2020
Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease
Bakshi N, Katoch D, Sinha C, Ross D, Quarmyne M, Loewenstein G, Krishnamurti L. Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease. JAMA Network Open 2020, 3: e206742. PMID: 32469414, PMCID: PMC7260617, DOI: 10.1001/jamanetworkopen.2020.6742.Peer-Reviewed Original ResearchConceptsBone marrow transplantCaregivers of patientsSickle cell diseasePatient decision aidMarrow transplantMedian ageCurative treatmentCell diseaseGroup 2Group 1Caregiver attitudesNovel disease-modifying therapiesDisease-modifying therapiesSickle cell clinicAssessment of patientsFuture prospective studiesRandomized clinical trialsParent trialProspective studyTreatment optionsClinical trialsNeeds assessment phaseMAIN OUTCOMECell clinicPatients
2016
Experiences and Decision Making for Bone Marrow Transplant in Sickle Cell Disease: Patients and Caregivers Perspective
Khemani K, Ross D, Haight A, Sinha C, Bakshi N, Krishnamurti L. Experiences and Decision Making for Bone Marrow Transplant in Sickle Cell Disease: Patients and Caregivers Perspective. Blood 2016, 128: 2393. DOI: 10.1182/blood.v128.22.2393.2393.Peer-Reviewed Original ResearchBone marrow transplantationBone marrow transplantSickle cell diseasePatient age rangeMarrow transplantTreatment optionsCell diseaseMost patientsTransplant processBMT processBMT teamAge rangeEffect of BMTClinical situationsFertility issuesOnly curative treatment optionChemotherapy-related side effectsTransplant-related complicationsCurative treatment optionTime of transplantPatient-caregiver dyadsMedian valuePatient's clinical situationTime of interviewRisk/benefit