2017
Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives
Khemani K, Ross D, Sinha C, Haight A, Bakshi N, Krishnamurti L. Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives. Transplantation And Cellular Therapy 2017, 24: 1041-1048. PMID: 29196076, DOI: 10.1016/j.bbmt.2017.11.018.Peer-Reviewed Original ResearchConceptsHematopoietic stem cell transplantSickle cell diseaseStem cell transplantPatient-caregiver dyadsCell transplantCell diseaseSuccessful hematopoietic stem cell transplantAdult long-term survivorsTransplant-related morbidityDisease-related complicationsLong-term survivorsQuality of lifeSemistructured interview guideFocus group sessionsCurative intentHSCT decisionChildhood morbidityCaregivers' knowledgeHSCT experiencePremature mortalityDaily livingDecisional regretPatientsCaregiver perspectivesChild healthcare
2016
Experiences and Decision Making for Bone Marrow Transplant in Sickle Cell Disease: Patients and Caregivers Perspective
Khemani K, Ross D, Haight A, Sinha C, Bakshi N, Krishnamurti L. Experiences and Decision Making for Bone Marrow Transplant in Sickle Cell Disease: Patients and Caregivers Perspective. Blood 2016, 128: 2393. DOI: 10.1182/blood.v128.22.2393.2393.Peer-Reviewed Original ResearchBone marrow transplantationBone marrow transplantSickle cell diseasePatient age rangeMarrow transplantTreatment optionsCell diseaseMost patientsTransplant processBMT processBMT teamAge rangeEffect of BMTClinical situationsFertility issuesOnly curative treatment optionChemotherapy-related side effectsTransplant-related complicationsCurative treatment optionTime of transplantPatient-caregiver dyadsMedian valuePatient's clinical situationTime of interviewRisk/benefit