2015
Palliative Care and Location of Death in Decedents With Idiopathic Pulmonary Fibrosis
Lindell KO, Liang Z, Hoffman LA, Rosenzweig MQ, Saul MI, Pilewski JM, Gibson KF, Kaminski N. Palliative Care and Location of Death in Decedents With Idiopathic Pulmonary Fibrosis. CHEST Journal 2015, 147: 423-429. PMID: 25187973, PMCID: PMC4314817, DOI: 10.1378/chest.14-1127.Peer-Reviewed Original ResearchConceptsIdiopathic pulmonary fibrosisLocation of deathPalliative care referralPalliative careCare referralPulmonary fibrosisAdequacy of endCommunity hospital wardsLung transplant recipientsTiming of referralMajority of patientsObituary listingsTransplant recipientsMedian survivalSymptom burdenSpecialty centersFirst visitHospital settingCenter visitsHospital wardsClinical practiceReferralPatientsDecedentsCare
2009
Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners
Lindell KO, Olshansky E, Song MK, Zullo TG, Gibson KF, Kaminski N, Hoffman LA. Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners. Heart & Lung 2009, 39: 304-313. PMID: 20561836, PMCID: PMC3467095, DOI: 10.1016/j.hrtlng.2009.08.005.Peer-Reviewed Original ResearchMeSH KeywordsAdaptation, PsychologicalAgedAnalysis of VarianceAnxietyCaregiversDepressionDisease ManagementDisease ProgressionFemaleHealth Status IndicatorsHumansIdiopathic Pulmonary FibrosisMalePilot ProjectsPsychometricsQuality of LifeRespiratory Function TestsStress, PsychologicalSurveys and QuestionnairesUnited StatesConceptsDisease management interventionsAdvanced lung diseaseHealth-related qualityIdiopathic pulmonary fibrosisSymptom burdenLung diseaseCare partnersPulmonary fibrosisExperimental group participantsTime of diagnosisInterstitial lung diseaseExperimental group patientsGroup participantsPittsburgh Medical CenterDisease management programsPulmonary fibrosis resultsGroup patientsRespiratory failureUsual careMedian survivalIntervention groupPatient participantsMedical CenterFibrosis resultsPatients