability of health servicesUniversal healthcare accessEthical implicationsUS presidential administrationQuestions of justiceAmerica's HealthHealth inequalitiesProblem of racismEquitable healthHealth servicesNational bioethics commissionsPresident's Commission reportPolitical conflictPresidential administrationsBiden administrationHealthcareHealthImplications of differencesCommission reportAmerican bioethicsBioethics commissionsLost” reportsLofty visionTowards a Governance Framework for Brain Data
Ienca M, Fins J, Jox R, Jotterand F, Voeneky S, Andorno R, Ball T, Castelluccia C, Chavarriaga R, Chneiweiss H, Ferretti A, Friedrich O, Hurst S, Merkel G, Molnár-Gábor F, Rickli J, Scheibner J, Vayena E, Yuste R, Kellmeyer P. Towards a Governance Framework for Brain Data. Neuroethics 2022, 15: 20. DOI: 10.1007/s12152-022-09498-8.Peer-Reviewed Original Research
2019
Disorders of Consciousness in Clinical Practice
Fins J. Disorders of Consciousness in Clinical Practice. 2019, 449-478. DOI: 10.1093/med/9780190208875.003.0011.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifeLong-term careImpaired decision-making capacityDisorders of consciousnessClinical practiceDecision-making capacityAncillary care obligationsVulnerable populationsProfessional obligationsCareMinimally conscious stateNeuroimaging assessmentsIntensive careCare obligationsDiagnostic classificationBrain injuryCommunication strategiesCovert consciousnessClinicInitial presentationConscious stateEthical implicationsPatientsRehabilitation
2016
A Survey of Physicians’ Attitudes toward Decision-Making Authority for Initiating and Withdrawing VA-ECMO: Results and Ethical Implications for Shared Decision Making
Meltzer E, Ivascu N, Stark M, Orfanos A, Acres C, Christos P, Mangione T, Fins J. A Survey of Physicians’ Attitudes toward Decision-Making Authority for Initiating and Withdrawing VA-ECMO: Results and Ethical Implications for Shared Decision Making. The Journal Of Clinical Ethics 2016, 27: 281-289. DOI: 10.1086/jce2016274281.Peer-Reviewed Original Research
2007
Neuroimaging and neuroethics: clinical and policy considerations
Fins J, Shapiro Z. Neuroimaging and neuroethics: clinical and policy considerations. Current Opinion In Neurology 2007, 20: 650-654. PMID: 17992084, DOI: 10.1097/wco.0b013e3282f11f6d.Peer-Reviewed Original ResearchConceptsMinimally conscious stateMechanisms of recoveryBrain injuryConscious stateMechanisms of brain recoveryFunctional imagingDiagnostic nosologyDisorders of consciousnessNeuroimaging responsesDiagnostic categoriesSevere brain injuryPremature disseminationNeuroimagingBrain recoveryDisordersHealth policyConsciousness disorderEthical implicationsTherapeutic approachesClinical diagnosisClinical practiceCliniciansPatientsNosologyImplicationsViewpoint: Developing a Research Ethics Consultation Service to Foster Responsive and Responsible Clinical Research
de Melo-Martín I, Palmer L, Fins J. Viewpoint: Developing a Research Ethics Consultation Service to Foster Responsive and Responsible Clinical Research. Academic Medicine 2007, 82: 900-904. PMID: 17726404, DOI: 10.1097/acm.0b013e318132f0ee.Peer-Reviewed Original ResearchMeSH KeywordsBiomedical ResearchCooperative BehaviorCurriculumEthics Committees, ResearchEthics ConsultationEthics, ClinicalEthics, ResearchGovernment RegulationHuman ExperimentationHumansNew YorkOrganizational Case StudiesOrganizational CultureProgram DevelopmentResearch PersonnelSchools, MedicalUnited StatesConceptsEthics consultation servicesResearch ethics consultation serviceResolution of ethical conflictsWeill Medical College of Cornell UniversityClinical ethicsClinical ethicistsInstitutional research policiesEthical conflictsEthical problemsResearch ethicistsEthical implicationsEthical concernsConsultation serviceContext of researchEthicistsOrganizational cultureFostering responsibilityProcess of developmentHealth care landscapeResearch subjectsCornell UniversityEthicsBioethicistsResearch policyCare landscape
2006
Affirming the right to care, preserving the right to die: Disorders of consciousness and neuroethics after Schiavo
Fins J. Affirming the right to care, preserving the right to die: Disorders of consciousness and neuroethics after Schiavo. Palliative & Supportive Care 2006, 4: 169-178. PMID: 16903588, DOI: 10.1017/s1478951506060238.Peer-Reviewed Original ResearchConceptsSchiavo caseRight to lifePermanent vegetative stateEnd-of-life careVegetative stateEthical CurrentsEnd-of-lifeDisorders of consciousnessEthical implicationsSchiavoRhetorical statementsConsciousnessConscious stateIdeological positionsMinimally conscious stateNational discourseRightsDiscourseBrain injuryNeuroscienceProviding careNeuroethicsCareFutilityLife
2003
Gene therapy ethics and haemophilia: an inevitable therapeutic future?
Dimichele D, Miller F, Fins J. Gene therapy ethics and haemophilia: an inevitable therapeutic future? Haemophilia 2003, 9: 145-152. PMID: 12614364, DOI: 10.1046/j.1365-2516.2003.00725.x.Peer-Reviewed Original Research