2024
Patient Perspectives on Social and Identity Factors Affecting Multiple Myeloma Care: Barriers and Opportunities
Neparidze N, Godara A, Lin D, Le H, Fixler K, Shea L, Everson S, Brittle C, Brunisholz K. Patient Perspectives on Social and Identity Factors Affecting Multiple Myeloma Care: Barriers and Opportunities. Healthcare 2024, 12: 1587. PMID: 39201146, PMCID: PMC11354118, DOI: 10.3390/healthcare12161587.Peer-Reviewed Original ResearchDisease journeyHealth care providersImprove patient supportCare providersPatient prioritiesPatient advocatesPatient perspectiveMedical appointmentsMultiple myelomaPatient supportMultiple barriersInformed treatment decisionsPrioritized needsMultidisciplinary teamTreatment adherenceDisease burdenFocus group researchComprehensive supportImprove outcomesSocial workersTreatment decisionsInsurance optionsMixing methodBurdenSupport
2023
A Mixed Methods Study to Describe the Relationship between Burden of Illness, Social Needs, and Identity Experiences Among Patients with Multiple Myeloma
Neparidze N, Godara A, Lin D, Le H, Fixler K, Shea L, Everson S, Brittle C, Brunisholz K. A Mixed Methods Study to Describe the Relationship between Burden of Illness, Social Needs, and Identity Experiences Among Patients with Multiple Myeloma. Blood 2023, 142: 7353. DOI: 10.1182/blood-2023-178893.Peer-Reviewed Original ResearchBurden of illnessMental health burdenMultiple myelomaPhysical health burdenHealth burdenDisease burdenSide effectsBACKGROUND Multiple myelomaMM patient populationsRelated care processesFive-year survivalRisk of progressionTreatment side effectsRecent treatment advancesChronic health conditionsLack of cureGroup sessionsSemi-structured focus group sessionsHalf of participantsFocus group sessionsRace/ethnicityMost patientsMedical oncologistsMM patientsDisease journey